Re: (unknown)

[Guest guest]

Thanks Heidi!  I need to get this ball rolling tomorrow. Patty, mom of Isabella, 21 months old, in useless brace & deciding what to do nextTo: infantile_scoliosis Sent: Monday, June 1, 2009 4:02:34 PMSubject: Re:

(unknown)

Hi Patty,

 

Get your application in to Shriners as soon as possible, you can often apply by phone or fax. Then call or email the care coordinator. Does anyone know the name and # of the one there? would have that info.Heidi, Bexon's Mama, (23 months old, in 2nd cast from Salt Lake City Shriners, currently down from 61 degrees to 29)

From: Patty Bowen <bowenpattyyahoo (DOT) com>Subject: [infantile_scoliosi s] (unknown)To: infantile_scoliosis @yahoogroups. comDate: Monday, June 1, 2009, 11:37 AM

I am looking into both Erie Shriners (preferred) & Rochester and wanted to know how each place handles the casting. Is it a one day process or is it inpatient? Should my first step with Erie be to call the care coordinator? Should I fill out an application or call? Any and all help is appreciated.  

Thanks,

 Patty, mom of Isabella, 21 months old, in useless brace & deciding what to do next

[Guest guest]

Thanks Jill! The insurance issue has pretty much sealed it for me to go to Erie. I just don't know if I can get her ortho doctor to call since his recommendation is Rochester. Yes, I need the number. Patty, mom of Isabella, 21 months old, in useless brace & deciding what to do nextTo: infantile_scoliosis Sent: Monday, June 1, 2009 4:03:46 PMSubject: Re: (unknown)

Yes, your first step at Shriners would be to call the care coordinator.  They will walk you through it and tell you what you need to send (xrays, mri report etc.)  Then the coordinator will let you know what the next step is.  They are great there- so kind, plus you don't have to deal with any insurance hassles.  Do you need the number?

Jill

From: Patty Bowen <bowenpattyyahoo (DOT) com>Subject: [infantile_scoliosi s] (unknown)To: infantile_scoliosis @yahoogroups. comDate: Monday, June 1, 2009, 2:37 PM

I am looking into both Erie Shriners (preferred) & Rochester and wanted to know how each place handles the casting. Is it a one day process or is it inpatient? Should my first step with Erie be to call the care coordinator? Should I fill out an application or call? Any and all help is appreciated.  

Thanks,

 Patty, mom of Isabella, 21 months old, in useless brace & deciding what to do next

[Guest guest]

Hi Patty,

Go to 'visit your groups" , it is to the rightside of this message (if you are in Yahoo) and on the CAST website on the left hand corner is a category "database", it is under there as doctors trained in early intervention. Here is the linkhttp://health.groups.yahoo.com/group/infantile_scoliosis/database?method=reportRows & tbl=4

Hope this helps,

Liz

Subject: (unknown)To: infantile_scoliosis Date: Wednesday, June 3, 2009, 1:17 PM

I don't know if I'm blind or not but where do I find the database that lists the doctors trained in Mehta casting?

Patty, mom of Isabella, 21 months old, in useless brace & deciding what to do next

[Guest guest]

Thanks so much Liz! Patty, mom of Isabella, 21 months old, in useless brace & deciding what to do nextTo: infantile_scoliosis Sent: Wednesday, June 3, 2009 4:33:38 PMSubject: Re:

(unknown)

Hi Patty,

Go to 'visit your groups" , it is to the rightside of this message (if you are in Yahoo) and on the CAST website on the left hand corner is a category "database", it is under there as doctors trained in early intervention. Here is the linkhttp://health. groups.yahoo. com/group/ infantile_ scoliosis/ database? method=reportRow s & tbl=4

 

Hope this helps,

Liz

From: Patty Bowen <bowenpattyyahoo (DOT) com>Subject: [infantile_scoliosi s] (unknown)To: infantile_scoliosis @yahoogroups. comDate: Wednesday, June 3, 2009, 1:17 PM

I don't know if I'm blind or not but where do I find the database that lists the doctors trained in Mehta casting?

 Patty, mom of Isabella, 21 months old, in useless brace & deciding what to do next

[Guest guest]

Thanks Barb! Patty, mom of Isabella, 21 months old, in useless brace & deciding what to do nextTo: infantile_scoliosis Sent: Wednesday, June 3, 2009 8:32:34 PMSubject: (unknown)

Patty,

To the left of your screen you should see a field labeled "Database". If you click on it, it will populate a new screen and one of the links will be "Doctors trained in early intervention" . If you click on this link it will bring up the page of doctors.

Barb

mom to Evan (7 casts, currently in a brace)

>

> I don't know if I'm blind or not but where do I find the database that lists the doctors trained in Mehta casting?

>

> Patty, mom of Isabella, 21 months old, in useless brace & deciding what to do next

>

[Guest guest]

Excellent decision Patty, you will be in great hands. From all I have heard Rochester is a top facility.Best of luckNickHeidi, Bexon's Mama, (23 months old, in 2nd cast from Salt Lake City Shriners, currently down from 61 degrees to 29)Subject: (unknown)To: infantile_scoliosis Date: Saturday, June 6, 2009, 7:33 AM

I just wanted to let everyone know that with 's help (on whether Isabella needed an over the shoulder cast or not) we have decided to make the longer trip to Rochester for her care since Erie doesn't do over the shoulder casting.  It only took leaving 2 messages to get a return call and we are set up to see the doctor on July 1 and July 2nd she will be casted. This, of course, is pending insurance approval.  Patty, mom of Isabella, 21 months old, in useless brace & deciding what to do next

[Guest guest]

Best of luck to you and Isabella!~KristaJack's Mom, Jack is 22 months old in his 3rd cast from Shriners Hospital in Salt Lake City, Utah

Subject: (unknown)To: infantile_scoliosis Date: Saturday, June 6, 2009, 2:33 PM

I just wanted to let everyone know that with 's help (on whether Isabella needed an over the shoulder cast or not) we have decided to make the longer trip to Rochester for her care since Erie doesn't do over the shoulder casting. It only took leaving 2 messages to get a return call and we are set up to see the doctor on July 1 and July 2nd she will be casted. This, of course, is pending insurance approval.

Patty, mom of Isabella, 21 months old, in useless brace & deciding what to do next

[Guest guest]

Thanks so much Krista! Patty, mom of Isabella, 21 months old, in useless brace & deciding what to do nextTo: infantile_scoliosis Sent: Saturday, June 6, 2009 7:19:23 PMSubject: Re: (unknown)

Best of luck to you and Isabella!~KristaJack's Mom, Jack is 22 months old in his 3rd cast from Shriners Hospital in Salt Lake City, Utah

From: Patty Bowen <bowenpattyyahoo (DOT) com>Subject: [infantile_scoliosi s] (unknown)To: infantile_scoliosis @yahoogroups. comDate: Saturday, June 6, 2009, 2:33 PM

I just wanted to let everyone know that with 's help (on whether Isabella needed an over the shoulder cast or not) we have decided to make the longer trip to Rochester for her care since Erie doesn't do over the shoulder casting.  It only took leaving 2 messages to get a return call and we are set up to see the doctor on July 1 and July 2nd she will be casted. This, of course, is pending insurance approval. 

 Patty, mom of Isabella, 21 months old, in useless brace & deciding what to do next

[Guest guest]

Hi Patty,

I'm so happy to hear that! We will miss you by a week and a half..... Our casting is being done July 13th-14th..... You will LOVE the casting techs, , and Jeff... They are amazing! We've had 7 casts done there so feel free to ask any questions..... Steph

Subject: (unknown)To: infantile_scoliosis Date: Saturday, June 6, 2009, 2:33 PM

I just wanted to let everyone know that with 's help (on whether Isabella needed an over the shoulder cast or not) we have decided to make the longer trip to Rochester for her care since Erie doesn't do over the shoulder casting. It only took leaving 2 messages to get a return call and we are set up to see the doctor on July 1 and July 2nd she will be casted. This, of course, is pending insurance approval.

Patty, mom of Isabella, 21 months old, in useless brace & deciding what to do next

[Guest guest]

Hi Krista,First off I have to give you a hard time about the subject.....unknown???? Hello, the subject should read: Jack is at ZERO!!!!!!!!!!!!!!I am so happy for you and little Jack!!!!!!!What GREAT news for your family!! Thanks so much for updating us. Enjoy your weekend!!!TashaMommy of 4 year old twin boys- and Fort Worth, Texas is currently in a brace at night.Casting 14 months.You can read 's story at....http://www.infantilescoliosis.org/stories.html--- Subject: (unknown)To:

infantile_scoliosis Date: Saturday, June 20, 2009, 5:08 PM

Hi All,

I have to say that this journey brings many ups and downs....but this last trip to SLC brought up the biggest, unexpected high of all. Jack curve is now at a "zero"!!! I want to shout it from the roof tops!! I know that there are many new families on the group lately that are getting casts for the first time and are feeling sad, angry, a sense of loss...but hang in! I was in your shoes 8 months ago and EDF casting works!! Obviously there are many variables; age, the appropriate pediatric casting table, your child's flexibility, a idiopathic curve.....but when it is the right method...it does work!! Thank you , thank you, thank you!!! Thank God for Shriners and a very special MD.

OK now for the details....we got there and... thank you all for the advice that the brace process takes time...a trim here a shave there. We got to the Crystal Inn about 3.5 hrs. later. No pool...just too wiped out and needed to get dinner and the routine going. Jack did great with the brace and continues to do very well. We were told by the Dr. 20 hrs/day and that is what we are sticking to.. (I still don't know where I heard 16 hrs)?? Jack wore the brace all night and then we went back to the hospital for the "brace check"...this is when the miracle starts to happen. The prosthetist (..he's the best) said that I had the brace on correctly... which really is a lot harder than it looks...still stresses me out...but I am hanging in! Then they sent us to get an xray in the brace. My husband took Jack in (because I am 5 months pregnant) and when he came out

he rolled his eyes as Jack was screaming... .it did not go well. Then the xray tech (I swear she was wearing a halo) said..."it looks really good, you have to come see this"! I walked over to the machine and saw the very best xray ever!!! I thought 12 degrees looked good, which Jack was in the the 3rd cast back in April (2months ago). I grabbed my husband and Jack and we just had a family/group hug as I bawled my eyes out!! We then walked back to the exam room. The MD (he had a halo on too) said...."Jack is measuring a zero." ** Now this Doctor is not one to sugar coat...if Jack was measuring a 2 he would say that. So when he said zero, he meant it. He looked just has thrilled/shocked as the rest of us! He said that we need to come back in 5 months to discuss weaning from the brace! Now I don't really know what that means.....he may have another brace made that he wears at

night, is what I am thinking, that is what (prothetist) mentioned. That brings us to November and I will have a 1 month old, but we are going to make it work.

Sorry this is so long, just wanted to let the group know that there is light at the end of the long and winding tunnel!! I have been trying to get caught up on the posts. I hope that all is well with all of your children. ~KristaJack's Mom, Jack is 23 months old, in his 1st brace from Shriners Hospital in Salt Lake City, Utah

[Guest guest]

KRISTA AND FAMILY!! My eyes are filling with tears, I'm so happy for you!Heidi, Bexon's Mama, (23 months old, in 2nd cast from Salt Lake City Shriners, currently down from 61 degrees to 29)

Subject: (unknown)To: infantile_scoliosis Date: Saturday, June 20, 2009, 3:08 PM

Hi All,

I have to say that this journey brings many ups and downs....but this last trip to SLC brought up the biggest, unexpected high of all. Jack curve is now at a "zero"!!! I want to shout it from the roof tops!! I know that there are many new families on the group lately that are getting casts for the first time and are feeling sad, angry, a sense of loss...but hang in! I was in your shoes 8 months ago and EDF casting works!! Obviously there are many variables; age, the appropriate pediatric casting table, your child's flexibility, a idiopathic curve.....but when it is the right method...it does work!! Thank you , thank you, thank you!!! Thank God for Shriners and a very special MD.

OK now for the details....we got there and... thank you all for the advice that the brace process takes time...a trim here a shave there. We got to the Crystal Inn about 3.5 hrs. later. No pool...just too wiped out and needed to get dinner and the routine going. Jack did great with the brace and continues to do very well. We were told by the Dr. 20 hrs/day and that is what we are sticking to.. (I still don't know where I heard 16 hrs)?? Jack wore the brace all night and then we went back to the hospital for the "brace check"...this is when the miracle starts to happen. The prosthetist (..he's the best) said that I had the brace on correctly... which really is a lot harder than it looks...still stresses me out...but I am hanging in! Then they sent us to get an xray in the brace. My husband took Jack in (because I am 5 months pregnant) and when he came out

he rolled his eyes as Jack was screaming... .it did not go well. Then the xray tech (I swear she was wearing a halo) said..."it looks really good, you have to come see this"! I walked over to the machine and saw the very best xray ever!!! I thought 12 degrees looked good, which Jack was in the the 3rd cast back in April (2months ago). I grabbed my husband and Jack and we just had a family/group hug as I bawled my eyes out!! We then walked back to the exam room. The MD (he had a halo on too) said...."Jack is measuring a zero." ** Now this Doctor is not one to sugar coat...if Jack was measuring a 2 he would say that. So when he said zero, he meant it. He looked just has thrilled/shocked as the rest of us! He said that we need to come back in 5 months to discuss weaning from the brace! Now I don't really know what that means.....he may have another brace made that he wears at

night, is what I am thinking, that is what (prothetist) mentioned. That brings us to November and I will have a 1 month old, but we are going to make it work.

Sorry this is so long, just wanted to let the group know that there is light at the end of the long and winding tunnel!! I have been trying to get caught up on the posts. I hope that all is well with all of your children. ~KristaJack's Mom, Jack is 23 months old, in his 1st brace from Shriners Hospital in Salt Lake City, Utah

[Guest guest]

Krista,I am so happy for you! Congratulations on the success of the casting. I so needed to hear something like this with Isabella's first casting appointment coming so quickly. Each day is getting harder because she is so at that stage where she loves to cuddle and just back into my legs for a little squeeze.  Patty, mom of Isabella, 22 months old, in useless brace & expecting 1st cast on July 2nd in RochesterFrom:

Krista Sloan To: infantile_scoliosis Sent: Saturday, June 20, 2009 6:08:05 PMSubject: (unknown)

Hi All,

I have to say that this journey brings many ups and downs....but this last trip to SLC brought up the biggest, unexpected high of all.  Jack curve is now at a "zero"!!!  I want to shout it from the roof tops!!  I know that there are many new families on the group lately that are getting casts for the first time and are feeling sad, angry, a sense of loss...but hang in!  I was in your shoes 8 months ago and EDF casting works!!  Obviously there are many variables; age, the appropriate pediatric casting table, your child's flexibility, a idiopathic curve.....but when it is the right method...it does work!!  Thank you , thank you, thank you!!!  Thank God for Shriners and a very special MD.

 

OK now for the details....we got there and... thank you all for the advice that the brace process takes time...a trim here a shave there.  We got to the Crystal Inn about 3.5 hrs. later.  No pool...just too wiped out and needed to get dinner and the routine going.  Jack did great with the brace and continues to do very well.  We were told by the Dr. 20 hrs/day and that is what we are sticking to.. (I still don't know where I heard 16 hrs)??  Jack wore the brace all night and then we went back to the hospital for the "brace check"...this is when the miracle starts to happen.  The prosthetist (..he's the best) said that I had the brace on correctly... which really is a lot harder than it looks...still stresses me out...but I am hanging in!  Then they sent us to get an xray in the brace.  My husband took Jack in  (because I am 5 months pregnant) and when he came out

he rolled his eyes as Jack was screaming... .it did not go well.  Then the xray tech (I swear she was wearing a halo) said..."it looks really good, you have to come see this"!  I walked over to the machine and saw the very best xray ever!!!  I thought 12 degrees looked good, which Jack was in the the 3rd cast back in April (2months ago).  I grabbed my husband and Jack and we just had a family/group hug as I bawled my eyes out!!  We then walked back to the exam room.  The MD (he had a halo on too) said...."Jack is measuring a zero."   ** Now this Doctor is not one to sugar coat...if Jack was measuring a 2 he would say that.  So when he said  zero, he meant it.  He looked just has thrilled/shocked as the rest of us!  He said that we need to come back in 5 months to discuss weaning from the brace!  Now I don't really know what that means.....he may have another brace made that he wears at

night, is what I am thinking, that is what (prothetist) mentioned.  That brings us to November and I will have a 1 month old, but we are going to make it work. 

 

Sorry this is so long, just wanted to let the group know that there is light at the end of the long and winding tunnel!!  I have been trying to get caught up on the posts.  I hope that all is well with all of your children. ~KristaJack's Mom, Jack is 23 months old, in his 1st brace from Shriners Hospital in Salt Lake City, Utah

[Guest guest]

FANTASTIC! CONGRATS!~Noah 3 1/2 years old9 months of casting in SLCCurrently on month 15 of bracing

To: infantile_scoliosis From: kmsloan18@...Date: Sat, 20 Jun 2009 15:08:05 -0700Subject: (unknown)

Hi All,

I have to say that this journey brings many ups and downs....but this last trip to SLC brought up the biggest, unexpected high of all. Jack curve is now at a "zero"!!! I want to shout it from the roof tops!! I know that there are many new families on the group lately that are getting casts for the first time and are feeling sad, angry, a sense of loss...but hang in! I was in your shoes 8 months ago and EDF casting works!! Obviously there are many variables; age, the appropriate pediatric casting table, your child's flexibility, a idiopathic curve.....but when it is the right method...it does work!! Thank you , thank you, thank you!!! Thank God for Shriners and a very special MD.

OK now for the details....we got there and... thank you all for the advice that the brace process takes time...a trim here a shave there. We got to the Crystal Inn about 3.5 hrs. later. No pool...just too wiped out and needed to get dinner and the routine going. Jack did great with the brace and continues to do very well. We were told by the Dr. 20 hrs/day and that is what we are sticking to.. (I still don't know where I heard 16 hrs)?? Jack wore the brace all night and then we went back to the hospital for the "brace check"...this is when the miracle starts to happen. The prosthetist (..he's the best) said that I had the brace on correctly...which really is a lot harder than it looks...still stresses me out...but I am hanging in! Then they sent us to get an xray in the brace. My husband took Jack in (because I am 5 months pregnant) and when he came out he rolled his eyes as Jack was screaming....it did not go well. Then the xray tech (I swear she was wearing a halo) said..."it looks really good, you have to come see this"! I walked over to the machine and saw the very best xray ever!!! I thought 12 degrees looked good, which Jack was in the the 3rd cast back in April (2months ago). I grabbed my husband and Jack and we just had a family/group hug as I bawled my eyes out!! We then walked back to the exam room. The MD (he had a halo on too) said...."Jack is measuring a zero." ** Now this Doctor is not one to sugar coat...if Jack was measuring a 2 he would say that. So when he said zero, he meant it. He looked just has thrilled/shocked as the rest of us! He said that we need to come back in 5 months to discuss weaning from the brace! Now I don't really know what that means.....he may have another brace made that he wears at night, is what I am thinking, that is what (prothetist) mentioned. That brings us to November and I will have a 1 month old, but we are going to make it work.

Sorry this is so long, just wanted to let the group know that there is light at the end of the long and winding tunnel!! I have been trying to get caught up on the posts. I hope that all is well with all of your children. ~KristaJack's Mom, Jack is 23 months old, in his 1st brace from Shriners Hospital in Salt Lake City, Utah

found her dream laptop. Find the PC that’s right for you.

[Guest guest]

Patty,Sorry to hear her curve had progressed, but how wonderful to hear that she is already back to normal. SO happy for you........that takes a load off I know.TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.html--- Subject: (unknown)To: infantile_scoliosis Date: Tuesday, July 7, 2009, 7:57 PM

Well, I just wanted to let everyone know that we got back on Friday 7/3 from Isabella's first casting. We got some bad news while there... she has gone from a 55 degree curve to 64 since her last xray in late May. Needless to say, I was freaking out a little. Our experience was great! Everyone we came in contact with was so nice and there wasn't much waiting at all. Her casting went smoothly and I'm happy to say that she was completely back to normal the day after her casting. I thought the cast would give me a break with her climbing on the furniture but no such luck, she was back to climbing by Sunday. I did know that diapering was an issue but I didn't realize how much until they told me to get her dressed to leave and I didn't know what to do. Thankfully, I had Steph's phone #

with me and she told me what to do and everything was better! Thanks so much Steph!!!!! Patty, mom of Isabella, 22 months old, in 1st cast (Rochester)

[Guest guest]

Patty,

So glad to hear you had a good experience and that Isabella bounced back so well They are such little troopers, aren't they? People are always amazed that the cast doesn't slow Bryce down a bit

Take care - and don't worry too much about the numbers.

Jen

Pickerington, OhioMommy to Bryce, 1 year old, 48 degree curveIn cast # 2 - casting at Rochester

To: infantile_scoliosis Sent: Tuesday, July 7, 2009 8:57:51 PMSubject: (unknown)

Well, I just wanted to let everyone know that we got back on Friday 7/3 from Isabella's first casting. We got some bad news while there... she has gone from a 55 degree curve to 64 since her last xray in late May. Needless to say, I was freaking out a little. Our experience was great! Everyone we came in contact with was so nice and there wasn't much waiting at all. Her casting went smoothly and I'm happy to say that she was completely back to normal the day after her casting. I thought the cast would give me a break with her climbing on the furniture but no such luck, she was back to climbing by Sunday. I did know that diapering was an issue but I didn't realize how much until they told me to get her dressed to leave and I didn't know what to do. Thankfully, I had Steph's phone # with me and she told me what to do and everything was

better! Thanks so much Steph!!!!!

Patty, mom of Isabella, 22 months old, in 1st cast (Rochester)

[Guest guest]

Patty,

It sounds like the cast has not slowed down Isabella at all! You are a great mom

to have found the best treatment for her.

Barb

Mom to Evan 3yrs old (7 casts, currently in a brace - Rochester, NY)

>

> Patty,

>

> So glad to hear you had a good experience and that Isabella bounced back so

well   They are such little troopers, aren't they?  People are always amazed

that the cast doesn't slow Bryce down a bit

>

> Take care - and don't worry too much about the numbers.

>  

>  

> Jen

>

>

> Pickerington, Ohio

> Mommy to Bryce, 1 year old, 48 degree curve

> In cast # 2 - casting at Rochester

>

>

>

>

> ________________________________

>

> To: infantile_scoliosis

> Sent: Tuesday, July 7, 2009 8:57:51 PM

> Subject: (unknown)

>

>

>

>

>

> Well, I just wanted to let everyone know that we got back on Friday 7/3 from

Isabella's first casting.   We got some bad news while there... she has gone

from a 55 degree curve to 64 since her last xray in late May.  Needless to say,

I was freaking out a little.  Our experience was great!  Everyone we came in

contact with was so nice and there wasn't much waiting at all. Her casting went

smoothly and I'm happy to say that she was completely back to normal the day

after her casting. I thought the cast would give me a break with her climbing on

the furniture but no such luck, she was back to climbing by Sunday. I did know

that diapering was an issue but I didn't realize how much until they told me to

get her dressed to leave and I didn't know what to do.  Thankfully, I had

Steph's phone # with me and she told me what to do and everything was better!

 Thanks so much Steph!!!!!

>

> Patty, mom of Isabella, 22 months old, in 1st cast (Rochester)

>

[Guest guest]

Glad to hear things are going so smoothly!- Noelle's mommy, 2 1/2 years old and in 7th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: (unknown)To: infantile_scoliosis Date: Wednesday, July 8, 2009, 12:57 AM

Well, I just wanted to let everyone know that we got back on Friday 7/3 from Isabella's first casting. We got some bad news while there... she has gone from a 55 degree curve to 64 since her last xray in late May. Needless to say, I was freaking out a little. Our experience was great! Everyone we came in contact with was so nice and there wasn't much waiting at all. Her casting went smoothly and I'm happy to say that she was completely back to normal the day after her casting. I thought the cast would give me a break with her climbing on the furniture but no such luck, she was back to climbing by Sunday. I did know that diapering was an issue but I didn't realize how much until they told me to get her dressed to leave and I didn't know what to do. Thankfully, I had Steph's phone # with me and she told me what to do and everything was

better! Thanks so much Steph!!!!!

Patty, mom of Isabella, 22 months old, in 1st cast (Rochester)

[Guest guest]

Jen,Yes, I agree that everyone is amazed because my husband's family saw her yesterday and couldn't believe how she was running around.  I will try not to get hung up on the numbers.  They also told me that while I was at the casting. Patty, mom of Isabella, 22 months old, in 1st cast (Rochester)To:

infantile_scoliosis Sent: Tuesday, July 7, 2009 9:28:22 PMSubject: Re: (unknown)

Patty,

 

So glad to hear you had a good experience and that Isabella bounced back so well   They are such little troopers, aren't they?  People are always amazed that the cast doesn't slow Bryce down a bit

 

Take care - and don't worry too much about the numbers. 

 

Jen

Pickerington, OhioMommy to Bryce, 1 year old, 48 degree curveIn cast # 2 - casting at Rochester

From: Patty Bowen <bowenpattyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, July 7, 2009 8:57:51 PMSubject: [infantile_scoliosi s] (unknown)

Well, I just wanted to let everyone know that we got back on Friday 7/3 from Isabella's first casting.   We got some bad news while there... she has gone from a 55 degree curve to 64 since her last xray in late May.  Needless to say, I was freaking out a little.  Our experience was great!  Everyone we came in contact with was so nice and there wasn't much waiting at all. Her casting went smoothly and I'm happy to say that she was completely back to normal the day after her casting. I thought the cast would give me a break with her climbing on the furniture but no such luck, she was back to climbing by Sunday. I did know that diapering was an issue but I didn't realize how much until they told me to get her dressed to leave and I didn't know what to do.  Thankfully, I had Steph's phone # with me and she told me what to do and everything was

better!  Thanks so much Steph!!!!!

 Patty, mom of Isabella, 22 months old, in 1st cast (Rochester)

[Guest guest]

Patty,I know it is hard not to focus on the numbers. It took me a good 2 years to focus more on 's overall body appearance rather than that "number". I am blessed to have a doctor that has taught me that. He and I went many rounds on numbers. He is not big on the number and I always was. He preferred to look at 's body.Its hard in the beginning, but you will get there.TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.html--- Subject: Re: (unknown)To: infantile_scoliosis Date: Wednesday, July 8, 2009, 8:41 AM

Jen,Yes, I agree that everyone is amazed because my husband's family saw her yesterday and couldn't believe how she was running around. I will try not to get hung up on the numbers. They also told me that while I was at the casting. Patty, mom of Isabella, 22 months old, in 1st cast (Rochester)From: Jen Dupler <jen_dupleryahoo (DOT) com>To:

infantile_scoliosis @yahoogroups. comSent: Tuesday, July 7, 2009 9:28:22 PMSubject: Re: [infantile_scoliosi s] (unknown)

Patty,

So glad to hear you had a good experience and that Isabella bounced back so well They are such little troopers, aren't they? People are always amazed that the cast doesn't slow Bryce down a bit

Take care - and don't worry too much about the numbers.

Jen

Pickerington, OhioMommy to Bryce, 1 year old, 48 degree curveIn cast # 2 - casting at Rochester

From: Patty Bowen <bowenpattyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, July 7, 2009 8:57:51 PMSubject: [infantile_scoliosi s] (unknown)

Well, I just wanted to let everyone know that we got back on Friday 7/3 from Isabella's first casting. We got some bad news while there... she has gone from a 55 degree curve to 64 since her last xray in late May. Needless to say, I was freaking out a little. Our experience was great! Everyone we came in contact with was so nice and there wasn't much waiting at all. Her casting went smoothly and I'm happy to say that she was completely back to normal the day after her casting. I thought the cast would give me a break with her climbing on the furniture but no such luck, she was back to climbing by Sunday. I did know that diapering was an issue but I didn't realize how much until they told me to get her dressed to leave and I didn't know what to do. Thankfully, I had Steph's phone # with me and she told me what to do and everything was

better! Thanks so much Steph!!!!!

Patty, mom of Isabella, 22 months old, in 1st cast (Rochester)

[Guest guest]

Tasha,Thanks!  I am going to try and retrain my brain to just take it one step at a time and while I'm at it, to be more optimistic! Patty, mom of Isabella, 22 months old, in 1st cast (Rochester)To: infantile_scoliosis Sent: Wednesday, July 8, 2009 10:05:40

AMSubject: Re: (unknown)

Patty,I know it is hard not to focus on the numbers.  It took me a good 2 years to focus more on 's overall body appearance rather than that "number".  I am blessed to have a doctor that has taught me that.  He and I went many rounds on numbers.  He is not big on the number and I always was.  He preferred to look at 's body.Its hard in the beginning, but you will get there.TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. htmlFrom: Patty Bowen <bowenpattyyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] (unknown)To: infantile_scoliosis @yahoogroups. comDate: Wednesday, July 8, 2009, 8:41 AM

Jen,Yes, I agree that everyone is amazed because my husband's family saw her yesterday and couldn't believe how she was running around.  I will try not to get hung up on the numbers.  They also told me that while I was at the casting. Patty, mom of Isabella, 22 months old, in 1st cast (Rochester)From: Jen Dupler <jen_dupleryahoo (DOT) com>To:

infantile_scoliosis @yahoogroups. comSent: Tuesday, July 7, 2009 9:28:22 PMSubject: Re: [infantile_scoliosi s] (unknown)

Patty,

 

So glad to hear you had a good experience and that Isabella bounced back so well   They are such little troopers, aren't they?  People are always amazed that the cast doesn't slow Bryce down a bit

 

Take care - and don't worry too much about the numbers. 

 

Jen

Pickerington, OhioMommy to Bryce, 1 year old, 48 degree curveIn cast # 2 - casting at Rochester

From: Patty Bowen <bowenpattyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, July 7, 2009 8:57:51 PMSubject: [infantile_scoliosi s] (unknown)

Well, I just wanted to let everyone know that we got back on Friday 7/3 from Isabella's first casting.   We got some bad news while there... she has gone from a 55 degree curve to 64 since her last xray in late May.  Needless to say, I was freaking out a little.  Our experience was great!  Everyone we came in contact with was so nice and there wasn't much waiting at all. Her casting went smoothly and I'm happy to say that she was completely back to normal the day after her casting. I thought the cast would give me a break with her climbing on the furniture but no such luck, she was back to climbing by Sunday. I did know that diapering was an issue but I didn't realize how much until they told me to get her dressed to leave and I didn't know what to do.  Thankfully, I had Steph's phone # with me and she told me what to do and everything was

better!  Thanks so much Steph!!!!!

 Patty, mom of Isabella, 22 months old, in 1st cast (Rochester)

[Guest guest]

Thats good to know about dr R.. Thanks for that Tasha...

joan

To: infantile_scoliosis Sent: Wednesday, July 8, 2009 9:05:40 AMSubject: Re: (unknown)

Patty,I know it is hard not to focus on the numbers. It took me a good 2 years to focus more on 's overall body appearance rather than that "number". I am blessed to have a doctor that has taught me that. He and I went many rounds on numbers. He is not big on the number and I always was. He preferred to look at 's body.Its hard in the beginning, but you will get there.TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html

From: Patty Bowen <bowenpattyyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] (unknown)To: infantile_scoliosis @yahoogroups. comDate: Wednesday, July 8, 2009, 8:41 AM

Jen,

Yes, I agree that everyone is amazed because my husband's family saw her yesterday and couldn't believe how she was running around. I will try not to get hung up on the numbers. They also told me that while I was at the casting.

Patty, mom of Isabella, 22 months old, in 1st cast (Rochester)

From: Jen Dupler <jen_dupleryahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, July 7, 2009 9:28:22 PMSubject: Re: [infantile_scoliosi s] (unknown)

Patty,

So glad to hear you had a good experience and that Isabella bounced back so well They are such little troopers, aren't they? People are always amazed that the cast doesn't slow Bryce down a bit

Take care - and don't worry too much about the numbers.

Jen

Pickerington, OhioMommy to Bryce, 1 year old, 48 degree curveIn cast # 2 - casting at Rochester

From: Patty Bowen <bowenpattyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, July 7, 2009 8:57:51 PMSubject: [infantile_scoliosi s] (unknown)

Well, I just wanted to let everyone know that we got back on Friday 7/3 from Isabella's first casting. We got some bad news while there... she has gone from a 55 degree curve to 64 since her last xray in late May. Needless to say, I was freaking out a little. Our experience was great! Everyone we came in contact with was so nice and there wasn't much waiting at all. Her casting went smoothly and I'm happy to say that she was completely back to normal the day after her casting. I thought the cast would give me a break with her climbing on the furniture but no such luck, she was back to climbing by Sunday. I did know that diapering was an issue but I didn't realize how much until they told me to get her dressed to leave and I didn't know what to do. Thankfully, I had Steph's phone # with me and she told me what to do and everything was

better! Thanks so much Steph!!!!!

Patty, mom of Isabella, 22 months old, in 1st cast (Rochester)