Re: Language/Speech Therapy

[Guest guest]

Did Finn have all the early ABA stuff or can you just go straight to VB.

We never did ABA due to the fact that was in so much pain for years, poohing constantly etc, there was no way he could have attended to anything intense, but he certainly could now.

Vicky

[Guest guest]

Thanks Margaret

Is it something you can do alongside school?

Is it dreadfully expensive?

Money too tight to mention as per usual.

TIA

Vicky

[Guest guest]

Thanks Margaret, it would be completely out of our price range, can't even imagine running to part time if it could even be done on that basis, would be interesting to know though, and ofcourse there's his age, 11 now.

Why is everything useful so expensive?

is in a very good school but they do lack that extra knowledge and everything I have seen locally advertised as seminars has been the same old, same old.

I went to one last year where this "expert" was telling us all, with images on powerpoint or whatever it is that her teenage son could come into a room and spot a handle on a drawer not quite down properly, as though it were a really exciting skill and actually had any use in his life.

My can do that a hundred times a day, but he can't talk.

Wittering now, they did have Raun Kaufman here a couple of years ago, suppose that is as good as it gets locally and I don't know if anyone other than parents went to hear him, probably not.

Vicky

[Guest guest]

Dear Vicky,

We started VB when Henry was 7 1/2, he had not had any ABA before that -

just the standard special school menu.

Margaret

>

> Did Finn have all the early ABA stuff or can you just go straight to

VB.

> We never did ABA due to the fact that was in so much pain for

years,

> poohing constantly etc, there was no way he could have attended to

anything

> intense, but he certainly could now.

> Vicky

>

[Guest guest]

It is very expensive; a full programme costs about £30k pa. However,

Caudwell are giving up to £5K(!) a time to families starting

programmes - it may be worth talking to them to see how much support

they might be able to give and for how long.

Shall I talk in general terms to Henry's programme consultant about the

possibility of just having a part-time after school programme, ie

whether you can get some result from less than a full programme with an

older child?

Margaret

>

> Thanks Margaret

> Is it something you can do alongside school?

> Is it dreadfully expensive?

> Money too tight to mention as per usual.

> TIA

> Vicky

>

[Guest guest]

My son is only four but is nonverbal (he has severe oro-motor and verbal dyspraxia) with autistic tendencies and very similar to autistic children physically in his test results which is why we do biomedical. He sees a speech therapist who specialises in dyspraxia and this has definitely helped - he can now produce most sounds (when he started eight months ago he could only make three different sounds and now he can kind of say some words) and has control over his tongue which means no more dribbling. We had speech therapy before this (private and local authority) with absolutely no progress. I would look into dyspraxia and try to find a specialist as there is a different speech therapy protocol with dyspraxia than from other speech disorders. Not sure where you live but the Nuffield Hearing and Speech Centre in London can provide assessment if you don't have anyone nearby. I haven't been but my son's speech therapist worked there for six years so she did our assessment.

http://www.royalfree.nhs.uk/default.aspx?top_nav_id=1 & sel_left_nav=25 & tab_id=381

We also did Auditory Integration Therapy last month and have seen real improvement immediately following it. It has to do with retraining the brain/senses and even though their hearing test is normal some children have problems with certain frequencies. They do have children who speak their first words following therapy but I think that's less common. It sounds kind of odd (you listen to music and look at flashing lights) but it completely cured my son of his aversion to loud noises, his coordination improved, his attention is much better and he seems to understand things faster, rather than thinking about them first. I would certainly recommend it. We went to the Sound Learning Centre in Palmers Green in north London but there is another place as well which is supposed to be good in Stoke Newington and some local authorities have paid for it (ours didn't).

http://www.thesoundlearningcentre.co.uk/

If you would like any more information please let me know

To: Autism-Biomedical-Europe From: MaddiganV@...Date: Tue, 16 Sep 2008 10:38:26 +0000Subject: Language/Speech Therapy

Outside of biomedical interventions what has anyone done regards language for non verbals? gets the meagre hour a week speech therapy at school, but to be honest I don't really think the man is up to the job and an hour a day with him wouldn't make any difference imo.I also think has some kind of oral motor difficulties because there are sounds he just cannot make.I am of the opinion that he himself has kind of thrown in the towel.Language is what marks him out as being so severe as it is the most profound of all his difficulties and the least responsive to interventions.He understands everything said to him, he is aware and with us, he is happy and content 90% of the time.I'm reluctant to mention it to OT or even school as I know we will get the eyes up, this woman doesn't understand her son is autistic response but at the same time I think communication should be the most important part of his school day.I actually wish County didn't have SLT as then we would have been able to argue for it at tribunal and got someone who knows what they are doing, no point arguing for more of what he gets now.If anyone has a child over say 8 or 9 who gained language I would love to hear from them, the age is relevent in s case because I do believe lack of use is part of the problem here.TIAVicky Win £3000 to spend on whatever you want at Uni! Click here to WIN!

[Guest guest]

--- Dr Carbone is doing a 3 day Intro VB workshop in March in York.That would be

priceless IMHO(beg,borrow steal).I went to his intro workshop over 8 years ago

and he

showed a clip of someone in his 30's who started to communicate ,i still get

choked up

thinking about it,.

i also got hubby to go and it was lifechanging for us.

Also some children just dont get the concept of i talk,i get ,unless its

practised lots of

times,have seen progs where pecs/sign/vocal is done 10-15 /day but some kids

need to

do it 100 plus times a day before they understand the concept and request

spontaneously.

BW Nina

In Autism-Biomedical-Europe , MaddiganV@... wrote:

>

> Thanks Margaret, it would be completely out of our price range, can't even

> imagine running to part time if it could even be done on that basis, would be

> interesting to know though, and ofcourse there's his age, 11 now.

> Why is everything useful so expensive?

> is in a very good school but they do lack that extra knowledge and

> everything I have seen locally advertised as seminars has been the same old,

same

> old.

> I went to one last year where this " expert " was telling us all, with images

> on powerpoint or whatever it is that her teenage son could come into a room

> and spot a handle on a drawer not quite down properly, as though it were a

> really exciting skill and actually had any use in his life.

> My can do that a hundred times a day, but he can't talk.

> Wittering now, they did have Raun Kaufman here a couple of years ago,

> suppose that is as good as it gets locally and I don't know if anyone other

than

> parents went to hear him, probably not.

> Vicky

>

[Guest guest]

> --- " Dr Carbone is doing a 3 day Intro VB workshop in March in York. "

>Can anyone give me futher information about this. I only managed to

find infomation about a past workshop in Essex in march 2008.

Thank You

Pilar

[Guest guest]

--- Hiya,

Workshop Details should be on Dr Carbone's website.

Contact name is Rounding,Kingsmill Special School

being held at The York Racecourse,The Knavesmire,York.

His workshops are just BRILLIANT,

BW Nina .

In Autism-Biomedical-Europe , " pilar_reyes_sierra "

wrote:

>

>

> > --- " Dr Carbone is doing a 3 day Intro VB workshop in March in York. "

> >Can anyone give me futher information about this. I only managed to

> find infomation about a past workshop in Essex in march 2008.

> Thank You

>

> Pilar

>