Request for help and suggestions.

[Guest guest]

Greetings group,

I wonder if anyone can help me, or offer any suggestions.

In November '99 I developed severe neck and shoulder pain. Before

this, apart from migraines, I was too healthy for words.

I progressively deteriorated into all the usual CFS symptoms, and all

the standard basic tests revealed nothing apart from a low NK cell

count.

I slid downhill until just short of bedbound in 2003.

I started 2004 by self treating with Famvir and Doxycycline. By mid

2004 I was improving. I switched from Doxy to Minocycline mid-year,

and after an initial wild ride, further improved, my energy returned,

but the little progressive exercise I was doing exacerbated the FM

side of CFS. In fact, you could say I converted from CFS to FM.

A unique symptom I had which was always there (from '99) was sores,

lumps, and tiny stinging lesions on my head, which always accompanied

a migraine headache. They would also appear anywhere on my body. I

can actually induce them by rotating my arm for 15 minutes, and after

an aura of tingling, then stinging sensations, the sores etc. appear

under my shoulder blades. Any friction with the skin in the subject

area dramatically increases redness, lumps, lesions and inflammation.

The new lack of fatigue enables me to " dog paddle " swim for 10

minutes, but I then have to endure my entire back and spine breaking

out, with large sores over specific vertibrae.

About a month ago, migraines became a daily event (fixed with Zomig),

along with the sores etc. I'm now running out of unscabbed space on

my head.

Any and all advice and suggestions would be thankfully received.

Thanks, .