Secondary porphyria update

[Guest guest]

Hi all,

This email I received this morning is most interesting. I have

permission to repost, but am leaving the name off.

Hi Penny,

You're not going to believe this but the 24hr urine test for

porphyria came up positive. I'm, I guess the word is, flabbergasted.

I've been told to make an appointment with an hematologist, which I

have on Monday.

Have I thanked you yet this week? Thank you!

It's all a little overwhelming really. I've been alternating between

laughing and crying. What if a ton of my symptoms go away and the

lyme is hardly a problem. Oh my, that's big! Either way i think I

end up feeling better than I do.

(signature ommitted)

I hope this person gets relief, and also keeps reporting on what's

being learned and any progress made.

penny