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I am watching the DVD's from a conference led by Amy Yasko and Garry

Gordon. Its ostensibly about autism but some of us chronic lymies

have all those issues that autistic kids do, just later in life. The

level at which these dr's are addressing the issues is phenomenally

sophisticated.

Anyway I just paused the video--because I think one of your issues

in the seizures and pain is upregulated glutamate. The following are

used to manage glutamate in these kids:

pycnogenol

taurine

curcumin

and theanine

I know you are more immersed in the straight medical model now than

anything alternative but the bug has clearly hijacked your pathways,

and you know I am of the opinion that supportive therapies now would

be ideal (as hyperbaric but I couldn't convince Randy Baker to get a

chamber at least not yet. I did convince Trent Nichols! after

talking to him a few hours at a conference 2 mos ago about lyme, and

telling him repeatedly how my chamber helped me and he must get one

for his patients as otherwise he has a comprehensive

approach...apparently he did buy one from a colleague! And for a

good price. But anyway. I may try Randy Baker again as someone I

know is selling a used one...)

But anyway I think you should immediately start supplementing with

all the above. I also woul dsuggest if you haven't been able to get

IV glutathione yet to get an Rx for glutathione and get an

Inspiration nebulizer for $60. Apparently that is working well with

lymies and I'm going to do it myself.

I wish I could get the genetic testing done on these kids. Listening

to these DVD's its clear that we are adult versions of these kids--

we're not autistic because we didn't get these insults when our

brains were develoipng. But infection, toxic metals, and genetically

vulnerable oxidation and methylation pathways...upregulated immune

systems, crazed cytokines, susceptibility to chronic infections etc

Its interesting that I have instinctively avoided any glutatmine

supplementaiton always...

I had been loking into curcumin and I have pycnogenol on my shelf

and I believe I hvae theanine somewhere around here so I will start

to try one at a time.

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