Porphyria, Stratton, etc

[Guest guest]

Tony-

I think the first decision is whether one is going to

test for porphyria (24 hour urine or stool is what

Stratton refers to) or assume it off of the symptoms.

I'm going to see if I can get my daughter tested, as

I'm suspicious that her " neurotoxin " symptoms (as our

CFS doc refers to them) are actually porphyric. I'm

going to try to do the same the next time I'm doing

the Tini pulse and see if porphric levels rise, as I

think this has been a problem for me for a long time.

What I appreciate about Stratton's handout is there

are a number of natural ways to address it right off:

lot's of H2O to dilute the water soluble porphyrins,

B-vitamins (Colorbleu- you've been the champion for

these ever since I've been on the list- I may become a

convert!), anti-oxidants, etc. Of course, all of us

have tried or are currently using these as a matter of

course. I'm not at the B-12 levels suggested, but do

notice it. I've just received the Entreclens

(charccoal and clay) which is clearly a high quality

product, reasonable taste, and you can really get a

significant dose of charcoal easily. One trial made no

noticable impact, but I think the real test will be

during my next Tini pulse.

As for drugs vs clearing, I have some

hydrochloroquinine to try and see if it makes a

difference in my reactions to the Tini.

Nelly-

I also read Wheldon and Stratton's unpublished draft

(last night, as he just sent it to me). While he asked

not to directly quote it at any length, there's some

interesting info to glean from it. Maybe you and I can

summarize some of the salient points for the list. The

one which I find important to note, as I've started to

experience this myself, is that there seems to be a

pattern with the Flagyl pulses and patient reactions.

First couple of pulses bring clear reactions

attributed to cell lysis and Cpn cell membrane toxins.

Arround the tthird orr fourth (there's a more massive

reaction, and this continues after the Flagyl pulse is

stopped for days or weeks.

Wheldon, who has seen this clinically quite

often, attributes this to a significant clearing of

macrophages and monocytes infected by cryptic Cpn, and

thus having their cell functions and ATP parasitized,

suddenly becoming functional again. Thus the after

reaction is not a " toxic " reaction to the Flagyl, but

rather ones own immune cells killing Cpn and the

combined cytokine and bacterial endotoxin load

continuing as this " layer " off Cpn is recognized by

our immune cells and killed.

Am I characterizing this right, Nelly?

Jim

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From: " dumbaussie2000 " <dumbaussie2000@...>

Subject: Re: Stratton's Treatment Recommendations

/Penny/Jim

What is the ideal treatment of porphyria? Would

dialysis as in

kidney failure make a difference to porphyria?I

alway's speculated

that we possably need serious attempts at cleaning our

blood of by

products of bacteria and toxins.This porphyria sounds

like a

strategy that may be desigtned to fix some of this.

I'm not a huge

fan of detox chemicals bel;ieveing they really don't

work. I would

think a fasting regime would be more cleansing than

just topping up

with chemicals.

I believe the clay and charcoal would be a bonus so

I'm not knocking

everything. I just prefer to clean my blood like a

patient on

dialysis because they KNOW They feel better

afterwards. We are

constantly speculating about feeling better after

throwing something

in the mix.

It's a little like those oil additives that are

supposed to helpo

your engine when commonsense alway's see's that an oil

change at the

right intervals is far more appropriate.