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Peg - BiPAP and various

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> > My sister said

> > that

> > > if it gets bad enough, eventually I'll get a life and forget

> this

> > > farce.

I really know how that crap is. If there are some observable

indications of illness that you can calmly show your sister, than you

might try doing that, as long as you dont invest too much in the

effort. Otherwise, I second Pennys suggestion to just try to totally

forget about that kind of crap from people if need be.

It can be really hard to stop thinking about that stuff, cause it can

be so enraging (especially if you have certain kinds of CNS things

going on). I definitely blew my stack a few times in the old days, as

far as yelling to shake the walls goes, when I was really sick. Now

when something pisses me off bigtime I usually blow off some steam by

filing a oath-laden " official complaint " as it were with my best sick

friend Mr Scha, and then I try to forget about it. Being mad is just

harmful. Direct all energy into treatment and to maintaining some

sort of connection with joy however vanishingly tiny it may be.

Whats up with your bi-PAP right now in terms of the nitty gritty? Are

you using it? Trying to get it calibrated by one of the sleep

centers? There has to be a sleep lab somewhere that will take you. I

would guess that neuros with a sleep specialty can lean on those labs

pretty hard if they want to give you a referral and know there may be

difficulty... if none of the labs will take you on you might think of

trying more neuros... even tho the last one you saw sounds like a

gigantic piece of crap, they cant all be alike.

best,

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