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Came across this in the LymeStrategies (Salt/C) list

and thought it would contribute to some of our past

discussion of Flagyl-- certainly applies to Cpn and

other diseases as well as Lyme's.

By the way: my vote is to come back if he wishes,

and an appreciation for Penny's concern about the tone

of the list. Having been part of some organizations

ruled by coercive psychopaths, I can understand the

paranoia (just because you're paranoid doesn't mean

that people aren't after you!) and caution this

engenders whenever there is a hint of similar

coercion-- even if not intended.

We got good work to do, folks, let's keep it going!

Jim

http://www.lymebook.com/

-------------------

Lyme, Spirochetes, Flagyl and the Nitroimidazoles

by Atkinson-Barr CPhys PhD

Please note that this is my first web page design, and

is very much a

learning experience. There will be frequent updates

and what you see

should be considered as a work in progress.

In late 1997 I started to investigate Lyme disease. I

discovered

that, contrary to the medical textbooks, Lyme disease

is not easily

treated and that there are many Lyme patients who are

profoundly ill

with this disease.

The facility for patients to disclose and discuss

their problems over

the Internet marks a great change in medicine. Using

the newsgroup

sci.med.diseases.lyme I was able to explore the

problems, insights

and discoveries of some remarkable people who had had

their lives

turned upside down by a tiny tick. To all of the

contributors that

helped me see further I say bless you all. My

motivation at the

outset was to help my relatives. I could not have done

so without the

input from the newsgroup. Every problem disease needs

a group like

this, for without the flow of information from

patients it would be

impossible for a scientist to see the big picture.

Thanks to some serendipity and the training I received

from some

great molecular biologists, I initially predicted and

then confirmed,

to my own satisfaction, that the nitroimidazoles would

be useful in

the treatment of Lyme. Flagyl is the original and best

known of the

nitroimidazole class of drugs.

As the details of this discovery are important to

understanding what

I do know - and do not - I have included a history of

the work that

convinced me of the benefits of using Flagyl in the

treatment of Lyme

patients.

Since the presentation of the results of Lyme

treatment with Flagyl

at the April 1999 Lyme & Spirochetal Diseases

Conference, held in New

York, many thousands of Lyme sufferers have been

prescribed Flagyl. I

am pleased to say that the early promise of that

treatment has been

continued. Not a day passes without an e-mail, letter

or telephone

call from a Lyme patient who has seen dramatic

improvement in their

condition.

That's the introduction, so now on to the information

you came here

for!

My very best wishes to you all.

Atkinson-Barr

=======================================

About Atkinson-Barr

First things first. I AM NOT AN MD. That's important

to remember. I

cannot, by law, give anyone any medical treatment, nor

do I have any

patients. That said, I do know quite a lot about

certain diseases.

I attended (went up is what the British say) Cambridge

University in

England in the early 1970s to study science…

After Cambridge I worked at Rhone-Poulenc, the giant

French

pharmaceutical company…

In 1991 an Australian physician, Barry Marshall,

astonished the world

with his discovery, with Dr. Robin Warren, that

gastric and peptic

ulcers were a consequence of an infection by a

bacterium,

Helicobacter pylori. The first treatment was a

combination of

metronidazole (Flagyl), tetracycline and Pepto-Bismol,

termed " triple

therapy " . That such a common condition, always linked

to stress in

common belief, could be an infectious process was

stunning. This

reinvigorated the study of infectious diseases.

Certainly a paradigm

shift if ever there was one. I gave a few lectures on

the subject

locally and encouraged those with ulcers to seek out

treatment in the

face of a campaign of fear, uncertainty and doubt

promoted by some

pharmaceutical companies. I found one interesting case

of chronic

halitosis that responded to triple therapy which was

written up here.

One of my relatives had a dramatic response to triple

therapy and

later investigation was the basis for the discovery of

the use of

Flagyl in Lyme disease. He was patient zero.

People often ask me where I do my research. My answer

often

confounds: mostly it is done in the shower! I think

for hours about a

problem until I understand it. I am pleased to say

that Isaac Newton

was reported to be the same way, though I am nowhere

near his level

it does seem to be a technique that works. It drives

my wife to

distraction, though in recent years she has become

used to me staring

out of the window for hours. The most important parts

of research are

done in one's head, not at the laboratory bench.

=======================================

The History of the Flagyl Treatment

Patient Zero

At a New Year's Eve party in 1984 one of my family

became quite ill,

just after the haggis had been served. Nothing unusual

in that you

might say, except over the next few days he was

bedridden and

obviously suffering from a severe flu-like illness.

Doctors were

called and various diagnoses were offered: influenza,

mumps, unknown

viral.

After about two weeks he was out of bed but he still

did not feel

right. In fact he never fully recovered.

In 1989 he developed low back pain but X-rays revealed

no particular

abnormalities and he was placed on a course of

exercise and

stretching. He was fastidious about the course, often

sweating with

the pain during sit-ups. After two years there was no

benefit to be

seen in spite of all the effort.

1991 came and we had a bereavement which upset

everyone greatly.

After the funeral he had an episode of anxiety which

was alarming but

perhaps understandable. However a few months later the

anxiety

recurred and was accompanied with shortness of breath.

A trip to his

physician revealed high blood pressure - very high

blood pressure of

180/120. Now normal is 120/80 and a blood pressure

that high should

probably trigger a hospital visit. Of course he was

given an

aggressive course of antihypertensive medication with

anxiolytic

drugs and sent for further diagnostic tests. He

complained of

epigastric pain. Despite intensive and expensive tests

including MRI,

CAT scan, ultrasound no diagnosis was forthcoming.

During that time the discovery of ulcer-causing

bacteria was made by

Barry Marshall and I suggested he might be tested for

an ulcer. He

was given a prescription for antibiotics as a

consequence, including

metronidazole. Seven days after he started the ulcer

medication his

low back pain disappeared and when I checked his blood

pressure it

was normal. My first guess was that this was some

undocumented set of

symptoms secondary to the Helicobacter pylori

infection. I even went

so far as to contact Barry Marshall himself to enquire

if others had

seen anything similar. He had not.

Over the next three years things really deteriorated,

to the point

where he was having trouble remembering his telephone

number and was

often unable to drive a car. His wife thought him a

hypochondriac. He

was unable to take up employment.

March 1997 came and I decided something had to be

done. The Internet

had just come to our house and I thought I'd try to

find out what was

wrong using the search facilities and all the

knowledge available

through the Web and the newsgroups. I thought to make

this a hobby

for the summer. My first job was to get a full list of

symptoms then

find the least common one and search on that. A little

questioning

revealed that both knees were somewhat stiff. I typed

knee pain into

Altavista. Rather than a summer hobby I had a possible

diagnosis in

twenty minutes - Lyme disease.

I asked if there had ever been a tick bite. No memory

of one. I asked

if there had ever been a funny rash. At first, none

was remembered

but the following day it was revealed that there had

been a circular

rash on the upper thigh some time in the fall of 1984.

The timing was

just right.

A quick call to Igenex, when I spoke with the

wonderful founder and

CEO Dr. Nick , and I determined the tests that

had to be done.

Another call and I found a local " Lyme expert

physician " . Off the

family went - I suggested they should all be tested.

They were all three positive by CDC criteria. OK, I

said, there's no

problem because the books say it will just take a few

weeks of

antibiotics and you'll all be cured. The parents were

put on

doxycycline, the child on amoxicillin. A couple of

weeks later they

were no better, perhaps worse, so Biaxin was added.

Then they really

deteriorated. Its called a herxheimer I explained.

Just wait and it

will go away. But it didn't. August came and the

family was in dire

straights.

Right, my wife said, you have a new summer hobby. Find

a cure. My

wife thinks I can fix anything - garage door openers,

appliances,

computers (well I can fix them). But a disease? That's

a tall order.

Try, she implored. I spread everything I had out on my

large desk and

looked, and looked. And perhaps somewhere I remembered

what Max

Perutz had said: the secret's in the proteins.

There was the 41kDa protein. I knew that protein. It

was in the

flagella of the trichomonas that I had observed

immobilized by Flagyl

twenty years ago. And I thought of the experience with

the triple

therapy. A little research revealed that the flagellar

protein in my

enemy Borrelia burgdorferi was in the form of the

axial filaments.

The Lyme spirochete was an internally flagellated

bacterium a little

similar in form to Helicobacter pylori.

A trip to the Lyme newsgroup brought forth a few Lyme

patients who

had taken Flagyl for unrelated conditions, especially

giardia, and

seen improvement in their Lyme symptoms.

Things were so bad a suggestion of eye of newt would

probably have

elicited a volunteer. A friendly physician agreed to

try the triple

therapy approach again. We just added Flagyl to the

doxycycline and

Biaxin. Seven days later came a real breakthrough with

relief of all

symptoms. I had the blood pressure as an objective

measurement of

response too. We tried Flagyl for three weeks this

time. A good

result but each time the Flagyl was stopped the

symptoms would come

back, despite the continued doxycycline and Biaxin.

Now following one case is difficult. People get out of

bed each day

feeling different. We have to watch carefully and have

some idea of

the average patient condition. There were many

evenings when I paced

my backyard trying to decide if I was right that

Flagyl was

effective.

Throughout 1998 we tried varying dosage, different

period of

treatment. By September 1998 we could all see the

change. He insisted

on treatment for his wife and child. By now the child

was showing

Lyme symptoms too. They responded equally dramatically

- if not more

so.

I put the information out through the Lyme newsgroup.

A couple of

physicians contacted me. One had good results on a

tough case but

felt unsure of trying it on more. Finally in October

1998 Dr.

Horowitz contacted me and agreed to try Flagyl on some

of his

intractable cases.

On December 4, 1998 Horowitz called me to say

that he too had

had very good results on Flagyl. We agreed to publish

at the

forthcoming Lyme & Spirochetal Diseases conference.

The paper was not

accepted for full presentation, just the poster

session. Who needs

new treatments when the disease is readily cured? We

presented on 140

patients and I was able to meet and discuss Flagyl

with many of the

well known Lyme physicians.

Since then things have gone from strength to strength.

Tinidazole,

very similar to Flagyl, has proven to be more

effective in-vitro and

in-vivo. I have run out of volunteers - they are all

well thankyou.

Note that these three test patients repudiate the

claims of certain

researchers who invoke a " post-Lyme syndrome " to

explain away chronic

Lyme cases. These three were treated for 6 months with

conventional

therapy before the addition of Flagyl. Only after

Flagyl treatment

did they improve and then they relapsed despite

ongoing conventional

therapy. Clearly there is no need to conjecture a

post-Lyme

condition - symptoms reflect an ongoing infection.

=======================================

Nitroimidazoles: Flagyl, Tinidazole & Others

Metronidazole:

History

Metronidazole was introduced in the mid-1950s by

Rhone-Poulenc under

the brand name Flagyl. It was the first of the group

of drugs we now

call nitroimidazoles. In the US it was licensed to

Searle. As a

patent-expired drug it can be purchased inexpensively

as a generic. I

have no reason to doubt the quality of the generic

alternative.

Flagyl was first introduced as a treatment for

trichomonas vaginalis,

a sexually transmitted disease, and revolutionized

therapy for that

condition. In 1964 a dentist, Shinn, noted that

patients with

gingivitis treated with Flagyl were cured and the

second major

indication was established. Flagyl was found useful in

the treatment

of the protozoans giardia lamblia and entamoeba

histolytica during

the late 1960s and 1970s. In the early 1970s it was

found that Flagyl

was very active against the obligate anaerobes of

which the two best

known families are Bacteroides and Clostridia. Flagyl

is the gold

standard for treating these infections.

Chemistry

Metronidazole is quite a simple chemical, hence its

low molecular

weight. Here is its structure:

Safety

Unfortunately in the mid 1970s a competitor with

another of the

nitroimidazoles tried to attack the market share of

metronidazole by

promoting their drug as a safer alternative and

highlighting the

possible carcinogenicity of Flagyl. This backfired and

physicians saw

all nitroimidazoles as a cancer threat, denying their

patients a very

valuable medication and probably costing many lives.

This was the

1970s and a similar attack was made on saccharine as

the reader

probably recalls. Flagyl had been used as a routine

pre-operative

prophylaxis for gut and gynecological surgery,

post-operative

infections are normally anaerobic. The cancer scare

stopped routine

prophylaxis. Physicians need to be aware that the long

term safety of

many drugs is not established and drugs they use every

day do

demonstrate some carcinogenic potential. A case very

much in point is

doxycycline which is associated with pituitary tumors

- the standard

datasheet has this information yet few doctors limit

their use of

that drug. It is however prudent to examine all

factors of safety and

use appropriate caution, especially when there appears

to be a safer

alternative.

Absorption and Distribution

Flagyl is well absorbed following oral administration

and while there

is an intravenous presentation available its use is

intended for

emergency treatment of life-threatening anaerobic

infections and

where oral dosing is not possible. Anaerobic

infections are not fun

at all! The pictures are particularly gruesome and

during a lecture I

was once giving at a major London Hospital on a hot

summers day I

actually fainted even though I had seen those pictures

hundreds of

times before!

Flagyl is lipophilic (fat loving) and low molecular

weight, an almost

ideal combination for good tissue distribution. It

passes into the

brain readily and one indication for use is anaerobic

brain abscess.

In neuro-Lyme this is a great advantage for the

neurological

complications of late stage Lyme are both the most

troubling for the

patient and hitherto the most difficult to treat.

There are limitations to our knowledge of the extent

of tissue

penetration. The extent to which a drug is

concentrated in various

tissues is visualized by an autoradiogram. A test

animal, often a

rat, is fed for several days with a radioactively

labeled form of

metronidazole. The rat is then killed, split in half

and placed on a

photographic plate. Areas of high radioactivity expose

the plate.

However the results may not scale well to humans.

Consider the

following: suppose a nerve in the rat is 1mm in

diameter and the

corresponding nerve in the human is 1cm, ten times as

large.

Diffusion time scales as the fourth power of the

length. If the rat

nerve attains an adequate concentration in one day

then the same

diffusion process in the human will take 10x10x10x10

days - 25 years!

Of course we don't expect diffusion to be the rate

limiting state. In

living tissue there is active transport of many

molecules.

Mechanism of Action

When I was at Rhone-Poulenc two researchers, Jim

McFadzean and Sidney

Squires, were the experts on Flagyl. Then there were

at least five

proposed mechanisms of action, not all of which were

mutually

exclusive. As far as I can see this question has not

been

satisfactorily settled since that time though review

papers often

gloss over the details.

One important observation comes from an experiment I

observed. T.

vaginalis can be readily watched under a microscope,

the twirling

external flagellum is readily seen. When a low

concentration (a few

mcg/ml) of metronidazole is added to the culture the

flagella quickly

cease to function - in a matter of a few minutes. It

is the time

scale and the outcome which is important. Time scales

of a few

minutes do not equate to protein synthesis inhibition

or accumulated

cytotoxicity but rather this observation strongly

suggests that

metronidazole blocks some late part of a metabolic

pathway and a

pathway involved in the proton motor function which

drives the

flagellum.

The protozoal flagellum is structurally different from

that of the

bacterium but both are comprised of flagellar protein.

Note that

Flagyl is effective against both bacterial forms and

protozoa.

The most widely quoted mechanism of action is as

follows:

1. Passive diffusion into the microorganism

2. Intracellular reduction of the 5-nitro group by the

pyruvate-

ferredoxin oxidoreductase complex

3. Enhanced diffusion into cell via concentration

gradient

4. Interruption of normal electron flow due to greater

electron

affinity of the nitroimidazole.

5. Reduction product attacks DNA with loss in helical

structure and

impared template function

(DNA->RNA->protein synthesis)

While I think the first part of this mechanism is

probably correct -

stages 1, 2 & 3 - the activity at the DNA level does

not square with

my observations as noted above.

Instead I propose the following mode of action:

1. Same as above

2. Same as above

3. Same as above

4. Electron flow in the proton motor function (drives

the flagella or

axial filaments) is blocked by the greater electron

affinity of the

nitroimidazole, denying the potential gradient at the

junction of the

cell wall and the flagellum or axial filament.

Consequent loss in

potential gradient along the flagellum or axial

filament.

5. Motility ceases, with possible permanent damage to

the motor

structure.

6. Accumulation of cytotoxic products interferes with

protein

synthesis, as above.

An online textbook describing the relevant structures

can be found

here.

http://www.bact.wisc.edu/microtextbook/BacterialStructure/Flagella.htm

l

I will discuss more of how nitroimidazoles affect the

Lyme spirochete

in the next section: nitroimidazoles & Lyme.

Tinidazole:

Chemistry

Notice how similar tinidazole is to metronidazole:

The slightly larger chain attached to the top nitrogen

atom accounts

for the higher molecular weight.

General

Tinidazole is the generic name. It was developed and

marketed by

Pfizer as Fasigyn throughout the world, with the

exception of the US

(for presumably marketing reasons).

A datasheet can be found here.

http://home.intekom.com/pharm/pfizer/fasigyn.html#SIDE-EFFECTS

Tinidazole in the US can be supplied by a compounding

pharmacy. One I

know that does is the Hopewell Pharmacy in NJ. Their

phone number is

(800) 792-6670.

Tinidazole is very similar to metronidazole.

Originally I suggested

that tinidazole might be more suitable for the long

term treatment of

Lyme disease on the basis of safety and better

tolerance by the

patient. Long term safety data is not available on any

of the

nitroimidazoles but an educated guess is that

tinidazole is probably

better than metronidazole.

Suprisingly when an in-vitro test was done by Brorson

et al, who had

done in-vitro studies of metronidazole, they reported

to me, as

unpublished data, that tinidazole was 10x as effective

as

metronidazole in killing Lyme cysts. This seems to be

supported by

clinical results reported from a number of physicians

and patients.

Tinidazole is currently the nitroimidazole of choice

in treating

Lyme.

Ornidazole:

This structure was taken from a rough hand drawn

diagram and should

not be relied upon for serious work. The other

structures were taken

from published sources. Interesting that the chain

contains a

chlorine atom.

Molecular weight = 215

Similar to metronidazole and tinidazole. Not available

in the US but

is sold in most european countries.

Secnidazole:

Chemistry

Again the molecule is very similar to metronidazole,

differing only

in the topmost chain.

I have had one report of the successful use of

secnidazole in the

treatment of Lyme disease. it appears similar to

Flagyl.

=======================================

Nitroimidazoles in Lyme

If you need a copy of the abstract on the treatment of

Lyme disease

with Flagyl you can download it from here

images/12Lyme

Conference.pdf in Adobe Acrobat format. You may need

this to convince

your doctor to prescribe Flagyl for you.

General questions on Lyme disease may be answered by

consulting Art

Doherty's site.

Hypotheses on What Nitroimidazoles do to the Lyme

Spirochete

McFadzean & Squires studied the effect of

metronidazole on the

syphilis treponeme, the motile spirochetal form, and

reported that it

did impair the motility. Brorson & Brorson reported

that

metronidazole had no effect on the motile Lyme

spirochete. How does

one explain the difference in these observations on

similar

microorganisms? Spirochetal movement demands a viscous

medium, one

that can support shear (try spinning a corkscrew in

water - there's

just no resistance). In a low viscosity medium, like

water, the

spirochete will not be able to generate sufficient

shear to effect

motion, therefore any effect of metronidazole on

motility will not be

visible. This will require further investigation but,

for the

present, I do not subscribe to the notion that

metronidazole is

inactive against the classic spirochetal form.

Dorward et. al. also demonstrated that the Lyme

spirochete can invade

host cells. It seems likely that metronidazole will

interfere with

this process if it affects the motility of the axial

filaments.

Similar observations on T. denticola support the

hypothesis that

metroidazole prevents cell invasion. Note that

Dorward's fine paper

claimed that cell invasion had not been observed in

other

spirochetes - this is incorrect as the T denticola

work from McGill

University shows. I believe that cell invasion is

common to

spirochetal bacteria.

Brorson & Brorson did observe a bactericidal effect of

metronidazole

on the cyst form of Lyme.

Some words of explanation are necessary at this point.

It has been

observed for many years that spirochetes are able to

exist in a

variety of forms. Of course the spirochete, resembling

a corkscrew,

is the classic and recognizable configuration. Some of

these forms

have been given names: cysts; granules; blebs; string

of pearls; L-

forms. The importance of these morphologies in

pathogenesis is not

known but the classic spirochete is rarely seen in

host tissue. These

observations are not limited to Lyme disease. Perhaps

the most widely

studied spirochetal infection is syphilis, which

demonstrates all of

these phases.

It has commented that the severity of Lyme disease to

the human host

is out of all proportion to the quantity of

spirochetes found. One

explanation is that most of the Lyme organsisms are in

the other

forms. Brorson & Brorson were able to show that the

spirochete

rapidly converted to the cyst for when incubated in

cerebrospinal

fluid. We may therefore infer that cysts are present

in the human

infection.

It should not be thought that the cysts are a kind of

vegetative

spore, or seed. The cysts are active and produce

toxins. On reversion

to the spirochetal form each cyst gives rise to

multiple spirochetes.

It is my hypothesis that perhaps as much as 90+% of

the Lyme organism

present in the human body is in non-spirochetal forms.

When the Lyme spirochete invades a host cell it forms

a vacuole

within the host cell. As a consequence of the invasion

the exterior

form of the host cell changes dramatically. It is

inconceivable that

such a dramatic shape change has no effect on the host

cell's

function. As a vacuole, there is less need for a

strong cell wall and

the bacterium may well be cell wall deficient,

rendering it

invulnerable to antimicrobials, like the penicillins,

which target

bacterial cell wall formation.

A wonderful book, replete with references, on

non-classical forms of

all kinds of bacteria is Prof. Lida Mattman's " Cell

Wall Deficient

Forms: Stealth Pathogens " , published by CRC Press.

Prof. Mattman is

currently actively involved in Lyme research.

It is possible therefore that the nitroimidazoles act

in-vivo in

several ways:

Reduction in motility of the spirochete, limiting

disease progression

and rendering the spirochete susceptible to immune

system attack.

Inhibition of host cell invasion, especially host

immune cells.

Bactericidal activity against cyst forms.

Bactericidal effects on intracellular vacuole forms of

Lyme (and

other spirochetal diseases).

The use of the nitroimidazoles is not limited to Lyme

and syphilis.

There can be little doubt that these drugs will be

found useful in a

wide range of spirochetal diseases, including

relapsing fever, late-

stage syphilis and perhaps leptospira. Of considerable

interest are

those common diseases where spirochetes have been

conjectured:

multiple sclerosis and rheumatoid arthritis. Lyme

disease is in a

sense a model of a disease that resists elimination by

popular

antibiotics.

What To Expect When Taking A Nitroimidazole

The Lyme patient's response to taking Flagyl, or

similar, is rather

complex. On the basis of talking with about 100

chronic Lyme patients

who have taken Flagyl and closely observing three Lyme

patients on

Flagyl/tinidazole I think there is a general pattern.

Days 1-6 Mild worsening of symptoms - aches, pains and

general

malaise. There are often palpitations and some

difficulty breathing.

Days 7-10 The honeymoon. Patients feel dramatically

better, often

with all pain gone, energy returns.

Days 11-21 Unfortunately the honeymoon does not last.

While the joint

and low back pain may go away, malaise and

neurological problems come

on with vengeance. Profound lack of energy and

motivation.

Days 21-33 Depression. For no known reason deep, deep

depression

starts about now. It may lead to suicidal thoughts and

be very

stressful for family members. Being forewarned helps

greatly so Lyme

patients should warn all those around them before it

happens.

Depression typically lasts about 10 days. Some Lyme

patients react

badly to anti-depressants so there should probably be

avoided.

Warning! Days 40-60. A number of patients have

experienced shortness

of breath and palpitations at about 6 weeks. These

events may require

an ER visit. This may be due to a sudden die off of

the bacteria.

Days 34-60 Gradual improvement, especially in

neurological status,

manifest as " good days " . Eventually the " good days "

become seven days

per week. Profound fatigue remains however and will

not abate perhaps

for six months. At 60-90 days there should be no

symptoms other than

fatigue. Time to take a vacation!

Remember individual cases will differ from this

average roadmap. Some

patients have responded beautifully in a short time

and seemingly

have stayed well. One lady wrote that a low dose of

Flagyl enabled

her to escape from her home for the first time in 4

years and was now

mountain biking.

Elevated Liver Enzymes

One of the classic signs of Lyme disease is alcohol

intolerance. This

suggests that the liver is an important site in the

progression of

Lyme disease.

Some patients have experienced elevated liver enzymes

while taking

Flagyl. This could be due to a side effect of the drug

or a

consequence of killing the Lyme spirochete within the

liver: we just

don't know as yet. If it is a side effect then perhaps

an alternative

nitroimidazole would be an option. If it is a

consequence of killing

Lyme in the liver the elevated enzyme level may be

part and parcel of

effective treatment. More work needs to be done.

Peripheral Neuropathy

In a similar way the nitroimidazoles may affect the

peripheral

nervous system. Peripheral neuropathy, typically

manifest as numbness

of the feet, has been recorded as a side effect of

Flagyl treatment.

It may be so, but equally it may be a consequence of

treating Lyme-

infected nerves.

The reports of Flagyl-induced peripheral neuropathy

came only in

recent years. Did those cases perhaps have Lyme

disease? Why wasn't

this side effect noted years before? Do the other

nitroimidazoles

have the same effect as Flagyl? It seems, just seems,

that tinidazole

is not so likely to cause peripheral neuropathy. That

may be because

tinidazole is a slightly larger molecule and may not

penetrate dense

nervous system tissue so readily. On the other hand is

peripheral

neuropathy just a side effect confined to Flagyl. We

don't know.

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I also found on my first round of flagyl I would have kissed any

doctors ass, but second third and forth attempts bare no fruit.

tony

> Came across this in the LymeStrategies (Salt/C) list

> and thought it would contribute to some of our past

> discussion of Flagyl-- certainly applies to Cpn and

> other diseases as well as Lyme's.

>

> By the way: my vote is to come back if he wishes,

> and an appreciation for Penny's concern about the tone

> of the list. Having been part of some organizations

> ruled by coercive psychopaths, I can understand the

> paranoia (just because you're paranoid doesn't mean

> that people aren't after you!) and caution this

> engenders whenever there is a hint of similar

> coercion-- even if not intended.

> We got good work to do, folks, let's keep it going!

> Jim

>

> http://www.lymebook.com/

>

> -------------------

>

> Lyme, Spirochetes, Flagyl and the Nitroimidazoles

> by Atkinson-Barr CPhys PhD

>

> Please note that this is my first web page design, and

> is very much a

> learning experience. There will be frequent updates

> and what you see

> should be considered as a work in progress.

>

> In late 1997 I started to investigate Lyme disease. I

> discovered

> that, contrary to the medical textbooks, Lyme disease

> is not easily

> treated and that there are many Lyme patients who are

> profoundly ill

> with this disease.

>

> The facility for patients to disclose and discuss

> their problems over

> the Internet marks a great change in medicine. Using

> the newsgroup

> sci.med.diseases.lyme I was able to explore the

> problems, insights

> and discoveries of some remarkable people who had had

> their lives

> turned upside down by a tiny tick. To all of the

> contributors that

> helped me see further I say bless you all. My

> motivation at the

> outset was to help my relatives. I could not have done

> so without the

> input from the newsgroup. Every problem disease needs

> a group like

> this, for without the flow of information from

> patients it would be

> impossible for a scientist to see the big picture.

>

> Thanks to some serendipity and the training I received

> from some

> great molecular biologists, I initially predicted and

> then confirmed,

> to my own satisfaction, that the nitroimidazoles would

> be useful in

> the treatment of Lyme. Flagyl is the original and best

> known of the

> nitroimidazole class of drugs.

>

> As the details of this discovery are important to

> understanding what

> I do know - and do not - I have included a history of

> the work that

> convinced me of the benefits of using Flagyl in the

> treatment of Lyme

> patients.

>

> Since the presentation of the results of Lyme

> treatment with Flagyl

> at the April 1999 Lyme & Spirochetal Diseases

> Conference, held in New

> York, many thousands of Lyme sufferers have been

> prescribed Flagyl. I

> am pleased to say that the early promise of that

> treatment has been

> continued. Not a day passes without an e-mail, letter

> or telephone

> call from a Lyme patient who has seen dramatic

> improvement in their

> condition.

>

> That's the introduction, so now on to the information

> you came here

> for!

>

> My very best wishes to you all.

>

> Atkinson-Barr

>

> =======================================

> About Atkinson-Barr

>

> First things first. I AM NOT AN MD. That's important

> to remember. I

> cannot, by law, give anyone any medical treatment, nor

> do I have any

> patients. That said, I do know quite a lot about

> certain diseases.

> I attended (went up is what the British say) Cambridge

> University in

> England in the early 1970s to study science…

>

> After Cambridge I worked at Rhone-Poulenc, the giant

> French

> pharmaceutical company…

>

> In 1991 an Australian physician, Barry Marshall,

> astonished the world

> with his discovery, with Dr. Robin Warren, that

> gastric and peptic

> ulcers were a consequence of an infection by a

> bacterium,

> Helicobacter pylori. The first treatment was a

> combination of

> metronidazole (Flagyl), tetracycline and Pepto-Bismol,

> termed " triple

> therapy " . That such a common condition, always linked

> to stress in

> common belief, could be an infectious process was

> stunning. This

> reinvigorated the study of infectious diseases.

> Certainly a paradigm

> shift if ever there was one. I gave a few lectures on

> the subject

> locally and encouraged those with ulcers to seek out

> treatment in the

> face of a campaign of fear, uncertainty and doubt

> promoted by some

> pharmaceutical companies. I found one interesting case

> of chronic

> halitosis that responded to triple therapy which was

> written up here.

>

> One of my relatives had a dramatic response to triple

> therapy and

> later investigation was the basis for the discovery of

> the use of

> Flagyl in Lyme disease. He was patient zero.

>

> People often ask me where I do my research. My answer

> often

> confounds: mostly it is done in the shower! I think

> for hours about a

> problem until I understand it. I am pleased to say

> that Isaac Newton

> was reported to be the same way, though I am nowhere

> near his level

> it does seem to be a technique that works. It drives

> my wife to

> distraction, though in recent years she has become

> used to me staring

> out of the window for hours. The most important parts

> of research are

> done in one's head, not at the laboratory bench.

>

> =======================================

>

> The History of the Flagyl Treatment

>

> Patient Zero

>

> At a New Year's Eve party in 1984 one of my family

> became quite ill,

> just after the haggis had been served. Nothing unusual

> in that you

> might say, except over the next few days he was

> bedridden and

> obviously suffering from a severe flu-like illness.

> Doctors were

> called and various diagnoses were offered: influenza,

> mumps, unknown

> viral.

>

> After about two weeks he was out of bed but he still

> did not feel

> right. In fact he never fully recovered.

>

> In 1989 he developed low back pain but X-rays revealed

> no particular

> abnormalities and he was placed on a course of

> exercise and

> stretching. He was fastidious about the course, often

> sweating with

> the pain during sit-ups. After two years there was no

> benefit to be

> seen in spite of all the effort.

>

> 1991 came and we had a bereavement which upset

> everyone greatly.

> After the funeral he had an episode of anxiety which

> was alarming but

> perhaps understandable. However a few months later the

> anxiety

> recurred and was accompanied with shortness of breath.

> A trip to his

> physician revealed high blood pressure - very high

> blood pressure of

> 180/120. Now normal is 120/80 and a blood pressure

> that high should

> probably trigger a hospital visit. Of course he was

> given an

> aggressive course of antihypertensive medication with

> anxiolytic

> drugs and sent for further diagnostic tests. He

> complained of

> epigastric pain. Despite intensive and expensive tests

> including MRI,

> CAT scan, ultrasound no diagnosis was forthcoming.

>

> During that time the discovery of ulcer-causing

> bacteria was made by

> Barry Marshall and I suggested he might be tested for

> an ulcer. He

> was given a prescription for antibiotics as a

> consequence, including

> metronidazole. Seven days after he started the ulcer

> medication his

> low back pain disappeared and when I checked his blood

> pressure it

> was normal. My first guess was that this was some

> undocumented set of

> symptoms secondary to the Helicobacter pylori

> infection. I even went

> so far as to contact Barry Marshall himself to enquire

> if others had

> seen anything similar. He had not.

>

> Over the next three years things really deteriorated,

> to the point

> where he was having trouble remembering his telephone

> number and was

> often unable to drive a car. His wife thought him a

> hypochondriac. He

> was unable to take up employment.

>

> March 1997 came and I decided something had to be

> done. The Internet

> had just come to our house and I thought I'd try to

> find out what was

> wrong using the search facilities and all the

> knowledge available

> through the Web and the newsgroups. I thought to make

> this a hobby

> for the summer. My first job was to get a full list of

> symptoms then

> find the least common one and search on that. A little

> questioning

> revealed that both knees were somewhat stiff. I typed

> knee pain into

> Altavista. Rather than a summer hobby I had a possible

> diagnosis in

> twenty minutes - Lyme disease.

>

> I asked if there had ever been a tick bite. No memory

> of one. I asked

> if there had ever been a funny rash. At first, none

> was remembered

> but the following day it was revealed that there had

> been a circular

> rash on the upper thigh some time in the fall of 1984.

> The timing was

> just right.

>

> A quick call to Igenex, when I spoke with the

> wonderful founder and

> CEO Dr. Nick , and I determined the tests that

> had to be done.

> Another call and I found a local " Lyme expert

> physician " . Off the

> family went - I suggested they should all be tested.

>

> They were all three positive by CDC criteria. OK, I

> said, there's no

> problem because the books say it will just take a few

> weeks of

> antibiotics and you'll all be cured. The parents were

> put on

> doxycycline, the child on amoxicillin. A couple of

> weeks later they

> were no better, perhaps worse, so Biaxin was added.

> Then they really

> deteriorated. Its called a herxheimer I explained.

> Just wait and it

> will go away. But it didn't. August came and the

> family was in dire

> straights.

>

> Right, my wife said, you have a new summer hobby. Find

> a cure. My

> wife thinks I can fix anything - garage door openers,

> appliances,

> computers (well I can fix them). But a disease? That's

> a tall order.

> Try, she implored. I spread everything I had out on my

> large desk and

> looked, and looked. And perhaps somewhere I remembered

> what Max

> Perutz had said: the secret's in the proteins.

>

> There was the 41kDa protein. I knew that protein. It

> was in the

> flagella of the trichomonas that I had observed

> immobilized by Flagyl

> twenty years ago. And I thought of the experience with

> the triple

> therapy. A little research revealed that the flagellar

> protein in my

> enemy Borrelia burgdorferi was in the form of the

> axial filaments.

> The Lyme spirochete was an internally flagellated

> bacterium a little

> similar in form to Helicobacter pylori.

>

> A trip to the Lyme newsgroup brought forth a few Lyme

> patients who

> had taken Flagyl for unrelated conditions, especially

> giardia, and

> seen improvement in their Lyme symptoms.

>

> Things were so bad a suggestion of eye of newt would

> probably have

> elicited a volunteer. A friendly physician agreed to

> try the triple

> therapy approach again. We just added Flagyl to the

> doxycycline and

> Biaxin. Seven days later came a real breakthrough with

> relief of all

> symptoms. I had the blood pressure as an objective

> measurement of

> response too. We tried Flagyl for three weeks this

> time. A good

> result but each time the Flagyl was stopped the

> symptoms would come

> back, despite the continued doxycycline and Biaxin.

>

> Now following one case is difficult. People get out of

> bed each day

> feeling different. We have to watch carefully and have

> some idea of

> the average patient condition. There were many

> evenings when I paced

> my backyard trying to decide if I was right that

> Flagyl was

> effective.

>

> Throughout 1998 we tried varying dosage, different

> period of

> treatment. By September 1998 we could all see the

> change. He insisted

> on treatment for his wife and child. By now the child

> was showing

> Lyme symptoms too. They responded equally dramatically

> - if not more

> so.

>

> I put the information out through the Lyme newsgroup.

> A couple of

> physicians contacted me. One had good results on a

> tough case but

> felt unsure of trying it on more. Finally in October

> 1998 Dr.

> Horowitz contacted me and agreed to try Flagyl on some

> of his

> intractable cases.

>

> On December 4, 1998 Horowitz called me to say

> that he too had

> had very good results on Flagyl. We agreed to publish

> at the

> forthcoming Lyme & Spirochetal Diseases conference.

> The paper was not

> accepted for full presentation, just the poster

> session. Who needs

> new treatments when the disease is readily cured? We

> presented on 140

> patients and I was able to meet and discuss Flagyl

> with many of the

> well known Lyme physicians.

>

> Since then things have gone from strength to strength.

> Tinidazole,

> very similar to Flagyl, has proven to be more

> effective in-vitro and

> in-vivo. I have run out of volunteers - they are all

> well thankyou.

>

> Note that these three test patients repudiate the

> claims of certain

> researchers who invoke a " post-Lyme syndrome " to

> explain away chronic

> Lyme cases. These three were treated for 6 months with

> conventional

> therapy before the addition of Flagyl. Only after

> Flagyl treatment

> did they improve and then they relapsed despite

> ongoing conventional

> therapy. Clearly there is no need to conjecture a

> post-Lyme

> condition - symptoms reflect an ongoing infection.

>

> =======================================

>

> Nitroimidazoles: Flagyl, Tinidazole & Others

>

> Metronidazole:

> History

> Metronidazole was introduced in the mid-1950s by

> Rhone-Poulenc under

> the brand name Flagyl. It was the first of the group

> of drugs we now

> call nitroimidazoles. In the US it was licensed to

> Searle. As a

> patent-expired drug it can be purchased inexpensively

> as a generic. I

> have no reason to doubt the quality of the generic

> alternative.

>

> Flagyl was first introduced as a treatment for

> trichomonas vaginalis,

> a sexually transmitted disease, and revolutionized

> therapy for that

> condition. In 1964 a dentist, Shinn, noted that

> patients with

> gingivitis treated with Flagyl were cured and the

> second major

> indication was established. Flagyl was found useful in

> the treatment

> of the protozoans giardia lamblia and entamoeba

> histolytica during

> the late 1960s and 1970s. In the early 1970s it was

> found that Flagyl

> was very active against the obligate anaerobes of

> which the two best

> known families are Bacteroides and Clostridia. Flagyl

> is the gold

> standard for treating these infections.

>

> Chemistry

> Metronidazole is quite a simple chemical, hence its

> low molecular

> weight. Here is its structure:

>

>

> Safety

> Unfortunately in the mid 1970s a competitor with

> another of the

> nitroimidazoles tried to attack the market share of

> metronidazole by

> promoting their drug as a safer alternative and

> highlighting the

> possible carcinogenicity of Flagyl. This backfired and

> physicians saw

> all nitroimidazoles as a cancer threat, denying their

> patients a very

> valuable medication and probably costing many lives.

> This was the

> 1970s and a similar attack was made on saccharine as

> the reader

> probably recalls. Flagyl had been used as a routine

> pre-operative

> prophylaxis for gut and gynecological surgery,

> post-operative

> infections are normally anaerobic. The cancer scare

> stopped routine

> prophylaxis. Physicians need to be aware that the long

> term safety of

> many drugs is not established and drugs they use every

> day do

> demonstrate some carcinogenic potential. A case very

> much in point is

> doxycycline which is associated with pituitary tumors

> - the standard

> datasheet has this information yet few doctors limit

> their use of

> that drug. It is however prudent to examine all

> factors of safety and

> use appropriate caution, especially when there appears

> to be a safer

> alternative.

>

> Absorption and Distribution

> Flagyl is well absorbed following oral administration

> and while there

> is an intravenous presentation available its use is

> intended for

> emergency treatment of life-threatening anaerobic

> infections and

> where oral dosing is not possible. Anaerobic

> infections are not fun

> at all! The pictures are particularly gruesome and

> during a lecture I

> was once giving at a major London Hospital on a hot

> summers day I

> actually fainted even though I had seen those pictures

> hundreds of

> times before!

>

> Flagyl is lipophilic (fat loving) and low molecular

> weight, an almost

> ideal combination for good tissue distribution. It

> passes into the

> brain readily and one indication for use is anaerobic

> brain abscess.

> In neuro-Lyme this is a great advantage for the

> neurological

> complications of late stage Lyme are both the most

> troubling for the

> patient and hitherto the most difficult to treat.

>

> There are limitations to our knowledge of the extent

> of tissue

> penetration. The extent to which a drug is

> concentrated in various

> tissues is visualized by an autoradiogram. A test

> animal, often a

> rat, is fed for several days with a radioactively

> labeled form of

> metronidazole. The rat is then killed, split in half

> and placed on a

> photographic plate. Areas of high radioactivity expose

> the plate.

> However the results may not scale well to humans.

> Consider the

> following: suppose a nerve in the rat is 1mm in

> diameter and the

> corresponding nerve in the human is 1cm, ten times as

> large.

> Diffusion time scales as the fourth power of the

> length. If the rat

> nerve attains an adequate concentration in one day

> then the same

> diffusion process in the human will take 10x10x10x10

> days - 25 years!

> Of course we don't expect diffusion to be the rate

> limiting state. In

> living tissue there is active transport of many

> molecules.

>

> Mechanism of Action

> When I was at Rhone-Poulenc two researchers, Jim

> McFadzean and Sidney

> Squires, were the experts on Flagyl. Then there were

> at least five

> proposed mechanisms of action, not all of which were

> mutually

> exclusive. As far as I can see this question has not

> been

> satisfactorily settled since that time though review

> papers often

> gloss over the details.

>

> One important observation comes from an experiment I

> observed. T.

> vaginalis can be readily watched under a microscope,

> the twirling

> external flagellum is readily seen. When a low

> concentration (a few

> mcg/ml) of metronidazole is added to the culture the

> flagella quickly

> cease to function - in a matter of a few minutes. It

> is the time

> scale and the outcome which is important. Time scales

> of a few

> minutes do not equate to protein synthesis inhibition

> or accumulated

> cytotoxicity but rather this observation strongly

> suggests that

> metronidazole blocks some late part of a metabolic

> pathway and a

> pathway involved in the proton motor function which

> drives the

> flagellum.

>

> The protozoal flagellum is structurally different from

> that of the

> bacterium but both are comprised of flagellar protein.

> Note that

> Flagyl is effective against both bacterial forms and

> protozoa.

>

> The most widely quoted mechanism of action is as

> follows:

>

> 1. Passive diffusion into the microorganism

> 2. Intracellular reduction of the 5-nitro group by the

> pyruvate-

> ferredoxin oxidoreductase complex

> 3. Enhanced diffusion into cell via concentration

> gradient

> 4. Interruption of normal electron flow due to greater

> electron

> affinity of the nitroimidazole.

> 5. Reduction product attacks DNA with loss in helical

> structure and

> impared template function

> (DNA->RNA->protein synthesis)

>

> While I think the first part of this mechanism is

> probably correct -

> stages 1, 2 & 3 - the activity at the DNA level does

> not square with

> my observations as noted above.

>

> Instead I propose the following mode of action:

>

> 1. Same as above

> 2. Same as above

> 3. Same as above

> 4. Electron flow in the proton motor function (drives

> the flagella or

> axial filaments) is blocked by the greater electron

> affinity of the

> nitroimidazole, denying the potential gradient at the

> junction of the

> cell wall and the flagellum or axial filament.

> Consequent loss in

> potential gradient along the flagellum or axial

> filament.

> 5. Motility ceases, with possible permanent damage to

> the motor

> structure.

> 6. Accumulation of cytotoxic products interferes with

> protein

> synthesis, as above.

>

> An online textbook describing the relevant structures

> can be found

> here.

>

http://www.bact.wisc.edu/microtextbook/BacterialStructure/Flagella.ht

m

> l

>

> I will discuss more of how nitroimidazoles affect the

> Lyme spirochete

> in the next section: nitroimidazoles & Lyme.

>

> Tinidazole:

> Chemistry

> Notice how similar tinidazole is to metronidazole:

>

>

>

> The slightly larger chain attached to the top nitrogen

> atom accounts

> for the higher molecular weight.

>

> General

> Tinidazole is the generic name. It was developed and

> marketed by

> Pfizer as Fasigyn throughout the world, with the

> exception of the US

> (for presumably marketing reasons).

>

> A datasheet can be found here.

> http://home.intekom.com/pharm/pfizer/fasigyn.html#SIDE-EFFECTS

>

>

> Tinidazole in the US can be supplied by a compounding

> pharmacy. One I

> know that does is the Hopewell Pharmacy in NJ. Their

> phone number is

> (800) 792-6670.

>

> Tinidazole is very similar to metronidazole.

> Originally I suggested

> that tinidazole might be more suitable for the long

> term treatment of

> Lyme disease on the basis of safety and better

> tolerance by the

> patient. Long term safety data is not available on any

> of the

> nitroimidazoles but an educated guess is that

> tinidazole is probably

> better than metronidazole.

>

> Suprisingly when an in-vitro test was done by Brorson

> et al, who had

> done in-vitro studies of metronidazole, they reported

> to me, as

> unpublished data, that tinidazole was 10x as effective

> as

> metronidazole in killing Lyme cysts. This seems to be

> supported by

> clinical results reported from a number of physicians

> and patients.

>

> Tinidazole is currently the nitroimidazole of choice

> in treating

> Lyme.

>

>

> Ornidazole:

>

> This structure was taken from a rough hand drawn

> diagram and should

> not be relied upon for serious work. The other

> structures were taken

> from published sources. Interesting that the chain

> contains a

> chlorine atom.

>

> Molecular weight = 215

>

> Similar to metronidazole and tinidazole. Not available

> in the US but

> is sold in most european countries.

>

> Secnidazole:

> Chemistry

> Again the molecule is very similar to metronidazole,

> differing only

> in the topmost chain.

>

>

> I have had one report of the successful use of

> secnidazole in the

> treatment of Lyme disease. it appears similar to

> Flagyl.

> =======================================

>

> Nitroimidazoles in Lyme

>

> If you need a copy of the abstract on the treatment of

> Lyme disease

> with Flagyl you can download it from here

> images/12Lyme

> Conference.pdf in Adobe Acrobat format. You may need

> this to convince

> your doctor to prescribe Flagyl for you.

> General questions on Lyme disease may be answered by

> consulting Art

> Doherty's site.

>

> Hypotheses on What Nitroimidazoles do to the Lyme

> Spirochete

> McFadzean & Squires studied the effect of

> metronidazole on the

> syphilis treponeme, the motile spirochetal form, and

> reported that it

> did impair the motility. Brorson & Brorson reported

> that

> metronidazole had no effect on the motile Lyme

> spirochete. How does

> one explain the difference in these observations on

> similar

> microorganisms? Spirochetal movement demands a viscous

> medium, one

> that can support shear (try spinning a corkscrew in

> water - there's

> just no resistance). In a low viscosity medium, like

> water, the

> spirochete will not be able to generate sufficient

> shear to effect

> motion, therefore any effect of metronidazole on

> motility will not be

> visible. This will require further investigation but,

> for the

> present, I do not subscribe to the notion that

> metronidazole is

> inactive against the classic spirochetal form.

>

> Dorward et. al. also demonstrated that the Lyme

> spirochete can invade

> host cells. It seems likely that metronidazole will

> interfere with

> this process if it affects the motility of the axial

> filaments.

> Similar observations on T. denticola support the

> hypothesis that

> metroidazole prevents cell invasion. Note that

> Dorward's fine paper

> claimed that cell invasion had not been observed in

> other

> spirochetes - this is incorrect as the T denticola

> work from McGill

> University shows. I believe that cell invasion is

> common to

> spirochetal bacteria.

>

> Brorson & Brorson did observe a bactericidal effect of

> metronidazole

> on the cyst form of Lyme.

>

> Some words of explanation are necessary at this point.

> It has been

> observed for many years that spirochetes are able to

> exist in a

> variety of forms. Of course the spirochete, resembling

> a corkscrew,

> is the classic and recognizable configuration. Some of

> these forms

> have been given names: cysts; granules; blebs; string

> of pearls; L-

> forms. The importance of these morphologies in

> pathogenesis is not

> known but the classic spirochete is rarely seen in

> host tissue. These

> observations are not limited to Lyme disease. Perhaps

> the most widely

> studied spirochetal infection is syphilis, which

> demonstrates all of

> these phases.

>

> It has commented that the severity of Lyme disease to

> the human host

> is out of all proportion to the quantity of

> spirochetes found. One

> explanation is that most of the Lyme organsisms are in

> the other

> forms. Brorson & Brorson were able to show that the

> spirochete

> rapidly converted to the cyst for when incubated in

> cerebrospinal

> fluid. We may therefore infer that cysts are present

> in the human

> infection.

>

> It should not be thought that the cysts are a kind of

> vegetative

> spore, or seed. The cysts are active and produce

> toxins. On reversion

> to the spirochetal form each cyst gives rise to

> multiple spirochetes.

>

> It is my hypothesis that perhaps as much as 90+% of

> the Lyme organism

> present in the human body is in non-spirochetal forms.

>

>

> When the Lyme spirochete invades a host cell it forms

> a vacuole

> within the host cell. As a consequence of the invasion

> the exterior

> form of the host cell changes dramatically. It is

> inconceivable that

> such a dramatic shape change has no effect on the host

> cell's

> function. As a vacuole, there is less need for a

> strong cell wall and

> the bacterium may well be cell wall deficient,

> rendering it

> invulnerable to antimicrobials, like the penicillins,

> which target

> bacterial cell wall formation.

>

> A wonderful book, replete with references, on

> non-classical forms of

> all kinds of bacteria is Prof. Lida Mattman's " Cell

> Wall Deficient

> Forms: Stealth Pathogens " , published by CRC Press.

> Prof. Mattman is

> currently actively involved in Lyme research.

>

> It is possible therefore that the nitroimidazoles act

> in-vivo in

> several ways:

>

> Reduction in motility of the spirochete, limiting

> disease progression

> and rendering the spirochete susceptible to immune

> system attack.

>

> Inhibition of host cell invasion, especially host

> immune cells.

>

> Bactericidal activity against cyst forms.

>

> Bactericidal effects on intracellular vacuole forms of

> Lyme (and

> other spirochetal diseases).

>

> The use of the nitroimidazoles is not limited to Lyme

> and syphilis.

> There can be little doubt that these drugs will be

> found useful in a

> wide range of spirochetal diseases, including

> relapsing fever, late-

> stage syphilis and perhaps leptospira. Of considerable

> interest are

> those common diseases where spirochetes have been

> conjectured:

> multiple sclerosis and rheumatoid arthritis. Lyme

> disease is in a

> sense a model of a disease that resists elimination by

> popular

> antibiotics.

>

> What To Expect When Taking A Nitroimidazole

> The Lyme patient's response to taking Flagyl, or

> similar, is rather

> complex. On the basis of talking with about 100

> chronic Lyme patients

> who have taken Flagyl and closely observing three Lyme

> patients on

> Flagyl/tinidazole I think there is a general pattern.

>

> Days 1-6 Mild worsening of symptoms - aches, pains and

> general

> malaise. There are often palpitations and some

> difficulty breathing.

>

> Days 7-10 The honeymoon. Patients feel dramatically

> better, often

> with all pain gone, energy returns.

>

> Days 11-21 Unfortunately the honeymoon does not last.

> While the joint

> and low back pain may go away, malaise and

> neurological problems come

> on with vengeance. Profound lack of energy and

> motivation.

>

> Days 21-33 Depression. For no known reason deep, deep

> depression

> starts about now. It may lead to suicidal thoughts and

> be very

> stressful for family members. Being forewarned helps

> greatly so Lyme

> patients should warn all those around them before it

> happens.

> Depression typically lasts about 10 days. Some Lyme

> patients react

> badly to anti-depressants so there should probably be

> avoided.

>

> Warning! Days 40-60. A number of patients have

> experienced shortness

> of breath and palpitations at about 6 weeks. These

> events may require

> an ER visit. This may be due to a sudden die off of

> the bacteria.

>

> Days 34-60 Gradual improvement, especially in

> neurological status,

> manifest as " good days " . Eventually the " good days "

> become seven days

> per week. Profound fatigue remains however and will

> not abate perhaps

> for six months. At 60-90 days there should be no

> symptoms other than

> fatigue. Time to take a vacation!

>

> Remember individual cases will differ from this

> average roadmap. Some

> patients have responded beautifully in a short time

> and seemingly

> have stayed well. One lady wrote that a low dose of

> Flagyl enabled

> her to escape from her home for the first time in 4

> years and was now

> mountain biking.

>

> Elevated Liver Enzymes

> One of the classic signs of Lyme disease is alcohol

> intolerance. This

> suggests that the liver is an important site in the

> progression of

> Lyme disease.

>

> Some patients have experienced elevated liver enzymes

> while taking

> Flagyl. This could be due to a side effect of the drug

> or a

> consequence of killing the Lyme spirochete within the

> liver: we just

> don't know as yet. If it is a side effect then perhaps

> an alternative

> nitroimidazole would be an option. If it is a

> consequence of killing

> Lyme in the liver the elevated enzyme level may be

> part and parcel of

> effective treatment. More work needs to be done.

>

> Peripheral Neuropathy

> In a similar way the nitroimidazoles may affect the

> peripheral

> nervous system. Peripheral neuropathy, typically

> manifest as numbness

> of the feet, has been recorded as a side effect of

> Flagyl treatment.

> It may be so, but equally it may be a consequence of

> treating Lyme-

> infected nerves.

>

> The reports of Flagyl-induced peripheral neuropathy

> came only in

> recent years. Did those cases perhaps have Lyme

> disease? Why wasn't

> this side effect noted years before? Do the other

> nitroimidazoles

> have the same effect as Flagyl? It seems, just seems,

> that tinidazole

> is not so likely to cause peripheral neuropathy. That

> may be because

> tinidazole is a slightly larger molecule and may not

> penetrate dense

> nervous system tissue so readily. On the other hand is

> peripheral

> neuropathy just a side effect confined to Flagyl. We

> don't know.

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