Re: RE: I've been thinking..

[Guest guest]

Jim,xoxoxo

 

Actually ,You forgot to mention there is no such thing a chronic Lyme.... :-)I do agree with you if CFIDS/FIBRO is one of the " accepted " illnesses, I always tell others Lyme may be a problem, was a few years ago... I won my case 18 years ago with no dx of any illness!  Only symptoms that kept me from working.. So I am not up to date on what the accepted illnesses are... Back then my attorney begged me to get a dx of depression as he said everyone gets approved... I said I don't have depression, he said don't worry, our doctor will give you a depression dx... I said I didn't want to lie... :-)  Gosh, I was so naive back then, today I would grab any dx my attorney felt would help me win after hearing the problems so many others have... I think I was very lucky with my case back then, refusing to accept any other dx, went with my symptoms only, refused to lie and won.. I remember though my attorney was not pleased with my decision, but I won and he got his cut anyway...  I hear of so many who didn't have a positive outcome... 

Absolutely no offense taken, I feel many have good things to add on a number of topics... The better the info for those who need it, all the better for everyone.. And with SSDI, I want to see others win as I know many may not survive without it. I do appreciate you wisdom also... ;-)

Jim

Re: RE: I've been thinking..

One more thought on the SSDI .  I think it's better to apply under CFIDS/FIBRO.  Because as we all know, Lyme can be cured with two weeks of abx.  ;-)

Jim, no offense on the attorney thing.  I really appreciate your wisdom.On Thu, Jan 21, 2010 at 8:15 AM, Connie   wrote:

 

Hi Jim, Thanks for nice welcome. Well, unfortunately I have lyme and co's and so does my family. My husband and my daughter have

tested positive and my son refuses to be tested. I know he has it he has too many sx. I gave it to them and I feel terrible aboutthat. I live in KY and it's not very prevalent so I'm sure it was transmitted sexually between hubby and I. Not sure who gave it to

other though. I know that isn't a proven fact though but I 100% believe that it can be transmitted sexually. I did try to get disability. I tried for 3 years and went before 2 different judges. They both thought I was faking. The last time right

before I went in to see the judge, I had an episode where my leg wouldn't work. Couldn't believe it happened then but it did. I hadto have help getting in there to be seated. I was so embarrassed and in disbelief that of all the times for this to happen.

 He just thought it was all an act I guess. I could only wish. LOL At the time I only weighed 103 and looked very sick. I thought that

might help a little but no. I guess he thought it was part of the act. Anyway, for my own well being I just had to give up. It was sohard on me for 2 judges to tell me I was faking. That's what they want is for you to give up.

 We own a business and I am back on the payroll even though I do very little (make out schedule and some taxes). At least, this will

give me my quarters worked if I ever file again. I don't ever want to go through that again though. If I can get by without it, I won't. Yes, I so wish I had been on an alternative prior to stopping the abx. It wasn't by choice that I stopped though. My local dr moved

and I didn't have anyone to give me the shots. I have since found another great nurse practitioner willing to do it. I chose not toat this time though.

 Another long winded post. Sorry. Connie

On Tue, Jan 19, 2010 at 8:57 PM, Jim in Jax  wrote:

Well Hi Connie,

You belong if you have Lyme or are here on behalf of a loved one with Lyme, uh and of course you are breathing... :-)You don't need to own a rife machine to be here, just kick back and enjoy the group... WE are all here for each other... 

Testing positive for Lyme is like winning the Lyme lottery!  With that if you wanted,  you could get treated by the allopathics as so many will not treat without a positive Lyme test... So Congrats! So many have negative tests and

most doctors refuse to treat them for anything, not even their systems... Since you are not working, I hope you have considered or are on SSDI... Social Security Disability Insurance... 

For many Lymies, this is a lifesaver... The relapse you experienced after coming off of the abx is so very common.. It is always good to be using an

alternative protocol along with the abx, then when you stop the abx, the other protocol hopefully will keep the bacterial load down... 

Don't worry how your writing is, it is easy for me to understand... Actually, I break up my paragraphs also as itis easier for many to read... 

So now that you have made the " maiden' post, hope to hear more from you.... :-)-- Take care,JimSalt/C, EMEM, MMS ozone

Disclaimer: THERE IS NO MEDICAL ADVICE HERE!This list is the 1st Amendment in action. I am not an expert, I do share my many years of experiences and knowledge I have learned from others, both on group and privately. The things you will find here are for information and research purposes only. I am sharing information I believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider.

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Re: Re: I've been thinking... " I've been thinking " it's time that I introduce myself and tell you what I think of your group. First of all, I love this group just like it is. It's very caring and close knit and I like that a lot. I've been reading here for a while but since I don't rife I didn't know if I belonged. I was looking into it and haven't given up the possibility at a later time.

 Anyway, my name is Connie and I'm definitely not new to lyme. I've been sick since 1989 but was dx'd with CFS/FMS. In 2004 I finally found out about lyme and was tested and it was positive.

 I've been in treatment since early 2005 with abx. I've been unable to work for the most part of the 20 years. I'm much better but still not able to work unfortunately. In Sept.09 I went off my bicillin shots that I had been on for over 2 years and did OK for a couple of months then BAM!

 I don't want to make this too long so won't go into anything else other than the only thing I'm doing right now is AI. I think I read here where someone was doing it or it could have been another group. I just started it last week.

 I hope you can tolerate my broken up paragraphs, I have lots of neuro problems and have trouble reading one big paragraph so I always write like this.

 Thane, I have to commend you. You do a great job here with the group. You are a genuinely nice guy. I'm a very good judge of character. LOL 

Connie  On Tue, Jan 19, 2010 at 6:46 AM, malindabross  wrote:

Thane you are too kind!I am sorry too, if I sounded as if I was scolding.....definately not! God bless ~ Malinda

> > >> > > I've been seeing how our group has been morphing lately from one that keeps

> > personal chit chat to a minimum and focuses mostly on treating lyme to one that> > includes more personal off topic discussions and less about lyme. So I wanted> > to ask you all, What kind of group do you want? Because i'm not sure we can

> > have both.> > >> > > In a group that is mostly lyme information focused there seems to be higher> > quality information shared and new members feel less intimidated to join into

> > the discussion. And in a group where we act like old friends and feel free to> > talk about many things non lyme related we find more emotional support, which is> > just as important, but we can come across more cliche-ish, discouraging some new

> > members from joining the discussion and asking their questions. I guess I have> > always wanted our group to be a place where sick new members can find informed> > people willing to help and not have to sort through Off Topic posts that exhaust

> > their precious little energy. I'm probably not the only one who has noticed> > that we get very few new members asking questions anymore. And that to me is a> > tragedy because there are so many wonderful people here who could offer helpful

> > suggestions. And it seems its those new questions from members that spurs the> > very best lyme discussion.> > >> > > I want to reassure you that though I am the moderator of this group, it is

> > YOUR group, and its you who choose what you want from it. I am fine with it> > staying the smaller closer nit group we have now that enjoys the freedom of> > talking about a whole variety of issues if thats what you want, but just so

> > people understand that its discouraging some new members from joining the> > discussion.> > >> > > I of course still boast we've got the best group on the net! > > >

> > > Thane> > >> >> >> >> >> > Tue Jan 12, 2010 8:16 am> >> > Show Message Option> >> > " malindabross " <malindabross@ ...>

> > malindabross > > Offline > > Send Email > >>------------------------------------If your post is not about electronic devices used in the treatment of Lyme then please put an OT: in the subject line.

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