Re: Tony, Penny - various

[Guest guest]

There's no way Tony can do what you request. It's not in his

program. Believe me, I've tried to get him to change his style for

years. I just watch for the results.

Look, all I'm saying is please research other kinds of infections

too, where people are getting abx treatment, like osteomyelitis, and

RA and osteonecrosis, and staph infections, and look for all the

similarities in symptoms and responses. There are successes and

failures, and we can learn from both. , especially start

researching PubMed on Osteomyelitis. It's very eye opening. You're

so friggin' smart, you could probably get us all well.

Lyme may very well be the predominant illness causing organism in an

individual, but it might not be either. How can anyone know, since

no one ever gets tested for the other common organisms? If they

don't get tested, how will they ever know if using the appropriate

abx for that infected root canal, or those infected tonsils, or gall

bladder, etc., might not relieve them of their illness symptoms,

especially if caught early, before it becomes systemic, eating it's

way through their skeletons? It's also very possible that some

people who are dx'd with other infections are actually fighting

lyme, which is becoming a pretty popular view. But it drives me

batty that people make such assumptions, without collecting ALL the

evidence, or trying to treat ALL the bugs before making ANY claims.

HOW CAN PEOPLE NOT SEE THAT STAPH IS A LIFE DESTROYING BUG???? How

can the medical establishment ignore it? Probably because they know

the pharmaceutical companies can't create the drugs as quckly as the

bugs build resistance. :-( The gold standard in all abx development

is whether the new drug can beat MRSA resistant staph - IN A PETRI

DISH.

Beyond this relatively simple problem of correctly identifying the

bugs, then we've got to figure out why we can't seem to fight them

off. Is it environment, hereditary, or just bad luck that the bugs

found us?

penny

> Tony, you are overlooking some raw facts

>

> 1) alot of people are cured by ILADS treatment

>

> 2) injection of Bb into macaques produces the same rash that

heralded

> the illnesses of many humans. It also causes them to produce the

same

> antibodies some infected humans have. Therefore...

>

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=7824109

>

> But anyways, my main reason for writing is to ask if you and Penny

> feel like writing up any highly detailed reports on observations

> related to infection by common opportunistic bacteria. Tony, I know

> youre not a big fan of pubmed and all that - but surely you agree

that

> people interpret data differently and make mistakes and have

> incompelte knowledge, and that therefore raw observations need to

be

> publicly presented instead of just observers' impressions.

>

> Do you have any data from your treatment that indicate the

pathogenic

> importance of your staph & pseudomonads, and that your culturing

and

> microscopy were significantly useful on an ongoing basis to keep

the

> treatments optimised? How do we know you arent just responsive to

> pretty much every abx, as Barb was?

>

> No matter what data you may have on yourself it still doesnt rule

out

> a role for luck in your recovery. Look at Barb, shes as well as

you,

> and doubtless willing to fly to Australia to prove it by whupping

you

> at pinball, badminton, and the 100m freestyle. And numerous others

are

> well using various treatments. For which reason, detailed data on

> others are also needed for this discussion. Theres plenty of

empirical

> facts out there about people recovering and other people failing on

> the same treatment.

>

> Maybe youve presented formal data before, but if so its been a

while

> so why not repost. If you dont have numbers it would still be

> beneficial to write out everything you can remember in great

detail,

> including all observations you can think of that may not fit your

> interpretation.

>

> Penny, I'd love to dig into your knowledge regarding people who got

> well after tonsilectomy, debridement, gentamycin bead implantation,

> and the like. I would definitely study closely if you have the time

> sometime to write up in detail the histories of people who had

these

> things sone with success, and also the histories of anyone you

know of

> for whom it *didn* work.

>

> I know alot of y'alls knowledge maybe cant be fully formalized and

> completed because it comes from past correspondance etc with

patients,

> but even if its limitedly-formalizable I think it would be very

> valuble to do as best as can be done.

[Guest guest]

Hi ,

> Tony, you are overlooking some raw facts

>

> 1) alot of people are cured by ILADS treatment

I know. Sometimes I meet them in an ILADS doctor's waiting room.

I ask: Do you have Lyme Disease?

They reply: No. (smiling) I HAD Lyme Disease.

Sue ,

Upstate New York

[Guest guest]

I really wish I could find more of these people who are cured to

hear exactly what they did. Are they talking chronic lyme, or did

they catch it early?

penny

> Hi ,

>

> > Tony, you are overlooking some raw facts

> >

> > 1) alot of people are cured by ILADS treatment

>

> I know. Sometimes I meet them in an ILADS doctor's waiting room.

>

> I ask: Do you have Lyme Disease?

> They reply: No. (smiling) I HAD Lyme Disease.

>

> Sue ,

> Upstate New York

[Guest guest]

Sue

I'm on these forums from a totally different angle than most. I

speak on the phone frequently to people from all parts of the states

and believe me if you've got a story I want to hear, I'll go out of

my way to get to you and hear it.People are put into remission of

sorts doing antimicrobials. Complete no BS cures are measured long

term, there truly ain't too many of the long termers. Barb our

favourite on this forum had a good remission, but in the last

several months things are sneaking in again.When you go to

hyperbaric chambers you get all sorts of stories- from doctors

offices people will give you the cured but it's truly not

scientifically back to normal and you stay there stuff.I think it's

remission that happens as opposed to complete cure basically is what

I've observed.

> Hi ,

>

> > Tony, you are overlooking some raw facts

> >

> > 1) alot of people are cured by ILADS treatment

>

> I know. Sometimes I meet them in an ILADS doctor's waiting room.

>

> I ask: Do you have Lyme Disease?

> They reply: No. (smiling) I HAD Lyme Disease.

>

> Sue ,

> Upstate New York

[Guest guest]

For sure... I know I'm one of the positive responders.

What was sneaking in was ACA (and thankfully the Mino

beat that back in a month).....and speaking presumptively.. all of my

Docs are not sure the skin thing was caused by Lyme.. both biopsies I

had to test for Lyme DNA in sample were contaminated before the tests

could be run. One contaminated by the way they preserved the sample

and the other something happened to at the lab itself.. so I said

screw it.. I got enough holes in my arm.

So- for a recap.. I'm 100% symptoms free, and was off abx almost a

year before I got the weird flat, non itching rash. I went on 1

month of 5mg/Kg body weight of Mino for a month, and the rash went

away. So, in the last

1.5 years of being off abx.. I was on Mino for a month. But none of

my other symptoms have recurred...I'm livin' my life..

but it's in the back of my mind I could relapse (who knows?)- or I

still wouldn't be on these lists. Most of the people who are symptom-

less are long gone.

And I suppose I might go at some point too, if I stay this well.

Barb

> > Hi ,

> >

> > > Tony, you are overlooking some raw facts

> > >

> > > 1) alot of people are cured by ILADS treatment

> >

> > I know. Sometimes I meet them in an ILADS doctor's waiting room.

> >

> > I ask: Do you have Lyme Disease?

> > They reply: No. (smiling) I HAD Lyme Disease.

> >

> > Sue ,

> > Upstate New York