Re: new to group

[Guest guest]

Pam -

I agree, but want to add that being scared is normal - and so is being

depressed over such a life change. It's hardest to deal with at first,

mainly because of the fear and depression. We do, though, get through

it, though there can be moments when we aren't so sure. Just know

that all of us here have been through or are going through the same things,

though the details may be different, and most - probably all - understand

and will support you in both the technical and emotional aspects.

-- Heidi

Moulton wrote:

Hi Pam

I don't blame you for being frightened of this diagnosis.

I was also when I

was diagnosed with it about four years ago. However, the

more you learn,

the more you'll see it's symptoms can be managed pretty well and

with

surgical intervention, when needed, things can settle down some.

We're here to help you any way we can...

Kathy

New to group

> Hi,

>

> My names Pam and I'm from England. I was born with

> what I was told was a mild form of SD nearly 40 years

> ago now. I was operated on at 3 months. My mum said

> I had a limp on my back. That's all i ever knew and she

> wasn't told much more either. My childhood and early

> teens were normal. What I remember is getting to my

> early 20's and starting to have occasional "accidents"

> with my bowel and bladder. My doctors prescribed

> Colofac and said I had Irritable bowel syndrome! Mid

> 20's I went back complaining of increasing numbness in

> legs only to be told I was imagining it! Had 2 kids and

> bowel/bladder problems increased to which my doctors

> told me go do your pelvuc floor exercises! Lately

> starting having cramp in my right leg and noticed it was

> much thinner than my left. Also people started asking

> why I was limpimg. Went back to doctors who still

> believed it was a "womans" problem ie. childbirth. Sent

> me, reluctantly, to a urologist who thankfully spotted I

> needed to see a Neurologist. Had an MRI in March and

> have been diagnosed with tethered cord. I'm seeing a

> neurosurgeon in May. I'm scared...

[Guest guest]

Pam - Just a short note to let you know you have found a great place

to talk with others that totally understand. These are some of the

nicest people.....Welcome.

Lynn

> Hi,

>

> My names Pam and I'm from England. I was born with

> what I was told was a mild form of SD nearly 40 years

> ago now. I was operated on at 3 months. My mum said

> I had a limp on my back. That's all i ever knew and she

> wasn't told much more either. My childhood and early

> teens were normal. What I remember is getting to my

> early 20's and starting to have occasional " accidents "

> with my bowel and bladder. My doctors prescribed

> Colofac and said I had Irritable bowel syndrome! Mid

> 20's I went back complaining of increasing numbness in

> legs only to be told I was imagining it! Had 2 kids and

> bowel/bladder problems increased to which my doctors

> told me go do your pelvuc floor exercises! Lately

> starting having cramp in my right leg and noticed it was

> much thinner than my left. Also people started asking

> why I was limpimg. Went back to doctors who still

> believed it was a " womans " problem ie. childbirth. Sent

> me, reluctantly, to a urologist who thankfully spotted I

> needed to see a Neurologist. Had an MRI in March and

> have been diagnosed with tethered cord. I'm seeing a

> neurosurgeon in May. I'm scared...

[Guest guest]

Hi Kim and Welcome. I also have a tendency toward diabetes. My mother's entire family including her mom along with several cousins have type 2 diabetes. I refuse to go there and really have been working on eating several times during the day and sticking to a more high protein diet. I had weight issues due to not eating enough, which is weird but the drs told me and I knew when I eat properly I lose weight. I have lost over 40 pounds in the last 10 months and am now in training for running a marathon. It is something that I do for myself, being healthy. I think that is the key to anything we do. If we do it for ourselves, we make it. If we do it for someone else we fall down a lot more. It is harder in my experience. At least for me.

Again, welcome. We always enjoy new people!

Jane

[Guest guest]

welcome kim,glad to have you here.

Are you aware the movie has finally made it to trailer stage?

laurie

>

> Hi,

> My name is Kim and I live in southern CA. I joined this group because

> I found out yesterday that I am pre-diabetic because of my weight. I'm

> hoping to find some support and motivation from others, as well as

> helping to motivate.

> Kim

>

[Guest guest]

Welcome to the group, Kim. Get on a good program (i.e. good lifestyle for you) right now. My son has let time and habits slide and at 41 had a heart cath today, a five vessel bypass six years ago and has lost a toe to his diabetes. He keeps planning to get serious about his diabetes "very soon" Just by working on my eating habits, I have gotten my blood sugar back in the normal range. I plan on being around to watch my great grandchildren be born and grow up. Life it too rich and fun to limit it or shorten it for the sake of an extra helping or rich snack. You can do it - we can help.

W

New to group

Hi,My name is Kim and I live in southern CA. I joined this group because I found out yesterday that I am pre-diabetic because of my weight. I'm hoping to find some support and motivation from others, as well as helping to motivate.Kim

Internal Virus Database is out-of-date.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.16.14/637 - Release Date: 1/18/2007 1:03 PM

[Guest guest]

Thank you, .

I'm going to be starting on Optifast in a few weeks. I'll be fasting for a while then will slowly be introduced back to foods. The good thing about it is that we'll have weekly group meetings. I think that will be a big help for me. In the meantime, I'm making healthier choices in what I do eat, limiting my calories, fat & carbs, and making it a point to walk every day.

I hope all goes well with your son and he starts to take his health more seriously. I went for a long time that I would admit to myself that I was overweight and needed to lose, but just didn't have the motivation to stick with anything. When the doctor told me that I am pre-diabetic, that really hit home. I don't like needles and have never been able to watch when they draw blood for me, so I'm determined to get the weight off so I don't become insulin dependent.

Kim Stead

Avon Independent Sales Representative

Home:

Cell

join Avon for only $10 and earn up to 50%

Visit my web site and click "Opportunity" for more info

http://KStead.AvonRepresentative.com

Free business cards, just pay shipping:

http://secure.vistaprint.com/frf?frf=401451565149

-- Re: New to group

Welcome to the group, Kim. Get on a good program (i.e. good lifestyle for you) right now. My son has let time and habits slide and at 41 had a heart cath today, a five vessel bypass six years ago and has lost a toe to his diabetes. He keeps planning to get serious about his diabetes "very soon" Just by working on my eating habits, I have gotten my blood sugar back in the normal range. I plan on being around to watch my great grandchildren be born and grow up. Life it too rich and fun to limit it or shorten it for the sake of an extra helping or rich snack. You can do it - we can help.

W

New to group

Hi,My name is Kim and I live in southern CA. I joined this group because I found out yesterday that I am pre-diabetic because of my weight. I'm hoping to find some support and motivation from others, as well as helping to motivate.Kim

Internal Virus Database is out-of-date.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.16.14/637 - Release Date: 1/18/2007 1:03 PM

[Guest guest]

Hi Jane,

WTG on losing 40 lb. That's great!!!

I've only been eating dinner for the past few weeks. I know it's not good for me either, but I just haven't been hungry. I currently have 12 prescriptions that I take on a daily basis, and would really like to cut that number down. I know that the only way to do it is to lose weight and make healthier choices.

Unfortunately I'll never be able to run a marathon, but I can at least work to increase my walking distance.

I do agree that we need to do it for ourselves.

Kim

-- Re: New to group

Hi Kim and Welcome. I also have a tendency toward diabetes. My mother's entire family including her mom along with several cousins have type 2 diabetes. I refuse to go there and really have been working on eating several times during the day and sticking to a more high protein diet. I had weight issues due to not eating enough, which is weird but the drs told me and I knew when I eat properly I lose weight. I have lost over 40 pounds in the last 10 months and am now in training for running a marathon. It is something that I do for myself, being healthy. I think that is the key to anything we do. If we do it for ourselves, we make it. If we do it for someone else we fall down a lot more. It is harder in my experience. At least for me.

Again, welcome. We always enjoy new people!

Jane

[Guest guest]

welcome pearl!

laurie

>

> Thank you for having me. i truely cannot wait to see what goes on

with in the group. i hope for inspiration in getting healthier.

>

> --- Pearl

>

>

> ---------------------------------

> We won't tell. Get more on shows you hate to love

> (and love to hate): Yahoo! TV's Guilty Pleasures list.

>

[Guest guest]

I am going to check that site now, thanx. I have struggled with weight all my life, but am determined come hell or high water to get it off this time! Wasting too much life being fat, you know? I have really been commited this time, and it feels different this time, so maybe i'll succeed finally! And then I want a tummy tuck,after 3 kids (C- sect) and 2 hernia surgeries, my gut is terrible! uuggh! Later..spamthekat wrote: that's a fantastic amount of weight for 4 months of work.have you

followed the Biggest Loser saga? I would recommend checking their website and seeing how they copedwith the plateau when all the contestants hit it during that firstseason. I remember even the trainers were shocked by how hard and fastthey hit the plateau. What I cant remember was how they got past it.I wish I could say I hit a plateau! i've really gained back all my weight and i'm trying to figure out howto re-do my diet if i'm not going to be getting enough excercise. laurie>> Hi all----> Just joined this group today and wanted to introduce myself. Myname is and I am 42, and I have been on my own weight lossprogram and have been walking and excercising and have lost 43 lbs.since Jan 1. I am working together with a

friend at work. I seem tohave hit a plateau and was wondering if anyone can tell me have to getthat scale moving again!!!!! I have about 80 more lbs. to lose. Thanx so much...> > > in VA > " Hold on to your dream maybe this is your moment"> > > ---------------------------------> Ahhh...imagining that irresistible "new car" smell?> Check outnew cars at Yahoo! Autos.> in VA " Hold on to your dream maybe this is your moment"

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Yahoo! Autos.

[Guest guest]

 Hi,

I just joined the group yeterday and wanted to give an intro. My name is Tammy,

I am 34 years old. I have 3 kiddo's.  My oldest is 9 and she is special needs(

we were actually told she would not live past 2). She is still  like an infant,

has a feeding tube, and is total care. I have 2 sons they are 6 and 7. They keep

my busy too. 

I went into the hospital on Sept 26th to have myy gall bladder removed.  When I

came out of surgery they told me that they found something else, that I had

cirrhosis of the liver. This took me back,  I just couldnt imagine why they

would say that. Being uneducated in the subject my first response was " Well I

dont drink or do drugs how could that be " .  The doctor explained to me that

there are many ways to get it.   After many many test, we still dont know the

cause.  I have a few more test i have to have so hopefully they can figure it

out.  I was suppose to have a surgery on Tuesday(DNC/Ablation) but my doc called

and said she had to cancel it because my platelets were too low. They were

101--I guess they are suppose to be around 300.  I go to the hemotologist on

Friday to see what is happining there.  I have dealt with lots and lots of

medical issue's with my daughter, and worked for Hospice before I had kids.  So

 know a bit of info about

some things, but when it comes to me--I just have no clue.  I dont know what

questions to ask, what plan of action to take.  I am just so darn exsausted all

the time and am tired of feeling tired--lol. 

I look forward to " meeting " you all.

Tammy 

[Guest guest]

welcome tammy ,you have landed in the best little support group ever

honey.you sure have a great deal of strenghth already from dealing

with you darling daughter, so keep relying on that strenghth ,and you

now have all of us here to help support you. i am new to liver

disease as well ,my husband was diagnosed in aug.,he also has hep.c

from we dont know where land,its crazy but it happens. have you had a

byopsy yet to determine what stage you are in? i am glad you have an

appt. with the hep.dr. he will answer alot of your questions, others

here can give you alot of good info to ask about also.good luck to

you and keep us posted with how your appt. goes friday,again welcome

to our familt we are glad to have you here much love barby

>

>  Hi,

>

> I just joined the group yeterday and wanted to give an intro. My

name is Tammy, I am 34 years old. I have 3 kiddo's.  My oldest is 9

and she is special needs( we were actually told she would not live

past 2). She is still  like an infant, has a feeding tube, and is

total care. I have 2 sons they are 6 and 7. They keep my busy too. 

>

> I went into the hospital on Sept 26th to have myy gall bladder

removed.  When I came out of surgery they told me that they found

something else, that I had cirrhosis of the liver. This took me

back,  I just couldnt imagine why they would say that. Being

uneducated in the subject my first response was " Well I dont drink or

do drugs how could that be " .  The doctor explained to me that there

are many ways to get it.   After many many test, we still dont know

the cause.  I have a few more test i have to have so hopefully they

can figure it out.  I was suppose to have a surgery on Tuesday

(DNC/Ablation) but my doc called and said she had to cancel it

because my platelets were too low. They were 101--I guess they are

suppose to be around 300.  I go to the hemotologist on Friday to see

what is happining there.  I have dealt with lots and lots of medical

issue's with my daughter, and worked for Hospice before I had

kids.  So  know a bit of info about

> some things, but when it comes to me--I just have no clue.  I dont

know what questions to ask, what plan of action to take.  I am just

so darn exsausted all the time and am tired of feeling tired--lol. 

>

> I look forward to " meeting " you all.

> Tammy 

>

>

>

>

>

[Guest guest]

Hi Tammy and welcome to the group.  I am so happy you have found us.  I know

you're probably scared out of your wits right now.  I would be if I were in your

place.  I know you have a lot on you.  I don't have cirrhosis, my husband does. 

So, I don't have the first hand experience but I do see the effects it has on

him.  I just want you to know that my prayers are with you.  Post anytime, ask

questions or just vent your frustrations.  We're all here to help if we can. 

Take care of yourself and keep us posted.  Hopefully you will have all the

information soon.  I personally find it easier to deal if I have all the

information I can get my hands on so I can make a plan of action.  Praying for

you and thanking the Lord for leading you to us.  God bless!

Hugs.........

Diane C. from TN

________________________________

To: livercirrhosissupport

Sent: Thursday, November 20, 2008 8:53:24 AM

Subject: Re: New to group

 Hi,

I just joined the group yeterday and wanted to give an intro. My name is Tammy,

I am 34 years old. I have 3 kiddo's.  My oldest is 9 and she is special needs(

we were actually told she would not live past 2). She is still  like an infant,

has a feeding tube, and is total care. I have 2 sons they are 6 and 7. They keep

my busy too. 

I went into the hospital on Sept 26th to have myy gall bladder removed.  When I

came out of surgery they told me that they found something else, that I had

cirrhosis of the liver. This took me back,  I just couldnt imagine why they

would say that. Being uneducated in the subject my first response was " Well I

dont drink or do drugs how could that be " .  The doctor explained to me that

there are many ways to get it.   After many many test, we still dont know the

cause.  I have a few more test i have to have so hopefully they can figure it

out.  I was suppose to have a surgery on Tuesday(DNC/ Ablation) but my doc

called and said she had to cancel it because my platelets were too low. They

were 101--I guess they are suppose to be around 300.  I go to the hemotologist

on Friday to see what is happining there.  I have dealt with lots and lots of

medical issue's with my daughter, and worked for Hospice before I had kids.  So

 know a bit of info about

some things, but when it comes to me--I just have no clue.  I dont know what

questions to ask, what plan of action to take.  I am just so darn exsausted all

the time and am tired of feeling tired--lol. 

I look forward to " meeting " you all.

Tammy 

[Guest guest]

Hi, Tammy. welcome to our " family " . You'll love it here. My husband was

diagnosed over 2 years ago with stage 4 cirrhosis caused by NASH- non alcoholic

steato hepatitis.......it was basically caused by a combination of diabetes,

high cholesterol,high triglycerides. was undetected until he had a bleed from

bleeding varices. At any rate, you talked about your low platelet count. Ed

always has low platelet counts due to his enlarged spleen--which is caused by

cirrhosis. His hepatologist and hemotologist both say it's because his platelets

pool in his spleen instead of getting out to the rest of his body where they

belong.I don't know if this helps you,but it's our story.   I'm glad you're

here. I'm always thankful I found this forum.

                                       

                                    Love,Jill

 

We don't remember days, we remember moments.

Life is not measured by the breaths we take,but by the moments that take our

breath away.

Subject: Re: New to group

To: livercirrhosissupport

Date: Thursday, November 20, 2008, 9:53 AM

 Hi,

I just joined the group yeterday and wanted to give an intro. My name is Tammy,

I am 34 years old. I have 3 kiddo's.  My oldest is 9 and she is special needs(

we were actually told she would not live past 2). She is still  like an infant,

has a feeding tube, and is total care. I have 2 sons they are 6 and 7. They keep

my busy too. 

I went into the hospital on Sept 26th to have myy gall bladder removed.  When I

came out of surgery they told me that they found something else, that I had

cirrhosis of the liver. This took me back,  I just couldnt imagine why they

would say that. Being uneducated in the subject my first response was " Well I

dont drink or do drugs how could that be " .  The doctor explained to me that

there are many ways to get it.   After many many test, we still dont know the

cause.  I have a few more test i have to have so hopefully they can figure it

out.  I was suppose to have a surgery on Tuesday(DNC/ Ablation) but my doc

called and said she had to cancel it because my platelets were too low. They

were 101--I guess they are suppose to be around 300.  I go to the hemotologist

on Friday to see what is happining there.  I have dealt with lots and lots of

medical issue's with my daughter, and worked for Hospice before I had kids.  So

 know a bit of info

about

some things, but when it comes to me--I just have no clue.  I dont know what

questions to ask, what plan of action to take.  I am just so darn exsausted all

the time and am tired of feeling tired--lol. 

I look forward to " meeting " you all.

Tammy 

[Guest guest]

Tammy- Wecome to the group. I too have cirrhosis of uncertain origin. I do

have a family history of liver problems, but of different types. Also, I

was untreated and then undertreated for low thyroid. Some people say being

overweight can contribute too. I have lost weight since the diagnosis

hoping that will help. When I mention any of these possible causes to my

doctors, they just say they can't tell, that I do have it and now we have to

deal with it. I just try to do everything I can to keep it from

deteriorating faster. I am 65 and it really hurts to see people like you

with young families finding out you have this disease. I wish I could take

it for all of you. Praying for you Jan

On Thu, Nov 20, 2008 at 7:53 AM, Tammy Parsons <

austincannonrhianna@...> wrote:

> Hi,

>

> I just joined the group yeterday and wanted to give an intro. My name is

> Tammy, I am 34 years old. I have 3 kiddo's. My oldest is 9 and she is

> special needs( we were actually told she would not live past 2). She is

> still like an infant, has a feeding tube, and is total care. I have 2 sons

> they are 6 and 7. They keep my busy too.

>

> I went into the hospital on Sept 26th to have myy gall bladder removed.

> When I came out of surgery they told me that they found something else, that

> I had cirrhosis of the liver. This took me back, I just couldnt imagine why

> they would say that. Being uneducated in the subject my first response was

> " Well I dont drink or do drugs how could that be " . The doctor explained to

> me that there are many ways to get it. After many many test, we still dont

> know the cause. I have a few more test i have to have so hopefully they can

> figure it out. I was suppose to have a surgery on Tuesday(DNC/Ablation) but

> my doc called and said she had to cancel it because my platelets were too

> low. They were 101--I guess they are suppose to be around 300. I go to the

> hemotologist on Friday to see what is happining there. I have dealt with

> lots and lots of medical issue's with my daughter, and worked for Hospice

> before I had kids. So know a bit of info about

> some things, but when it comes to me--I just have no clue. I dont know

> what questions to ask, what plan of action to take. I am just so darn

> exsausted all the time and am tired of feeling tired--lol.

>

> I look forward to " meeting " you all.

> Tammy

>

>

[Guest guest]

Tami, yes, Platelets should be between 150 and 400. YOu need to be extra careful

with physical activity, and using knives, etc. Your blood will take a lot longer

to clot than normal. When my platelets were that low, I got terrible nose

bleeds. Back then I didn't know what was causing it. Take care, good luck, love,

BObby

Sent via BlackBerry from T-Mobile

Re: New to group

 Hi,

I just joined the group yeterday and wanted to give an intro. My name is Tammy,

I am 34 years old. I have 3 kiddo's.  My oldest is 9 and she is special needs(

we were actually told she would not live past 2). She is still  like an infant,

has a feeding tube, and is total care. I have 2 sons they are 6 and 7. They keep

my busy too. 

I went into the hospital on Sept 26th to have myy gall bladder removed.  When I

came out of surgery they told me that they found something else, that I had

cirrhosis of the liver. This took me back,  I just couldnt imagine why they

would say that. Being uneducated in the subject my first response was " Well I

dont drink or do drugs how could that be " .  The doctor explained to me that

there are many ways to get it.   After many many test, we still dont know the

cause.  I have a few more test i have to have so hopefully they can figure it

out.  I was suppose to have a surgery on Tuesday(DNC/Ablation) but my doc called

and said she had to cancel it because my platelets were too low. They were

101--I guess they are suppose to be around 300.  I go to the hemotologist on

Friday to see what is happining there.  I have dealt with lots and lots of

medical issue's with my daughter, and worked for Hospice before I had kids.  So

 know a bit of info about

some things, but when it comes to me--I just have no clue.  I dont know what

questions to ask, what plan of action to take.  I am just so darn exsausted all

the time and am tired of feeling tired--lol. 

I look forward to " meeting " you all.

Tammy 

[Guest guest]

I hate it when my nose does that!

Lyncia

 

In life family and friends take us on all kinds of adventures, God helps us

choose our path....Enjoy your journey!

Subject: Re: New to group

To: " Livercirrhosissupport " <livercirrhosissupport >

Date: Thursday, November 20, 2008, 2:17 PM

Tami, yes, Platelets should be between 150 and 400. YOu need to be extra careful

with physical activity, and using knives, etc. Your blood will take a lot longer

to clot than normal. When my platelets were that low, I got terrible nose

bleeds. Back then I didn't know what was causing it. Take care, good luck, love,

BObby

Sent via BlackBerry from T-Mobile

Re: New to group

 Hi,

I just joined the group yeterday and wanted to give an intro. My name is Tammy,

I am 34 years old. I have 3 kiddo's.  My oldest is 9 and she is special needs(

we were actually told she would not live past 2). She is still  like an infant,

has a feeding tube, and is total care. I have 2 sons they are 6 and 7. They keep

my busy too. 

I went into the hospital on Sept 26th to have myy gall bladder removed.  When I

came out of surgery they told me that they found something else, that I had

cirrhosis of the liver. This took me back,  I just couldnt imagine why they

would say that. Being uneducated in the subject my first response was " Well I

dont drink or do drugs how could that be " .  The doctor explained to me that

there are many ways to get it.   After many many test, we still dont know the

cause.  I have a few more test i have to have so hopefully they can figure it

out.  I was suppose to have a surgery on Tuesday(DNC/ Ablation) but my doc

called and said she had to cancel it because my platelets were too low. They

were 101--I guess they are suppose to be around 300.  I go to the hemotologist

on Friday to see what is happining there.  I have dealt with lots and lots of

medical issue's with my daughter, and worked for Hospice before I had kids.  So

 know a bit of info

about

some things, but when it comes to me--I just have no clue.  I dont know what

questions to ask, what plan of action to take.  I am just so darn exsausted all

the time and am tired of feeling tired--lol. 

I look forward to " meeting " you all.

Tammy 

[Guest guest]

Hi fsuchick89! Welcome. It took me over 20 years to find this had a

name for me. I wanted to tell you that you shouldn't beat yourself up

for feeling you should be able to endure the sounds better. We don't

deliberately push our loved ones away. I have come to a point where I

accept my emotion, my anger... and I don't blame myself. I think this

is important. You can't work past the emotion until you learn to

acknowledge it and accept it. Have you spoken to your father about

this? Maybe now that you know this has a name and is a real medical

condition, you could speak with him about it and let him try to

understand why you resort to the basement. At least he will know it's

not something personal toward him. I noticed you said you also have

anxiety. I do too. I was diagnosed a good 10 years after the onset

of my sound sensitivity. I think the sound sensitivity is partly

responsible. I hope you can find some things that can help you cope

here. Take care.

Darlene

>

> Hi. I just wanted to say thank you to whoever created this group.

> I really needed to know that other people suffered from misophonia.

> It wasn't until a few days ago, I found that my problem had a name.

> It took me 10 years! I have been researching online for a while now

> and I usually only get results for Hyperacusis. I have seen a

> therapist and she ignored the symptoms that I described to her. She

> told me that I was being silly and told my mother that I was craving

> attention. I really hope that everyone with misophonia can find help

> because my experience with it has been a rough challenge. I have

> lost the relationship with my dad. I will never forgive myself for

> being so selfish and not trying harder to endure the sounds. My

> father thinks I hate him because whenever he walks into a room, I

> move to the basment. I have tried very hard to stay around him but

> over the years more and more sounds have begun to bother me that are

> associated with him. I have also broken up with boyfriends that I

> really cared about over this.It's safe to say that this condition has

> not ruined my life, but has ruined some qualities of it.

> The noises that bother me begin with breathig and sniffing. It

> seems like the closer I get to a person, more sounds they make bother

> me. For example, my father's breathing used to just bother me. Now

> every sound he makes bothers me (Breathing, clearing of the throat,

> coughing and sniffing). I can't even look at his stomach moving up

> and down because I hear the sound in my head.

> Because of misophonia, I am an angry and moody person and the fact

> that I have anxiety, doesn't help. It sucks lol. I wish all of you

> that are suffering the best of luck!

>

[Guest guest]

Hey andra! I appreciate you sharing your story with me about your

dad. My dad may have lung cancer and is actually in the process of

going through alot of tests. The horrible thing is that when I was

12, I wished he would die because I used to blame others for my sound

sensitivity. Now that he may have lung cancer, I am debating whether

to bother him with my crazy problem. I want so badly to be close to

him again but it will be a huge challenge!!!

>

> Hi, welcome to the group )

>

> I know how you feel about your dad...I felt the same about mine.

Instead of the basement, I moved to the attic and our relationship

was strained pretty much my whole life. My relationship with my mom

was similar until I spoke with her about it and she no longer takes

my craziness personally (this is very important). I think that as 4S

sufferers we get so caught up in our anger that we forget to see the

other person's feelings at times, yest they are hurt but they also

take our anger personally. Once others understand that it's not them

but us they are better able to understand and be supportive. My

father died of cancer just a few months ago and I regret not being

able to explain to him why I acted the way I did. My advice to you

would be to speak to your dad and let him know how controlling this

condition can be and how bad you feel about how it's affecting your

relationship. I don't think that you will regret doing it.

>

> Love,

>

> andra

>

>

>

>

> ________________________________

>

> To: Soundsensitivity

> Sent: Thursday, January 22, 2009 3:09:44 AM

> Subject: New to group

>

> Hi. I just wanted to say thank you to whoever created this

group.

> I really needed to know that other people suffered from misophonia.

> It wasn't until a few days ago, I found that my problem had a name.

> It took me 10 years! I have been researching online for a while now

> and I usually only get results for Hyperacusis. I have seen a

> therapist and she ignored the symptoms that I described to her. She

> told me that I was being silly and told my mother that I was

craving

> attention. I really hope that everyone with misophonia can find

help

> because my experience with it has been a rough challenge. I have

> lost the relationship with my dad. I will never forgive myself for

> being so selfish and not trying harder to endure the sounds. My

> father thinks I hate him because whenever he walks into a room, I

> move to the basment. I have tried very hard to stay around him but

> over the years more and more sounds have begun to bother me that

are

> associated with him. I have also broken up with boyfriends that I

> really cared about over this.It's safe to say that this condition

has

> not ruined my life, but has ruined some qualities of it.

> The noises that bother me begin with breathig and sniffing. It

> seems like the closer I get to a person, more sounds they make

bother

> me. For example, my father's breathing used to just bother me. Now

> every sound he makes bothers me (Breathing, clearing of the throat,

> coughing and sniffing). I can't even look at his stomach moving up

> and down because I hear the sound in my head.

> Because of misophonia, I am an angry and moody person and the

fact

> that I have anxiety, doesn't help. It sucks lol. I wish all of you

> that are suffering the best of luck!

>

>

> ------------------------------------

>

> PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO

MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP

MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

>

> ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.

> Thank you. MJ

[Guest guest]

Hi Darlene! I have told my mother but not my father. My mother tells

me to " suck it up " and that I am being selfish. She is a psych

nurse! I figured that when I told her, she would know all about

it....but barely anyone has heard of misophonia. I try not to beat my

self up about it but I am sure you know what it feels like to not be

able to be around a loved one. There is like an invisible, emotional

wall that separates you and other people. I really do need to work on

figuring out a way to tell my dad. Thankyou and good luck to you too!

> >

> > Hi. I just wanted to say thank you to whoever created this

group.

> > I really needed to know that other people suffered from

misophonia.

> > It wasn't until a few days ago, I found that my problem had a

name.

> > It took me 10 years! I have been researching online for a while

now

> > and I usually only get results for Hyperacusis. I have seen a

> > therapist and she ignored the symptoms that I described to her.

She

> > told me that I was being silly and told my mother that I was

craving

> > attention. I really hope that everyone with misophonia can find

help

> > because my experience with it has been a rough challenge. I have

> > lost the relationship with my dad. I will never forgive myself

for

> > being so selfish and not trying harder to endure the sounds. My

> > father thinks I hate him because whenever he walks into a room, I

> > move to the basment. I have tried very hard to stay around him

but

> > over the years more and more sounds have begun to bother me that

are

> > associated with him. I have also broken up with boyfriends that I

> > really cared about over this.It's safe to say that this condition

has

> > not ruined my life, but has ruined some qualities of it.

> > The noises that bother me begin with breathig and sniffing. It

> > seems like the closer I get to a person, more sounds they make

bother

> > me. For example, my father's breathing used to just bother me.

Now

> > every sound he makes bothers me (Breathing, clearing of the

throat,

> > coughing and sniffing). I can't even look at his stomach moving

up

> > and down because I hear the sound in my head.

> > Because of misophonia, I am an angry and moody person and the

fact

> > that I have anxiety, doesn't help. It sucks lol. I wish all of

you

> > that are suffering the best of luck!

> >

>

[Guest guest]

I too am new to the group. I only recently started looking for a name

for what I have. At age 51, I have over the years learned ways to

block out the sounds. I only began to search after my 14 year old

daughter started showing signs of the same problem. I will only say

that our once peaceful family dinners have become pure hell! My

daughter now refuses to come to the table if my husband is

present...she can't stand the sounds he makes, and ends up angry and

storms out of the room. Her anxiety and anger have become very big

issues. Her grades are beginning to suffer in the last 3 months or

so. I want you to know that I cried for her the first time she had an

outburst. She was always complaining about the noises kids made at

school...gum chewing, sniffing, and repeated movements, but I guess I

never attributed it to 4S. She can no longer stand it when the dog

licks herself. It seems to be more intense than the symptoms I

exhibited. I will be lurking here, trying to find hope for my

daughter. Thanks, and bless you all!

[Guest guest]

Hi , I wanted to welcome you to the group! My mom also has this

condition as does my sister, and niece. I bet it's difficult to see

your daughter go through this. At least find comfort in the fact you

have each other to talk to about it. I never knew my other family

members had this until last summer. We all suffered in silence. My

dad was my first trigger as well, and that seems to be a common

thing... don't know why. Anyhow, welcome and I hope you can find

things to help you guys here.

Darlene

>

> I too am new to the group. I only recently started looking for a name

> for what I have. At age 51, I have over the years learned ways to

> block out the sounds. I only began to search after my 14 year old

> daughter started showing signs of the same problem. I will only say

> that our once peaceful family dinners have become pure hell! My

> daughter now refuses to come to the table if my husband is

> present...she can't stand the sounds he makes, and ends up angry and

> storms out of the room. Her anxiety and anger have become very big

> issues. Her grades are beginning to suffer in the last 3 months or

> so. I want you to know that I cried for her the first time she had an

> outburst. She was always complaining about the noises kids made at

> school...gum chewing, sniffing, and repeated movements, but I guess I

> never attributed it to 4S. She can no longer stand it when the dog

> licks herself. It seems to be more intense than the symptoms I

> exhibited. I will be lurking here, trying to find hope for my

> daughter. Thanks, and bless you all!

>

>

[Guest guest]

Hi Fsuchick89 )You and your happiness will never be a "bother" to your father...I'm sure that you would probably even give him quite a bit of peace by allowing him to understand your behavior a little. Our parents know us better than we think, I'm sure he suspects something is not quite right already. By explaining to him how you feel you would be allowing him to understand you better and you too would probably just become closer and stronger because of it. I think that the biggest challenge has been you dealing with this condition all on your own.Don't feel guilty about the way that this condition has enabled you to feel...I have wished for every gum chewer in the world to

die. You are not responsible for your father's illness, nor or you responsible for the amount of pain and anguish that this condition makes you feel. All you can do is try your best to deal with your situation and minimize the negative effects that this horrible condition has on you and those around you. I think your first step should be to be open and honest with those people that you love most. My life improved greatly when I did this and I would love for you to feel the same.Love,andraTo: Soundsensitivity Sent: Thursday, January 22, 2009 3:55:07 PMSubject: Re: New to group

Hey andra! I appreciate you sharing your story with me about your dad. My dad may have lung cancer and is actually in the process of going through alot of tests. The horrible thing is that when I was 12, I wished he would die because I used to blame others for my sound sensitivity. Now that he may have lung cancer, I am debating whether to bother him with my crazy problem. I want so badly to be close to him again but it will be a huge challenge!!!>> Hi, welcome to the group )> > I know how you feel about your dad...I felt the same about mine. Instead of the basement, I moved to the attic and our relationship was strained pretty much my whole life. My relationship with

my mom was similar until I spoke with her about it and she no longer takes my craziness personally (this is very important). I think that as 4S sufferers we get so caught up in our anger that we forget to see the other person's feelings at times, yest they are hurt but they also take our anger personally. Once others understand that it's not them but us they are better able to understand and be supportive. My father died of cancer just a few months ago and I regret not being able to explain to him why I acted the way I did. My advice to you would be to speak to your dad and let him know how controlling this condition can be and how bad you feel about how it's affecting your relationship. I don't think that you will regret doing it.> > Love,> > andra> > > > > ________________________________> From: fsuchick89

> To: Soundsensitivity > Sent: Thursday, January 22, 2009 3:09:44 AM> Subject: New to group> > Hi. I just wanted to say thank you to whoever created this group. > I really needed to know that other people suffered from misophonia. > It wasn't until a few days ago, I found that my problem had a name. > It took me 10 years! I have been researching online for a while now > and I usually only get results for Hyperacusis. I have seen a > therapist and she ignored the symptoms that I described to her. She > told me that I was being silly and told my mother that I was craving > attention. I really hope that everyone with misophonia can find help > because my experience with it has been a

rough challenge. I have > lost the relationship with my dad. I will never forgive myself for > being so selfish and not trying harder to endure the sounds. My > father thinks I hate him because whenever he walks into a room, I > move to the basment. I have tried very hard to stay around him but > over the years more and more sounds have begun to bother me that are > associated with him. I have also broken up with boyfriends that I > really cared about over this.It's safe to say that this condition has > not ruined my life, but has ruined some qualities of it. > The noises that bother me begin with breathig and sniffing. It > seems like the closer I get to a person, more sounds they make bother > me. For example, my father's breathing used to just bother me. Now > every sound he makes bothers me (Breathing, clearing of the throat,

> coughing and sniffing). I can't even look at his stomach moving up > and down because I hear the sound in my head. > Because of misophonia, I am an angry and moody person and the fact > that I have anxiety, doesn't help. It sucks lol. I wish all of you > that are suffering the best of luck!> > > ------------------------------------> > PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. > > ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.> Thank you. MJ

[Guest guest]

Your eating would probably drive someone with 4s crazy. My family eats so very very quietly for my daughter. She still thinks we are all pigs! The funny thing is is that she is probably the loudest eater of all of us, but she thinks she's being quiet.

The problem isn't rude loud eaters--the problem is 4s. No matter how soft and perfect someone eats, it will still drive a 4ser crazy!

We need research!

New to group> To: Soundsensitivity > Date: Wednesday, January 21, 2009, 1:09 PM> > > > > > > Hi. I just wanted to say thank you to whoever created this group. > I really needed to know that other people suffered from misophonia. > It wasn't until a few days ago, I found that my problem had a name. > It took me 10 years! I have been researching online for a while now > and I usually only get results for Hyperacusis. I have seen a > therapist and she ignored the symptoms that I described to her. She > told me that I was being silly and told my mother that I was craving > attention. I really hope that everyone with misophonia can find help > because my experience with it has been a rough challenge. I have > lost the relationship with my dad. I will never forgive myself for > being so selfish and not trying harder to endure the sounds. My > father thinks I hate him because whenever he walks into a room, I > move to the basment. I have tried very hard to stay around him but > over the years more and more sounds have begun to bother me that are > associated with him. I have also broken up with boyfriends that I > really cared about over this.It's safe to say that this condition has > not ruined my life, but has ruined some qualities of it. > The noises that bother me begin with breathig and sniffing. It > seems like the closer I get to a person, more sounds they make bother > me. For example, my father's breathing used to just bother me. Now > every sound he makes bothers me (Breathing, clearing of the throat, > coughing and sniffing). I can't even look at his stomach moving up > and down because I hear the sound in my head. > Because of misophonia, I am an angry and moody person and the fact > that I have anxiety, doesn't help. It sucks lol. I wish all of you > that are suffering the best of luck!>

[Guest guest]

so true Kathy! My father never had what I considered 'rude' manners

with food hanging out all over etc... but he did smack a bit and he

was my first trigger. My husband has always chewed very quietly and

has perfect manners but I can still hear that food sloshing around in

there. LOL. My niece is more on the rare side and is bothered by her

own eating sounds too, even though she is also a very polite, quiet

eater. Now that would suck! We do need this study!!

>

> Your eating would probably drive someone with 4s crazy. My family

eats so

> very very quietly for my daughter. She still thinks we are all

pigs! The

> funny thing is is that she is probably the loudest eater of all of

us, but

> she thinks she's being quiet.

>

> The problem isn't rude loud eaters--the problem is 4s. No matter

how soft

> and perfect someone eats, it will still drive a 4ser crazy!

>

> We need research!

>

[Guest guest]

I am also bothered by my own eating and chewing sounds ) It is difficult but at least you learn to be a very polite eater!!!To: Soundsensitivity Sent: Sunday, January 25, 2009 9:48:12 AMSubject: Re: New to group

so true Kathy! My father never had what I considered 'rude' mannerswith food hanging out all over etc... but he did smack a bit and hewas my first trigger. My husband has always chewed very quietly andhas perfect manners but I can still hear that food sloshing around inthere. LOL. My niece is more on the rare side and is bothered by herown eating sounds too, even though she is also a very polite, quieteater. Now that would suck! We do need this study!! >> Your eating would probably drive someone with 4s crazy. My familyeats so> very very quietly for my daughter. She still thinks we are allpigs! The> funny thing is is that she is probably the loudest eater of

all ofus, but> she thinks she's being quiet.> > The problem isn't rude loud eaters--the problem is 4s. No matterhow soft> and perfect someone eats, it will still drive a 4ser crazy!> > We need research!> ------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ