Re: Lupus, hypercoagulation and low platelets

[Guest guest]

Jelly:

Were those fragments RBC frgaments?

Barb

> I just got my dad's lab results I had done about 4 months before he

> died. Alot of people are concered that since their platelet counts

are

> low they couldn't possibly have hypercoagulation/ISAC.

>

> Here are his results:

>

> Platelets 35 L range:40-100

> Fibrinogen 589 H range:180-310

> Fragments 1 & 2 2.5 H range:0.4-1.1

>

> My dad had a SERIOUS infection, and they thought his immune system

had

> just gone haywire and " they " called it Lupus. <Sigh>

[Guest guest]

Hi Jelly

As you know I had problems with understanding ISAC because I am

thrombocytopenic, however my fibrinogen levels were high. When

looking at my blood tests over the years it became clear that the

higher the fibrinogen levels the lower the platelet numbers.

Because I was thrombocytopenic it took time for Jelly to persuade me

to take ISAC seriously in my case. I contacted Berg, gave him a

brief medical history which included a PE, and he explained why the

platelet numbers were low and why ISAc was obvious to him, this

including two seperate anaphylaxic shock events during the

coagulation cascade when the clots that caused the PE and in my

pelvic area were being broken down with heavy duty clot busters.

My reaction to finally breaking down this fibrin more recently fitted

the description of septic shock, not something I would like to go

through again, but at least it convinced me I was finally on the

right track. After I recovered from this my platelet numbers went up

a bit and my fibrinogen levels were proportionally lower.

I was misDx with lupus in 1987, given prednisolone, what a disaster

that turned out to be both long and short term. Since then both

borrelia and chronic staph have been identified, my doctor has no

doubt other pathogens are involved too.

Cheers, Tansy

> I just got my dad's lab results I had done about 4 months before he

> died. Alot of people are concered that since their platelet counts

are

> low they couldn't possibly have hypercoagulation/ISAC.

>

> Here are his results:

>

> Platelets 35 L range:40-100

> Fibrinogen 589 H range:180-310

> Fragments 1 & 2 2.5 H range:0.4-1.1

>

> My dad had a SERIOUS infection, and they thought his immune system

had

> just gone haywire and " they " called it Lupus. <Sigh>

[Guest guest]

Barb, they are part of the ISAC panel. The test components aren't

something that anyone else can test for yet, or at least they

weren't. Only Hemex does these tests, they developed them. Therre

are 4 parts to the ISAC panel, not including the platelet count,

everyone can do that. I don't think that Fragments 1 & 2 would be

parts to an RBC. Probably have the info somwhere, but it isn't

coming to me right this minute. Maybe Tansy knows.

> > I just got my dad's lab results I had done about 4 months before

he

> > died. Alot of people are concered that since their platelet

counts

> are

> > low they couldn't possibly have hypercoagulation/ISAC.

> >

> > Here are his results:

> >

> > Platelets 35 L range:40-100

> > Fibrinogen 589 H range:180-310

> > Fragments 1 & 2 2.5 H range:0.4-1.1

> >

> > My dad had a SERIOUS infection, and they thought his immune

system

> had

> > just gone haywire and " they " called it Lupus. <Sigh>