Tony, Penny - various

[Guest guest]

Tony, you are overlooking some raw facts

1) alot of people are cured by ILADS treatment

2) injection of Bb into macaques produces the same rash that heralded

the illnesses of many humans. It also causes them to produce the same

antibodies some infected humans have. Therefore...

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstra\

ct & list_uids=7824109

But anyways, my main reason for writing is to ask if you and Penny

feel like writing up any highly detailed reports on observations

related to infection by common opportunistic bacteria. Tony, I know

youre not a big fan of pubmed and all that - but surely you agree that

people interpret data differently and make mistakes and have

incompelte knowledge, and that therefore raw observations need to be

publicly presented instead of just observers' impressions.

Do you have any data from your treatment that indicate the pathogenic

importance of your staph & pseudomonads, and that your culturing and

microscopy were significantly useful on an ongoing basis to keep the

treatments optimised? How do we know you arent just responsive to

pretty much every abx, as Barb was?

No matter what data you may have on yourself it still doesnt rule out

a role for luck in your recovery. Look at Barb, shes as well as you,

and doubtless willing to fly to Australia to prove it by whupping you

at pinball, badminton, and the 100m freestyle. And numerous others are

well using various treatments. For which reason, detailed data on

others are also needed for this discussion. Theres plenty of empirical

facts out there about people recovering and other people failing on

the same treatment.

Maybe youve presented formal data before, but if so its been a while

so why not repost. If you dont have numbers it would still be

beneficial to write out everything you can remember in great detail,

including all observations you can think of that may not fit your

interpretation.

Penny, I'd love to dig into your knowledge regarding people who got

well after tonsilectomy, debridement, gentamycin bead implantation,

and the like. I would definitely study closely if you have the time

sometime to write up in detail the histories of people who had these

things sone with success, and also the histories of anyone you know of

for whom it *didn* work.

I know alot of y'alls knowledge maybe cant be fully formalized and

completed because it comes from past correspondance etc with patients,

but even if its limitedly-formalizable I think it would be very

valuble to do as best as can be done.