Re: Scha: Seizures, Taurine, GABA, Glycine, b-6, and manganese...

[Guest guest]

Thanks, Dan.

This is interesting. Taking GABA turns out not to be very effective,

in most cases. But drugs which act on GABA synthesis and uptake are

in the brain are the main players in seizure control for me.

For a while I was able to control clonus with Gabitril, a GABA

reuptake inhibitor. Now I need valium which causes the total amount

of GABA to surge.

I hope to reach a stage where using nutrition for good " GABA

maintenance " is enough to keep the nervous system from overloading

like this.

I sure appreciate your taking the time to share this.

> > > > > I am watching the DVD's from a conference led by Amy

> Yasko and

> > > > Garry

> > > > > Gordon. Its ostensibly about autism but some of us

> chronic

> > > lymies

> > > > > have all those issues that autistic kids do, just later in

> > life.

> > > > The

> > > > > level at which these dr's are addressing the issues is

> > > phenomenally

> > > > > sophisticated.

> > > > >

> > > > > Anyway I just paused the video--because I think one of

> your

> > > issues

> > > > > in the seizures and pain is upregulated glutamate. The

> > following

> > > > are

> > > > > used to manage glutamate in these kids:

> > > > >

> > > > > pycnogenol

> > > > > taurine

> > > > > curcumin

> > > > > and theanine

> > > > >

> > > > > I know you are more immersed in the straight medical

> model now

> > > than

> > > > > anything alternative but the bug has clearly hijacked your

> > > > pathways,

> > > > > and you know I am of the opinion that supportive

> therapies now

> > > > would

> > > > > be ideal (as hyperbaric but I couldn't convince Randy

> Baker to

> > > get

> > > > a

> > > > > chamber at least not yet. I did convince Trent Nichols!

> after

> > > > > talking to him a few hours at a conference 2 mos ago

> about

> > lyme,

> > > > and

> > > > > telling him repeatedly how my chamber helped me and

> he must

> > get

> > > one

> > > > > for his patients as otherwise he has a comprehensive

> > > > > approach...apparently he did buy one from a colleague!

> And for

> > a

> > > > > good price. But anyway. I may try Randy Baker again as

> someone

> > I

> > > > > know is selling a used one...)

> > > > >

> > > > > But anyway I think you should immediately start

> supplementing

> > > with

> > > > > all the above. I also woul dsuggest if you haven't been

> able

> > to

> > > get

> > > > > IV glutathione yet to get an Rx for glutathione and get an

> > > > > Inspiration nebulizer for $60. Apparently that is working

> well

> > > with

> > > > > lymies and I'm going to do it myself.

> > > > >

> > > > > I wish I could get the genetic testing done on these kids.

> > > > Listening

> > > > > to these DVD's its clear that we are adult versions of

> these

> > > kids--

> > > > > we're not autistic because we didn't get these insults

> when

> > our

> > > > > brains were develoipng. But infection, toxic metals, and

> > > > genetically

> > > > > vulnerable oxidation and methylation

> pathways...upregulated

> > > immune

> > > > > systems, crazed cytokines, susceptibility to chronic

> > infections

> > > etc

> > > > >

> > > > > Its interesting that I have instinctively avoided any

> > glutatmine

> > > > > supplementaiton always...

> > > > >

> > > > > I had been loking into curcumin and I have pycnogenol on

> my

> > > shelf

> > > > > and I believe I hvae theanine somewhere around here so

> I will

> > > start

> > > > > to try one at a time.

[Guest guest]

I agree . Gaba by itself is not too effective, but if your

insurance would cover it (which I know is iffy), you might consider

an amino acid profile (blood test). I had one done about 4 years

ago (through Great Smokies).

They test for about 30 different aminos and metabolites. I was

highest in GLUTAMIC ACID, lowest in GLYCINE (which is also

used for spasticity and seizure issues, and detoxing the liver). I

have a jar of glycine powder, but always seem to forget about it,

despite muscle fasiculations in my feet. I only think about it

when it gets bad.

Anyway, if you can find the book at your local library, it's definitely

an interesting read.

d.

> > > > > > I am watching the DVD's from a conference led by

Amy

> > Yasko and

> > > > > Garry

> > > > > > Gordon. Its ostensibly about autism but some of us

> > chronic

> > > > lymies

> > > > > > have all those issues that autistic kids do, just later in

> > > life.

> > > > > The

> > > > > > level at which these dr's are addressing the issues is

> > > > phenomenally

> > > > > > sophisticated.

> > > > > >

> > > > > > Anyway I just paused the video--because I think one

of

> > your

> > > > issues

> > > > > > in the seizures and pain is upregulated glutamate.

The

> > > following

> > > > > are

> > > > > > used to manage glutamate in these kids:

> > > > > >

> > > > > > pycnogenol

> > > > > > taurine

> > > > > > curcumin

> > > > > > and theanine

> > > > > >

> > > > > > I know you are more immersed in the straight

medical

> > model now

> > > > than

> > > > > > anything alternative but the bug has clearly hijacked

your

> > > > > pathways,

> > > > > > and you know I am of the opinion that supportive

> > therapies now

> > > > > would

> > > > > > be ideal (as hyperbaric but I couldn't convince Randy

> > Baker to

> > > > get

> > > > > a

> > > > > > chamber at least not yet. I did convince Trent Nichols!

> > after

> > > > > > talking to him a few hours at a conference 2 mos ago

> > about

> > > lyme,

> > > > > and

> > > > > > telling him repeatedly how my chamber helped me

and

> > he must

> > > get

> > > > one

> > > > > > for his patients as otherwise he has a

comprehensive

> > > > > > approach...apparently he did buy one from a

colleague!

> > And for

> > > a

> > > > > > good price. But anyway. I may try Randy Baker again

as

> > someone

> > > I

> > > > > > know is selling a used one...)

> > > > > >

> > > > > > But anyway I think you should immediately start

> > supplementing

> > > > with

> > > > > > all the above. I also woul dsuggest if you haven't been

> > able

> > > to

> > > > get

> > > > > > IV glutathione yet to get an Rx for glutathione and get

an

> > > > > > Inspiration nebulizer for $60. Apparently that is

working

> > well

> > > > with

> > > > > > lymies and I'm going to do it myself.

> > > > > >

> > > > > > I wish I could get the genetic testing done on these

kids.

> > > > > Listening

> > > > > > to these DVD's its clear that we are adult versions of

> > these

> > > > kids--

> > > > > > we're not autistic because we didn't get these insults

> > when

> > > our

> > > > > > brains were develoipng. But infection, toxic metals,

and

> > > > > genetically

> > > > > > vulnerable oxidation and methylation

> > pathways...upregulated

> > > > immune

> > > > > > systems, crazed cytokines, susceptibility to chronic

> > > infections

> > > > etc

> > > > > >

> > > > > > Its interesting that I have instinctively avoided any

> > > glutatmine

> > > > > > supplementaiton always...

> > > > > >

> > > > > > I had been loking into curcumin and I have

pycnogenol on

> > my

> > > > shelf

> > > > > > and I believe I hvae theanine somewhere around

here so

> > I will

> > > > start

> > > > > > to try one at a time.