Re: Cheney/Vasculitis/Hypercoagulation

[Guest guest]

I agree that infection causes hypercoagulation, as well as reduced

blood volume. Trouble is, we should all be getting tested for

genetic clotting disorders, and we aren't. It could be a major

factor in predisposing us to an inability to fight off these

infections.

The vast majority of people with chronic osteomyelitis (and I'd

venture to guess, diseased sinuses) test positive for genetic

clotting disorders, and nattokinase will do nothing for that.

Nattokinase can remove fibrin, but it can't unthicken blood that's

not clotting right to begin with.

According to Dr.s MacMahon, and Gleuck, etc., IF you've got a

clotting disorder, AND you've got an INR below 3.5, ain't no amount

of abx going to cure you.

penny

" jellybelly92008 " <herranenb@h...> wrote:

> Nattokinase is something that you can get at the health food

store. It cleans up the fibrin and much of the toxic junk that ends

up in our blood stream causing vasculitis possibly. I would venture

a guess that pathogens are present even in the cell walls of our

> circulation system as well. If hypercoagulation is present and

> coating the inside of our blood vessels, you can take ABX forever,

> and until that fibrin is removed the ABX won't be able to reach

the pathogens like they should.

>

[Guest guest]

I also agree that there are genetic clotting disorders. But those

effect the general population just as much as they do us...right or

wrong? If you have info indicating that we have a higher incidence

of genetic clotting disorders, I would love to know that.

I do know that if you have a genetic clotting disorder and then have

ISACs on top of the genetic stuff, you could be in serious danger.

Thankfully I tested negative for all of the genetic stuff. Hemex

does offer the genetic testing as well now because there is a

certain number they are finding have the unfortunate genetics.

-- In infections , " penny "

<pennyhoule@y...> wrote:

> I agree that infection causes hypercoagulation, as well as reduced

> blood volume. Trouble is, we should all be getting tested for

> genetic clotting disorders, and we aren't. It could be a major

> factor in predisposing us to an inability to fight off these

> infections.

>

> The vast majority of people with chronic osteomyelitis (and I'd

> venture to guess, diseased sinuses) test positive for genetic

> clotting disorders, and nattokinase will do nothing for that.

> Nattokinase can remove fibrin, but it can't unthicken blood that's

> not clotting right to begin with.

>

> According to Dr.s MacMahon, and Gleuck, etc., IF you've got a

> clotting disorder, AND you've got an INR below 3.5, ain't no

amount

> of abx going to cure you.

>

> penny

>

> " jellybelly92008 " <herranenb@h...> wrote:

> > Nattokinase is something that you can get at the health food

> store. It cleans up the fibrin and much of the toxic junk that

ends

> up in our blood stream causing vasculitis possibly. I would

venture

> a guess that pathogens are present even in the cell walls of our

> > circulation system as well. If hypercoagulation is present and

> > coating the inside of our blood vessels, you can take ABX

forever,

> > and until that fibrin is removed the ABX won't be able to reach

> the pathogens like they should.

> >

[Guest guest]

" jellybelly92008 " If you have info indicating that we have a higher

incidence of genetic clotting disorders, I would love to know that.

No way of knowing for sure because we don't get tested routinely.

However, from my own personal experience, out of the many, many

people I know with chronic osteomyelitis (bone infection) who got

tested for clotting disorders, only two didn't have them. Meaning

only those 2 have no genetic predisposition to clotting disorders or

to the problems that go along with clotting disorders. Everybody

else did.

To me, this indicates that PERHAPS one reason many of us can't get

well with treatment, or maybe even why we get sick in the first

place, is because the clotting disorder is crippling our immune

system's ability to effectively get to the problem. Then the

infection exacerbates the problem, causing hypercoagulation of the

blood on top of an already less than optimum situation.

I haven't done the testing, but I do know that I ended up with 3 dry

sockets when I had my wisdom teeth removed. That's not normal

clotting. I'm just assuming I've got the clotting disorders too,

since pretty much everybody I know does. If I decide to go back on

i.v. abx, I will definitely get the blood work done (according to

Gleuck), because I do trust these few docs to know their business,

and if they say you've got to use coumadin (nothing else) to get

your INR up to 3.5, otherwise the i.v. abx is useless (if you do

indeed have a true clotting disorder), I'm fairly inclined to

believe them.

penny

[Guest guest]

Very good post.. This is a wonderfull A to Z of things.I have

increased fruit many times a day in my diet believeing it has some

powerfull Enzyme activity. I also eat papya and find this combo of

fruit and vegtables can help clear the toxins.I look at my mother's

skin a very high consumer of fruits and veggies and can see the glow

of a healthy organ (the skin).

I also observed that on austrlian idol many of the contestants after

being pampered with breakfast and lunch smorgasboards high in friuts

and vegtable that they also gained this healthy skin glow over the

weeks.Some showed a huge difference when they really needed this

increased enzyemn activity. .I also believe that a strong coffee

addiction may have a negative impact dehydrating us.

My grandfather was a farmer who had orchards and my mother has been

brought up eating 10 apples a day and she throws in many other friut

and veg ...

> > >> > > > > Hi all,

> > >> > > > >

> > >> > > > >    The SPECT Brain Scans that were done in the

> > >> > > early 90's by Jay

> > >> > > > Goldstein & others on CFS patients showed

> > >> > > > > Hypoperfusion (Low Blood Flow).

> > >> > > > >

> > >> > > > > As a result of the Peckerman study, Dr. Cheney

> > >> > > says the result of

> > >> > > > the low cardiac output in CFS is poor

> > >> > > micro-circulation . It would

> > >> > > > appear that  this is what  caused the

> > >> > > Hypoperfusion in the SPECT

> > >> > > > Scans. Right ?

> > >> > > > >

> > >> > > > >

> > >> > > > > Al

> > >> > >

> > >> > >

> > >>

> > >>

> > > __________________________________________________

> > >

[Guest guest]

Penny said:

" According to Dr.s MacMahon, and Gleuck, etc., IF you've got a

clotting disorder, AND you've got an INR below 3.5, ain't no amount

of abx going to cure you. "

Penny:

So why is that then? Cuz the abx can't get where you want it?

Barb

> > Nattokinase is something that you can get at the health food

> store. It cleans up the fibrin and much of the toxic junk that

ends

> up in our blood stream causing vasculitis possibly. I would

venture

> a guess that pathogens are present even in the cell walls of our

> > circulation system as well. If hypercoagulation is present and

> > coating the inside of our blood vessels, you can take ABX

forever,

> > and until that fibrin is removed the ABX won't be able to reach

> the pathogens like they should.

> >

[Guest guest]

I wonder what Berg has found in his testing of both ISAC and genetic

disorders?

I've had 3 wisdom teeth pulled. My doctor who did it said " dry

socket " is VERY common in the lower teeth. I've had 2 top pulled and

sure enough the bottom one gave me trouble. So much so that I am not

so anxious to have the other one pulled. I was on heparin at the

time all of these teeth were pulled, maybe that made a difference.

He explained why dry socket happens on the bottom, but I don't

remember what it was.

> " jellybelly92008 " If you have info indicating that we have a

higher

> incidence of genetic clotting disorders, I would love to know

that.

>

> No way of knowing for sure because we don't get tested routinely.

>

> However, from my own personal experience, out of the many, many

> people I know with chronic osteomyelitis (bone infection) who got

> tested for clotting disorders, only two didn't have them. Meaning

> only those 2 have no genetic predisposition to clotting disorders

or

> to the problems that go along with clotting disorders. Everybody

> else did.

>

> To me, this indicates that PERHAPS one reason many of us can't get

> well with treatment, or maybe even why we get sick in the first

> place, is because the clotting disorder is crippling our immune

> system's ability to effectively get to the problem. Then the

> infection exacerbates the problem, causing hypercoagulation of the

> blood on top of an already less than optimum situation.

>

> I haven't done the testing, but I do know that I ended up with 3

dry

> sockets when I had my wisdom teeth removed. That's not normal

> clotting. I'm just assuming I've got the clotting disorders too,

> since pretty much everybody I know does. If I decide to go back on

> i.v. abx, I will definitely get the blood work done (according to

> Gleuck), because I do trust these few docs to know their business,

> and if they say you've got to use coumadin (nothing else) to get

> your INR up to 3.5, otherwise the i.v. abx is useless (if you do

> indeed have a true clotting disorder), I'm fairly inclined to

> believe them.

>

> penny