Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Thanks. This is indeed helpful. I am fortunate to have a PCP who is open to weird ideas that I have and also incredibly attentive. I will call him and discuss getting further evaluations for her. Thanks to everyone who answered and everyone who tolerates off-topic questions so well. I really wasn't comfortable with the vagueness of her symptoms, or sure that I even needed to go any further. Liz > > Reply-To: csb-autism-rx > Date: Mon, 11 Oct 2004 07:53:50 -1000 > To: <csb-autism-rx > > Subject: Re: OT: help for possible brain injury > > > Aloha , > > I would like to reply to your concern regarding the head trauma received by > your child. I would like to clarify as an R.N. I cannot diagnose, but can > offer suggestions to you to further medical diagnostics if you so choose. My > specialty is spinal cord rehabilitation so I can only comment from my > incidental exposure with TBI or traumatic brain injury. > > The symptoms you describe are many weeks after the initial injury. At the > onset of injury however, physician's are on the look out for closed head > trauma or bleeding inside the cranium. She is many weeks post incident, and > you do not describe her as complaining of headaches and/or sensitivity to > sunlight, for example. Still as a Mom you have an intuition about your child > most others don't, my advice is to trust your intuition. > > You asked about further testing. When a person suffers blunt force trauma > to the front of the cranium there is the possibility that a condition may > result known as " contracoup " . This means that although your child had a lump > on the front of her cranium the force of the blow could have forced the > brain backward resulting in trauma to the back of the brain ( opposite the > site you observed where the lump is ). It might seem odd to you at first > that further evaluation for symptoms resulting from this type of injury to > the back of the brain may still be requested by your treating physician. > > My suggestion to you is to seek out experts in this field for diagnosis and > testing. I recommend a neurosurgeon consult because these are the experts in > this field of medicine. I worked along side many. Simple non-invasive neuro > checks can be done in one office visit by a neurosurgeon and can be > beneficial when it comes to determining any need for futher testing and > diagnosis. Some neurosurgeons even perform tests that you may have heard > about such as MRI's themselves because they will know what they are looking > for based on your description of your child's specific injury and post > injury symptoms. > > Sincerely, > > > > > OT: help for possible brain injury > > >> >> DR. M, and anyone who has an opinion: >> >> My theoretically NT daughter, 8, was injured in a scooter accident this >> summer. She also fell off her bike while learning to ride and got some big >> scrapes. It was a very traumatic few weeks, with her getting 4 stitches in >> her nose. >> >> Her helmet took the brunt of the impact, but she did have huge bruising > and >> swelling on her forehead. There was no sign of concussion at the time: no >> dizziness, headache, etc., and she was checked out by a doctor. >> >> Now she is having some trouble, and I am not sure how to proceed. She >> continues to be whiny and clingy. She is having trouble getting ready for >> school in the morning. No matter how simple the task, she gets distracted. >> She's always needed direction, but now I have to stay right on top of her. >> She is anxious and fearful. >> >> Some of these signs point quite strongly to Post Traumatic Stress > Disorder. >> My brother has this, so I'm familiar with it to a degree. >> >> She could also have had a brain injury, even though it passed below the >> radar of the diagnostician at the time. >> >> She also comes from a long family history of ADD, and probably has a mild >> case of it to begin with. It seems quite a bit worse, now, although her >> teacher says she's doing fine at school. She was actually quite surprised >> that I said there was anything wrong. She is apparently happy at school > and >> has plenty of friends. >> >> She may simply have gotten into some poor habits, as I babied her a LOT >> after the accident. There may be a bit of manipulation going on. >> >> What sort of medical path should I take, if any? Anything I should be > doing >> biomedically? Other suggestions? >> >> Liz >> >> >> >> >> Many frequently asked questions and answers can be found at > <http://forums.autism-rxguidebook.com/default.aspx> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Hmm...is this something likely to be covered by insurance? I have an osteopath, but is this something substantially different? Liz > > > > Hi Liz, I'm so sorry to hear about your daughter. In your shoes, I'd find a > well-recommended cranialosteopath who can address any stress remaining in > the cranial structure which (as I understand it) could definitely affect her > behaviour, sleeping patterns, and/or moods. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 > > Do you think I should ask for a CT scan? I will be calling her doctor today > for some unrelated stuff. Is your daughter on the spectrum, and did she > benefit from the anti-oxidants, in your opinion? > > Liz I don't know about the scan. My daughter is or was ADHD/CAPD/LD, etc. She became those at 11 yrs old after HEP B & MMR Boosters. Yes she did benefit from the anti-oxidants, I think. I upped them during this period of time but do keep her on some ordinarily as part of bio- med with chelation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 I THINK some insurance people do cover it, depending in part on whether they feel the reason is good enough. Seems to me that they covered us for 3 sessions years ago after our little boy had a traumatic birth. Is it different - yes, my understanding is that it's a whole other specialty because it deals with (something like)the rhythm of the cerebral or spinal fluid, the feel of the skeletal plates, all stuff that's mind-blowingly subtle. And I would warn you that the treatment is so subtle that you wonder if you're being had. However, I have several friends whose children slept notably better afterwards, and my husband's headaches improved. Re: Re: OT: help for possible brain injury > > Hmm...is this something likely to be covered by insurance? I have an > osteopath, but is this something substantially different? > > Liz > > > > > > > > > Hi Liz, I'm so sorry to hear about your daughter. In your shoes, I'd find a > > well-recommended cranialosteopath who can address any stress remaining in > > the cranial structure which (as I understand it) could definitely affect her > > behaviour, sleeping patterns, and/or moods. Good luck. > > > > > Many frequently asked questions and answers can be found at <http://forums.autism-rxguidebook.com/default.aspx> > > Quote Link to comment Share on other sites More sharing options...
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