best way to take quinolones?

[Guest guest]

Hi all,

after 5 years of no dx, (except severe IBS at Standford) a doctor

found high titres (the highest he's ever seen he says) of bartonella

in my daughter ( as well as positive reactions for ehrlichia and

babesia) So she's out of the IBS wastebasket, which is really

great! But now he is putting her on levaquin for 3 months which is

very scary because she quit taking it once before because she had

such a bad reaction.

Now I wonder if she had a herx, or just a bad reaction to a drug

that some people can't tolerate. So I am going back to look at the

herx info I saw here.

And I was excited to see the quinolone discussion. I'd be grateful

for any hints of how you guys would cope with 3 months of levaquin

for example if people should make sure they have enough magnesium

then what relationship of calcium to magnesium is good to take? Also

for someone with GI inflamation(common with bartonella) won't

magnesium cause diarrhea--is there away to avoid that?

The other things is I know my daughter will be determined to stay on

this drug because she's young and she's lost 5 years already and she

wants to get back in the land of the living. But I'm concerned that

with the quinolones, if you have problems maybe you should try a

different drug right away before permanent damage is done. This

doc, tho brilliant, (like you all!) is hard to get to if you have a

problem, so any advice is welcome. If you consider my post off

topic, a private email is fine.

Also thanks you amazing posters. Throughout the nightmare of having

a suffering child who seemed to have some kind of infection or

parasite, it always helped me to read about your convictions that

infections were being misdiagnosed as CFS or Fibromyalgia or IBS or

in reality " give her anti-depressants and get out of my office and

stop wasting my time "

[Guest guest]

, this is more an anecdote than anything else, but i find that

calcium plus up and magnesium loosens. Maybe if you can keep them

balanced, you can get the benefit of both.

Levaquin helped me but I stopped taking it because I couldn't be

sure my 'herx' wasn't tendon issues. In hindsight, I rather doubt

that it was.

I hope you get more useful replies from others.

> Hi all,

> after 5 years of no dx, (except severe IBS at Standford) a doctor

> found high titres (the highest he's ever seen he says) of

bartonella

> in my daughter ( as well as positive reactions for ehrlichia and

> babesia) So she's out of the IBS wastebasket, which is really

> great! But now he is putting her on levaquin for 3 months which is

> very scary because she quit taking it once before because she had

> such a bad reaction.

>

> Now I wonder if she had a herx, or just a bad reaction to a drug

> that some people can't tolerate. So I am going back to look at the

> herx info I saw here.

>

> And I was excited to see the quinolone discussion. I'd be grateful

> for any hints of how you guys would cope with 3 months of

levaquin

> for example if people should make sure they have enough magnesium

> then what relationship of calcium to magnesium is good to take?

Also

> for someone with GI inflamation(common with bartonella) won't

> magnesium cause diarrhea--is there away to avoid that?

>

> The other things is I know my daughter will be determined to stay

on

> this drug because she's young and she's lost 5 years already and

she

> wants to get back in the land of the living. But I'm concerned

that

> with the quinolones, if you have problems maybe you should try a

> different drug right away before permanent damage is done. This

> doc, tho brilliant, (like you all!) is hard to get to if you have

a

> problem, so any advice is welcome. If you consider my post off

> topic, a private email is fine.

>

> Also thanks you amazing posters. Throughout the nightmare of

having

> a suffering child who seemed to have some kind of infection or

> parasite, it always helped me to read about your convictions that

> infections were being misdiagnosed as CFS or Fibromyalgia or IBS

or

> in reality " give her anti-depressants and get out of my office and

> stop wasting my time "

>