Re: Anyone want to go dancin'

[Guest guest]

Lanelle

I would love to see you on triple IV antibiotics rather than IVIG. I

know people love the immune system functioning and kicking in but

when a quarter of your body weight is swimming in bacteria(not true,

just highlighting) that IVIG is very questionable.The saline in many

IV drips fools us sometinmes in thinking what we are being given is

great. Increasing blood volume by a litre is more beneficial than

most treatmnents.

I guarantee you that a biopsy in the middle of your leg bone will

tell you why you need to take the correct infectious treatment as

your best option.I don't really like to sway you away from IVIG but

running full red cell counts and carrying oxyegn and nutrition to

every part of the anatomy for me was that one succesfull week on

vanco. and correct antimicrobial therapy. Trying to supplemnent was

never on the cards I can't get involved in supplementuinmg or

bandaid measures. I do beleive antimicrobial therapy can fail easily

but when done right it's something that keeps chiselling your

infection out of your bones.Some fortunate souls recover very nicely

with simple anitmicrobial therapy which is also observed in a few

forums.

tony

>

> Evening everyone.....I wanted to let those know who have replied

to

> my messages, that I will also answer....but I must ask for a bit

more

> time. I slept all day and woke to the phone ringing. My mother

has

> decided to drive up to see me tomorrow which sends me into a

cleaning

> frenzy.

> I do have a call into the ID doctor, but he hasn't returned my

call

> yet. I must admit to not being very excited about him anyway. HE

has

> a stellar reputation here but I believe that I will start looking

for

> someone else locally to help me fight these infections. I've

printed

> the suggestions here and have decided if nothing else breaks, then

> I'll go to the hospital after my mother leaves, she only stays a

day.

> Does anyone else have the problem of finding doctors who are good

> doctors and also have hospital privileges? I really need " doctor

> overhaul " and clean house of these ducs that dont want to do

anything

> but prescribe bandaids to keep me comfortable. Someone needs to

tell

> them that slow death is not comforable.

>

> Tony, I have all my records on pdf format on CD....EXCEPT for my

> recent records of the MRSA . I just hadn't ordered those records

> yet, I have been telling myself to do so for months, it took me

only

> six year to get the other ones scanned.

> I have never had a good ID duc, and haven't seen any good in this

> one, but other doctors told me to keep him that he is the best in

the

> city. My point being that no matter how brilliant this guy is, if

his

> attitude is such that blocks him from listening to reason, then I

> would be better off to get a less brilliant but hearing physician.

>

> I tried to be patient with him regarding my low IgG, continually

> asking him to prescribe IVIG, but he has just put me off too long.

He

> always had an excuse, and I would tell myself that when the blood

> work came in low, that he would have to take action. NOT I have

> confirmed immune deficicieny and cannot find anyone to give me

IVIG.

> I feel it is becoming a matter of grave importance. I've got the

> application to see Ginger Savely and hope to get it filled out in

the

> next two days.

> I feel that if I had been able to continue IVIG treatment aftermy

> immunologist retired in 2003, I wouldn't have nearly the problems

> that I do.

>

> Here is something fun to perk up the day......

>

> http://www.glumbert.com/media/dancewhiteboy.html