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Re: Cool Stuff on The List Lately - Tony, Staph Toxin, Newcaste Questions

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I did get something from a local allergy specialist called a staph

toxoid vaccine which I found brilliant- yet it wore off

quick.Apparently there's a couple of different versions of this and

I think it's big vetenary medicine more than human medicine. There's

a company in switzerland BERN pharmaceuticals that make this- I

think.It's also sometyhing that comes in different grades or

strengths again the one I got isn't necessarily the one that they

talk about in the study.

Actually to give you an idea of the vaccine I put subdermally- while

flaring/feeling miserable it stopped me almost after 10 minutes.Th

effect sort of lasts the day and the preceeding days aren't as bad.

More later I'm out the door.

tony

> Hey Tony, I found that study you posted about the therapeutic use

of

> PST [purified staph toxin] totally fascinating.

>

> I was wondering if you could elaborate on a few things:

>

> 1) I easily found multiple references to the PST experiments, but

> not to the initial findings that gave rise to them, which I think

is

> where a lot of your excitement came from. Can you help point me to

> more documentation on just what the Newcastle researchers found

that

> was different in CFS patients? What was that test they used, that

> was telling us docs weren't sure how to interpret? I'd

like

> to know as much about that as possible.

>

> 2) Readings gave me the impression that PST was widely used in

> Russia, and that this had something to do with a prevalence of abx-

> resistant staph - are you familiar with that side of it? I found

> references to it being used for atopic dermatitis, as well as CFS

> and FM - anything else?

>

> 3) It seems kinda unfortuante that the PST CFS/FM studies relied

so

> heavily on a psychiatric assessment, the Comprehensive

> Psychopathological Rating Scale, to determine improvements. Any

idea

> why things more directly relevant to the diagnoses, like tender

> point sensitivity, exercise tolerance, physical stamina, cognitive

> performance, etc weren't used?

>

> 4) I found references to one of the Newcastle guys

> saying " antibiotics are useless in these patients. " What do you

make

> of that statement? It seems like that assessment led directly to

the

> use of PST, but I'd like to know more on how they arrived at it.

>

> 5) Do you know if PST is still in wide clinical use in Russia? Has

> it ever made into clinical use anywhere else?

>

> I know, lots of questions. But that's what happens when I read

> something interesting. I wanna know more.

>

> The highest-priority question is my first one, about the testing

> that lead up to this. Where the heck is the documentation for

that?

> Did I just miss it?

>

> Thanks much,

>

> S.

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Tony, and the group,

Staph toxoid has been studied by a group in Sweden for treating CFS

for several years, and they have had some success, but they have to

keep doing it. Again, I think it's a case of not getting the immune

system to the point where it can take over and hold off the bugs.

It would be interesting to know how these people would have

responded if their glutathione had been built up at the same time

they were given the staph toxoid. Here is the abstract of their

most recent paper:

Eur J Pain. 2002;6(6):455-66.

Treatment with staphylococcus toxoid in fibromyalgia/chronic fatigue

syndrome--a randomised controlled trial.

Zachrisson O, Regland B, Jahreskog M, Jonsson M, Kron M, Gottfries

CG.

Psychiatry Section, Institute of Clinical Neuroscience, Goteborg

University, Goteborg, Sweden. olof.zachrisson@...

We have previously conducted a small treatment study on

staphylococcus toxoid in fibromyalgia (FM) and chronic fatigue

syndrome (CFS). The aim of the present study was to further assess

the efficacy of the staphylococcus toxoid preparation Staphypan

Berna (SB) during 6 months in FM/CFS patients. One hundred

consecutively referred patients fulfilling the ACR criteria for FM

and the 1994 CDC criteria for CFS were randomised to receive active

drug or placebo. Treatment included weekly injections containing 0.1

ml, 0.2 ml, 0.3 ml, 0.4 ml, 0.6 ml, 0.8 ml, 0.9 ml, and 1.0 ml SB or

coloured sterile water, followed by booster doses given 4-weekly

until endpoint. Main outcome measures were the proportion of

responders according to global ratings and the proportion of

patients with a symptom reduction of > or =50% on a 15-item subscale

derived from the comprehensive psychopathological rating scale

(CPRS). The treatment was well tolerated. Intention-to-treat

analysis showed 32/49 (65%) responders in the SB group compared to

9/49 (18%) in the placebo group (P<0.001). Sixteen patients (33%) in

the SB group reduced their CPRS scores by at least 50% compared to

five patients (10%) in the placebo group (P< 0.01). Mean change

score on the CPRS (95% confidence interval) was 10.0 (6.7-13.3) in

the SB group and 3.9 (1.1-6.6) in the placebo group (P<0.01). An

increase in CPRS symptoms at withdrawal was noted in the SB group.

In conclusion, treatment with staphylococcus toxoid injections over

6 months led to significant improvement in patients with FM and CFS.

Maintenance treatment is required to prevent relapse.

Publication Types:

Clinical Trial

Randomized Controlled Trial

PMID: 12413434 [PubMed - indexed for MEDLINE]

Rich

>

> I did get something from a local allergy specialist called a staph

> toxoid vaccine which I found brilliant- yet it wore off

> quick.Apparently there's a couple of different versions of this

and

> I think it's big vetenary medicine more than human medicine.

There's

> a company in switzerland BERN pharmaceuticals that make this- I

> think.It's also sometyhing that comes in different grades or

> strengths again the one I got isn't necessarily the one that they

> talk about in the study.

> Actually to give you an idea of the vaccine I put subdermally-

while

> flaring/feeling miserable it stopped me almost after 10 minutes.Th

> effect sort of lasts the day and the preceeding days aren't as bad.

> More later I'm out the door.

> tony

>

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Yep, Rich, this is the study Tony shared with us that got it the

discussion started.

It's a shame the effects are so temporary, but very interesting that

they occur at all.

I had the same thought you did, that it would have been interesting

to see it combined with glutathione or its precursors.

Mostly, I would like to understand better how it works. Not a true

vaccine, since it doesn't develop immunity - but what exactly IS it

doing?

> >

> > I did get something from a local allergy specialist called a

staph

> > toxoid vaccine which I found brilliant- yet it wore off

> > quick.Apparently there's a couple of different versions of this

> and

> > I think it's big vetenary medicine more than human medicine.

> There's

> > a company in switzerland BERN pharmaceuticals that make this- I

> > think.It's also sometyhing that comes in different grades or

> > strengths again the one I got isn't necessarily the one that

they

> > talk about in the study.

> > Actually to give you an idea of the vaccine I put subdermally-

> while

> > flaring/feeling miserable it stopped me almost after 10

minutes.Th

> > effect sort of lasts the day and the preceeding days aren't as

bad.

> > More later I'm out the door.

> > tony

> >

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I truly think it helps you cope with thge toxins. I feel the failure

of any therapy in fibro/cfs falls at the feet of the hammering your

body has endured while not being treated often for several years.If

you walked up to a healthy cow in the field and walked up to a human

in a shopping mall the cow is closer to pristine than the battered

human. So therpy in the animal model may not relate nicely to the

battered human model. Frequently the battered human model is

carrying a mouth full of multiple infection sites due to lifestyle

choices, high sugar, high fat, processed foods with additives,

coagulating blood. The cow would be the better candidate to treat

because it's never as far from baseline health/habits as many humans

may be.

> > >

> > > I did get something from a local allergy specialist called a

> staph

> > > toxoid vaccine which I found brilliant- yet it wore off

> > > quick.Apparently there's a couple of different versions of

this

> > and

> > > I think it's big vetenary medicine more than human medicine.

> > There's

> > > a company in switzerland BERN pharmaceuticals that make this-

I

> > > think.It's also sometyhing that comes in different grades or

> > > strengths again the one I got isn't necessarily the one that

> they

> > > talk about in the study.

> > > Actually to give you an idea of the vaccine I put subdermally-

> > while

> > > flaring/feeling miserable it stopped me almost after 10

> minutes.Th

> > > effect sort of lasts the day and the preceeding days aren't as

> bad.

> > > More later I'm out the door.

> > > tony

> > >

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I'll attempt to recall whjat I remember about the cfs newcastle

stuff.The urine metabolites that they observed using I think gas

chromotography, just basically sophisticated lab equipemnt- enabled

them to screen for pain markers and depression markers.When you pee

the inflammation/toxins tell a lot of stories in your urine.

The urine is not the same once you cross over into autoimmune.A

simple explanation I suppose, but looking for markers is informative.

The screwed bowel flora, a move away from beneficial E coli which in

most number 80%- to 40% in the ill, followed closely by alpha

haemolytic streptococcus an oral only bacteria, then high number's

of enterococcus possably a food chain demented bug. High levels of

vancomycin resistant enterococcus appear in supermarket chickens.(1

in 10).

So basically you have slime and post nasal drip often that your not

even aware of that keeps the stomach and bowel under the pump from

sinus oral flows that just keep the toxic bacteria eroding and

dementing your whole bowel flora.People are alway's trying to add

the supplements yet DON " T ADDRESS THE SINUS PROBLEM. You can't

colonise the gut correctly when an all day drip can add up to a

bucket load of slime.

The other finding was the toxic molecule produced by coagulase

negative staph that was just shy of a staph areus toxic molecule.

They also realise that these staph produce toxic shock toxins, delta

toxins. It's basically a study totally focused on sinus bacteria

flowing into screwed bowel flora bacteria and toxin expression of

bacteria causing pain and many irregularioties in the body showing

up as screwd urine markers not like normal folk.

tony

> Hey Tony, I found that study you posted about the therapeutic use

of

> PST [purified staph toxin] totally fascinating.

>

> I was wondering if you could elaborate on a few things:

>

> 1) I easily found multiple references to the PST experiments, but

> not to the initial findings that gave rise to them, which I think

is

> where a lot of your excitement came from. Can you help point me to

> more documentation on just what the Newcastle researchers found

that

> was different in CFS patients? What was that test they used, that

> was telling us docs weren't sure how to interpret? I'd

like

> to know as much about that as possible.

>

> 2) Readings gave me the impression that PST was widely used in

> Russia, and that this had something to do with a prevalence of abx-

> resistant staph - are you familiar with that side of it? I found

> references to it being used for atopic dermatitis, as well as CFS

> and FM - anything else?

>

> 3) It seems kinda unfortuante that the PST CFS/FM studies relied

so

> heavily on a psychiatric assessment, the Comprehensive

> Psychopathological Rating Scale, to determine improvements. Any

idea

> why things more directly relevant to the diagnoses, like tender

> point sensitivity, exercise tolerance, physical stamina, cognitive

> performance, etc weren't used?

>

> 4) I found references to one of the Newcastle guys

> saying " antibiotics are useless in these patients. " What do you

make

> of that statement? It seems like that assessment led directly to

the

> use of PST, but I'd like to know more on how they arrived at it.

>

> 5) Do you know if PST is still in wide clinical use in Russia? Has

> it ever made into clinical use anywhere else?

>

> I know, lots of questions. But that's what happens when I read

> something interesting. I wanna know more.

>

> The highest-priority question is my first one, about the testing

> that lead up to this. Where the heck is the documentation for

that?

> Did I just miss it?

>

> Thanks much,

>

> S.

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Thanks much, Tony! This is a nice, clear, explanation.

I think the question that remains, that really needs to be answered

to help people get these cultures done, is why:

a) We have the Newcastle guys saying " antibiotics are useless with

these patients "

B) We have Tarello (who seems to be looking at blood, not gut flora

or unite metabolites, though maybe he did those too) saying arsenic

works like a charm but 3 years of antibiotics got him and his wife

nowhere.

In other words, where you went with these findings, to culturing and

treating with abx based on what cultures reveal, is not where either

of these researchers seem to have ended up.

Why is that?

S.

> > Hey Tony, I found that study you posted about the therapeutic

use

> of

> > PST [purified staph toxin] totally fascinating.

> >

> > I was wondering if you could elaborate on a few things:

> >

> > 1) I easily found multiple references to the PST experiments,

but

> > not to the initial findings that gave rise to them, which I

think

> is

> > where a lot of your excitement came from. Can you help point me

to

> > more documentation on just what the Newcastle researchers found

> that

> > was different in CFS patients? What was that test they used,

that

> > was telling us docs weren't sure how to interpret? I'd

> like

> > to know as much about that as possible.

> >

> > 2) Readings gave me the impression that PST was widely used in

> > Russia, and that this had something to do with a prevalence of

abx-

> > resistant staph - are you familiar with that side of it? I found

> > references to it being used for atopic dermatitis, as well as

CFS

> > and FM - anything else?

> >

> > 3) It seems kinda unfortuante that the PST CFS/FM studies relied

> so

> > heavily on a psychiatric assessment, the Comprehensive

> > Psychopathological Rating Scale, to determine improvements. Any

> idea

> > why things more directly relevant to the diagnoses, like tender

> > point sensitivity, exercise tolerance, physical stamina,

cognitive

> > performance, etc weren't used?

> >

> > 4) I found references to one of the Newcastle guys

> > saying " antibiotics are useless in these patients. " What do you

> make

> > of that statement? It seems like that assessment led directly to

> the

> > use of PST, but I'd like to know more on how they arrived at it.

> >

> > 5) Do you know if PST is still in wide clinical use in Russia?

Has

> > it ever made into clinical use anywhere else?

> >

> > I know, lots of questions. But that's what happens when I read

> > something interesting. I wanna know more.

> >

> > The highest-priority question is my first one, about the testing

> > that lead up to this. Where the heck is the documentation for

> that?

> > Did I just miss it?

> >

> > Thanks much,

> >

> > S.

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wrote: " The other finding was the toxic molecule produced by

coagulase negative staph that was just shy of a staph areus toxic

molecule. "

If you've read Ritchie Shoemaker's theories on Coag Neg Staph, how

does this relate? Are you saying that the staph areus produces

toxins as bad as the coag neg staph? What urine tests are done to

show auto-immune problems that follow these staph infections and

toxin buildup?

I'm tuning in late here, and I will read more, but is the use of PST

like homeopathy/energy medicine? Thanks!

> > Hey Tony, I found that study you posted about the therapeutic use

> of

> > PST [purified staph toxin] totally fascinating.

> >

> > I was wondering if you could elaborate on a few things:

> >

> > 1) I easily found multiple references to the PST experiments, but

> > not to the initial findings that gave rise to them, which I think

> is

> > where a lot of your excitement came from. Can you help point me

to

> > more documentation on just what the Newcastle researchers found

> that

> > was different in CFS patients? What was that test they used, that

> > was telling us docs weren't sure how to interpret? I'd

> like

> > to know as much about that as possible.

> >

> > 2) Readings gave me the impression that PST was widely used in

> > Russia, and that this had something to do with a prevalence of

abx-

> > resistant staph - are you familiar with that side of it? I found

> > references to it being used for atopic dermatitis, as well as CFS

> > and FM - anything else?

> >

> > 3) It seems kinda unfortuante that the PST CFS/FM studies relied

> so

> > heavily on a psychiatric assessment, the Comprehensive

> > Psychopathological Rating Scale, to determine improvements. Any

> idea

> > why things more directly relevant to the diagnoses, like tender

> > point sensitivity, exercise tolerance, physical stamina,

cognitive

> > performance, etc weren't used?

> >

> > 4) I found references to one of the Newcastle guys

> > saying " antibiotics are useless in these patients. " What do you

> make

> > of that statement? It seems like that assessment led directly to

> the

> > use of PST, but I'd like to know more on how they arrived at it.

> >

> > 5) Do you know if PST is still in wide clinical use in Russia?

Has

> > it ever made into clinical use anywhere else?

> >

> > I know, lots of questions. But that's what happens when I read

> > something interesting. I wanna know more.

> >

> > The highest-priority question is my first one, about the testing

> > that lead up to this. Where the heck is the documentation for

> that?

> > Did I just miss it?

> >

> > Thanks much,

> >

> > S.

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Most people are doing the 2 doxy a day recommended by the fda type

treatments(mostly failure). I believe in the multi therapy with best

choice, and understanding you have area's so damaged they need long

hard therapy similar to tuberculosis to chisel away at them. Also I

advocate IV hard therapy because it's encephalitis/meningitis that

alway's gets serious treatment. Do you understanbd what upto 80

grams of penicillin a day looks like? Compare that to 1 gram of

ceftriaxone or if your lucky 2 grams. Who's trying to get an

infection out seriously, the guy that's dosing meningitis/blood

poisioning levels or the 2 doxy a day mild improvement dudes.Can you

see where the pharmaceutical literature doesn't stack up? Tarello

and newcastle are doing recommended stuff yet the literature is

what's incorrect and why you see I'm a little twisted in my beliefs.

An egs. I often quote is my cousins run in wityh his strep throat

episodes, once yearlky and maybe sometimes twice yearly. A whole box

of amoxacillin doesn't cut it, one jab in the ass and he's good to

go an hour later.The medicalk literature mostly doesn't stack up, I

also observe this with all the patients that supposedly do this that

and the otherand they were like labratory rats that got well and my

friends hunt them down and there not there?

Again tarello does the fda recommende 2 doxy a day and gets knowhere

on an infection this size. His arsenical therapy distributes thru

tissue like no other therapy.His animal models again are different

than us. I think of a cow and how it would be fit for consumption,

if they dissected us we would fail to pass all the consumption tests.

What do we have as an option? I know that it's an engrained bone

eroding soft tissue destroying infection opf the hiughest magnitude-

I just adopt ideologies like TUBERCULSOS attack into my line of

thinking because I know our infection to be larger than this.

> > > Hey Tony, I found that study you posted about the therapeutic

> use

> > of

> > > PST [purified staph toxin] totally fascinating.

> > >

> > > I was wondering if you could elaborate on a few things:

> > >

> > > 1) I easily found multiple references to the PST experiments,

> but

> > > not to the initial findings that gave rise to them, which I

> think

> > is

> > > where a lot of your excitement came from. Can you help point

me

> to

> > > more documentation on just what the Newcastle researchers

found

> > that

> > > was different in CFS patients? What was that test they used,

> that

> > > was telling us docs weren't sure how to interpret? I'd

> > like

> > > to know as much about that as possible.

> > >

> > > 2) Readings gave me the impression that PST was widely used in

> > > Russia, and that this had something to do with a prevalence of

> abx-

> > > resistant staph - are you familiar with that side of it? I

found

> > > references to it being used for atopic dermatitis, as well as

> CFS

> > > and FM - anything else?

> > >

> > > 3) It seems kinda unfortuante that the PST CFS/FM studies

relied

> > so

> > > heavily on a psychiatric assessment, the Comprehensive

> > > Psychopathological Rating Scale, to determine improvements.

Any

> > idea

> > > why things more directly relevant to the diagnoses, like

tender

> > > point sensitivity, exercise tolerance, physical stamina,

> cognitive

> > > performance, etc weren't used?

> > >

> > > 4) I found references to one of the Newcastle guys

> > > saying " antibiotics are useless in these patients. " What do

you

> > make

> > > of that statement? It seems like that assessment led directly

to

> > the

> > > use of PST, but I'd like to know more on how they arrived at

it.

> > >

> > > 5) Do you know if PST is still in wide clinical use in Russia?

> Has

> > > it ever made into clinical use anywhere else?

> > >

> > > I know, lots of questions. But that's what happens when I read

> > > something interesting. I wanna know more.

> > >

> > > The highest-priority question is my first one, about the

testing

> > > that lead up to this. Where the heck is the documentation for

> > that?

> > > Did I just miss it?

> > >

> > > Thanks much,

> > >

> > > S.

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I think the toxin staph areus produces which causes ACUTE ILL HEALTH

is just shy of the mark when you look at this new toxin coagulase

negative staph produces that the newcastle team studied in the sinus

issues.It's basically a 25 molecule toxin just shy of the 26

molecule staph areus toxin.I just read this yerars ago and this is a

vague overview. I know that everything they did they did it

according to all the correct protocols as opposed to tarello a

single operator that just shared his own experiences and did what

the merck manual and examples of animal disease and arsenicals had

to offer.

> > > Hey Tony, I found that study you posted about the therapeutic

use

> > of

> > > PST [purified staph toxin] totally fascinating.

> > >

> > > I was wondering if you could elaborate on a few things:

> > >

> > > 1) I easily found multiple references to the PST experiments,

but

> > > not to the initial findings that gave rise to them, which I

think

> > is

> > > where a lot of your excitement came from. Can you help point

me

> to

> > > more documentation on just what the Newcastle researchers

found

> > that

> > > was different in CFS patients? What was that test they used,

that

> > > was telling us docs weren't sure how to interpret? I'd

> > like

> > > to know as much about that as possible.

> > >

> > > 2) Readings gave me the impression that PST was widely used in

> > > Russia, and that this had something to do with a prevalence of

> abx-

> > > resistant staph - are you familiar with that side of it? I

found

> > > references to it being used for atopic dermatitis, as well as

CFS

> > > and FM - anything else?

> > >

> > > 3) It seems kinda unfortuante that the PST CFS/FM studies

relied

> > so

> > > heavily on a psychiatric assessment, the Comprehensive

> > > Psychopathological Rating Scale, to determine improvements.

Any

> > idea

> > > why things more directly relevant to the diagnoses, like

tender

> > > point sensitivity, exercise tolerance, physical stamina,

> cognitive

> > > performance, etc weren't used?

> > >

> > > 4) I found references to one of the Newcastle guys

> > > saying " antibiotics are useless in these patients. " What do

you

> > make

> > > of that statement? It seems like that assessment led directly

to

> > the

> > > use of PST, but I'd like to know more on how they arrived at

it.

> > >

> > > 5) Do you know if PST is still in wide clinical use in Russia?

> Has

> > > it ever made into clinical use anywhere else?

> > >

> > > I know, lots of questions. But that's what happens when I read

> > > something interesting. I wanna know more.

> > >

> > > The highest-priority question is my first one, about the

testing

> > > that lead up to this. Where the heck is the documentation for

> > that?

> > > Did I just miss it?

> > >

> > > Thanks much,

> > >

> > > S.

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Interesting that someone has markers in the urine, I could smell a

difference in my urine when I was feeling miserable. Kind of a soft

fruity vanilla peach odor to it. I was wondering about this for a

while. I'm feeling better and my urine has the more normal urine

smell. This is a very qualitative observation. I was Bowen positive

for Lyme. You could see the L form spheres of Lyme in the

WBC/Monocytes? flourese in the photos they sent.

> > Hey Tony, I found that study you posted about the therapeutic

use

> of

> > PST [purified staph toxin] totally fascinating.

> >

> > I was wondering if you could elaborate on a few things:

> >

> > 1) I easily found multiple references to the PST experiments,

but

> > not to the initial findings that gave rise to them, which I

think

> is

> > where a lot of your excitement came from. Can you help point me

to

> > more documentation on just what the Newcastle researchers found

> that

> > was different in CFS patients? What was that test they used,

that

> > was telling us docs weren't sure how to interpret? I'd

> like

> > to know as much about that as possible.

> >

> > 2) Readings gave me the impression that PST was widely used in

> > Russia, and that this had something to do with a prevalence of

abx-

> > resistant staph - are you familiar with that side of it? I found

> > references to it being used for atopic dermatitis, as well as

CFS

> > and FM - anything else?

> >

> > 3) It seems kinda unfortuante that the PST CFS/FM studies relied

> so

> > heavily on a psychiatric assessment, the Comprehensive

> > Psychopathological Rating Scale, to determine improvements. Any

> idea

> > why things more directly relevant to the diagnoses, like tender

> > point sensitivity, exercise tolerance, physical stamina,

cognitive

> > performance, etc weren't used?

> >

> > 4) I found references to one of the Newcastle guys

> > saying " antibiotics are useless in these patients. " What do you

> make

> > of that statement? It seems like that assessment led directly to

> the

> > use of PST, but I'd like to know more on how they arrived at it.

> >

> > 5) Do you know if PST is still in wide clinical use in Russia?

Has

> > it ever made into clinical use anywhere else?

> >

> > I know, lots of questions. But that's what happens when I read

> > something interesting. I wanna know more.

> >

> > The highest-priority question is my first one, about the testing

> > that lead up to this. Where the heck is the documentation for

> that?

> > Did I just miss it?

> >

> > Thanks much,

> >

> > S.

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That fruity smell is frequently pseudonomads in my culture plates.

But there's no way known on the planet that your good when your

violently ill, on carefull observation half the inside of your

bladder is showing up in your urine.I just get so pissed off when

the crap that is fed to people is gobbled up like gospel.When you

get ill you can feel the inflammation/TOXINS in your urine even-IT'S

JUST NO LONGER THE SAME WHEN YOU CROSS THE LINE INTO ILL HEALTH.

> > > Hey Tony, I found that study you posted about the therapeutic

> use

> > of

> > > PST [purified staph toxin] totally fascinating.

> > >

> > > I was wondering if you could elaborate on a few things:

> > >

> > > 1) I easily found multiple references to the PST experiments,

> but

> > > not to the initial findings that gave rise to them, which I

> think

> > is

> > > where a lot of your excitement came from. Can you help point

me

> to

> > > more documentation on just what the Newcastle researchers

found

> > that

> > > was different in CFS patients? What was that test they used,

> that

> > > was telling us docs weren't sure how to interpret? I'd

> > like

> > > to know as much about that as possible.

> > >

> > > 2) Readings gave me the impression that PST was widely used in

> > > Russia, and that this had something to do with a prevalence of

> abx-

> > > resistant staph - are you familiar with that side of it? I

found

> > > references to it being used for atopic dermatitis, as well as

> CFS

> > > and FM - anything else?

> > >

> > > 3) It seems kinda unfortuante that the PST CFS/FM studies

relied

> > so

> > > heavily on a psychiatric assessment, the Comprehensive

> > > Psychopathological Rating Scale, to determine improvements.

Any

> > idea

> > > why things more directly relevant to the diagnoses, like

tender

> > > point sensitivity, exercise tolerance, physical stamina,

> cognitive

> > > performance, etc weren't used?

> > >

> > > 4) I found references to one of the Newcastle guys

> > > saying " antibiotics are useless in these patients. " What do

you

> > make

> > > of that statement? It seems like that assessment led directly

to

> > the

> > > use of PST, but I'd like to know more on how they arrived at

it.

> > >

> > > 5) Do you know if PST is still in wide clinical use in Russia?

> Has

> > > it ever made into clinical use anywhere else?

> > >

> > > I know, lots of questions. But that's what happens when I read

> > > something interesting. I wanna know more.

> > >

> > > The highest-priority question is my first one, about the

testing

> > > that lead up to this. Where the heck is the documentation for

> > that?

> > > Did I just miss it?

> > >

> > > Thanks much,

> > >

> > > S.

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