Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 Oh, , I am so sorry you had to endure such an episode. I am really sorry too that you don't even feel you can go to the ER. I have never had an attack as violent as yours but I too decided long ago to keep my more bizarre symptoms to myself after being humiliated at the ER several times. I am glad the Gabitral works for you. I discovered Gabatril some months ago. It was perscribed by a Dr. who treats FMS exclusively. My Dr. who specializes in CFS had never suggested it. After experimenting I found that I can only take 6mg. Anything over 6mg causes neuro symptoms. But the 6 mgs. has almost completely stopped my waking in terror symptom. I am so glad you have such a good sense of humor but damn I wish you didn't have to use it to lighten the burden of your illness. It is so good that you have Bob to give you support. I pray you will never have this experience again. Marie --- Schaafsma <compucruz@...> wrote: > I was reminded recently to hang on to my sense of > humor. As advice > here so often does, this bit turned out to be > timely. > > This could be the 'big one', the symptom that > finally puts me over > the edge into something like the " freakazoid Lyme > patient subject to > medical neglect " hall of fame. > > I am reeling from over an hour of violent tremors. > Yeah, the visible > kind, my whole body shaking fast, like on a > paint-shaker, but mostly > my trunk, arms and hands. Picture Blair in The > Exorcist doing > the funky-chicken. Yeah, that's me, with his head > spinning on a > gnarled up tree-trunk neck and arms angling up at > the elbows, like a > big, flightless bird. > > This is no exaggeration: > > I couldn't talk for teeth rattling and couldn't type > because my > fingers were hitting keys at random. > > I ended up sprawled out, embedded in a pile of > blankets and having > trouble breathing. I shook so bad the whole pile was > vibrating and > it freaked Bob out. > > I thought I smelled burning metal. I thought my > heart would explode. > Then it settled into something, you have to imagine > being in the > arctic, that cold, how you would rattle and shake, > and then imagine > that you have the rattling and shaking but no cold > to trigger it. > > The usual ringing in my ears was drowned out by this > mad rumble, > ruckus, rumpus, rebellion of oppressed nerve fibers > straining and > snapping like whips till I am lashed half to death, > the sound of a > volcano about to erupt, the sound of an earthquake > where two > tectonic plates are heaving into each other and > grinding back into > place in a different arrangement. > > I was, I realize now, some two hours late in my > second daily dose of > Gabatril, an anti-seizure medication that has helped > with neuropathy > and anxiety, as well. > > So all hell is trying to break loose, masked by the > soothing GABA- > enhancing anti-seizure med. > > I have praised every God this side of the > Mississipi, that I have a > jar-full of the little wonders. It suggests yet > another name de > plume, Gabby Tril, muckraker extraordinaire. > > Yes, I just spent the last hour doing a really > convincing impression > of a Parkinson's patient, actually impressed myself, > and now I am > telling bad jokes. > > Please don't tell me I should have rushed to the ER. > Been there, > done that, no thank you, it's like the drive-thru > window at > Infection-Mart, I don't want none of that. Though of > course I WILL > be checking in to have my spine punctured and an IV > catheter > inserted over my heart. > > Yes, it's a wonderful world, better and better every > day in every > way, with a Lifesavers rainbow arched over the sky > and the nations > of the earth united under the benign rule of > Princess Raggedy Anne > and Prince Andy. > > In the end, all of us orphans of a more innocent age > are finally > vindicated. As it turns out, heaven really CAN'T > wait, after all. > > Oui, oui, oui, all the way home. > > > > > > > __________________________________ Mobile Take with you! Check email on your mobile phone. http://mobile./learn/mail Quote Link to comment Share on other sites More sharing options...
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