Re: Digest Number 76

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[Guest guest]

> Date: Mon, 17 May 1999 18:46:40 -0700

> From: Tate <valtate@...>

>>I have been trying to learn to take better care of myself through

diet and quitting smoking, etc. Also changed some of my other long term

meds for another illness, because those meds are so hard on the liver.

Also, it was good to learn the reason for my extreme

fatigue. It seems like just getting out of bed makes me so tired that I

have to take a nap sometimes! Now I don't fight that so much, and try

to schedule a little

rest time every day.<<

--

I quit smoking a year ago, because, like you, I wanted to give myself a

better chance of healing. My diet isn't the best, but I'm slowly

changing that. I had to change the meds for bipolar, to ease the

strain on the liver--the ones I'm on now aren't the best for it either,

but they work the best on my depression.

I have the extreme fatigue, too, and it's really hard for non-heppers

to understand how walking from the car to the door of the store can

wear you out, and call for a short breather before you continue to

shop. i have become a big fan of naps, and having an understanding

family helps--when I have a day when I can't function, my husband

doesn't give me a hard time. That helps, too!

Kathi

===

Visit my webpage for parents of troubled teens at:

http://members.tripod.com/~rdhd45vlcek/index.html

and my support group for those parents at:

http://clubs./clubs/parentingtroubledteens

ICQ 22539187

_____________________________________________________________

[Guest guest]

From: Rowena Pompeo <keeley@...>

Subject: Re: newbie from Texas

>>I am a recovering heroin addict clean 19 years..... Got Hep C in '69

just didn't know it then. Dr's thought it was B.

I got very sick a few months ago after being tired like a dog for

months before that....But I was back in school as a 52 year old full

time student.

I started on the interferon and am in my 5th week. At

first it made me sick like the flu achey, high fever and like that.

What was the worst of it and is over now is it made me cry like a

baby.....just made me so sad.....I am single and it was so bad that for

two weeks on shot night (and that is important, take it at night) I had

friends

come and stay with me so I wouldn't be alone in all that sadness. But

now, I do fine on shot night in fact monday night is one of them, and

it is okay.<<

Rowena--

1969 was a busy year--that's the year I contracted both B & C. I was a

sick puppy with the B, but the C wasn't caught until December '97. I

wouldn't have been diagnosed even then, if my idiot doctor had his

way--I asked for the test to be run, due to the extreme fatigue, and he

told me that I couldn't have Hep C, I wasn't jaundiced!! No sh**,

Sherlock! He was so chagrined when the results came back, he had his

receptionist call me to tell me the diagnosis.

I was put on the combo therapy in July '98, but had to quit in November

due to insurance problems. I've been back on for 10 weeks now, and see

the new gastro doc on Wednesday. The hep C has caused me severe

problems with my left eye, also, and I almost lost both the sight and

the eye itself. It's better now, but still painful, and still requires

special drops several times a day.

I take my shots on Monday, Wednesday, and Friday, but I was told to do

mine earlier in the day--it makes more sense to do it your way, though.

I still have the aches, nausea, and cry at the drop of a hat--

commercials, movies, talking to my kids are good (or bad?) triggers for

me. I also have a problem with migraines, and a lot of difficulty

swallowing.

hope to find out when I see the doctor on Wednesday that my count is

down, and that I'm in remission.....

Thinking of all, but I 'lurk' a lot---

Kathi

===

Visit my webpage for parents of troubled teens at:

http://members.tripod.com/~rdhd45vlcek/index.html

and my support group for those parents at:

http://clubs./clubs/parentingtroubledteens

ICQ 22539187

_____________________________________________________________

[Guest guest]

Kathi: I had not heard of eye problems associated with Hep C. Do you know

why?

[Guest guest]

Rowena: It is interesting that you question your doctor's bi-polar diagnosis

and believe the depression is more a bi-product of the Hep C. My husband

(diagnosed 3 years ago and has probably had it for about 30 years) has

struggled with depression as well, and it is mentioned in these posts often.

Do you think maybe the fatigue changes your brain chemistry (i.e.,

endorphins)? Whatever the cause, Prozac has helped him.

[Guest guest]

Dear Kathy:

Yeah '69 was a hell of a year. I have a friend who had it that year also

and is just now being symptomatic (sp). But because he saw what I went

through with the fatigue, he did not wait around but went right to the

Dr's. They are doing his first big blood work up today.

Yes I highly recommend having the shot in the evening. I take mine between

6 and 7 after the aprin and the compazine which I also recommend. It seems

to help the high emotionalisms a lot. My Dr. told me to expect that

especially since I was diagnosed as bi-polar but what I think is that, that

diagnosis was incorrect and what I have is the mental state that C induces

because of the fatigue. I started being tired and having the nausea in the

fall of '97 but did not get the C confirmation till spring of '99. I do

take a very mild antidepressant 12.5mg of Zoloft and then the compazine on

shot night and the fatigue is greatly decreased.

And cry when it hits......get someone to baby you. That was real important

to me cause I think I would have quit the interferon if my friends hadn't

been there for me.

And get involved spiritually with your recovery too. That was more

important than anything else. I've meditated for a long time, but lately

I've started practicing living in the heart of God as a Meditation and that

has been excellent.

So write any time you need to and I will be watching for you.

Talk to you soon.

Rowena

Kathi wrote:

> From: Kathi <rdhd45vlcek@...>

>

> From: Rowena Pompeo <keeley@...>

> Subject: Re: newbie from Texas

>

> >>I am a recovering heroin addict clean 19 years..... Got Hep C in '69

> just didn't know it then. Dr's thought it was B.

> I got very sick a few months ago after being tired like a dog for

> months before that....But I was back in school as a 52 year old full

> time student.

> I started on the interferon and am in my 5th week. At

> first it made me sick like the flu achey, high fever and like that.

> What was the worst of it and is over now is it made me cry like a

> baby.....just made me so sad.....I am single and it was so bad that for

> two weeks on shot night (and that is important, take it at night) I had

> friends

> come and stay with me so I wouldn't be alone in all that sadness. But

> now, I do fine on shot night in fact monday night is one of them, and

> it is okay.<<

>

> Rowena--

> 1969 was a busy year--that's the year I contracted both B & C. I was a

> sick puppy with the B, but the C wasn't caught until December '97. I

> wouldn't have been diagnosed even then, if my idiot doctor had his

> way--I asked for the test to be run, due to the extreme fatigue, and he

> told me that I couldn't have Hep C, I wasn't jaundiced!! No sh**,

> Sherlock! He was so chagrined when the results came back, he had his

> receptionist call me to tell me the diagnosis.

> I was put on the combo therapy in July '98, but had to quit in November

> due to insurance problems. I've been back on for 10 weeks now, and see

> the new gastro doc on Wednesday. The hep C has caused me severe

> problems with my left eye, also, and I almost lost both the sight and

> the eye itself. It's better now, but still painful, and still requires

> special drops several times a day.

> I take my shots on Monday, Wednesday, and Friday, but I was told to do

> mine earlier in the day--it makes more sense to do it your way, though.

> I still have the aches, nausea, and cry at the drop of a hat--

> commercials, movies, talking to my kids are good (or bad?) triggers for

> me. I also have a problem with migraines, and a lot of difficulty

> swallowing.

> hope to find out when I see the doctor on Wednesday that my count is

> down, and that I'm in remission.....

>

> Thinking of all, but I 'lurk' a lot---

> Kathi

> ===

> Visit my webpage for parents of troubled teens at:

> http://members.tripod.com/~rdhd45vlcek/index.html

> and my support group for those parents at:

> http://clubs./clubs/parentingtroubledteens

> ICQ 22539187

>

> _____________________________________________________________

>

[Guest guest]

I really can't believe that you will decide weather or not a person will be

allowed to participate on this list. Who do you think you are? Obviously

someone I don't want to know. If someone wants to stop drinking we need to

be there for them. I truly feel sorry for you and PLEASE take me off this

list.

[Guest guest]

okay, i have a question. soap doesn't seem to like me. so i think i am going

to try to make lip balm now. let's just hope. now, i was thinking it would

be pretty cool to sent it or flavor it with the flavor concentrate you would

use for making candy. does anybody know if you can do this? i wasn't sure

since i wasn't sure how it would work with the wax and all. but if anybody

knows please let me know.

kris

[Guest guest]

yup you can use flavor extracts

i use mint all the time, i think you may have to add a little more though

[Guest guest]

We are interested in this question as well. Please reply to the

list.

Jerry & Willis

Heaven Scent Soaps & Herbs

Come see our website at www.heavensoap.com. Sign up for our

monthly herbal body care newsletter at

hsshnewsletter-subscribeegroups

" Beloved, let us love one another, for everyone who loves is born

of God and knows God. " -1 4:7-

>>

>>

>> " Date: Sat, 8 Jan 2000 22:53:19 EST

From: Fees@...

Subject: need bubble bath recipe

i think this is beating a dead horse, but does anyone have a

bubble bath

recipe that doesn't use dish soap as its base? maybe somethjing

with m & p?

havve had requests for bubble bath, but the idea of using ivory

diswahing

soap doesnt appeal to me. (besides, the stuff makes me itch)

the recipes in

the library all use dish soap as a base

felicia "

[Guest guest]

Beth:

So sorry to hear about the Risperdal not working.....wow.....just confirms my

fears of trying it for ......that's surprising, though, because I have

heard such promising results....the behaviors it's causing your child to

have, is acually STOPPED with some kids....that's the reason I want on

it...his current meds do not stop the tapping, growling or grinding of

teeth.....and he really hasn't calmed down at all....just focusing better at

school but basically still wound up.

I want him calm but not sleepy.....it's a hard combo to establish...keep on

trucking.......

[Guest guest]

Just a sad note to add.....my DH's employee up in New Jersey had a

miscarriage at 5 mos.....the baby had Down Syndrome, and his little heart

just stopped beating....he died in the womb....the saddest part of this is

that the parents were told beforehand the child had Down Syndrome....second

child......they accepted it and started attending support group meetings to

learn all they could about DS.....they were mourning the loss of the baby

they thought they would have and now this.......their child actually " died "

twice in their hearts.....

Sadly, too, the classes scared them to death, too, about raising a baby with

disabilities.....they almost at one point were ready to give up when they

heard all the things that can go wrong with a baby with special needs.....

Please keep them in your prayers......

[Guest guest]

Gail:

LMAO at your post......hehe

[Guest guest]

,

PRayers are coming.

S

________________________________________________________________

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Try it today - there's no risk! For your FREE software, visit:

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[Guest guest]

In a message dated 3/18/2000 2:51:56 PM !!!First Boot!!!, Ltb3105@...

writes:

<<

Please keep them in your prayers......

>>

Oh how sad !!! I will remember them in my prayers, absolutely!!

Donna

[Guest guest]

hi all,

I believe peg-intron has fda approval for patients that are "naive" meaning they have not had previous drug therapy. the approval is still in the works for patients that have had prior drug therapy. (like me)

the clinical trials in my area are full with waiting lists

scott

[ ] Digest Number 76

[Guest guest]

In a message dated 6/16/2004 3:14:57 PM Eastern Standard Time,

writes:

betaine-HCl, digestive enzymes,

beneficial gut bacteria, and many beneficial fatty acids. Two

supplements that almost always work wonders are MSM

(methylsulfonylmethane) and bovine cartilage. Detoxification

programs, candida cleanses and parasite purge programs are often

advisable as well. Coconut cream and coconut oil — which D'Adamo says

should be avoided by everybody — can be particularly helpful in

combatting pathogens in the gut and in restoring proper fatty acid

balance.

Upon completion of these programs — not before — I have found that

people of all blood types seem able to eat MODEST amounts of nearly

anything, including wheat and other grain products. The operative

word, of course, is " modest, " meaning one or two small servings a

day, not the whopping 6-11 servings of breads and grains currently

recommended by the U.S.D.A. Food Pyramid.

To maintain ongoing gut health, breads and grains MUST be prepared

for easy digestion using the soaking, fermenting and cooking

instructions described in Nourishing Traditions by Sally Fallon

(ProMotion, 1995). Better yet, start making gelatin-rich soup broths,

as per Fallon's recipes.

Scientific studies dating back to the turn of the century suggest

that gelatin improves the digestion of grains, beans, meat and dairy

products and that it can normalize cases of hydrochloric acid

deficiency. In addition, gelatin can soothe, protect and nourish the

intestinal lining. As h Cohn of the Medical Polyclinic of the

University of Bonn wrote back in 1905, " Gelatin lines the mucous

membrane of the intestinal tract and guards against further injurious

action on the part of the ingesta. " 19

Further support of gelatin came in 1937 when Francis Pottenger

noted, " Even foods to which individuals may be definitely sensitive,

as proven by the leucopenic index and elimination diets, frequently

may be tolerated with slight discomfort or none at all if gelatin is

made part of the diet. " 20

The obvious conclusion is that proper soaking and cooking, and the

use of gelatin, can make the blood-type diets irrelevant. Type Os

find they can eat grains. Type A people — whom Dr. D'Adamo believes

are natural vegetarians because they typically lack the abundant

secretions of HCl necessary for easy digestion of meats — find meats

easier to digest if they are served with a gelatin-based gravy,

stewed in their own broth or served along with a cup of soup. And

gelatin can alleviate the allergic reactions and sensitivities that

numerous research studies have connected to blood Types B and AB.

Those who don't care to keep their stock pots simmering, can achieve

similar benefits by taking bovine cartilage supplements. More than 40

years of studies by the late F. Prudden, M.D., D.Sci., showed

that cartilage can soothe inflammation anywhere in the body,

particularly the GI tract.21

Follow these simple, old-fashioned rules and those pesky lectins will

be dismantled in your healthy gut and never cause problems in the

bloodstream. If so, you'll have the high energy and good health

needed to mine yet another vein of the blood type controversy — the

possible link between blood type and personality. Since 1920, it's

been a hot subject in Japan, where political candidates advertise

their blood type, where dating services inform prospective partners

about each other's antigens and where a TV sitcom was entitled " I Am

Type O. " Even condoms are sold by blood type and come packaged with

little " success cards " advising which types will make red-blooded

romantics.

Sally Eauclaire Osborne, M.S. likes Dr. D'Adamo's description of her

Type O personality as a " natural born leader " who tends to

be " strong, certain and powerful — blushing with good health and

optimism. " She eagerly awaits the day when her Type B son and

daughter will become self-made millionaires. A nutritionist and

health educator she teaches individuals and groups at Right Spin

Health Education in Santa Fe, NM,. She can be contacted at (505) 984-

2093.

Best in health

Steve

[Guest guest]

The main reason you pulse the flagyl (Wheldon says to

work up to three doses a day for 5 days, once per

month) is that it is a hard drug to tolerate for more

than that: both from the herx and from the toxic

quality (nausea, etc) of the drug itself. The pulsing

allows winnowing down the cryptic intracellular bugs

over time while minimizing the toxic effects.

Personally, I can't imagine doing it three times a

day, and can tolerate only 3 days at a time, so I'm

doing those three days once every week (on the

weekends) and will stretch out the intervals as I can

tolerate it for more days. When I first started with

the flagyl I felt a big relief, as if some load or

drain were being taken off my system. I got some herx,

but tolerable, since I had been on abx for three

months by that time. Today (this is about my 5th or

6th flagyl cycle) I feel like crap! Big herx, nausea,

achey, brain fog, flattened and depressed affect.

I don't know if it's just getting at deeper layers, or

the niacinamide is potentiating it's effect, or what.

We'll see.

I do remember sinus and joint pain flareup from some

cycles of the flagyl, all tissues readily colonized by

Cpn and other bugs, so I sympathize. Wheldon comments

over and over that the herx from adding flagyl is

significant, and one must be slow and cautious if your

tissue load is high. But it is the thing which does

the trick, and eventually should result in killing all

the cryptic intracellular sources of reinfection--

over a long time period. In his protocol you are

gearing for being on the full course without herxing,

then dropping back to a once a month course of abx

combo (I think it's 7 or 10 days) with 5 days of the

flagyl, and doing that for a while to catch any missed

organisms. The combo of abx to drive the organism into

the cryptic phase, and the bactericidal (and

intracellular) impact of the flagyl is crucial both

for the kill, and for preventing resistance. As

Stratton says in his article of the same name: Dead

Bugs Don't Mutate.

Should be a bumper sticker.

Jim

Message: 7

Date: Fri, 22 Apr 2005 23:50:35 -0700 (PDT)

From: Marie Mayberry <msmabrry@...>

Subject: Re: Update, Stratton protocol.

Doctors orders. I have to look it up but I think the

treatment plan is to increase it as the herxes become

more tolerable.This was my first trial on Flagyl. I am

told the herxes are worse with Flagyl than the other

antibiotics and so far that has been true for me.

Rifampin was rough at first too which gave me severe

neck and shoulder pain for a few days. I think

Rifampin also begins to chase the cryptic bugs out.

Anyone who knows more about this than I do jump in

here.

Marie

--- jim davis <jimd85379@...> wrote:

> Question, why were you taking flagyl for five days a

> month an not on a daily basis? Jim

[Guest guest]

whats your B12 intake at the moment?

> The main reason you pulse the flagyl (Wheldon says to

> work up to three doses a day for 5 days, once per

> month) is that it is a hard drug to tolerate for more

> than that: both from the herx and from the toxic

> quality (nausea, etc) of the drug itself. The pulsing

> allows winnowing down the cryptic intracellular bugs

> over time while minimizing the toxic effects.

>

> Personally, I can't imagine doing it three times a

> day, and can tolerate only 3 days at a time, so I'm

> doing those three days once every week (on the

> weekends) and will stretch out the intervals as I can

> tolerate it for more days. When I first started with

> the flagyl I felt a big relief, as if some load or

> drain were being taken off my system. I got some herx,

> but tolerable, since I had been on abx for three

> months by that time. Today (this is about my 5th or

> 6th flagyl cycle) I feel like crap! Big herx, nausea,

> achey, brain fog, flattened and depressed affect.

>

> I don't know if it's just getting at deeper layers, or

> the niacinamide is potentiating it's effect, or what.

> We'll see.

>

> I do remember sinus and joint pain flareup from some

> cycles of the flagyl, all tissues readily colonized by

> Cpn and other bugs, so I sympathize. Wheldon comments

> over and over that the herx from adding flagyl is

> significant, and one must be slow and cautious if your

> tissue load is high. But it is the thing which does

> the trick, and eventually should result in killing all

> the cryptic intracellular sources of reinfection--

> over a long time period. In his protocol you are

> gearing for being on the full course without herxing,

> then dropping back to a once a month course of abx

> combo (I think it's 7 or 10 days) with 5 days of the

> flagyl, and doing that for a while to catch any missed

> organisms. The combo of abx to drive the organism into

> the cryptic phase, and the bactericidal (and

> intracellular) impact of the flagyl is crucial both

> for the kill, and for preventing resistance. As

> Stratton says in his article of the same name: Dead

> Bugs Don't Mutate.

> Should be a bumper sticker.

> Jim

>

> Message: 7        

>    Date: Fri, 22 Apr 2005 23:50:35 -0700 (PDT)

>    From: Marie Mayberry <msmabrry@...>

> Subject: Re: Update, Stratton protocol.

>

> Doctors orders. I have to look it up but I think the

> treatment plan is to increase it as the herxes become

> more tolerable.This was my first trial on Flagyl. I am

> told the herxes are worse with Flagyl than the other

> antibiotics and so far that has been true for me.

> Rifampin was rough at first too which gave me severe

> neck and shoulder pain for a few days. I think

> Rifampin also begins to chase the cryptic bugs out.

>

> Anyone who knows more about this than I do jump in

> here.

> Marie

>

>

> --- jim davis <jimd85379@...> wrote:

> > Question, why were you taking flagyl for five days a

> > month an not on a daily basis?  Jim

>

>

[Guest guest]

Thanks Jim, I do have the Stratton paper but it is

pretty deep for me to dig into in my foggy state.

Marie

--- Jim Kepner <jimk192002@...> wrote:

> The main reason you pulse the flagyl (Wheldon says

> to

> work up to three doses a day for 5 days, once per

> month) is that it is a hard drug to tolerate for

> more

> than that: both from the herx and from the toxic

> quality (nausea, etc) of the drug itself. The

> pulsing

> allows winnowing down the cryptic intracellular bugs

> over time while minimizing the toxic effects.

>

> Personally, I can't imagine doing it three times a

> day, and can tolerate only 3 days at a time, so I'm

> doing those three days once every week (on the

> weekends) and will stretch out the intervals as I

> can

> tolerate it for more days. When I first started with

> the flagyl I felt a big relief, as if some load or

> drain were being taken off my system. I got some

> herx,

> but tolerable, since I had been on abx for three

> months by that time. Today (this is about my 5th or

> 6th flagyl cycle) I feel like crap! Big herx,

> nausea,

> achey, brain fog, flattened and depressed affect.

>

> I don't know if it's just getting at deeper layers,

> or

> the niacinamide is potentiating it's effect, or

> what.

> We'll see.

>

> I do remember sinus and joint pain flareup from some

> cycles of the flagyl, all tissues readily colonized

> by

> Cpn and other bugs, so I sympathize. Wheldon

> comments

> over and over that the herx from adding flagyl is

> significant, and one must be slow and cautious if

> your

> tissue load is high. But it is the thing which does

> the trick, and eventually should result in killing

> all

> the cryptic intracellular sources of reinfection--

> over a long time period. In his protocol you are

> gearing for being on the full course without

> herxing,

> then dropping back to a once a month course of abx

> combo (I think it's 7 or 10 days) with 5 days of the

> flagyl, and doing that for a while to catch any

> missed

> organisms. The combo of abx to drive the organism

> into

> the cryptic phase, and the bactericidal (and

> intracellular) impact of the flagyl is crucial both

> for the kill, and for preventing resistance. As

> Stratton says in his article of the same name: Dead

> Bugs Don't Mutate.

> Should be a bumper sticker.

> Jim

>

> Message: 7

> Date: Fri, 22 Apr 2005 23:50:35 -0700 (PDT)

> From: Marie Mayberry <msmabrry@...>

> Subject: Re: Update, Stratton protocol.

>

> Doctors orders. I have to look it up but I think the

> treatment plan is to increase it as the herxes

> become

> more tolerable.This was my first trial on Flagyl. I

> am

> told the herxes are worse with Flagyl than the other

> antibiotics and so far that has been true for me.

> Rifampin was rough at first too which gave me severe

> neck and shoulder pain for a few days. I think

> Rifampin also begins to chase the cryptic bugs out.

>

> Anyone who knows more about this than I do jump in

> here.

> Marie

>

>

> --- jim davis <jimd85379@...> wrote:

> > Question, why were you taking flagyl for five days

> a

> > month an not on a daily basis? Jim

>

__________________________________________________