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I am printing out your words right now and taking them to the

doctor. Tony, you were the first to give me direction, I have often

told others of your efforts on my behalf when so many docs turned me

away.

Know what I find absolutely CRAZY ??? Remember when you tested my

swabs and you emailed me with a list of sensitivities and

resisitence ? I took that list to the doctor and he prescribed

antibiotics based upon your scribbles. Do you see the amazement here.

They never would prescribe without tests upon tests before, yet they

don't even try to call you but prescribe an antibiotic based upon an

email from an aussie? It literally blew me away and certainly took

away a bit of fear I had in them prior to that. Now I am pushier

about asking for what I want. It doesn't work to try and finaese the

antibiotics out of them. It is hard for me a polite southern girl to

be pushy, but when my life and my son's life is at stake , I " m

learning.

I'm hesitant about the doctor that I'm working with that is willing

to prescribe. I feel his office is non sterile. He does IV vitamins

and I only had to have one IV vitamins treatment to know that he is

not practicing sterile policy. The trash can was right next to the IV

needle, and various other things. So I'm in a bit of a dilemma. I

just won't get another IV treatment from him. No, I'm really not

being fussy. It is a serious matter, I almost feel like doing an

expose' but then he has helped me out sometimes.

He told me that he has another patient " just like me " that the

government is paying him whatever he wants for this soldier that just

got back from the Gulf sick. He also has Central Sleep Apnea, i.e.

brainstem leisons. He also spoke that the government is working on

Asian pathogen that is expected to be epidemic killing more than one

million americans. It is very hush , hush he said and he promised to

tell me more next visit.

Now this doctor is NOT a gossip and this info was the last thing I

expected my last visit. He usually doesn't speak much as I've asked

him point blank if I were a member of the forfeited generation, and

he admitted that yes, I was. He said in any emerging disease, that

one generation is considered a forfeit until the disease is to be

taken seriously. Taught in med school.

Now I am just passing along this information. He isn't a kidder or a

bull tossing kind of doctor. He is the serious sort, so I'm still

sizing him up.

I also was concerned that maybe I got the MRSA from his office as I

was there the week of the getting sick. But it really doesn't matter,

because you bring to a point that I really haven't wanted to

address. Fear I guess.

But I never felt better on the rocephin, or the vancamyacin this

time. And yes, when I had the periotonitis I did feel great on the

vanomyacin. This time though they kept lowering the dose dragging out

to two months what should have been resolved in a matter of weeks.

They kept having to add other antibiotics. One was the one you

recommended on the other forum, I passed it along. sorry I wasn't

able to get back to you to confirm. Adding that one finally did the

trick. Thanks..........

Do you have esp?

Here is one problem. Supposedly the ID doctor I had for the MRSA is

the best ID doctor in town. He is well known and highly respected for

his AIDS work. But I cannot get him to take me seriously. He keeps

blaming the pain narcotics for my problems. I'm trying to find

another ID doctor but when I'm asked who I've got now, people tell me

not to change. He tells me he won't treat me unless I get off the

pain meds. So I agree. Behind my back, I find out later that he calls

this woman pain doctor and tells her that I am a looney addicted pain

med woman who needs to hospital detox . She agrees to see me, when

all of a sudden she reviews my records and tells me that even if I

only have one of the three rare diseases I more than warrant the pain

medication I'm taking. She says she is going to call the ID doctor

and tell him that he is the looney one. She wants to install a

morphine pump. Now the ID doctor is pouting and mad that this woman

doc didn't back him up and instead sided with the patient.

Tony, I can't play these ego games. It is a joke. So I found another

doctor who will just do oral antibiotics until I can regroup and find

another ID doctor. I think last year that 85-90% if nt doctor visits

were first visits where the doctor refused to take me on as a

patient. Drove to Dallas and saw Stein Goldstein and even she

wouldn't treat me. She said that Lyme was the least of my worries,

that the central sleep apnea was a bigger problem Now she is well

respected but even she refused to connect the diseases of my immune

system, endocrine system and neuro system.

I had an appt. with a endocrinolgoist last week that took three

months to get. I was really sick that day, but didn't dare cancel.

The doctor reamed me out good for coming and contaminating her

office. She proclaimed they were a wellness office and she sent me

home. She refused to see me that day. A wasted trip for me, dangerous

with my condition, but she felt her health was more important than

mine.

If I die, I really want the world to know that modern doctors killed

me with their games. No, I don't have to sue them, I just have to

tell the truth all over the world. Lately the edema is really flaring

and the gingivitis is flaring too. You would be shocked to know some

of the meds I've been prescribed. They made me so ill, yet doctors

prescribe them everyday to Alzheimers patients. The side effects list

is horrid. it should be a crime to do this to those poor people who

have no way to say STOP !

Okay better go, I will go get working on getting that antibiotic.

Been running a fever all week. I'm trying to figure out if it doesn't

get better by end of the weekend, I shall go to the ER. Since the ID

doc is mad at me, and the new doc that is willing to prescribe

antibiotics for me doesnt have hospital priviledges, I'm sorta

stuck. Once Harvey retired mid stream in my lyme treamtent just as I

was starting. it really left me in a big pickle.

too tired to write anymore, sorry

Peg Lanelle

> >

> > I apologize for sounding off, and so negative to boot......that

> was

> > not my intention. I've been struggling for all month and running

a

> > fever for a week. All of the doctor's I have seen are a good

three

> > months from an appointment, they tell me to go to the er if I

feel

> I

> > need to. I guess I'm kind of testy today, cause I'm having a hard

> > time deciding. If I dont have an infection, I will once I step

> into

> > the ER. My upper back is in a lot of pain, lung area is full of

> > congestion

> >

> > The ID doctor who treated me for the MRSA back this winter says

he

> > will only be my doctor if I get off all narcotic pain

medications.

> > But the pain doctor says to tell him to go fly a kite. I can't

> cause

> > it is too hard to get ID doctors who will take me. Yet, pain is a

> > major component of all three diseases that I have.

> > Lack of brain oxygen =pain

> > Producing no cortisol = pain

> > immunoldeficiency =pain

> >

> > If I didn't hurt so much I'd be mad about it, but the pain doctor

> > wants to put in a morphine pump, I guess he will really dump me

> then.

> > He is a good ID doctor, I've been turned down by three others.

> San

> > , is a hot bed of doctors refusing to treat patients

> because

> > they were hit by a ton of legal stuff. Even Dr. H (arvy) lives in

> San

> > , but practices in Houston.

> >

> > Get this, one neurologist refused to treat me because I was a

> patient

> > of Dr. H(arvy). That was the one that said why would a doc want

to

> > take you as a patient speech, so I didn't lose much as I blew her

> > off.

> >

> > I have a great pain doctor, but she admitted that she didnt want

> to

> > take me, but she said that if she didn't she knew that no body

> else

> > in town would. She felt responsible enough for all those doctors

> who

> > don't .......I'm so grateful I've got her.

> >

> > I apolgize for my negative tone, I appreciate the information and

> > support that everyone gives here, considering my participation is

> so

> > little.

> >

> > Thank you

> > Peg

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Peg

I strongly believe we are looking for tips in your treatment. Doing

pill antibiotics on such huge infections is fraught with failure

often. My plan for you would be to get you to try cephazolin and add

in a couple of others if possable to get you closer to feeling your

best.

Your virtually my role model on vancomycin- 1 great week and zippo.

They think in there testing this drug still kicks but I'm afraid

it's useless after it turns.Also in the literature provided by the

manufacturer it clearly states for staph infections staph areus you

user vanco plus a second agent, when dealing with coag neg staphs

you use vanco, gentamicin and rifampin. You've had bits and pieces

of all these but the manufacturer clearly states you need the whole

bang for the buck triple therapy to get the job done.

Anyways if you have swings in your symptoms from doing IV's you can

at least gauge what feels right.

Also the antifungals can have a huge impact on your infection as you

can observe with many here.They seem a tougher form of drug than the

normal pill antibiotic.

tony

> > >

> > > I apologize for sounding off, and so negative to

boot......that

> > was

> > > not my intention. I've been struggling for all month and

running

> a

> > > fever for a week. All of the doctor's I have seen are a good

> three

> > > months from an appointment, they tell me to go to the er if I

> feel

> > I

> > > need to. I guess I'm kind of testy today, cause I'm having a

hard

> > > time deciding. If I dont have an infection, I will once I

step

> > into

> > > the ER. My upper back is in a lot of pain, lung area is full

of

> > > congestion

> > >

> > > The ID doctor who treated me for the MRSA back this winter

says

> he

> > > will only be my doctor if I get off all narcotic pain

> medications.

> > > But the pain doctor says to tell him to go fly a kite. I can't

> > cause

> > > it is too hard to get ID doctors who will take me. Yet, pain

is a

> > > major component of all three diseases that I have.

> > > Lack of brain oxygen =pain

> > > Producing no cortisol = pain

> > > immunoldeficiency =pain

> > >

> > > If I didn't hurt so much I'd be mad about it, but the pain

doctor

> > > wants to put in a morphine pump, I guess he will really dump

me

> > then.

> > > He is a good ID doctor, I've been turned down by three

others.

> > San

> > > , is a hot bed of doctors refusing to treat patients

> > because

> > > they were hit by a ton of legal stuff. Even Dr. H (arvy) lives

in

> > San

> > > , but practices in Houston.

> > >

> > > Get this, one neurologist refused to treat me because I was a

> > patient

> > > of Dr. H(arvy). That was the one that said why would a doc

want

> to

> > > take you as a patient speech, so I didn't lose much as I blew

her

> > > off.

> > >

> > > I have a great pain doctor, but she admitted that she didnt

want

> > to

> > > take me, but she said that if she didn't she knew that no body

> > else

> > > in town would. She felt responsible enough for all those

doctors

> > who

> > > don't .......I'm so grateful I've got her.

> > >

> > > I apolgize for my negative tone, I appreciate the information

and

> > > support that everyone gives here, considering my participation

is

> > so

> > > little.

> > >

> > > Thank you

> > > Peg

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Tony I'm curious your thoughts on the antifungals as antibiotics.

I now realize, with some new information I've been given that will be

out next year, that band 93 is diagnostic and that I got lyme the

first time at age 21 (summer, connecticut, atypical rash and joint

soreness, no idea what I had) that resulted in episodic weird

inflammatory conditions and persistent infections off and on for 20

years. During that time I believe it was all fungal (and did have

fungal issues start up, since lyme is immunosuppressive, they are now

figuring out it downregulates certain tcell mitogens, cd57 and

natural killer cells). However I used to feel better if I took any

antifungal, nizoral was what they had back then; even nystatin.

Since Dr Schardt now has a protocol with diflucan...for lyme...that

is helping some lymies, I am now wondering if the antifungals are

viewed too narrowly. For instance nystatin interrupts ergosterol in

yeast, well who's to say lyme doesnt need that too, after all, lymies

often find themselves with raised cholesterol, i.e. lyme cannot make

some of its own fats and uses ours.

Also, many of the antifungals end in azole and the antiparasitics in

azole (flagyl, tinidazole), the latter are often helpful in lyme.

I know you don't think so much of lyme but that's okay, a book will

come out next year that will blow your mind and all scientifically

legal documented. BUt for now my question is actually more general.

Have we overlooked antifungal efficacy in broader ways.

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Jill

I alway's try antifungals against bacteria. I actually bought

nystatin testing discs for antimicrobial testing. The thing I

discovered was around the drug nystatin I have a clearance zone from

both staph epi(coag neg staph) the sinus bacteria, and pseudonomads

aueriganosa a highly resistant bacterium only sensitive to very few

agents.What a perfect drug nystatin can be when your sensitive in

the staph department.

With my belief systems? These are forged by therapeutic probes and

outcomes. What ails you is very obvious to me when I look for

bacterial toxins and bacterial responses to drugs.It's so clear cut

with basic science it's scary. Most people are just hard done by

when it comes to diagnosing and get stooged into a belief system

that is bad science- especially amongst a lot of the medical

community. Basically when you get both hands around your diagnosis

is the only time to shout from the rafters, otherwise a whimper is

the order of the day- because you don't stand up in medical

diagnosis court. Lyme is well established there's been hundreds of

thousands of sufferers and there's a little bit of a twist to what's

happening to most on these forums that can be distingiushed with a

good antibiotic probe.Even if lyme has been and gone you can have

many numbers of secondary oppurtunist's that are going to stay for

the long haul, these same oppurtunists are at the heart of every age

related ilness observed in medical circles, unfortunately this forum

pays them no lip service.

If 20% of you red blood cells are parasitized by micrococcal species

when violently ill I would think 20 billion bloodstream organisms

need respect, especially when your suffering from neck stiffness and

arthritic problems.

commonsense got me well, stories and missing bacteria where the

first things I needed to hurdle when my antibiotic probes and my

success on nystatin pointed me in a different direction to where i

was headed.

Actually I just recall a couple of years back a delphi lyme forum

made interesting reading. I think a forum host lightning may ring a

bell? Anyway's my typical queries about people's histories and just

other little diagnosis's led me to find she had to have a major

staph infection drained out of her leg bone just below her hip

without any abx treatment. She had a line in to drain pus from a

site next to her bone and she wants to ignore a huge poorly treated

infection. The other interesting part was there swaering by a fourth

generation cephalasporin which seemed relatively OK, but single

therapy to me is stupid.

Just another thought for the day. As you can observe doctors are

arseholes that know as little as possable. Anyway spent the morning

taking my old man to the hospital due to liver problems from heavyt

drinking.Anyways I speak to the doctor and also the leading

proffesor of the department and surprise, surprise, surprise, these

people give me the whole picture. When your toxic YOUR TIRED AND

SLEEP ALL THE TIME. I go that's great can you teach your stupid

colleagues across the hall.My fathers liver function tests are

almost perfect and his liver's stuffed.

They want him to take something that makes him go to the toilet

twice a day because what's there is enough to do the damage.So again

basic oppurtunists are enough.Do you know many that shoot water up

there arse and swear by it.

more later- I just can't be bothered, my message is get both your

head and arms around your pathogen or your doing yourself an

injustice.

> Tony I'm curious your thoughts on the antifungals as antibiotics.

>

> I now realize, with some new information I've been given that will

be

> out next year, that band 93 is diagnostic and that I got lyme the

> first time at age 21 (summer, connecticut, atypical rash and joint

> soreness, no idea what I had) that resulted in episodic weird

> inflammatory conditions and persistent infections off and on for

20

> years. During that time I believe it was all fungal (and did have

> fungal issues start up, since lyme is immunosuppressive, they are

now

> figuring out it downregulates certain tcell mitogens, cd57 and

> natural killer cells). However I used to feel better if I took any

> antifungal, nizoral was what they had back then; even nystatin.

>

> Since Dr Schardt now has a protocol with diflucan...for

lyme...that

> is helping some lymies, I am now wondering if the antifungals are

> viewed too narrowly. For instance nystatin interrupts ergosterol

in

> yeast, well who's to say lyme doesnt need that too, after all,

lymies

> often find themselves with raised cholesterol, i.e. lyme cannot

make

> some of its own fats and uses ours.

>

> Also, many of the antifungals end in azole and the antiparasitics

in

> azole (flagyl, tinidazole), the latter are often helpful in lyme.

>

> I know you don't think so much of lyme but that's okay, a book

will

> come out next year that will blow your mind and all scientifically

> legal documented. BUt for now my question is actually more

general.

> Have we overlooked antifungal efficacy in broader ways.

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Tony said: They want him to take something that makes him go to the

toilet twice a day because what's there is enough to do the

damage.So again basic oppurtunists are enough.

What do you mean? That we've got huge bacterial colonies in the gi

tract and clearing them out regularly lightens the load?

That would help explain why things like charcoal can potentially

help a lot, and reduce the toxic load, as was mentioned in that

secondary porphyria artical the other day. Charcoal is amazing in

what it can remove from the body.

I posted about a Dr. Shulz's intestinal cleanse. The second phase of

the product looked like it had some really great ingredients

(including charcoal and bentonite clay), but before starting

Intestinal Cleanse II they want you to use Intestinal Cleanse I

until you are going to the bathroom 3 times a day. A lot of natural

and non western doctors want you to go several times a day.

I also read a pubmed abstract the other day in which they were

reporting on a woman who presented sick with an infection, but was

not getting well with treatment. She'd relapse once she came off the

i.v.s. They discovered she had an " abcess " and once they surgically

removed that she recovered 100%.

I think this is exactly what's happening to many of us. We've got

pockets of infection in unfortunate places (especially places like

bone - which is so difficult to clear) which the drugs can't reach

effectively. And until we recognize that, and DO figure out how to

effectively reach these unreachable places, we just aren't going to

have much success.

penny

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Basically Penny they observe patients with liver problems and want

the gut moving because it reduces toxicities. Personally we already

know people that swear by shoving a hose up there ass they feel

great as long as they do it regularly, so this ties in with there

same observations.I feel the charcoal and clay can form part of a

treatment strategy, but generally DETOX is scientifically pretty

much a dead duck treatment. You obviously feel better if you don't

feed your bugs.I still alway's attempt to put the toxin producers to

the knife. Unforttunately people don't realise how hearty bacteria

are and what's required to kill them.

Also all your staph epi's, clostridia species, gaffkya, marscenans,

enterococcus, streptococcus are varying degree's of toxic by product

producers so the lower your swabs grow the more excited I get.

tony

> Tony said: They want him to take something that makes him go to

the

> toilet twice a day because what's there is enough to do the

> damage.So again basic oppurtunists are enough.

>

> What do you mean? That we've got huge bacterial colonies in the gi

> tract and clearing them out regularly lightens the load?

>

> That would help explain why things like charcoal can potentially

> help a lot, and reduce the toxic load, as was mentioned in that

> secondary porphyria artical the other day. Charcoal is amazing in

> what it can remove from the body.

>

> I posted about a Dr. Shulz's intestinal cleanse. The second phase

of

> the product looked like it had some really great ingredients

> (including charcoal and bentonite clay), but before starting

> Intestinal Cleanse II they want you to use Intestinal Cleanse I

> until you are going to the bathroom 3 times a day. A lot of

natural

> and non western doctors want you to go several times a day.

>

> I also read a pubmed abstract the other day in which they were

> reporting on a woman who presented sick with an infection, but was

> not getting well with treatment. She'd relapse once she came off

the

> i.v.s. They discovered she had an " abcess " and once they

surgically

> removed that she recovered 100%.

>

> I think this is exactly what's happening to many of us. We've got

> pockets of infection in unfortunate places (especially places like

> bone - which is so difficult to clear) which the drugs can't reach

> effectively. And until we recognize that, and DO figure out how to

> effectively reach these unreachable places, we just aren't going

to

> have much success.

>

> penny

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Yeah, but Tony. There are studies that show Charcoal can suck

bacteria, parasites, yeast, toxins, viruses, all kinds of stuff out

of your gut (and away from other places we don't want them to

travel). I doubt it can get into the hidden places like bone or

organs or deep tissue, but if it can help clean up the gut, where a

lot of our health originates and toxins are produced, that's a big

step forward in knocking down the load.

Also, if it reduces symptoms of malaise, fatigue, and brain fog,

then you're more capable of pursuing more complicated treatment.

When you've got all those things going on, it's hard to do anything

for yourself.

I think charcoal, and maybe salt and C, and other self treatment

options, could all be simple things we could do to help our progress

along. Also, enzymes and antioxidants, like the milk thistle you

like, could really be helping us put together a whole package that

we just can't get from our doctors, who are basically pretty

clueless and just not dependable. Once we're feeling better, then we

can do the investigation and devise strategies to get the docs to

give us the drugs WE believe will help us most, not the ones they've

barely researched.

penny

> > Tony said: They want him to take something that makes him go to

> the

> > toilet twice a day because what's there is enough to do the

> > damage.So again basic oppurtunists are enough.

> >

> > What do you mean? That we've got huge bacterial colonies in the

gi

> > tract and clearing them out regularly lightens the load?

> >

> > That would help explain why things like charcoal can potentially

> > help a lot, and reduce the toxic load, as was mentioned in that

> > secondary porphyria artical the other day. Charcoal is amazing

in

> > what it can remove from the body.

> >

> > I posted about a Dr. Shulz's intestinal cleanse. The second

phase

> of

> > the product looked like it had some really great ingredients

> > (including charcoal and bentonite clay), but before starting

> > Intestinal Cleanse II they want you to use Intestinal Cleanse I

> > until you are going to the bathroom 3 times a day. A lot of

> natural

> > and non western doctors want you to go several times a day.

> >

> > I also read a pubmed abstract the other day in which they were

> > reporting on a woman who presented sick with an infection, but

was

> > not getting well with treatment. She'd relapse once she came off

> the

> > i.v.s. They discovered she had an " abcess " and once they

> surgically

> > removed that she recovered 100%.

> >

> > I think this is exactly what's happening to many of us. We've

got

> > pockets of infection in unfortunate places (especially places

like

> > bone - which is so difficult to clear) which the drugs can't

reach

> > effectively. And until we recognize that, and DO figure out how

to

> > effectively reach these unreachable places, we just aren't going

> to

> > have much success.

> >

> > penny

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" As you can observe doctors are

arseholes that know as little as possable. "

Yeah. Agreed.

I got my first tickbite, I now realize, in the overgrown backyard at

Yale at age 21.

Borrelia, given your genetics, can allow some widespread immune

dysfunction and then youcould let in other microbes.

But with Schardt's evidence that diflucan works in lyme, I began to

wonder if even nystatin did. It interrupts ergosterol, thats how they

think it kills yeast, right? Wellw hat if it does something similar

to bacteria/ Or how *is* it killing certain bacteria.

I say this because my early lyme symptoms were consistently

suppressed first with nizoral and then with nystatin. So I just

thought I had some indescribable fungus that nothing could cure so

therefore I was immunologically defective.

I now KNOW, because of some new information I've gotten, that I got

borrelia at 21. So if antifungals were working, then I'dl ike to

investigate Schardt's hypothesis even further. And what you've seen

with nystatin is interesting.

I still wish Ihad the time and gumption to train myself on a

microscope as you did, but...I just am too overwhelmed at the moment

with work, and sans hyperbaric chamber going on 3 weeks now and

probably another 2 weeks, I'm really a mess!!!!!! I need my fricken

chamber back!!!!

> > Tony I'm curious your thoughts on the antifungals as antibiotics.

> >

> > I now realize, with some new information I've been given that

will

> be

> > out next year, that band 93 is diagnostic and that I got lyme the

> > first time at age 21 (summer, connecticut, atypical rash and

joint

> > soreness, no idea what I had) that resulted in episodic weird

> > inflammatory conditions and persistent infections off and on for

> 20

> > years. During that time I believe it was all fungal (and did have

> > fungal issues start up, since lyme is immunosuppressive, they are

> now

> > figuring out it downregulates certain tcell mitogens, cd57 and

> > natural killer cells). However I used to feel better if I took

any

> > antifungal, nizoral was what they had back then; even nystatin.

> >

> > Since Dr Schardt now has a protocol with diflucan...for

> lyme...that

> > is helping some lymies, I am now wondering if the antifungals are

> > viewed too narrowly. For instance nystatin interrupts ergosterol

> in

> > yeast, well who's to say lyme doesnt need that too, after all,

> lymies

> > often find themselves with raised cholesterol, i.e. lyme cannot

> make

> > some of its own fats and uses ours.

> >

> > Also, many of the antifungals end in azole and the antiparasitics

> in

> > azole (flagyl, tinidazole), the latter are often helpful in lyme.

> >

> > I know you don't think so much of lyme but that's okay, a book

> will

> > come out next year that will blow your mind and all

scientifically

> > legal documented. BUt for now my question is actually more

> general.

> > Have we overlooked antifungal efficacy in broader ways.

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Jill

if you had success with nystatin don't scream from the rafters you

treated LYME.Nystatin is possably succesfull in about 50% of

autoimmune patients and it only gives relief when it attacks your

staph epi. the pseudonomads going down is a bonus but has no bearing

for my systemic ilness.It virtually only makes me feel better when

it killed my staphs, which it no longer does, although it took a

long time for it to build resistance.

Sorry if I sound like a broken record but if your NOT TREATING

THINGS 100% right your chances are slimer than I'm sure you'd

like.QAlso do sleep apnea oxygen as it's for 8 hours a day as

opposed to crappy sessions 5 times a week that cost a fortune.

tony

> > > Tony I'm curious your thoughts on the antifungals as

antibiotics.

> > >

> > > I now realize, with some new information I've been given that

> will

> > be

> > > out next year, that band 93 is diagnostic and that I got lyme

the

> > > first time at age 21 (summer, connecticut, atypical rash and

> joint

> > > soreness, no idea what I had) that resulted in episodic weird

> > > inflammatory conditions and persistent infections off and on

for

> > 20

> > > years. During that time I believe it was all fungal (and did

have

> > > fungal issues start up, since lyme is immunosuppressive, they

are

> > now

> > > figuring out it downregulates certain tcell mitogens, cd57 and

> > > natural killer cells). However I used to feel better if I took

> any

> > > antifungal, nizoral was what they had back then; even nystatin.

> > >

> > > Since Dr Schardt now has a protocol with diflucan...for

> > lyme...that

> > > is helping some lymies, I am now wondering if the antifungals

are

> > > viewed too narrowly. For instance nystatin interrupts

ergosterol

> > in

> > > yeast, well who's to say lyme doesnt need that too, after all,

> > lymies

> > > often find themselves with raised cholesterol, i.e. lyme

cannot

> > make

> > > some of its own fats and uses ours.

> > >

> > > Also, many of the antifungals end in azole and the

antiparasitics

> > in

> > > azole (flagyl, tinidazole), the latter are often helpful in

lyme.

> > >

> > > I know you don't think so much of lyme but that's okay, a book

> > will

> > > come out next year that will blow your mind and all

> scientifically

> > > legal documented. BUt for now my question is actually more

> > general.

> > > Have we overlooked antifungal efficacy in broader ways.

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Guest guest

Well I never really did treat it, I suppressed it, and it would flare

up--I have had an epiphany based on research this writer has told me,

in the last few weeks. I have had an epiphany about my entire health

history since age 21. I probably have 2 lyme strains and 1 babesia, 1

lyme from age 21 and the other 2 from the year 2000 (summer).

I had typical relapsing remitting weirdo afflictions that would then

pass, for many years, after a summer at Yale.

Its so obvious in retrospect its laughable.

Except its not at all laughable.

Anyway. I'm trying the salt/c.

My sessions hbo are not expensive since I own my chamber, but its now

out for repair. And frankly it saved my life. It suppresses the

borrelia for sure, for all I know it also suppresses babesia.

I have an idea about allicin too. But I'm not sure I can pull off my

idea. We'll see if scientists think its possible. I have a bit of

research and schmoozing ahead of me to say the least. I have 2 ideas

for a product, neither one is in existence at the moment.

> > > > Tony I'm curious your thoughts on the antifungals as

> antibiotics.

> > > >

> > > > I now realize, with some new information I've been given that

> > will

> > > be

> > > > out next year, that band 93 is diagnostic and that I got lyme

> the

> > > > first time at age 21 (summer, connecticut, atypical rash and

> > joint

> > > > soreness, no idea what I had) that resulted in episodic weird

> > > > inflammatory conditions and persistent infections off and on

> for

> > > 20

> > > > years. During that time I believe it was all fungal (and did

> have

> > > > fungal issues start up, since lyme is immunosuppressive, they

> are

> > > now

> > > > figuring out it downregulates certain tcell mitogens, cd57

and

> > > > natural killer cells). However I used to feel better if I

took

> > any

> > > > antifungal, nizoral was what they had back then; even

nystatin.

> > > >

> > > > Since Dr Schardt now has a protocol with diflucan...for

> > > lyme...that

> > > > is helping some lymies, I am now wondering if the antifungals

> are

> > > > viewed too narrowly. For instance nystatin interrupts

> ergosterol

> > > in

> > > > yeast, well who's to say lyme doesnt need that too, after

all,

> > > lymies

> > > > often find themselves with raised cholesterol, i.e. lyme

> cannot

> > > make

> > > > some of its own fats and uses ours.

> > > >

> > > > Also, many of the antifungals end in azole and the

> antiparasitics

> > > in

> > > > azole (flagyl, tinidazole), the latter are often helpful in

> lyme.

> > > >

> > > > I know you don't think so much of lyme but that's okay, a

book

> > > will

> > > > come out next year that will blow your mind and all

> > scientifically

> > > > legal documented. BUt for now my question is actually more

> > > general.

> > > > Have we overlooked antifungal efficacy in broader ways.

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Guest guest

When Jill and Tony discuss improvement from Nystatin, are they

suggesting that whatever its fixing is pretty much a gut infection?

> > > > Tony I'm curious your thoughts on the antifungals as

> antibiotics.

> > > >

> > > > I now realize, with some new information I've been given that

> > will

> > > be

> > > > out next year, that band 93 is diagnostic and that I got lyme

> the

> > > > first time at age 21 (summer, connecticut, atypical rash and

> > joint

> > > > soreness, no idea what I had) that resulted in episodic weird

> > > > inflammatory conditions and persistent infections off and on

> for

> > > 20

> > > > years. During that time I believe it was all fungal (and did

> have

> > > > fungal issues start up, since lyme is immunosuppressive, they

> are

> > > now

> > > > figuring out it downregulates certain tcell mitogens, cd57

and

> > > > natural killer cells). However I used to feel better if I

took

> > any

> > > > antifungal, nizoral was what they had back then; even

nystatin.

> > > >

> > > > Since Dr Schardt now has a protocol with diflucan...for

> > > lyme...that

> > > > is helping some lymies, I am now wondering if the antifungals

> are

> > > > viewed too narrowly. For instance nystatin interrupts

> ergosterol

> > > in

> > > > yeast, well who's to say lyme doesnt need that too, after

all,

> > > lymies

> > > > often find themselves with raised cholesterol, i.e. lyme

> cannot

> > > make

> > > > some of its own fats and uses ours.

> > > >

> > > > Also, many of the antifungals end in azole and the

> antiparasitics

> > > in

> > > > azole (flagyl, tinidazole), the latter are often helpful in

> lyme.

> > > >

> > > > I know you don't think so much of lyme but that's okay, a

book

> > > will

> > > > come out next year that will blow your mind and all

> > scientifically

> > > > legal documented. BUt for now my question is actually more

> > > general.

> > > > Have we overlooked antifungal efficacy in broader ways.

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Guest guest

Unfortunately people tie in strongly to an early observation that a

drug doesn't distribute widely it only stays in the gut..

Streptomyces based drugs which many are derived from are great

tissue and body fluid distributors, so when your reading 1950's

literature and many drugs developed in the 70's have magnificent

distribution from the same agent I would disregard the 50's theory

that it's just for the gut.I found it instantly cleraed the head.I

also found it went further and gave me some relief in the sore shin

bones.

> > > > > Tony I'm curious your thoughts on the antifungals as

> > antibiotics.

> > > > >

> > > > > I now realize, with some new information I've been given

that

> > > will

> > > > be

> > > > > out next year, that band 93 is diagnostic and that I got

lyme

> > the

> > > > > first time at age 21 (summer, connecticut, atypical rash

and

> > > joint

> > > > > soreness, no idea what I had) that resulted in episodic

weird

> > > > > inflammatory conditions and persistent infections off and

on

> > for

> > > > 20

> > > > > years. During that time I believe it was all fungal (and

did

> > have

> > > > > fungal issues start up, since lyme is immunosuppressive,

they

> > are

> > > > now

> > > > > figuring out it downregulates certain tcell mitogens, cd57

> and

> > > > > natural killer cells). However I used to feel better if I

> took

> > > any

> > > > > antifungal, nizoral was what they had back then; even

> nystatin.

> > > > >

> > > > > Since Dr Schardt now has a protocol with diflucan...for

> > > > lyme...that

> > > > > is helping some lymies, I am now wondering if the

antifungals

> > are

> > > > > viewed too narrowly. For instance nystatin interrupts

> > ergosterol

> > > > in

> > > > > yeast, well who's to say lyme doesnt need that too, after

> all,

> > > > lymies

> > > > > often find themselves with raised cholesterol, i.e. lyme

> > cannot

> > > > make

> > > > > some of its own fats and uses ours.

> > > > >

> > > > > Also, many of the antifungals end in azole and the

> > antiparasitics

> > > > in

> > > > > azole (flagyl, tinidazole), the latter are often helpful

in

> > lyme.

> > > > >

> > > > > I know you don't think so much of lyme but that's okay, a

> book

> > > > will

> > > > > come out next year that will blow your mind and all

> > > scientifically

> > > > > legal documented. BUt for now my question is actually more

> > > > general.

> > > > > Have we overlooked antifungal efficacy in broader ways.

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Guest guest

Tony, I can't believe it....six long years and you are the FIRST

person I've come across that had the same pain location as me. I say

this because everyone has told me how strange it is to have such

awful shin pain and not from overuse. The pain in my shin didn't

start until the third year, but it has made up for lost time.

My second strange symptom is those spasms that start at the nape of

the neck and travel to the crown of the head. Only one side of the

brain at a time. I've tried to talk to doctor's about infection, but

all have denied the possibility. Yet, after a month on antibiotics,

it goes away. (except it came back while on vanco)

I have even been told that I don't have lyme because my symptoms of

shin pain, head spasms and others are not typical lyme symptoms.

And yet the Bowen test result showed the highest possible

concentration.

Anyway, I'm honored to share the shin pain with you....as silly as

that seems. It is lonely out there when you have a loner symptom that

get sneers and geers. You get to the point where you stop mentioning

them.

take care

lanelle

> > > > > > Tony I'm curious your thoughts on the antifungals as

> > > antibiotics.

> > > > > >

> > > > > > I now realize, with some new information I've been given

> that

> > > > will

> > > > > be

> > > > > > out next year, that band 93 is diagnostic and that I got

> lyme

> > > the

> > > > > > first time at age 21 (summer, connecticut, atypical rash

> and

> > > > joint

> > > > > > soreness, no idea what I had) that resulted in episodic

> weird

> > > > > > inflammatory conditions and persistent infections off and

> on

> > > for

> > > > > 20

> > > > > > years. During that time I believe it was all fungal (and

> did

> > > have

> > > > > > fungal issues start up, since lyme is immunosuppressive,

> they

> > > are

> > > > > now

> > > > > > figuring out it downregulates certain tcell mitogens,

cd57

> > and

> > > > > > natural killer cells). However I used to feel better if I

> > took

> > > > any

> > > > > > antifungal, nizoral was what they had back then; even

> > nystatin.

> > > > > >

> > > > > > Since Dr Schardt now has a protocol with diflucan...for

> > > > > lyme...that

> > > > > > is helping some lymies, I am now wondering if the

> antifungals

> > > are

> > > > > > viewed too narrowly. For instance nystatin interrupts

> > > ergosterol

> > > > > in

> > > > > > yeast, well who's to say lyme doesnt need that too, after

> > all,

> > > > > lymies

> > > > > > often find themselves with raised cholesterol, i.e. lyme

> > > cannot

> > > > > make

> > > > > > some of its own fats and uses ours.

> > > > > >

> > > > > > Also, many of the antifungals end in azole and the

> > > antiparasitics

> > > > > in

> > > > > > azole (flagyl, tinidazole), the latter are often helpful

> in

> > > lyme.

> > > > > >

> > > > > > I know you don't think so much of lyme but that's okay, a

> > book

> > > > > will

> > > > > > come out next year that will blow your mind and all

> > > > scientifically

> > > > > > legal documented. BUt for now my question is actually

more

> > > > > general.

> > > > > > Have we overlooked antifungal efficacy in broader ways.

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Lanelle

I got mine from playing outdoor sports but the science is more along

the lines of sinus bacteria spreading.The first discovery I made

when visiting the hospital library was how the staph species love to

attack the long bones of the legs. I then got my blood culture of

coagulase negative staph which made the shin pain VERY VERY

ACCEPTABLE as a diagnosis of a staph problem. I also recall the same

article describing tuberculosis bacteria attacking and destroying

the bone just above the joint.

I also would think using vanco after it's turned will give you more

pain and symptoms. This is covered in the vanco literature when they

tell you how to use there drug and how to cimbine it with other

drugs against certain organisms. Unfortunately doctors forgot how to

read.

tony

> > > > > > > Tony I'm curious your thoughts on the antifungals as

> > > > antibiotics.

> > > > > > >

> > > > > > > I now realize, with some new information I've been

given

> > that

> > > > > will

> > > > > > be

> > > > > > > out next year, that band 93 is diagnostic and that I

got

> > lyme

> > > > the

> > > > > > > first time at age 21 (summer, connecticut, atypical

rash

> > and

> > > > > joint

> > > > > > > soreness, no idea what I had) that resulted in

episodic

> > weird

> > > > > > > inflammatory conditions and persistent infections off

and

> > on

> > > > for

> > > > > > 20

> > > > > > > years. During that time I believe it was all fungal

(and

> > did

> > > > have

> > > > > > > fungal issues start up, since lyme is

immunosuppressive,

> > they

> > > > are

> > > > > > now

> > > > > > > figuring out it downregulates certain tcell mitogens,

> cd57

> > > and

> > > > > > > natural killer cells). However I used to feel better

if I

> > > took

> > > > > any

> > > > > > > antifungal, nizoral was what they had back then; even

> > > nystatin.

> > > > > > >

> > > > > > > Since Dr Schardt now has a protocol with

diflucan...for

> > > > > > lyme...that

> > > > > > > is helping some lymies, I am now wondering if the

> > antifungals

> > > > are

> > > > > > > viewed too narrowly. For instance nystatin interrupts

> > > > ergosterol

> > > > > > in

> > > > > > > yeast, well who's to say lyme doesnt need that too,

after

> > > all,

> > > > > > lymies

> > > > > > > often find themselves with raised cholesterol, i.e.

lyme

> > > > cannot

> > > > > > make

> > > > > > > some of its own fats and uses ours.

> > > > > > >

> > > > > > > Also, many of the antifungals end in azole and the

> > > > antiparasitics

> > > > > > in

> > > > > > > azole (flagyl, tinidazole), the latter are often

helpful

> > in

> > > > lyme.

> > > > > > >

> > > > > > > I know you don't think so much of lyme but that's

okay, a

> > > book

> > > > > > will

> > > > > > > come out next year that will blow your mind and all

> > > > > scientifically

> > > > > > > legal documented. BUt for now my question is actually

> more

> > > > > > general.

> > > > > > > Have we overlooked antifungal efficacy in broader ways.

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Guest guest

I also feel the extreme severity of my own and your disease possably

explain the hugeness of the infection.My plans for you would be to

try and get down to mexico and get them to give you serious IV

treatments, they have cephalothin down there which is very cheap and

far superior and possably capable of getting you up a couple of

notches.

tony

> > > > > > > Tony I'm curious your thoughts on the antifungals as

> > > > antibiotics.

> > > > > > >

> > > > > > > I now realize, with some new information I've been

given

> > that

> > > > > will

> > > > > > be

> > > > > > > out next year, that band 93 is diagnostic and that I

got

> > lyme

> > > > the

> > > > > > > first time at age 21 (summer, connecticut, atypical

rash

> > and

> > > > > joint

> > > > > > > soreness, no idea what I had) that resulted in

episodic

> > weird

> > > > > > > inflammatory conditions and persistent infections off

and

> > on

> > > > for

> > > > > > 20

> > > > > > > years. During that time I believe it was all fungal

(and

> > did

> > > > have

> > > > > > > fungal issues start up, since lyme is

immunosuppressive,

> > they

> > > > are

> > > > > > now

> > > > > > > figuring out it downregulates certain tcell mitogens,

> cd57

> > > and

> > > > > > > natural killer cells). However I used to feel better

if I

> > > took

> > > > > any

> > > > > > > antifungal, nizoral was what they had back then; even

> > > nystatin.

> > > > > > >

> > > > > > > Since Dr Schardt now has a protocol with

diflucan...for

> > > > > > lyme...that

> > > > > > > is helping some lymies, I am now wondering if the

> > antifungals

> > > > are

> > > > > > > viewed too narrowly. For instance nystatin interrupts

> > > > ergosterol

> > > > > > in

> > > > > > > yeast, well who's to say lyme doesnt need that too,

after

> > > all,

> > > > > > lymies

> > > > > > > often find themselves with raised cholesterol, i.e.

lyme

> > > > cannot

> > > > > > make

> > > > > > > some of its own fats and uses ours.

> > > > > > >

> > > > > > > Also, many of the antifungals end in azole and the

> > > > antiparasitics

> > > > > > in

> > > > > > > azole (flagyl, tinidazole), the latter are often

helpful

> > in

> > > > lyme.

> > > > > > >

> > > > > > > I know you don't think so much of lyme but that's

okay, a

> > > book

> > > > > > will

> > > > > > > come out next year that will blow your mind and all

> > > > > scientifically

> > > > > > > legal documented. BUt for now my question is actually

> more

> > > > > > general.

> > > > > > > Have we overlooked antifungal efficacy in broader ways.

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Guest guest

Lanelle, " Trench fever " , caused by bartonella henslae and bartonella

quintana, is also called " shin bone fever " because of the

characteristic shin bone and leg pain. Bartonella has been one of the

coinfections that confounded our own treatment until recently. It is

usually treated with levaquin, rifampin, or gentomycin.

For a more, see http://www.chclibrary.org/micromed/00068900.html

--- In infections , " Peg " <lanelle@h...>

wrote:

> I say this because everyone has told me how strange it is to have such

> awful shin pain and not from overuse. The pain in my shin didn't

> start until the third year, but it has made up for lost time.

>

>

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Lanelle

I would want to see bacteria before being treated for the cat scratch

fever bugs.I think it's dangerous to be given advise when your history

of staph areus, MRSA and whatever else are leading the charge of

giving you symptoms. I know many who've had bone marrow aspiration

from distant sites and these exotic bacteria aren't there it's always

the usual culprits.

I would actually get your doctor to do the simple MRSA sinus swab, it

would show how undermedicated and under appreciated infections are if

you still come back positive.

I know the bugs on my shins, and staph species, marscenans, lead the

charge. Bacteria are making our bones like swiss cheese and the usual

culprits are there six months and twelve months later, surprisingly

identically in a culture plate.When you loose blood volume the skin is

diseased slowly and then the skeleton which has the skin as it's

largest protection is also under fire.

I think you'll observe in any accident the people treating the patient

are very aware of keeping the blood volume up by putting in an IV

saline line because it makes a huge difference to the patient.It's

like they know they can introduce chronic toxicity diseases to

patients who aren't looked after the right way.

> > I say this because everyone has told me how strange it is to have

such

> > awful shin pain and not from overuse. The pain in my shin didn't

> > start until the third year, but it has made up for lost time.

> >

> >

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Tony, I don't have a clue as to why ?? I was reading your note and

thinking to myself that there is no reason for your kindness to me

over these years. I often tell others that if it were not for that

swab you graciously inspected I don't know if I would be here today.

I know that it would have taken much much longer for it to dawn on me

to look at the infectious route. I had only been to see two ID

doctors who both were a disgrace to their profession. I figured if I

were going to get well it would have to be something along the birth

of Christ.

I was stuck in the shame game of modern medicines ducs and you were

the first one to say. " Its not your fault , its theirs. " It's one

thing for you to have the apptitude to absorb the needed knowledge,

but your gift is in sharing it with others in an easily understood

way. I'm sure I didn't get around to telling you, I just remember

being so lost and confused and betrayed by doctors, but I really

appreciated all of your help.

Regards

Lanelle

-- In infections , " dumbaussie2000 "

<dumbaussie2000@y...> wrote:

> I also feel the extreme severity of my own and your disease

possably

> explain the hugeness of the infection.My plans for you would be to

> try and get down to mexico and get them to give you serious IV

> treatments, they have cephalothin down there which is very cheap

and

> far superior and possably capable of getting you up a couple of

> notches.

> tony

>

>

>

> > > > > > > > Tony I'm curious your thoughts on the antifungals as

> > > > > antibiotics.

> > > > > > > >

> > > > > > > > I now realize, with some new information I've been

> given

> > > that

> > > > > > will

> > > > > > > be

> > > > > > > > out next year, that band 93 is diagnostic and that I

> got

> > > lyme

> > > > > the

> > > > > > > > first time at age 21 (summer, connecticut, atypical

> rash

> > > and

> > > > > > joint

> > > > > > > > soreness, no idea what I had) that resulted in

> episodic

> > > weird

> > > > > > > > inflammatory conditions and persistent infections off

> and

> > > on

> > > > > for

> > > > > > > 20

> > > > > > > > years. During that time I believe it was all fungal

> (and

> > > did

> > > > > have

> > > > > > > > fungal issues start up, since lyme is

> immunosuppressive,

> > > they

> > > > > are

> > > > > > > now

> > > > > > > > figuring out it downregulates certain tcell mitogens,

> > cd57

> > > > and

> > > > > > > > natural killer cells). However I used to feel better

> if I

> > > > took

> > > > > > any

> > > > > > > > antifungal, nizoral was what they had back then; even

> > > > nystatin.

> > > > > > > >

> > > > > > > > Since Dr Schardt now has a protocol with

> diflucan...for

> > > > > > > lyme...that

> > > > > > > > is helping some lymies, I am now wondering if the

> > > antifungals

> > > > > are

> > > > > > > > viewed too narrowly. For instance nystatin interrupts

> > > > > ergosterol

> > > > > > > in

> > > > > > > > yeast, well who's to say lyme doesnt need that too,

> after

> > > > all,

> > > > > > > lymies

> > > > > > > > often find themselves with raised cholesterol, i.e.

> lyme

> > > > > cannot

> > > > > > > make

> > > > > > > > some of its own fats and uses ours.

> > > > > > > >

> > > > > > > > Also, many of the antifungals end in azole and the

> > > > > antiparasitics

> > > > > > > in

> > > > > > > > azole (flagyl, tinidazole), the latter are often

> helpful

> > > in

> > > > > lyme.

> > > > > > > >

> > > > > > > > I know you don't think so much of lyme but that's

> okay, a

> > > > book

> > > > > > > will

> > > > > > > > come out next year that will blow your mind and all

> > > > > > scientifically

> > > > > > > > legal documented. BUt for now my question is actually

> > more

> > > > > > > general.

> > > > > > > > Have we overlooked antifungal efficacy in broader

ways.

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Guest guest

Lanelle

I would appreciate to read how they gave you a regime of drugs that

started you back to the land of the living.I am also very familiar

with the pain, and the enormity of the problem as I turned up at the

ER more than anyone else in forum land.I think I hit 2 ER's a night

many nights to see if anyone gets it.I do recall telling one duc how

I felt like I was suffering from toxic shock syndrome whihc I later

discover is possably 100% on the money.

But anyways it's real important that you don't miss an oppurtunity

at youre next ID visit to get swabbed for MRSA to see the jobs been

done and not half cooked like the rest of your treatment therapies.

> > > > > > > > > Tony I'm curious your thoughts on the antifungals

as

> > > > > > antibiotics.

> > > > > > > > >

> > > > > > > > > I now realize, with some new information I've been

> > given

> > > > that

> > > > > > > will

> > > > > > > > be

> > > > > > > > > out next year, that band 93 is diagnostic and that

I

> > got

> > > > lyme

> > > > > > the

> > > > > > > > > first time at age 21 (summer, connecticut,

atypical

> > rash

> > > > and

> > > > > > > joint

> > > > > > > > > soreness, no idea what I had) that resulted in

> > episodic

> > > > weird

> > > > > > > > > inflammatory conditions and persistent infections

off

> > and

> > > > on

> > > > > > for

> > > > > > > > 20

> > > > > > > > > years. During that time I believe it was all

fungal

> > (and

> > > > did

> > > > > > have

> > > > > > > > > fungal issues start up, since lyme is

> > immunosuppressive,

> > > > they

> > > > > > are

> > > > > > > > now

> > > > > > > > > figuring out it downregulates certain tcell

mitogens,

> > > cd57

> > > > > and

> > > > > > > > > natural killer cells). However I used to feel

better

> > if I

> > > > > took

> > > > > > > any

> > > > > > > > > antifungal, nizoral was what they had back then;

even

> > > > > nystatin.

> > > > > > > > >

> > > > > > > > > Since Dr Schardt now has a protocol with

> > diflucan...for

> > > > > > > > lyme...that

> > > > > > > > > is helping some lymies, I am now wondering if the

> > > > antifungals

> > > > > > are

> > > > > > > > > viewed too narrowly. For instance nystatin

interrupts

> > > > > > ergosterol

> > > > > > > > in

> > > > > > > > > yeast, well who's to say lyme doesnt need that

too,

> > after

> > > > > all,

> > > > > > > > lymies

> > > > > > > > > often find themselves with raised cholesterol,

i.e.

> > lyme

> > > > > > cannot

> > > > > > > > make

> > > > > > > > > some of its own fats and uses ours.

> > > > > > > > >

> > > > > > > > > Also, many of the antifungals end in azole and the

> > > > > > antiparasitics

> > > > > > > > in

> > > > > > > > > azole (flagyl, tinidazole), the latter are often

> > helpful

> > > > in

> > > > > > lyme.

> > > > > > > > >

> > > > > > > > > I know you don't think so much of lyme but that's

> > okay, a

> > > > > book

> > > > > > > > will

> > > > > > > > > come out next year that will blow your mind and

all

> > > > > > > scientifically

> > > > > > > > > legal documented. BUt for now my question is

actually

> > > more

> > > > > > > > general.

> > > > > > > > > Have we overlooked antifungal efficacy in broader

> ways.

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