Re: for Scha

[Guest guest]

Professor Malcolm Hooper in the UK has been researchingh Autism, GWS

and ME (CFIDS), he sees the link too. Although he recognises borrelia

can be a contributing factor he currently thinks this is in just a

small number. Some of his thinking overlaps with Rich's.

He seems to believe that autism occurs in the early years and the

other illnesses when the triggers take effect later on.

Very often I see Autism or Asperger's reported in blood relatives of

people Dx with CFIDS, lyme and FM. I have read on several message

boards how treating borrelia, in one case with ABx, in the other case

with samento, has brought about quite impressive improvements.

> I am watching the DVD's from a conference led by Amy Yasko and

Garry

> Gordon. Its ostensibly about autism but some of us chronic lymies

> have all those issues that autistic kids do, just later in life.

The

> level at which these dr's are addressing the issues is phenomenally

> sophisticated.

>

> Anyway I just paused the video--because I think one of your issues

> in the seizures and pain is upregulated glutamate. The following

are

> used to manage glutamate in these kids:

>

> pycnogenol

> taurine

> curcumin

> and theanine

>

> I know you are more immersed in the straight medical model now than

> anything alternative but the bug has clearly hijacked your

pathways,

> and you know I am of the opinion that supportive therapies now

would

> be ideal (as hyperbaric but I couldn't convince Randy Baker to get

a

> chamber at least not yet. I did convince Trent Nichols! after

> talking to him a few hours at a conference 2 mos ago about lyme,

and

> telling him repeatedly how my chamber helped me and he must get one

> for his patients as otherwise he has a comprehensive

> approach...apparently he did buy one from a colleague! And for a

> good price. But anyway. I may try Randy Baker again as someone I

> know is selling a used one...)

>

> But anyway I think you should immediately start supplementing with

> all the above. I also woul dsuggest if you haven't been able to get

> IV glutathione yet to get an Rx for glutathione and get an

> Inspiration nebulizer for $60. Apparently that is working well with

> lymies and I'm going to do it myself.

>

> I wish I could get the genetic testing done on these kids.

Listening

> to these DVD's its clear that we are adult versions of these kids--

> we're not autistic because we didn't get these insults when our

> brains were develoipng. But infection, toxic metals, and

genetically

> vulnerable oxidation and methylation pathways...upregulated immune

> systems, crazed cytokines, susceptibility to chronic infections etc

>

> Its interesting that I have instinctively avoided any glutatmine

> supplementaiton always...

>

> I had been loking into curcumin and I have pycnogenol on my shelf

> and I believe I hvae theanine somewhere around here so I will start

> to try one at a time.

[Guest guest]

This was a 3 day conference...this one presentation from a Dad on

his kid is so detailed...must've been listening for an hour or two

already. Learning a lot. Want to do some of this for myself.

> > I am watching the DVD's from a conference led by Amy Yasko and

> Garry

> > Gordon. Its ostensibly about autism but some of us chronic

lymies

> > have all those issues that autistic kids do, just later in life.

> The

> > level at which these dr's are addressing the issues is

phenomenally

> > sophisticated.

> >

> > Anyway I just paused the video--because I think one of your

issues

> > in the seizures and pain is upregulated glutamate. The following

> are

> > used to manage glutamate in these kids:

> >

> > pycnogenol

> > taurine

> > curcumin

> > and theanine

> >

> > I know you are more immersed in the straight medical model now

than

> > anything alternative but the bug has clearly hijacked your

> pathways,

> > and you know I am of the opinion that supportive therapies now

> would

> > be ideal (as hyperbaric but I couldn't convince Randy Baker to

get

> a

> > chamber at least not yet. I did convince Trent Nichols! after

> > talking to him a few hours at a conference 2 mos ago about lyme,

> and

> > telling him repeatedly how my chamber helped me and he must get

one

> > for his patients as otherwise he has a comprehensive

> > approach...apparently he did buy one from a colleague! And for a

> > good price. But anyway. I may try Randy Baker again as someone I

> > know is selling a used one...)

> >

> > But anyway I think you should immediately start supplementing

with

> > all the above. I also woul dsuggest if you haven't been able to

get

> > IV glutathione yet to get an Rx for glutathione and get an

> > Inspiration nebulizer for $60. Apparently that is working well

with

> > lymies and I'm going to do it myself.

> >

> > I wish I could get the genetic testing done on these kids.

> Listening

> > to these DVD's its clear that we are adult versions of these

kids--

> > we're not autistic because we didn't get these insults when our

> > brains were develoipng. But infection, toxic metals, and

> genetically

> > vulnerable oxidation and methylation pathways...upregulated

immune

> > systems, crazed cytokines, susceptibility to chronic infections

etc

> >

> > Its interesting that I have instinctively avoided any glutatmine

> > supplementaiton always...

> >

> > I had been loking into curcumin and I have pycnogenol on my

shelf

> > and I believe I hvae theanine somewhere around here so I will

start

> > to try one at a time.

[Guest guest]

Thanks, Jill, this is just the kind of information I'm always

looking for. That DVD sounds like a winner. Can I order a copy? In

the meantime, if anyone can post suggestions for use of these

supplements for this specific purpose, I'd love to know about that.

I believe the glutamate issues are much broader than the diseases we

normally discuss on this list. My pain specialist, one of the finest

human beings I've had the pleasure to meet, is driven half-mad by

it, and though he is a conventional med doctor is not narrow and

would also probably be interested to learn more about how these

amino acids are helpful.

> > > I am watching the DVD's from a conference led by Amy Yasko and

> > Garry

> > > Gordon. Its ostensibly about autism but some of us chronic

> lymies

> > > have all those issues that autistic kids do, just later in

life.

> > The

> > > level at which these dr's are addressing the issues is

> phenomenally

> > > sophisticated.

> > >

> > > Anyway I just paused the video--because I think one of your

> issues

> > > in the seizures and pain is upregulated glutamate. The

following

> > are

> > > used to manage glutamate in these kids:

> > >

> > > pycnogenol

> > > taurine

> > > curcumin

> > > and theanine

> > >

> > > I know you are more immersed in the straight medical model now

> than

> > > anything alternative but the bug has clearly hijacked your

> > pathways,

> > > and you know I am of the opinion that supportive therapies now

> > would

> > > be ideal (as hyperbaric but I couldn't convince Randy Baker to

> get

> > a

> > > chamber at least not yet. I did convince Trent Nichols! after

> > > talking to him a few hours at a conference 2 mos ago about

lyme,

> > and

> > > telling him repeatedly how my chamber helped me and he must

get

> one

> > > for his patients as otherwise he has a comprehensive

> > > approach...apparently he did buy one from a colleague! And for

a

> > > good price. But anyway. I may try Randy Baker again as someone

I

> > > know is selling a used one...)

> > >

> > > But anyway I think you should immediately start supplementing

> with

> > > all the above. I also woul dsuggest if you haven't been able

to

> get

> > > IV glutathione yet to get an Rx for glutathione and get an

> > > Inspiration nebulizer for $60. Apparently that is working well

> with

> > > lymies and I'm going to do it myself.

> > >

> > > I wish I could get the genetic testing done on these kids.

> > Listening

> > > to these DVD's its clear that we are adult versions of these

> kids--

> > > we're not autistic because we didn't get these insults when

our

> > > brains were develoipng. But infection, toxic metals, and

> > genetically

> > > vulnerable oxidation and methylation pathways...upregulated

> immune

> > > systems, crazed cytokines, susceptibility to chronic

infections

> etc

> > >

> > > Its interesting that I have instinctively avoided any

glutatmine

> > > supplementaiton always...

> > >

> > > I had been loking into curcumin and I have pycnogenol on my

> shelf

> > > and I believe I hvae theanine somewhere around here so I will

> start

> > > to try one at a time.

[Guest guest]

I don't know why those supplements downregulate glutamate, they

didn't say. The DVD's are very expensive but here is a URL:

http://www.longevityplus-rna.com/store/product.php?

productid=27 & xid=44927f7e97fe1c977f2f25fef5d8b77f

You may do just as well with some earlier videos that are cheaper.

> > > > I am watching the DVD's from a conference led by Amy Yasko

and

> > > Garry

> > > > Gordon. Its ostensibly about autism but some of us chronic

> > lymies

> > > > have all those issues that autistic kids do, just later in

> life.

> > > The

> > > > level at which these dr's are addressing the issues is

> > phenomenally

> > > > sophisticated.

> > > >

> > > > Anyway I just paused the video--because I think one of your

> > issues

> > > > in the seizures and pain is upregulated glutamate. The

> following

> > > are

> > > > used to manage glutamate in these kids:

> > > >

> > > > pycnogenol

> > > > taurine

> > > > curcumin

> > > > and theanine

> > > >

> > > > I know you are more immersed in the straight medical model

now

> > than

> > > > anything alternative but the bug has clearly hijacked your

> > > pathways,

> > > > and you know I am of the opinion that supportive therapies

now

> > > would

> > > > be ideal (as hyperbaric but I couldn't convince Randy Baker

to

> > get

> > > a

> > > > chamber at least not yet. I did convince Trent Nichols! after

> > > > talking to him a few hours at a conference 2 mos ago about

> lyme,

> > > and

> > > > telling him repeatedly how my chamber helped me and he must

> get

> > one

> > > > for his patients as otherwise he has a comprehensive

> > > > approach...apparently he did buy one from a colleague! And

for

> a

> > > > good price. But anyway. I may try Randy Baker again as

someone

> I

> > > > know is selling a used one...)

> > > >

> > > > But anyway I think you should immediately start supplementing

> > with

> > > > all the above. I also woul dsuggest if you haven't been able

> to

> > get

> > > > IV glutathione yet to get an Rx for glutathione and get an

> > > > Inspiration nebulizer for $60. Apparently that is working

well

> > with

> > > > lymies and I'm going to do it myself.

> > > >

> > > > I wish I could get the genetic testing done on these kids.

> > > Listening

> > > > to these DVD's its clear that we are adult versions of these

> > kids--

> > > > we're not autistic because we didn't get these insults when

> our

> > > > brains were develoipng. But infection, toxic metals, and

> > > genetically

> > > > vulnerable oxidation and methylation pathways...upregulated

> > immune

> > > > systems, crazed cytokines, susceptibility to chronic

> infections

> > etc

> > > >

> > > > Its interesting that I have instinctively avoided any

> glutatmine

> > > > supplementaiton always...

> > > >

> > > > I had been loking into curcumin and I have pycnogenol on my

> > shelf

> > > > and I believe I hvae theanine somewhere around here so I will

> > start

> > > > to try one at a time.

[Guest guest]

Thanks for this post. These are some very interesting leads. I

do believe that glutamate toxicity is the cause of significant

suffering in at least some of us. I did a quick PubMed search on

these compounds. They do indeed look very interesting (in the

short time I invested). I'm a bit concerned that theanine may

actually block glutamate transport, but they are all worth some

investigation. Here are some citations I collected for myself, that

I'll post here (sorry, no time to convert them into tinyURLs).

And remember that beta-lactam antibiotics have recently been

shown to reduce the glutamate toxicity problem, but the effect did

not seem to last:

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=

pubmed & dopt=Abstract & list_uids=15635412 & query_hl=34

pycnogenol: see, for example

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=

pubmed & dopt=Abstract & list_uids=10653482 & query_hl=2

taurine: see, for example

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=

pubmed & dopt=Abstract & list_uids=15003996 & query_hl=5

curcumin: see, for example

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=

pubmed & dopt=Abstract & list_uids=12514113 & query_hl=7

note that glutamate-cysteine ligase increases glutathinone:

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=

pubmed & dopt=Abstract & list_uids=15288121

theanine:

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=

pubmed & dopt=Abstract & list_uids=11325559 & query_hl=10

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=

pubmed & dopt=Abstract & list_uids=679005 & query_hl=10

If you try any of these out, let us know how you respond.

Matt

.. The following are

> used to manage glutamate in these kids:

>

> pycnogenol

> taurine

> curcumin

> and theanine

>

>

> I had been loking into curcumin and I have pycnogenol on my

shelf

> and I believe I hvae theanine somewhere around here so I will

start

> to try one at a time.

[Guest guest]

Thanx Matt. I'll start with the pycnogenol which I suspect may also

downregulate MMP's, as well as aloe vera--may be why cassia.org found

them helpful. I like to start one at a time. Also I hate fillers but

I couldn't find a truly pure pycnogenol with no fillers.

I'll look at those references later.

Yes, Fallon seems to think (in conversation/interview) that

patients may relapse so rapidly off rocephin because of the glutamate

issue. The bugs don't multiply fast enough for those sudden relapses.

Maybe it was downregulating glutamate.

Look at dietary sources too--if you have problems like .

> . The following are

> > used to manage glutamate in these kids:

> >

> > pycnogenol

> > taurine

> > curcumin

> > and theanine

> >

>

> >

> > I had been loking into curcumin and I have pycnogenol on my

> shelf

> > and I believe I hvae theanine somewhere around here so I will

> start

> > to try one at a time.

[Guest guest]

Matt, thanx I emailed myself those pubmed abstracts.

I am continually fascinated by how my intuitive decisions turn out to

have scientific logic behind them though I only find out later.

I drink 2-3 cups of VERY strong decaff green tea daily. It has been

my assumption that 1) the theophylline is good for me 2) the

antixoidants are good for me 3) it is antiviral and antibacterial--

the tannins.

But I also see that I'm probably getting a good dose of theanine and

protecting myself that way.

I'm a little worried about possible estrogenic properties of curcumin-

-have to research that. But you know MS and alzheimer's are rare in

India where they eat a ton of turmeric. It is neuroprotective. I must

admit I haven't tried it at all yet.

People think I am nuts because I eat scharffen-berger chocolate 99%

NO SUGAR. I eat one square a day--not a small amount since its pure

chocolate. Its antidepressive, beause of the catecholamines, but I

know its doing something else, and I don't know what. I just know its

medicine. Could be the flavanoids, could be something else.

I found a long time ago I couldn't survive without IV magnesium plus

b6. Later I learn that lyme uses magnesium and depletes our own and

also that magnesium is neuroprotective for the upregulated NMDA

receptor (Cheney).

I am upset that I rely on sleeping pills, PISSES ME OFF, try to take

them only at 4 a.m. but sometimes also to fall asleep--don't take the

whole capsule but still, I " m a calvinist where drugs are concerned.

Yet I intuitively felt long ago that it was somehow neuroprotective.

I could FEEL The difference so I accepted it as long as I have active

borrelia infection. Then Cheney confirmed it and why.

I have been downing more salt/c today even tho it irritates my

bladder which is very annoying. I'm not sure why I haven't stopped

already! Probably because of an eerie coincidence that occured today

that I posted about on lymestrategies.

Anyway I'll watch more of the DVD (there are 8 so it'll take a week

or two) and report back.

[Guest guest]

Hi Jill,

> I also would suggest if you haven't been able to get

>IV glutathione yet to get an Rx for glutathione and get an

>Inspiration nebulizer for $60. Apparently that is working well with

>lymies and I'm going to do it myself.

Jill, have you tried lipoceutical glutathione? I wonder how it

compares to a nebulizer. And I wonder how a nebulizer compares to GSH

in suppository form.

Sue ,

Upstate New York

[Guest guest]

No. Wellness Pharmacy actually gave me a sample bottle just to be nice

I guess (they run about $50?) but it uses glycerin to stabilize, I

asked the inventor Tom Guilford and he said there was no other way to

make it. I hate glycerin, just hate its effect on me and won't take

anything with it. So I never took it I just gave it to a friend.

I don' tknow about suppository. Since this lymie (Bobbe Belmont) wrote

me ecstatically about the energy the nebulized glutathione was giving

her, and since the cystic fibrosis patients do so well on it, I think

I'll just try that. It'll be totally pure--the Wellness glutathione is

preservative free.

and I'm going to do it myself.

>

> Jill, have you tried lipoceutical glutathione? I wonder how it

> compares to a nebulizer. And I wonder how a nebulizer compares to

GSH

> in suppository form.

>

> Sue ,

> Upstate New York

[Guest guest]

Jill

The oxygen molecules and saline solution of nebulizing will achieve

euphoria in the chronically ill person.

tony

> No. Wellness Pharmacy actually gave me a sample bottle just to be

nice

> I guess (they run about $50?) but it uses glycerin to stabilize, I

> asked the inventor Tom Guilford and he said there was no other way

to

> make it. I hate glycerin, just hate its effect on me and won't

take

> anything with it. So I never took it I just gave it to a friend.

>

> I don' tknow about suppository. Since this lymie (Bobbe Belmont)

wrote

> me ecstatically about the energy the nebulized glutathione was

giving

> her, and since the cystic fibrosis patients do so well on it, I

think

> I'll just try that. It'll be totally pure--the Wellness

glutathione is

> preservative free.

>

> and I'm going to do it myself.

> >

> > Jill, have you tried lipoceutical glutathione? I wonder how it

> > compares to a nebulizer. And I wonder how a nebulizer compares

to

> GSH

> > in suppository form.

> >

> > Sue ,

> > Upstate New York

[Guest guest]

Hi Jill,

Is that interview with Fallon one of yours, and will it be published?

I'd love to see it.

> > . The following are

> > > used to manage glutamate in these kids:

> > >

> > > pycnogenol

> > > taurine

> > > curcumin

> > > and theanine

> > >

> >

> > >

> > > I had been loking into curcumin and I have pycnogenol on my

> > shelf

> > > and I believe I hvae theanine somewhere around here so I will

> > start

> > > to try one at a time.

[Guest guest]

Tony...I believe I would get preservative free glutathione in sterile

water, not saline.

I read on the net where cystic fibrosis patients were reconstituting

glutathione from powder (I guess that is stable if you use it

immediately) and in a saline solution and that had some deleterious

effects, breathing in the saline because of osmolarity and pH. So I

think I'll stick with the water but I'll call wellness pharmacy.

I did many days of salt/C. I'm skipping today. I may be able to pulse

it but it isn't particularly pleasant.

> > No. Wellness Pharmacy actually gave me a sample bottle just to be

> nice

> > I guess (they run about $50?) but it uses glycerin to stabilize,

I

> > asked the inventor Tom Guilford and he said there was no other

way

> to

> > make it. I hate glycerin, just hate its effect on me and won't

> take

> > anything with it. So I never took it I just gave it to a friend.

> >

> > I don' tknow about suppository. Since this lymie (Bobbe Belmont)

> wrote

> > me ecstatically about the energy the nebulized glutathione was

> giving

> > her, and since the cystic fibrosis patients do so well on it, I

> think

> > I'll just try that. It'll be totally pure--the Wellness

> glutathione is

> > preservative free.

> >

> > and I'm going to do it myself.

> > >

> > > Jill, have you tried lipoceutical glutathione? I wonder how it

> > > compares to a nebulizer. And I wonder how a nebulizer compares

> to

> > GSH

> > > in suppository form.

> > >

> > > Sue ,

> > > Upstate New York

[Guest guest]

Err...I hesitate to be so public on the lists. Email me privately,

okay?

> > > . The following are

> > > > used to manage glutamate in these kids:

> > > >

> > > > pycnogenol

> > > > taurine

> > > > curcumin

> > > > and theanine

> > > >

> > >

> > > >

> > > > I had been loking into curcumin and I have pycnogenol on my

> > > shelf

> > > > and I believe I hvae theanine somewhere around here so I will

> > > start

> > > > to try one at a time.

[Guest guest]

Jill

If you want to get a medicine up your nose and systemically all you

need is a spray pack.The nebulizer therapy works magnificent because

your wetting your infectious region and also putting in higher

concentrations of oxygen. If you have a sports injury it's

incredable what a wet sponge does to the pain or inflammation.If you

wet your sinuses your capable of changing the environemnt and

stopping the toxic process.

I'm alway's troubled by conspiracy theories- 'it doesn't get in well

when using IV therapy, " so nebulizing is much better?

I actually saw a smart poster on the candida forum that nebulized

her nystatin and she also swore by how great it was as opposed to

taking it. The whole candida forum was also strongly biased towards

conspiracy theories then one day the forum host closed it down

because although she did everything 100% according to the book she

still fell violently ill and needed to pursue other angles.

I'm sorry I don't hold up any flags for conspiracy theories I

realised early in the piece that the therapy dictates what is going

on and what you should be looking for.I proved 100% and will show

photos of nystatin beating bacteria, I also know that penicllins,

amoxacillins did modify my disease process giving me some strong

tips. I also did plenty of blood cultures similar in style to

hospital settings not to be confused by the tarello blood cultures

we often talk about now. which also gave me answers although not

well received by modern medico's.

tony

> > > No. Wellness Pharmacy actually gave me a sample bottle just to

be

> > nice

> > > I guess (they run about $50?) but it uses glycerin to

stabilize,

> I

> > > asked the inventor Tom Guilford and he said there was no other

> way

> > to

> > > make it. I hate glycerin, just hate its effect on me and won't

> > take

> > > anything with it. So I never took it I just gave it to a

friend.

> > >

> > > I don' tknow about suppository. Since this lymie (Bobbe

Belmont)

> > wrote

> > > me ecstatically about the energy the nebulized glutathione was

> > giving

> > > her, and since the cystic fibrosis patients do so well on it,

I

> > think

> > > I'll just try that. It'll be totally pure--the Wellness

> > glutathione is

> > > preservative free.

> > >

> > > and I'm going to do it myself.

> > > >

> > > > Jill, have you tried lipoceutical glutathione? I wonder how

it

> > > > compares to a nebulizer. And I wonder how a nebulizer

compares

> > to

> > > GSH

> > > > in suppository form.

> > > >

> > > > Sue ,

> > > > Upstate New York

[Guest guest]

Hi Tony, thanx, how does a nebulizer get oxygen in? I'm confused.

Its interesting nystatin is also antibiotic, really interesting.

I don't think nebulizer works better or worse than IV. I just like

stuff you can do at home. Like you in that way, or Barb. I want to

monitor my own care as much as possible and as cheaply as possible.

Since I go to my doc once a week and get everything all at once (IV

vitamins, minerals, glutathione and a bit of IVIG) that's fine, but

what about the other days of the week. So for $60 for a nebulizer,

and buy some glutathione via rx from my doc, heck, might as well try

it.

I'm sick and tired of the salt and c. I don't know, we're all

individuals, but I don't see a lot of benefit from it and as I said

it irritated my bladder all over again which had finally felt normal

again. Arg. I gave it a trial at high doses esp for m y slender body

weight. Glad its helping others but I don't really like it too much.

Maybe I'll try it again later.

> > > > No. Wellness Pharmacy actually gave me a sample bottle just

to

> be

> > > nice

> > > > I guess (they run about $50?) but it uses glycerin to

> stabilize,

> > I

> > > > asked the inventor Tom Guilford and he said there was no

other

> > way

> > > to

> > > > make it. I hate glycerin, just hate its effect on me and

won't

> > > take

> > > > anything with it. So I never took it I just gave it to a

> friend.

> > > >

> > > > I don' tknow about suppository. Since this lymie (Bobbe

> Belmont)

> > > wrote

> > > > me ecstatically about the energy the nebulized glutathione

was

> > > giving

> > > > her, and since the cystic fibrosis patients do so well on it,

> I

> > > think

> > > > I'll just try that. It'll be totally pure--the Wellness

> > > glutathione is

> > > > preservative free.

> > > >

> > > > and I'm going to do it myself.

> > > > >

> > > > > Jill, have you tried lipoceutical glutathione? I wonder

how

> it

> > > > > compares to a nebulizer. And I wonder how a nebulizer

> compares

> > > to

> > > > GSH

> > > > > in suppository form.

> > > > >

> > > > > Sue ,

> > > > > Upstate New York

[Guest guest]

Tony,

My concern with nebulizing, and also with hydropulsing, is whether

it's bad to be putting that much moisture up your nose. Especially

if you've got a pseudomonas which loves moisture and is very

difficult to kill, even under non-moist conditions. Whenever I do

the hydropulse for any length of time, even though I definitely

think it's benefitting me in some ways, I also start feeling like

I'm walking around with water sloshing around in my head.

Thoughts?

penny

> > > > No. Wellness Pharmacy actually gave me a sample bottle just

to

> be

> > > nice

> > > > I guess (they run about $50?) but it uses glycerin to

> stabilize,

> > I

> > > > asked the inventor Tom Guilford and he said there was no

other

> > way

> > > to

> > > > make it. I hate glycerin, just hate its effect on me and

won't

> > > take

> > > > anything with it. So I never took it I just gave it to a

> friend.

> > > >

> > > > I don' tknow about suppository. Since this lymie (Bobbe

> Belmont)

> > > wrote

> > > > me ecstatically about the energy the nebulized glutathione

was

> > > giving

> > > > her, and since the cystic fibrosis patients do so well on

it,

> I

> > > think

> > > > I'll just try that. It'll be totally pure--the Wellness

> > > glutathione is

> > > > preservative free.

> > > >

> > > > and I'm going to do it myself.

> > > > >

> > > > > Jill, have you tried lipoceutical glutathione? I wonder

how

> it

> > > > > compares to a nebulizer. And I wonder how a nebulizer

> compares

> > > to

> > > > GSH

> > > > > in suppository form.

> > > > >

> > > > > Sue ,

> > > > > Upstate New York

[Guest guest]

Penny

The problem lies in what your dealing with. I nebulize heavy and

strong concoxtions because I can feel how big the challenge is. If

you have an elephant and frequently go in with a pee shooter you

have all these adverse events which are a strong point of discusion

especially on this list.If you've noticed with your own infection

the deviated septum chanels comfortably into the back of your head,

so your brain and brainstem aren't immune from any punishment from

this humungus challenge. from hydroflossing ? I suppose it's at the

pee shooter end and for a plus you'll get a minus.I found that using

mega doses of penicllin see's no supposed tinea/thrush develop or

any adverse events on tongue, so I suppose undermedicating or in

some cases not having enough procedures in place can have a wax and

wane component.So hydroflossing a known antibacterial agent or even

one that has positive attributes would be a bonus if your strategies

are overpowering your problems.

tony

> > > > > No. Wellness Pharmacy actually gave me a sample bottle

just

> to

> > be

> > > > nice

> > > > > I guess (they run about $50?) but it uses glycerin to

> > stabilize,

> > > I

> > > > > asked the inventor Tom Guilford and he said there was no

> other

> > > way

> > > > to

> > > > > make it. I hate glycerin, just hate its effect on me and

> won't

> > > > take

> > > > > anything with it. So I never took it I just gave it to a

> > friend.

> > > > >

> > > > > I don' tknow about suppository. Since this lymie (Bobbe

> > Belmont)

> > > > wrote

> > > > > me ecstatically about the energy the nebulized glutathione

> was

> > > > giving

> > > > > her, and since the cystic fibrosis patients do so well on

> it,

> > I

> > > > think

> > > > > I'll just try that. It'll be totally pure--the Wellness

> > > > glutathione is

> > > > > preservative free.

> > > > >

> > > > > and I'm going to do it myself.

> > > > > >

> > > > > > Jill, have you tried lipoceutical glutathione? I wonder

> how

> > it

> > > > > > compares to a nebulizer. And I wonder how a nebulizer

> > compares

> > > > to

> > > > > GSH

> > > > > > in suppository form.

> > > > > >

> > > > > > Sue ,

> > > > > > Upstate New York

[Guest guest]

Hi Jill,

> So for $60 for a nebulizer,

> and buy some glutathione via rx from my doc, heck, might as well try

> it.

Did I ask you if you've tried lipoceutical GSH (from Wellness) or did I

just imagine that I asked? Would you be interested in comparing the

two delivery forms--lipoceutical and nebulizer? I think a lot of

people would be really interested.

Sorry to hear you've been having a rough time lately, and am looking

forward to hearing of your improvement when you get your chamber back.

Sue ,

Upstate New York

[Guest guest]

Yes you asked but I mentioned that although Wellness gave me a bottle

just to try, I never did because it contains glycerin which I am

allergic to. Tom Guilford who made it (a doctor) told me the glycerin

is necessary. I gave the bottle to a friend. I am more interested in

the nebulized anyway, from my friend's terrific response.

I think my home needs an exorcism or something. Ever since you

brought your daughter here (no connection I'm sure) everything has

gone wrong. My chamber had a leak (which I realized when I put her

in). My laptop broke. My main computer broke and the power source had

to be replaced. Both are good machines and only a few years old. Even

my floor lamp decided to break.

I was put into the bronx chamber after someone who had bronchitis

(why they put a person with bronchitis into a chamber I have no

idea). I developed a cold cough and sinus. I went to New Jersey to

try the monochamber for $25 as I thought, I was so tired of going out

to the Bronx and I didn't like the lack of safety hygiene after that.

I got barotrauma from the monochamber in NJ which I hate anyway (I

just hate glass and steel monochambers they make me feel like I'm in

a coffin, and I don't pressurize my ears well when lying flat). My

ear is still bothering me and my sinuses nearly 2 weeks later.

They repaired my chamber and on Thursday were ready to ship it back.

I paid through the nose for second day air so I " d have it today at

the latest.

Being the very organized Virgo that I am I called at noon today to

get the tracking #. Hmmm, the company said, that's strange, its been

rescheduled for tmorrow becuase they can't find the receipient (ie

me.) Then he goes, oh no, the address is wrong! You're not at

330...you're at 230, right?

I was like, right, who put 330?

(Obviously HE put 330.)

I called UPS in utter hysterics saying its a medical device and I

must have it today (I have really relapsed without it). The driver is

only TEN BLOCKS AWAY.

But he can't deliver it, they said, as I'm not in his zone.

I just begged and begged so finally they said he'll drop it off at

7:30 pm tonight on his way back to the center. I said how do you

know. They said we sent him an email message and he's a good driver.

I said can I call him, I'm really worried and deseprate. They said no

but he will drop it off.

Now I'm biting my nails all day wondering whether he will at the end

of day shrug and say I'm too busy, or actually drop it off to be kind.

NOw folks you tell me. I'm enough of a mystic that this is too much.

My friend Melody said I need a space clearing. I don't know but

something is very strange around here.

> Hi Jill,

>

> > So for $60 for a nebulizer,

> > and buy some glutathione via rx from my doc, heck, might as well

try

> > it.

>

> Did I ask you if you've tried lipoceutical GSH (from Wellness) or

did I

> just imagine that I asked? Would you be interested in comparing

the

> two delivery forms--lipoceutical and nebulizer? I think a lot of

> people would be really interested.

>

> Sorry to hear you've been having a rough time lately, and am

looking

> forward to hearing of your improvement when you get your chamber

back.

>

> Sue ,

> Upstate New York

[Guest guest]

Hi Jill,

I just wanted to let you know you are not alone. I've been wondering if there is someting going on with the stars or something. I've had so many of these things that it would just be boring to list them all (but includes IRS mis-applying payments, broken washing machine--4 repair people since 5/2 & still trying to get repaired, broken air conditioning (in 96 degree Florida heat), attempted fraudulent charges on my credit card, etc, etc, etc. And all of this is in addition to being VERY sick.

So, no, I don't think it is just you. Just because we're paranoid doesn't mean these people aren't out to get us.

Laugh--there's just nothing else left to do.

But--I wish you the best and I certainly hope your chamber is delivered this afternoon.

Wishing you the best,

[infections] Re: for Scha

Yes you asked but I mentioned that although Wellness gave me a bottle just to try, I never did because it contains glycerin which I am allergic to. Tom Guilford who made it (a doctor) told me the glycerin is necessary. I gave the bottle to a friend. I am more interested in the nebulized anyway, from my friend's terrific response.I think my home needs an exorcism or something. Ever since you brought your daughter here (no connection I'm sure) everything has gone wrong. My chamber had a leak (which I realized when I put her in). My laptop broke. My main computer broke and the power source had to be replaced. Both are good machines and only a few years old. Even my floor lamp decided to break.I was put into the bronx chamber after someone who had bronchitis (why they put a person with bronchitis into a chamber I have no idea). I developed a cold cough and sinus. I went to New Jersey to try the monochamber for $25 as I thought, I was so tired of going out to the Bronx and I didn't like the lack of safety hygiene after that. I got barotrauma from the monochamber in NJ which I hate anyway (I just hate glass and steel monochambers they make me feel like I'm in a coffin, and I don't pressurize my ears well when lying flat). My ear is still bothering me and my sinuses nearly 2 weeks later.They repaired my chamber and on Thursday were ready to ship it back. I paid through the nose for second day air so I"d have it today at the latest.Being the very organized Virgo that I am I called at noon today to get the tracking #. Hmmm, the company said, that's strange, its been rescheduled for tmorrow becuase they can't find the receipient (ie me.) Then he goes, oh no, the address is wrong! You're not at 330...you're at 230, right?I was like, right, who put 330?(Obviously HE put 330.)I called UPS in utter hysterics saying its a medical device and I must have it today (I have really relapsed without it). The driver is only TEN BLOCKS AWAY.But he can't deliver it, they said, as I'm not in his zone.I just begged and begged so finally they said he'll drop it off at 7:30 pm tonight on his way back to the center. I said how do you know. They said we sent him an email message and he's a good driver. I said can I call him, I'm really worried and deseprate. They said no but he will drop it off.Now I'm biting my nails all day wondering whether he will at the end of day shrug and say I'm too busy, or actually drop it off to be kind.NOw folks you tell me. I'm enough of a mystic that this is too much. My friend Melody said I need a space clearing. I don't know but something is very strange around here.> Hi Jill,> > > So for $60 for a nebulizer,> > and buy some glutathione via rx from my doc, heck, might as well try> > it.> > Did I ask you if you've tried lipoceutical GSH (from Wellness) or did I > just imagine that I asked? Would you be interested in comparing the > two delivery forms--lipoceutical and nebulizer? I think a lot of > people would be really interested.> > Sorry to hear you've been having a rough time lately, and am looking > forward to hearing of your improvement when you get your chamber back.> > Sue ,> Upstate New York