Daughter

[Guest guest]

Hello Marsha

On the internet I found an article you wrote about

people who cannot tolerate selective sounds.

First I will give you a little history. My 27 year

old daughter has for many years...I can think back to

at least nine years old....not been able to tolerate

the sound of people eating....snoring....breathing and

also she stops my leg from swinging. Her issues with

these things is not the normal most people feel with

certain peoples eating habits etc. It has interfered

with her family life...her social life and her dating

life. I see physical and emotional changes in her

persona as she tries to participate in anything that

involves food. Her face contorts...she

shudders....she tries to cover her ears without others

noticing ...she turns away...she leaves...she

shakes....her jaw clenches etc etc etc....

For many years I have tried to find anything online

that would help explain this but until I recently

found your article ...I could find nothing of value.

It sounds like a rare new field of which treatment is

not only difficult to find but also inconclusive?

I found that you were on a message board that has shut

down but I am now on the one for Hypercuasis...

Someone has suggested pink noise therapy...

She has said she will try anything as she is so tired

and frustrated and sad that she can't enjoy meals with

her family, boyfriend etc and people can't enjoy their

meals with her present.

She does realize there is something to the repetition

as well as chewing, snoring, breathing and leg

swinging have repetitious movements??

Other noise do not bother as much as the ones

mentioned ..except she says....if she is trying to

fall asleep.

I just wanted you to know that you can add one more to

your growing list of people who are suffering from

this type of sound sensitivity.....

I hope you do get something published in Pediatrics

Journal as hers definitely started in childhood and

finding any information or help or even a Dr who

believes it is anything but psychological is next to

impossible.

When I told her I had found your website and that what

she is suffering is very real....she cried and said

" you mean I'm not crazy " How sad is that!

Thanks for your time Marsha and I hope if others

respond to you...your literature will grow and someone

will listen to you...

Sincerely Debbie