naive me

[Guest guest]

Hi folks,

Things are not going well here in Halifax, Nova Scotia as far as Lyme

treatment goes. I just got final word from the ID doc today that she

doesn't see enough evidence that I have Lyme disease and that in any

case, I have already had enough antibiotics to kill it off (even though

I never have had the high dose antibiotics Lyme docs recommend) etc.

etc.

Well, I guess that happens to most Lymies when they see ID docs, but I

was naive enough to think that if I presented her with a notebook full

of studies and pointed out various inconsistencies like the CDC

claiming that there's no evidence that Lyme bacteria persists when

there is a bibliography of 67 such studies available on the internet

(plus more not on the list), she would see reason. But no, it is

basically her studies versus my studies and hers win because she is the

doc.

Also, she believes that my WB IgM is a false positive due to

cross-reactions, even though I have Lyme-specific bands according to

the Lyme doctors. (Plus my son has even more such Lyme-specific bands

than I do.) The doc also believes that except at the very beginning of

the disease, the standard ELISA and Western Blots always show a robust

reaction if the person has Lyme.

My myriad symptoms, according to her, indicate CFS, Fibromyalgia, or a

sleep disturbance. Right.

So now I have no doctor who will treat me (my GP is going whichever way

the ID doc goes) and I have to wait for an appointment with some Lyme

doctor thousands of miles from my home.

Suggestions for what to do until then so I don't lose the progress I

made taking the every-other-day minocycline would be appreciated. If

it's bordering on not legal, send me a private email!

My son's ID doc and team hasn't made a final pronouncement about him,

but I think we know what we can expect. At least he is already seeing a

Lyme pediatrician in the States.

- Kate D.