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Treatment Protocol Survey Summaries are updated. 2005-05-28

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There has been 29 more votes since the last summary was prepared

(238 --> 267).

The top rank one that have good characteristic (better change of

improving AND less risk of a major adverse reaction than picking a

random protocol). i.e. > 70% chance of gain < 1.0 for risk

1) Salt/Vitamin C

2) FWIW (No Deficiency Left Behind)

3) Alfred Blasi

4) Nicholson

5) Teitelbaum

6) Hemex

The two protocols are strongly discouraged (more chance of LOSS AND

more chance of a major adverse reaction than picking a random

protocol) < 70% chance of gain > 1.0 for risk

1) Marshall Protocol

2) Ampligen

Summary is at: http://www.lassesen.com/cfids/protocols.com

Details are at: http://lassesen.com/cfids/raw_survey_results.htm

(exact poll talleys and worksheet)

Usual Disclaimers:

1) These are self-reporting evaluation of subjective experiences

2) No verification of compliance with the protocol or meeting CFIDS

criteria was done

3) Any registered Member may vote at:

/polls. If you

have tried any of these protocols, please share your experience by

voting.

FEEL FREE TO FORWARD OR REPOST

As a FYI:

I also notice that http://cfsgroups.org/discussion/view_category.php?

id=3

has created polls on many of the same protocols and a few others.

Looking at http://cfsgroups.org/reports/ , I see the ability to

****cross comparison**** between polls (something not available with

polls). If you are seriously interested in sharing experiences,

I would advocate doing the polls on their site. If enough people do

these polls, the ability to infer your probable experience with a

protocol or a drug or a supplement prior to doing it is possible.

It's an ambitious project because it needs a lot of votes to be

successful.

Ken Lassesen, M.S.

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