Re: some symptoms better, others worse, burning nerve pain

[Guest guest]

Hi,

Something just caught my eye.. "Burning Nerve Pain"

My hubby and I both get a feeling of burning skin all over our body's and at the same

time feel like we have the chills and it gets so icky that it makes us nauseous.

The doctor says its Lyme, but I haven't seen anyone else say much about it before??

Does anyone else experience this??

Thanks,

Tammy <><

From: Deb57

Sent: Wednesday, January 13, 2010 9:01 PM

To: Lyme_and_Rife

Subject: Re: some symptoms better, others worse

Thanks Lena,After reading some of the posts today, I wonder if perhaps some of these symptoms are due to ammonia toxicity.I also read somewhere that B12 can help the burning/nerve pain. Does anyone know about this?Thanks,deb> > > Hi,> >> > Like everyone on these groups, I am combining a number of > > supplements and therapies. I have been encouraged that my brain fog > > and fatigue appear to have lessened and I've seen an improvement in > > my vision problems. On the other hand, I have experienced an > > increase in pain from burning and trigger points in my back. In the > > past day or two, I've also noticed some vibrating in my left arm. > > It perplexes me that some symptoms could get better and others > > worse (or at least more active).> >> > I am using a machine and CS among other things and only now just > > hitting therapeutic levels after a long ramp-up. So I don't know if > > the machine is flushing things out which is causing more noticeable > > neurological symptoms.> >> > Looking for any words of wisdom/experience out there.> >> > Thanks,> >> > deb> >> >> >>

[Guest guest]

I don't know if this is the same thing, but I have horrible paresthesia (sp?).  It feel like all my nerve endings are firing off.  Sort of a pins and needles sensation, but different. Tingling, burning, driving me crazy. The worst is my face, but it is all over.

36 months ago I started on Armour thyroid and 30mg of cortisol (before I knew I had Lyme).  My pain decreased by 80%, the tingling completely went away, but brain fog and energy were horrible - but a bit better. This was within two weeks.

1 year ago, I switched from Armour to all T3 and felt a bit better.  Then last fall the paresthesia returned.  I've not been able to figure it.  It does coincide with my timing of when I began coiling for Lyme.  I was trying to figure out if it's being caused by a severe die off and lots of neurotoxins released or if it's unrelated.  I'm not sure yet. (herx, low T4, worse damage?)

I'm not coiling right now, but doing an intense MMS1/2 protocol to try and kill the co-infections.  I will go back to coiling for Lyme on the 25th.Some days, right now, are severe tingling, some not so bad??????????

 

 

Hi,

Something just caught my eye.. " Burning Nerve Pain "

My hubby and I both get a feeling of burning skin all over our body's and at the same

time feel like we have the chills and it gets so icky that it makes us nauseous.

The doctor says its Lyme, but I haven't seen anyone else say much about it before??

Does anyone else experience this??

Thanks,

Tammy <><

From: Deb57

Sent: Wednesday, January 13, 2010 9:01 PM

To: Lyme_and_Rife

Subject: Re: some symptoms better, others worse

 

Thanks Lena,After reading some of the posts today, I wonder if perhaps some of these symptoms are due to ammonia toxicity.I also read somewhere that B12 can help the burning/nerve pain. Does anyone know about this?Thanks,deb> > > Hi,> >> > Like everyone on these groups, I am combining a number of > > supplements and therapies. I have been encouraged that my brain fog > > and fatigue appear to have lessened and I've seen an improvement in > > my vision problems. On the other hand, I have experienced an > > increase in pain from burning and trigger points in my back. In the > > past day or two, I've also noticed some vibrating in my left arm. > > It perplexes me that some symptoms could get better and others > > worse (or at least more active).> >> > I am using a machine and CS among other things and only now just > > hitting therapeutic levels after a long ramp-up. So I don't know if > > the machine is flushing things out which is causing more noticeable > > neurological symptoms.> >> > Looking for any words of wisdom/experience out there.> >> > Thanks,> >> > deb> >> >> >>

[Guest guest]

Hi , I'm sorry to hear how you're suffering. I don't have that symptoms but I can imagine it makes you want to climb out of your skin.

I wonder if the coil machine is causing some cysts to hatch in your nervous system, so that while you improve you have old symptoms come active as the bugs make their last stand. Just a though...I really have no idea, but I do notice the return of some of my symptoms like bad nerve related back pain when I take cyst busters, etc...

Thane

To: Lyme_and_Rife Sent: Wed, January 13, 2010 11:44:06 PMSubject: Re: Re: some symptoms better, others worse, burning nerve pain

I don't know if this is the same thing, but I have horrible paresthesia (sp?). It feel like all my nerve endings are firing off. Sort of a pins and needles sensation, but different. Tingling, burning, driving me crazy. The worst is my face, but it is all over. 36 months ago I started on Armour thyroid and 30mg of cortisol (before I knew I had Lyme). My pain decreased by 80%, the tingling completely went away, but brain fog and energy were horrible - but a bit better. This was within two weeks.1 year ago, I switched from Armour to all T3 and felt a bit better. Then last fall the paresthesia returned. I've not been able to figure it. It does coincide with my timing of when I began coiling for Lyme. I was trying to figure out if it's being caused by a severe die off and lots of neurotoxins released or if it's unrelated. I'm not sure yet. (herx, low T4, worse damage?)I'm not

coiling right now, but doing an intense MMS1/2 protocol to try and kill the co-infections. I will go back to coiling for Lyme on the 25th.Some days, right now, are severe tingling, some not so bad????????? ?

On Wed, Jan 13, 2010 at 8:44 PM, Tammy Hotmail <mstammythotmail (DOT) com> wrote:

Hi,

Something just caught my eye.. "Burning Nerve Pain"

My hubby and I both get a feeling of burning skin all over our body's and at the same

time feel like we have the chills and it gets so icky that it makes us nauseous.

The doctor says its Lyme, but I haven't seen anyone else say much about it before??

Does anyone else experience this??

Thanks,

Tammy <><

From: Deb57

Sent: Wednesday, January 13, 2010 9:01 PM

To: Lyme_and_Rife@ yahoogroups. com

Subject: Re: some symptoms better, others worse

Thanks Lena,After reading some of the posts today, I wonder if perhaps some of these symptoms are due to ammonia toxicity.I also read somewhere that B12 can help the burning/nerve pain. Does anyone know about this?Thanks,deb> > > Hi,> >> > Like everyone on these groups, I am combining a number of > >

supplements and therapies. I have been encouraged that my brain fog > > and fatigue appear to have lessened and I've seen an improvement in > > my vision problems. On the other hand, I have experienced an > > increase in pain from burning and trigger points in my back. In the > > past day or two, I've also noticed some vibrating in my left arm. > > It perplexes me that some symptoms could get better and others > > worse (or at least more active).> >> > I am using a machine and CS among other things and only now just > > hitting therapeutic levels after a long ramp-up. So I don't know if > > the machine is flushing things out which is causing more noticeable > > neurological symptoms.> >> > Looking for any words of wisdom/experience out there.> >> > Thanks,> >> > deb> >>

>> >>

[Guest guest]

I get icy,hot,cold,burning, nerve pain that feels very deep. Not skin. It gets especially bad on cold mornings. Its horrible. Joyce

Hi,

Something just caught my eye.. "Burning Nerve Pain"

My hubby and I both get a feeling of burning skin all over our body's and at the same

time feel like we have the chills and it gets so icky that it makes us nauseous.

The doctor says its Lyme, but I haven't seen anyone else say much about it before??

Does anyone else experience this??

Thanks,

Tammy <><

From: Deb57

Sent: Wednesday, January 13, 2010 9:01 PM

To: Lyme_and_Rife@ yahoogroups. com

Subject: Re: some symptoms better, others worse

Thanks Lena,After reading some of the posts today, I wonder if perhaps some of these symptoms are due to ammonia toxicity.I also read somewhere that B12 can help the burning/nerve pain. Does anyone know about this?Thanks,deb> > > Hi,> >> > Like everyone on these groups, I am combining a number of > > supplements and therapies. I have been encouraged that my brain fog > > and fatigue appear to have lessened and I've seen an improvement in > > my vision problems. On the other hand, I have experienced an > > increase in pain from burning and trigger points in my back. In the > > past day or two, I've also noticed some vibrating in my left arm. > > It perplexes me that some symptoms could get better and others > > worse (or at least more active).> >> > I am using a machine and CS among other things and only now just > > hitting therapeutic levels after a long ramp-up. So I don't know if > > the machine is flushing things out which is causing more noticeable > > neurological symptoms.> >> > Looking for any words of wisdom/experience out there.> >> > Thanks,> >> > deb> >> >> >>

[Guest guest]

Thane,

You wrote below about cyst busters. What do you use? I bought grapefruit seed

extract but then someone sent an article around not long ago about how GSE has

no antibacterial activity and it's the preservatives in it that are behind this

highly touted claim. I also had an Rx for Flagyl as part of a short-term

Babesia protocol but used it up. Curious if there is anything else that can be

used.

deb

> >> >

> >> > > Hi,

> >> > >

> >> > > Like everyone on these groups, I am combining a number of

> >> > > supplements and therapies. I have been encouraged that my brain fog

> >> > > and fatigue appear to have lessened and I've seen an improvement in

> >> > > my vision problems. On the other hand, I have experienced an

> >> > > increase in pain from burning and trigger points in my back. In the

> >> > > past day or two, I've also noticed some vibrating in my left arm.

> >> > > It perplexes me that some symptoms could get better and others

> >> > > worse (or at least more active).

> >> > >

> >> > > I am using a machine and CS among other things and only now just

> >> > > hitting therapeutic levels after a long ramp-up. So I don't know if

> >> > > the machine is flushing things out which is causing more noticeable

> >> > > neurological symptoms.

> >> > >

> >> > > Looking for any words of wisdom/experience out there.

> >> > >

> >> > > Thanks,

> >> > >

> >> > > deb

> >> > >

> >> > >

> >> > >

> >> >

> >>

> >>

> >

> >

> >

>

[Guest guest]

Deb, I've used all the common enzymes for cyst busting but the one that worked really well for me was Lumbrokinase. I can tell when it hatches open the cysts because i feel terrible, like a whole new colony of bugs just went nuts inside my brain. Cheryl had mentioned about the GSE that even if its the preservative in it that is responsible for busting cysts...so be it. It seems to work and is probably no worse than Flagyl or another abx. I tend to agree with that sort of thinking. I bought some but haven't used it yet.

Thane

To: Lyme_and_Rife Sent: Fri, January 15, 2010 7:12:48 AMSubject: Re: some symptoms better, others worse, burning nerve pain

Thane,You wrote below about cyst busters. What do you use? I bought grapefruit seed extract but then someone sent an article around not long ago about how GSE has no antibacterial activity and it's the preservatives in it that are behind this highly touted claim. I also had an Rx for Flagyl as part of a short-term Babesia protocol but used it up. Curious if there is anything else that can be used.deb> >> >> >> > > Hi,> >> > >> >> > > Like everyone on these groups, I am combining a number of> >> > > supplements and therapies. I have been encouraged that my brain fog> >> > > and fatigue appear to have lessened and I've seen an improvement in> >> > > my vision problems. On the other hand, I have experienced an> >> > > increase in pain from burning and trigger points in my back. In the> >> > > past day or two, I've also noticed some

vibrating in my left arm.> >> > > It perplexes me that some symptoms could get better and others> >> > > worse (or at least more active).> >> > >> >> > > I am using a machine and CS among other things and only now just> >> > > hitting therapeutic levels after a long ramp-up. So I don't know if> >> > > the machine is flushing things out which is causing more noticeable> >> > > neurological symptoms.> >> > >> >> > > Looking for any words of wisdom/experience out there.> >> > >> >> > > Thanks,> >> > >> >> > > deb> >> > >> >> > >> >> > >> >> >> >>> >>> >> > >

>>

[Guest guest]

Dr Jernigan thinks Bolouke works really well

Steel

h

c

To: Lyme_and_Rife Sent: Fri, January 15, 2010 8:22:54 AMSubject: Re: Re: some symptoms better, others worse, burning nerve pain

Deb, I've used all the common enzymes for cyst busting but the one that worked really well for me was Lumbrokinase. I can tell when it hatches open the cysts because i feel terrible, like a whole new colony of bugs just went nuts inside my brain. Cheryl had mentioned about the GSE that even if its the preservative in it that is responsible for busting cysts...so be it. It seems to work and is probably no worse than Flagyl or another abx. I tend to agree with that sort of thinking. I bought some but haven't used it yet.

Thane

From: Deb57 <dssincereco (DOT) com>To: Lyme_and_Rife@ yahoogroups. comSent: Fri, January 15, 2010 7:12:48 AMSubject: Re: some symptoms better, others worse, burning nerve pain

Thane,You wrote below about cyst busters. What do you use? I bought grapefruit seed extract but then someone sent an article around not long ago about how GSE has no antibacterial activity and it's the preservatives in it that are behind this highly touted claim. I also had an Rx for Flagyl as part of a short-term Babesia protocol but used it up. Curious if there is anything else that can be used.deb> >> >> >> > > Hi,> >> > >> >> > > Like everyone on these groups, I am combining a number of> >> > > supplements and therapies. I have been encouraged that my brain fog> >> > > and fatigue appear to have lessened and I've seen an improvement in> >> > > my vision problems. On the other hand, I have experienced an> >> > > increase in pain from burning and trigger points in my back. In the> >> > > past day or two, I've also noticed some

vibrating in my left arm.> >> > > It perplexes me that some symptoms could get better and others> >> > > worse (or at least more active).> >> > >> >> > > I am using a machine and CS among other things and only now just> >> > > hitting therapeutic levels after a long ramp-up. So I don't know if> >> > > the machine is flushing things out which is causing more noticeable> >> > > neurological symptoms.> >> > >> >> > > Looking for any words of wisdom/experience out there.> >> > >> >> > > Thanks,> >> > >> >> > > deb> >> > >> >> > >> >> > >> >> >> >>> >>> >> > >

>>