Nelly, urine test for Kryptopyrroles

[Guest guest]

Hi Nelly

I was tested for pyroluria/ high levels of Kryptopyrroles due to my

low zinc levels even when supplementing it, frequent infections, and

poor tolerance of meds etc many years ago at Biolab in London. Biolab

may know of similar labs in France who can carry out this test. It

may even be possible to have a sample sent there for testing; I

presume it depends upon how quickly the test has to be done . See

http://www.biolab.co.uk/singles.html

" Pyroluria and Porphyria

Some people produce more of the protein-like chemicals kryptopyrroles

and porphyrins than is healthy. These are genetically inherited

tendencies which increase a person's need for zinc. Stress also

depletes zinc. A person with this condition experiences nausea and

constipation, white spots on the fingers, pale skin, frequent

infections, impotency, and poor tolerance to meds. " Source -

http://www.sootoday.com/content/editorial/archived_editorials.asp?

EN=4188

" Many patients with CFS show white dots in their nails which is

associated with low B6, zinc and pyroluria with kryptopyrroles in the

urine, and if these levels are high there is high risk for acute

intermittent poryphyria, especially if reacting to drugs , chemicals,

fumes, perfumes and chlorpyrifos/pesticides and herbicides which can

cause a flare-up of porphyria, as also can barbiturates,

sulphnamides, neuroleptics, etc. " source -

http://www.laleva.cc/food/gmo_soma.html

If your levels raised Kryptopyrroles during die off you would at

least know why of your symptoms are occurring; if charcaol does the

business then it getting dealing with this might could prove fairly

straighforward.

Cheers, Tansy

> I am trying to work out what test would best be done to see if

secondary porphyria is something that needs to be considered in my

case but the tests seem to go after genetic defects mainly. I see D

wheldon tested his wife's urine for porphobilinogen, I wonder if this

would be considered indicative of secondary treatment induced

porphyria. Does anybody know how this is tested? I have urine

dipsticks that say they test urobilinogen and bilirubin but no

porphobilinogen

>

> Quote from 's updates:

>

> " Her urine was found to contain abnormally elevated levels of

porphobilinogen, and this while she was on an antiporphyria regimen

(high fluid input, high carbohydrate diet, avoidance of red meat and

alcohol, activated charcoal twice a day;) this is evidence that the

reaction has at least some elements of a secondary porphyria. "

>

> Nelly

>

>

>