Re: something interesting - what the public knows and doesn't know

[Guest guest]

Nelly,

You haven't been a bad girl. You're just a much more informed one

than most.

Because, no, I really don't believe that a lot of people understand

the points you make in your post. I see it all the time on forums

and out in the world. Constantly get email asking me for more info,

etc.

Infection and antimicrobial treatment is NOT commonly understood at

all. It's way outside most people's (even doctors') realm of

understanding and possibility. I am frustrated continuously when

someone (outside the forums) tries to give me advice on how to get

well. All the lectures I receive on how I shouldn't do antibiotics,

and the counter arguments I make that fall on deaf ears because

almost no one understands how serious these superinfections are.

They don't understand that I wouldn't be doing these drugs if it

wasn't absolutely necessary. To be honest, I can't stand talking

about my illness even with my closest friends (except those who are

also sick). It's just an exercise in frustration and futility.

The latest thing my friends are harping on these days is

the " Lifewave Energy Patches " that olympians supposedly use.

People will buy into the idea that buying MLM patches, that have no

transdermal capabilities, can somehow adjust your energy, unblock

your channels, and give you energy, before they will buy the idea

that bacteria are powerful enough to rot your bones, attack your

brain, and make you really, really sick.

I just tell them I'm happy they're having so much success with their

patches. And change the subject.

penny

> I did not want to get involved in any more futile, ludicrous,

monomaniac non-discussion with Tony, but no matter how long one

ignores him he just starts a new thread like this one.

>

> >I notice this forum is full of controversy when it comes to

> >pathogens, the thought that it may be a multi pathogen infection

> >doesn't sit well with many one way trafficker's.

>

> Tony,

>

> What ARE you rambling on about AGAIN? We, every single one of us

here on I & I KNOW this is a multi pathogen game!

>

> Could the people who think OTHERWISE please speak up now so that

you can forever stop earbashing us about what we already know, not

only as if we didn't know, but as if we actively thought we were

only suffering from one single well-defined, well-identified

pathogen (Bb for eg)

>

> >The other sticking point is people's perception that you only get

> >well when you suffer..

>

> I also think we all AGREE (do you know what the word means :A G R

E E, look it up if you don't) that although the notion of the Jarish-

Herxheimer reaction is a useful one when treating spirochetal

infections, it has been used very loosely on many Lyme and CFIDS

forums. We have all worried that we could be confusing " herxing " to

be endured and " suffering from some toxic or other cytokine storm,

or from bugs fighting back etc " which might need rethinking the

approach. Barb has expressed herself many times on the subject, and

I think again we all agree (please correct me if this isn't the

case).

>

> >The missing the forest for the tree's really

> >sits high in many forums.

>

> Yes, and the world is a pretty dumb place, unless you hadn't

noticed. Are you planning on fixing up what is being said on all

forums and replacing it with Tony's best selling title " you're

missing the forest for the trees, stoopid " ?

>

>

> >NOW the fact that there have been over 3000 posts and people are

so

> >focused on alot of iffy stuff, they miss the important parts of

the

> >antibiotic literatue..............

>

> Who's missing that absolutely basic, basic, basic part of abx

usage?

>

> >SUPERINFECTION... By using a drug that isn't killing your

organisms

> >you run the rsik of developing SUPERINFECTION. This is an

infection

> >that grows under the presence of antimicrobials that aren't doing

> >the job. So when your so called herxing, you may want to

reconsider

> >and call it a superinfection.The fact that we don't die and live

to

> >tell, makes us comfortable to talk the theory of " I had a herx " .

> >This is something I picked up early in the piece and it was

pretty

> >clear on the amoxacillin instruction sheet or possably off the

net.

>

> I am glad you had this revelation by reading the amoxicillin

instruction sheet!!!

>

> So you think other people didn't pick up on this " early in the

piece " also? We are all aware that whenever we use an antimicrobial

we run the risk of getting a superinfection, several

superinfections, bacterial, fungal you name them. So we try hard to

balance all this out, and yes we sometimes (often) have to switch

abx to ensure we are dealing with possible superinfections (ie

Clostridium difficile in the gut, that's why using an imidazole the

way Wheldon/Stratton do is not a bad idea from that point of view as

well as the other aspect they are concerned with ie dealing with

elemental/cyst forms).

>

> So sometimes it's a herx and other times it's a superinfection,

what's new?

>

> Nelly (couldn't stop myself-ban me if I've been a bad girl)