Re: General anesthetic question

[Guest guest]

Jen,

I know exactly what you mean - I no longer worry about who thinks

what but it is sad that I also no longer trust any doctors and

double check almost everything myself. When the Dr's asked me if I

wanted to go into the OR with my daughter, I am glad that I

said " yes " and changed into scrubs just to be there for a couple of

minutes while she was being put under. It was pretty much luck as I

see it. I shudder att he thought that more damage could have been

done to her nervous system with the nitrous oxide.

Thank you for sharing your story as much as it makes my blood boil

to read it. You'd think that doctors would actually read charts to

ensure that their patients are safe in their hands... Unfortunately

many don't.

I love the parents on this site. We would be nowhere without

everyone here sharing their experiences.

Ania

> > > >

> > > > Our daughter is about to have an eye exam under general

> > anesthetic

> > > > and I am wondering if there are any ASD specific

complications

> > that

> > > > other parents have found as a result of being put under a

mild

> > > > general anesthetic. Any suggestions?

> > > > Any input welcome.

> > > > Thank you, Ania

[Guest guest]

Our daughter's neurologist wants an MRI on our daughter. She said that she'll

need to be asleep. She had an MRI about 8 years ago - put to sleep - and it was

AWFUL!!!! What is the preferred way to be " put under " ? They are going to

schedule this soon. Any thoughts? Is there a better test, maybe?

Thanks,

Shari

Re: General anesthetic question

Ania,

ARRRGGGG...

I can't help thinking if they would have taken responsibility for

their mistake if anything did happen to your daughter.

Good for you for being there, staying there, standing tall and

speaking out for what you want and what you don't want.

I have had so many Dr.'s roll there eyes at me that there is too many

to count. It does not even phase me anymore and I'm too busy to

teach/convince them.

The only thing that counts is that you know what is right or wrong

for your child and you have done a lot of child specific research. So

your opinion and written wishes should be respected.

When my son went in to have his amalgams removed ( because

another " I'll do what I want because she's just a Mom " Dr. put them

in against my written request not to) Dr. Green had written a very

specific list of anesthesia they could use and the ones they could

not use. He also said that he did not want any narcotics used.

The amalgam removal went fine, the Dentist came out to speak to me,

(great guy - hates mercury)and then we went in to see Devon in post

op and he would not wake up. We called the anesthesiologist in to

check on him and in came a different anesthesiologist (2nd). The

Dentist asked where the attending anesthesiologist (1st) had gone

since he was the one who was there during the removal. To make a long

story short, the 1st anesth. (who had read the chart and all the

requests) had left to attend another patient who was having

complications in another room, so the 2nd anesth. had decided to NOT

read the chart and give him 3 different narcotics for the pain. WHAT

PAIN I asked. He only had flippin amalgams removed. Dr. Green and our

great Dentist were livid.

I can't print what I was...

It took Devon almost 1 month to detox those drugs and the regression

he went through was devastating for all of us.

So my point is, even though you think you are on top of things,

sometimes you are not.

I don't really know what the answer is to making sure your child

receives the safest care and convincing a needed Dr. that you really

do know what you are talking about but I do know if it feels wrong

then take your childs hand and get out of there.

After all, most of our kids can't speak for themselves and they rely

completely on us to speak for them and protect them from these types

of errors.

It is a big job being an " autism Mom " ... but this part of the job I

take very seriously now and no longer take for granted or trust that

charts will be read and so on.

Too bad...

Jen

> > >

> > > Our daughter is about to have an eye exam under general

> anesthetic

> > > and I am wondering if there are any ASD specific complications

> that

> > > other parents have found as a result of being put under a mild

> > > general anesthetic. Any suggestions?

> > > Any input welcome.

> > > Thank you, Ania

Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

------------------------------------------------------------------------------

[Guest guest]

Hi Shari,

Nitrous Oxide is not harmful to everyone unless your child has the

MTHFR mutation. If you are not sure about this then it is better safe

than sorry and you should be cautious.

There are so many other general anesthetics they can use... the

problem seems to sadly lie in the fact that some Dr.'s don't believe

that your concerns are valid due to their lack of education in

regards to our kids.

If I were you I would contact your DAN! and ask for a list of what

can be used for the MRI - pre and post.

Make sure though they follow through on it... talk to the

anesthesiologist and make sure he completely understands - then still

follow through.

You may want to try posting to DR. JM. I know she is off busy writing

her 3rd book, but might be able to give you some ideas.

I can look for the list that Dr. Green gave me but I would think that

that list would have been child specific...

good luck,

Jen

> > > >

> > > > Our daughter is about to have an eye exam under general

> > anesthetic

> > > > and I am wondering if there are any ASD specific

complications

> > that

> > > > other parents have found as a result of being put under a

mild

> > > > general anesthetic. Any suggestions?

> > > > Any input welcome.

> > > > Thank you, Ania

>

>

>

>

>

> Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

>

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

Jen,

Thanks so much. She's going to the geneticist Feb.10 to be checked for fatty

oxidation disorder. I'll ask him to check. Thanks so much.

Shari

Re: General anesthetic question

Hi Shari,

Nitrous Oxide is not harmful to everyone unless your child has the

MTHFR mutation. If you are not sure about this then it is better safe

than sorry and you should be cautious.

There are so many other general anesthetics they can use... the

problem seems to sadly lie in the fact that some Dr.'s don't believe

that your concerns are valid due to their lack of education in

regards to our kids.

If I were you I would contact your DAN! and ask for a list of what

can be used for the MRI - pre and post.

Make sure though they follow through on it... talk to the

anesthesiologist and make sure he completely understands - then still

follow through.

You may want to try posting to DR. JM. I know she is off busy writing

her 3rd book, but might be able to give you some ideas.

I can look for the list that Dr. Green gave me but I would think that

that list would have been child specific...

good luck,

Jen

> > > >

> > > > Our daughter is about to have an eye exam under general

> > anesthetic

> > > > and I am wondering if there are any ASD specific

complications

> > that

> > > > other parents have found as a result of being put under a

mild

> > > > general anesthetic. Any suggestions?

> > > > Any input welcome.

> > > > Thank you, Ania

>

>

>

>

>

> Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

>

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

I am a nurse anesthetist with a 5 year old boy on the spectrum. I

have been following this thread and I am sorry that some of you had a

bad experience with your anesthesiologist. Do a google search on

nitrous and B12. Nitrous depletes B 12.........our kids have a

deficiency of B12. Our children improve with the B12 protocol and

they regress after a general anesthetic. Duh!

An adult usually has a IV in place and meds are given through that for

induction. With a child who is young and has no IV, an inhalation

induction is performed using high flows of oxygen, nitrous and an

anesthetic gas. When the child is asleep an IV is placed. Nitrous

has been used as a adjunct gas for years without problems.

I agree with your assessment that the doctors don't believe that

your concerns are valid. My advice.......tell them that your child is

ALLERGIC to nitrous..... you have documentation that your child has a

B12 deficiency. Tell them that if your child gets nitrous he will

have a severe regression.

Hope this helps.

Sym

Message: 21

Date: Mon, 24 Jan 2005 16:31:47 -0000

Subject: Re: General anesthetic question

Hi Shari,

Nitrous Oxide is not harmful to everyone unless your child has the

MTHFR mutation. If you are not sure about this then it is better safe

than sorry and you should be cautious.

There are so many other general anesthetics they can use... the

problem seems to sadly lie in the fact that some Dr.'s don't believe

that your concerns are valid due to their lack of education in

regards to our kids.

If I were you I would contact your DAN! and ask for a list of what

can be used for the MRI - pre and post.

Make sure though they follow through on it... talk to the

anesthesiologist and make sure he completely understands - then still

follow through.

You may want to try posting to DR. JM. I know she is off busy writing

her 3rd book, but might be able to give you some ideas.

I can look for the list that Dr. Green gave me but I would think that

that list would have been child specific...

good luck,

Jen

[Guest guest]

Chelating kids has a file on general anesthetics worth checking out

if you have not looked there already. When had her MRI they

used a fast acting mild anesthetic that allowed her to recover

pretty quickly and she was able to drink etc within 30 minutes of

waking up. It was administered via IV and we used Emla cream on the

backs of her hands and fronts of her elbows so that putting the IV

in wouldn't be as traumatic. I am not sure what the name of it was

though. It was still pretty awful - I hate to see her be put under

a general anesthetic.

Maybe Dr, JM can comment or I could call the hospital and find out.

Why do they want to do the MRI?

Ania

> > > >

> > > > Our daughter is about to have an eye exam under general

> > anesthetic

> > > > and I am wondering if there are any ASD specific

complications

> > that

> > > > other parents have found as a result of being put under a

mild

> > > > general anesthetic. Any suggestions?

> > > > Any input welcome.

> > > > Thank you, Ania

>

>

>

>

>

> Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

>

>

>

>

> -------------------------------------------------------------------

-----------

>

[Guest guest]

Thanks Sym,

Thanks for the info.

I have actually told some Dr.'s involved about the B12 connection and

nitrous oxide and their eyes just glazed over. I will use " allergy "

when and if I ever have to go through that again. Most Dr.'s seem to

understand allergy and seem to then move forward with caution.

Another phrase I use to help some understand - especially in an

emergency situation (remember my son's Dr. is in the U.S. and I live

in B. C. so there is not a lot of Hospitals that will make that call)

is that " my son has a compromised immune system " . They seem to listen

a bit more closely to what I have to say when I tell them that.

Thanks again,

We could sure use more like you in B. C.

Jen

> I am a nurse anesthetist with a 5 year old boy on the spectrum.

I

> have been following this thread and I am sorry that some of you had

a

> bad experience with your anesthesiologist. Do a google search on

> nitrous and B12. Nitrous depletes B 12.........our kids have a

> deficiency of B12. Our children improve with the B12 protocol and

> they regress after a general anesthetic. Duh!

> An adult usually has a IV in place and meds are given through that

for

> induction. With a child who is young and has no IV, an inhalation

> induction is performed using high flows of oxygen, nitrous and an

> anesthetic gas. When the child is asleep an IV is placed.

Nitrous

> has been used as a adjunct gas for years without problems.

> I agree with your assessment that the doctors don't believe that

> your concerns are valid. My advice.......tell them that your

child is

> ALLERGIC to nitrous..... you have documentation that your child has

a

> B12 deficiency. Tell them that if your child gets nitrous he

will

> have a severe regression.

> Hope this helps.

>

> Sym

>

>

> Message: 21

> Date: Mon, 24 Jan 2005 16:31:47 -0000

> From: " katewish2000 " <magnolias@t...>

> Subject: Re: General anesthetic question

>

>

>

> Hi Shari,

> Nitrous Oxide is not harmful to everyone unless your child has the

> MTHFR mutation. If you are not sure about this then it is better

safe

> than sorry and you should be cautious.

> There are so many other general anesthetics they can use... the

> problem seems to sadly lie in the fact that some Dr.'s don't believe

> that your concerns are valid due to their lack of education in

> regards to our kids.

>

> If I were you I would contact your DAN! and ask for a list of what

> can be used for the MRI - pre and post.

>

> Make sure though they follow through on it... talk to the

> anesthesiologist and make sure he completely understands - then

still

> follow through.

>

> You may want to try posting to DR. JM. I know she is off busy

writing

> her 3rd book, but might be able to give you some ideas.

>

> I can look for the list that Dr. Green gave me but I would think

that

> that list would have been child specific...

>

> good luck,

>

> Jen

[Guest guest]

Sym...thank you so much for posting this! My son (severely Hg

exposed in utero) already showed some signs of autism at 7 mos. But,

at nine months of age he underwent a lengthy clubfeet repair, and

regressed immediately afterwards, going from fairly normal

development back to 0-3 mos. Even before his diagnosis, I used to

say.. " they took my son into the OR and another child came out... " .

Now I might have a reason as to why. B12 was also HUGE for him, and

still is. Thank you for helping another piece of the puzzle fall

into place...Kim

> I am a nurse anesthetist with a 5 year old boy on the spectrum.

I

> have been following this thread and I am sorry that some of you had

a

> bad experience with your anesthesiologist. Do a google search on

> nitrous and B12. Nitrous depletes B 12.........our kids have a

> deficiency of B12. Our children improve with the B12 protocol and

> they regress after a general anesthetic. Duh!

> An adult usually has a IV in place and meds are given through that

for

> induction. With a child who is young and has no IV, an inhalation

> induction is performed using high flows of oxygen, nitrous and an

> anesthetic gas. When the child is asleep an IV is placed.

Nitrous

> has been used as a adjunct gas for years without problems.

> I agree with your assessment that the doctors don't believe that

> your concerns are valid. My advice.......tell them that your

child is

> ALLERGIC to nitrous..... you have documentation that your child has

a

> B12 deficiency. Tell them that if your child gets nitrous he

will

> have a severe regression.

> Hope this helps.

>

> Sym

>

>

> Message: 21

> Date: Mon, 24 Jan 2005 16:31:47 -0000

> From: " katewish2000 " <magnolias@t...>

> Subject: Re: General anesthetic question

>

>

>

> Hi Shari,

> Nitrous Oxide is not harmful to everyone unless your child has the

> MTHFR mutation. If you are not sure about this then it is better

safe

> than sorry and you should be cautious.

> There are so many other general anesthetics they can use... the

> problem seems to sadly lie in the fact that some Dr.'s don't believe

> that your concerns are valid due to their lack of education in

> regards to our kids.

>

> If I were you I would contact your DAN! and ask for a list of what

> can be used for the MRI - pre and post.

>

> Make sure though they follow through on it... talk to the

> anesthesiologist and make sure he completely understands - then

still

> follow through.

>

> You may want to try posting to DR. JM. I know she is off busy

writing

> her 3rd book, but might be able to give you some ideas.

>

> I can look for the list that Dr. Green gave me but I would think

that

> that list would have been child specific...

>

> good luck,

>

> Jen

[Guest guest]

My son regress twice into autism: after 2 general anaesthesias. I

have no idea whether it was Nitrous or something else.

Now he is going to do an MRI here in France. They will use an

anaesthetic suppository. They can't tell me what are the

ingredients. They only tell me that it is much less effective than

any other anaesthetic and that it is difficult for them to make the

MRI correctly, because the child can make movements. They wouldn't

listen to me about Nitrous and B12 connection, or even a connection

between my child regression and the anaesthesias he had.

Any one hard about this protocol? Is it possible that those

suppositories contain Nitrous?

Thanks

Liora

> I am a nurse anesthetist with a 5 year old boy on the

spectrum. I

> have been following this thread and I am sorry that some of you

had a

> bad experience with your anesthesiologist. Do a google search on

> nitrous and B12. Nitrous depletes B 12.........our kids have a

> deficiency of B12. Our children improve with the B12 protocol

and

> they regress after a general anesthetic. Duh!

> An adult usually has a IV in place and meds are given through

that for

> induction. With a child who is young and has no IV, an inhalation

> induction is performed using high flows of oxygen, nitrous and an

> anesthetic gas. When the child is asleep an IV is placed.

Nitrous

> has been used as a adjunct gas for years without problems.

> I agree with your assessment that the doctors don't believe

that

> your concerns are valid. My advice.......tell them that your

child is

> ALLERGIC to nitrous..... you have documentation that your child

has a

> B12 deficiency. Tell them that if your child gets nitrous he

will

> have a severe regression.

> Hope this helps.

>

> Sym

>

>

> Message: 21

> Date: Mon, 24 Jan 2005 16:31:47 -0000

> From: " katewish2000 " <magnolias@t...>

> Subject: Re: General anesthetic question

>

>

>

> Hi Shari,

> Nitrous Oxide is not harmful to everyone unless your child has the

> MTHFR mutation. If you are not sure about this then it is better

safe

> than sorry and you should be cautious.

> There are so many other general anesthetics they can use... the

> problem seems to sadly lie in the fact that some Dr.'s don't

believe

> that your concerns are valid due to their lack of education in

> regards to our kids.

>

> If I were you I would contact your DAN! and ask for a list of what

> can be used for the MRI - pre and post.

>

> Make sure though they follow through on it... talk to the

> anesthesiologist and make sure he completely understands - then

still

> follow through.

>

> You may want to try posting to DR. JM. I know she is off busy

writing

> her 3rd book, but might be able to give you some ideas.

>

> I can look for the list that Dr. Green gave me but I would think

that

> that list would have been child specific...

>

> good luck,

>

> Jen

[Guest guest]

Some Doctors use ketamine shots for knocking out young kids fro brain

mapping so sure would be okay for MRIs

paul

> > I am a nurse anesthetist with a 5 year old boy on the

> spectrum. I

> > have been following this thread and I am sorry that some of you

> had a

> > bad experience with your anesthesiologist. Do a google search on

> > nitrous and B12. Nitrous depletes B 12.........our kids have a

> > deficiency of B12. Our children improve with the B12 protocol

> and

> > they regress after a general anesthetic. Duh!

> > An adult usually has a IV in place and meds are given through

> that for

> > induction. With a child who is young and has no IV, an inhalation

> > induction is performed using high flows of oxygen, nitrous and an

> > anesthetic gas. When the child is asleep an IV is placed.

> Nitrous

> > has been used as a adjunct gas for years without problems.

> > I agree with your assessment that the doctors don't believe

> that

> > your concerns are valid. My advice.......tell them that your

> child is

> > ALLERGIC to nitrous..... you have documentation that your child

> has a

> > B12 deficiency. Tell them that if your child gets nitrous he

> will

> > have a severe regression.

> > Hope this helps.

> >

> > Sym

> >

> >

> > Message: 21

> > Date: Mon, 24 Jan 2005 16:31:47 -0000

> > From: " katewish2000 " <magnolias@t...>

> > Subject: Re: General anesthetic question

> >

> >

> >

> > Hi Shari,

> > Nitrous Oxide is not harmful to everyone unless your child has the

> > MTHFR mutation. If you are not sure about this then it is better

> safe

> > than sorry and you should be cautious.

> > There are so many other general anesthetics they can use... the

> > problem seems to sadly lie in the fact that some Dr.'s don't

> believe

> > that your concerns are valid due to their lack of education in

> > regards to our kids.

> >

> > If I were you I would contact your DAN! and ask for a list of what

> > can be used for the MRI - pre and post.

> >

> > Make sure though they follow through on it... talk to the

> > anesthesiologist and make sure he completely understands - then

> still

> > follow through.

> >

> > You may want to try posting to DR. JM. I know she is off busy

> writing

> > her 3rd book, but might be able to give you some ideas.

> >

> > I can look for the list that Dr. Green gave me but I would think

> that

> > that list would have been child specific...

> >

> > good luck,

> >

> > Jen

>

>

>

>

>

> Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

>

>

>

>

>

------------------------------------------------------------------------------

>