Ho-Down at La Clinque De Hodologica

[Guest guest]

Marie Mayberry wrote:

" Sounds wonderful. What can I do? "

I could use someone to help me teach the group how to do the

Myoclonic Mambo, my very own original dance step. Will you Mambo

with me, Marie?

Also, I have kind of a platonic crush on you. So I would be very

content if you just came and let me beam approvingly in your general

direction.

Then too, you are about the kindest, best-behaved member here, so

perhaps you could give us all a course in proper manners. Lord knows

I could use it.

But I suspect there is something else, a special Marie Mayberry gift

that we will only discover when we are all together at Le Clinique

De Hodologica.

I used to love to cook. Perhaps the two of us could join Agent Blue

in the kitchen! If we don't, I fear it will be oysters, oysters,

oysters, for breakfast, lunch and dinner.

Your question reminds me, Marie, that I have been hoping to get to

know you better. It feels so right, having you here on I & I!

OK, not much of an answer, but hey, I got to flirt!

Your friend and co-conspirator,

Marie Mayberry wrote:

> Sounds wonderful. What can I do?

> --- Schaafsma <compucruz@y...> wrote:

> >

> > You're on a roll with these MS posts. I agree with

> > you, there are

> > hopeful signs in that article.

> >

> > Speaking of hope...I hope you turn into one of those

> > researchers who

> > leads a double life as a clinican. I look forward to

> > taking my cure

> > at La Clinique De Hodologica.

> >

> > I see the whole gang of us enjoying a round of

> > suped-up Myers

> > Cocktails in the Sun Room, while Jill renews our

> > fighting spirits by

> > whacking the hell out of a giant, spirochete-shaped

> > pinata, leading

> > the room in a chant of " Die, hell-worm, die! "

> >

> > Of course, some patients may become overstimulated,

> > a condition

> > Nelly and I will remedy by reciting the

> > pharmaceutical names of

> > every drug that ever gave either of us a migraine.

> >

> > Then it will be nap-time, and Penny will come to

> > tuck us all in and

> > spritz our sinuses with her patented blend of

> > Clorox, jasmine tea

> > and holy water.

> >

> > As our bugs give up the ghost, we will dream happy

> > dreams, knowing

> > that Dr. Hodologica will be there in the morning to

> > make his rounds

> > and complement us all on our most excellent

> > progress.

> >

> > You think I jest, but as I write this Agent Bleu is

> > scouting

> > locations and lining up a steady supply of fresh

> > oysters for the

> > Hyperbaric Oxygen Lounge & Snack Bar.

> >

> > La Clinique De Hodologica is a fait accomplit.

> >

> > (In fact, the Unnameable One has already filed a

> > lawsuit to shut it

> > down. Not to worry, Ken has filed a countersuit,

> > with damages steep

> > enough to keep us in oysters for decades).

> >

> > Just remember, if anyone asks, yes, you take

> > MediCal.

> >

> > Voila. C'est vrais. *Insert mangled french phrase of

> > your choice*

> >

> > Yessir, I believe we can do it.

> >

> > Scha

> >

> >

> >

> > >

> > > http://www.pubmedcentral.gov/articlerender.fcgi?

> > tool=pmcentrez & artid=521993

> > >

> > > Interesting stuff - one must be open minded to it.

> >

> > >

> > > But, " the MS community has tried for decades to

> > fit MS into the

> > > experimental autoimmune encephalitis box and when

> > all is said and

> > > done, it just does not fit, " opines an editorial

> > in the issue of

> > > ls of Neurology that carried the 2004 Barnett

> > and Prineas

> > finding

> > > that oligodendrocyte death precedes inflammation

> > in quite possibly

> > all

> > > lesions.

> > >

> > > Its encouraging that a statement like that can be

> > published in what

> > > looks like(?) " the " MS journal. It doesnt seem the

> > surprising 2004

> > > finding is being ignored or marginalized, and

> > hopefully followup

> > is on

> > > the way.

> >

> >

> >

> >

>

> __________________________________________________

>

[Guest guest]

Yeah, right! Clinic my butt. Ive been so screwed up with various

personal issues and stuff that I havent even been on top of the

research for my own regime, to properly apply myself to tx decisions

that could possibly make my fate. I feel totally slovenly about it.

Once you weigh everything applicable to your decisions for the 15th

time, theres often still a big element of crapshoot left, just as Barb

says. These days I'm basically crapshooting to figure out what

crapshoot to shoot in... I need to get back to the level of

thoroughness where youre dealing with just one level of crapshoot.

[Guest guest]

all this " CRAPshoot " " clinic my BUTT " talk is making my bowels

irritable. Oh wait, no, they're always irritable. :-D

Yep. The Art of the Crapshoot is not for sissies. No wonder I'm

flailing!

Kidding. I'm actually kinda butch. Us guys with shrinking brains who

slather themselves with testosterone usually are.

This peristent doubt about the best way to proceed is a real bummer.

But I prefer to keep it, rather than try to instill a false sense of

confidence about some half-arsed treatment. Most Lyme treatments are

half-arsed. When you're dealing with Lyme, a whole arse isn't easy to

come by, unless it's yours, and its getting kicked.

To me, the awfulness of it has acquired a kind of bizarre familiarity,

that adds a comic element. I mean, I have died a thousand deaths here,

and I'm just warming up. Like a damn Weeble, I wobble but I don't fall

down.

Well, ok, I do fall down. But not, like, daily or anything. Not even

every-other-daily. Just the occasional inadvertent gravitational event.

What I find hardest is how much energy I am required to exert to

pursue the choices I make. These buggers would be wearing me out, if I

weren't worn out already. When you add to this the fact that my

choices may turn out not to add up to recovery, it is hard not to feel

like a hamster in his cage, keeping the wheel spinning by running in

place.

In my case, a brain-addled, pain-riddled, herxheimer-hell hamster,

made horribly dizzy by the plodding motion of his own aching feet.

Like a true lab rodent, I am fed pellets, poked with needles,

subjected to all sorts of dubious and unpleasant experiments. It often

feels like a rehearsal for an autopsy.

The uncertainty feels very extreme to me, in my own case. Like not

knowing if I'm preparing to recover or approaching my expiration

date. It's its own kind of woe. And also whoa. Whoa is definitely me.

Still, all your disclaimers aside, I'd have you for a doctor in a hot

minute.

If I weren't me, I'd say " Don't be glum, chum. "

Since I am me, I think I'll just pass you an oyster and pretend this

twitch in my left eye is really a playful wink.

Yep.

>

> Yeah, right! Clinic my butt. Ive been so screwed up with various

> personal issues and stuff that I havent even been on top of the

> research for my own regime, to properly apply myself to tx decisions

> that could possibly make my fate. I feel totally slovenly about it.

> Once you weigh everything applicable to your decisions for the 15th

> time, theres often still a big element of crapshoot left, just as

Barb

> says. These days I'm basically crapshooting to figure out what

> crapshoot to shoot in... I need to get back to the level of

> thoroughness where youre dealing with just one level of crapshoot.

[Guest guest]

--- Schaafsma <compucruz@...> wrote:

>

> Marie Mayberry wrote:

> " Sounds wonderful. What can I do? "

>

>

> I could use someone to help me teach the group how

> to do the

> Myoclonic Mambo, my very own original dance step.

> Will you Mambo

> with me, Marie?

,

Sure let's dance. I have to warn you that My-oclonic

Mambo has a life of it's own so it maybe hard to

synchronize. Oh, and did I mention My-oclonic usually

happens when I'm in bed. So let's hope My-oclonic

behaves itself.... Oh, what the heck, we can do the

voo doo version and let the spirits control us and

break out in wild pulsating movement, hearing only the

rythyms within us. The stimulation of the party will

help with that of course.

>

> Also, I have kind of a platonic crush on you. So I

> would be very

> content if you just came and let me beam approvingly

> in your general

> direction.

Aw, shucks, (Blush). The feeling is mutual.

>

> Then too, you are about the kindest, best-behaved

> member here, so

> perhaps you could give us all a course in proper

> manners. Lord knows

> I could use it

>

> But I suspect there is something else, a special

> Marie Mayberry gift

> that we will only discover when we are all together

> at Le Clinique

> De Hodologica.

I can decorate. I will plaster the walls with a

collage of journal articles and pictures of

luminescent pathogens hang mirrored balls from the

ceiling.

>

> I used to love to cook. Perhaps the two of us could

> join Agent Blue

> in the kitchen! If we don't, I fear it will be

> oysters, oysters,

> oysters, for breakfast, lunch and dinner.

Oh, sorry, I quit cooking when my children left home

but I can whip up a mean antibiotic cocktail.

>

> Your question reminds me, Marie, that I have been

> hoping to get to

> know you better. It feels so right, having you here

> on I & I!

I know I stay a bit in the background. Partly because

that is the way I am in non cyber social settings as

well and partly because I am humbled by the knowledge

everyone else has. I have a lot of personal

experience with I & I and I'm acummulating a lot of

experience with the Stratton Protocol so I will keep

posting. Very happy to be here.

>

> OK, not much of an answer, but hey, I got to flirt!

>

> Your friend and co-conspirator,

>

>

HUGS, I am very happy to be here.

Marie

>

> Marie Mayberry wrote:

> > Sounds wonderful. What can I do?

> > --- Schaafsma <compucruz@y...> wrote:

> > >

> > > You're on a roll with these MS posts. I agree

> with

> > > you, there are

> > > hopeful signs in that article.

> > >

> > > Speaking of hope...I hope you turn into one of

> those

> > > researchers who

> > > leads a double life as a clinican. I look

> forward to

> > > taking my cure

> > > at La Clinique De Hodologica.

> > >

> > > I see the whole gang of us enjoying a round of

> > > suped-up Myers

> > > Cocktails in the Sun Room, while Jill renews our

> > > fighting spirits by

> > > whacking the hell out of a giant,

> spirochete-shaped

> > > pinata, leading

> > > the room in a chant of " Die, hell-worm, die! "

> > >

> > > Of course, some patients may become

> overstimulated,

> > > a condition

> > > Nelly and I will remedy by reciting the

> > > pharmaceutical names of

> > > every drug that ever gave either of us a

> migraine.

> > >

> > > Then it will be nap-time, and Penny will come to

> > > tuck us all in and

> > > spritz our sinuses with her patented blend of

> > > Clorox, jasmine tea

> > > and holy water.

> > >

> > > As our bugs give up the ghost, we will dream

> happy

> > > dreams, knowing

> > > that Dr. Hodologica will be there in the morning

> to

> > > make his rounds

> > > and complement us all on our most excellent

> > > progress.

> > >

> > > You think I jest, but as I write this Agent Bleu

> is

> > > scouting

> > > locations and lining up a steady supply of fresh

> > > oysters for the

> > > Hyperbaric Oxygen Lounge & Snack Bar.

> > >

> > > La Clinique De Hodologica is a fait accomplit.

> > >

> > > (In fact, the Unnameable One has already filed a

> > > lawsuit to shut it

> > > down. Not to worry, Ken has filed a countersuit,

> > > with damages steep

> > > enough to keep us in oysters for decades).

> > >

> > > Just remember, if anyone asks, yes, you take

> > > MediCal.

> > >

> > > Voila. C'est vrais. *Insert mangled french

> phrase of

> > > your choice*

> > >

> > > Yessir, I believe we can do it.

> > >

> > > Scha

> > >

> > >

> > >

> > > >

> > > >

> http://www.pubmedcentral.gov/articlerender.fcgi?

> > > tool=pmcentrez & artid=521993

> > > >

> > > > Interesting stuff - one must be open minded to

> it.

> > >

> > > >

> > > > But, " the MS community has tried for decades

> to

> > > fit MS into the

> > > > experimental autoimmune encephalitis box and

> when

> > > all is said and

> > > > done, it just does not fit, " opines an

> editorial

> > > in the issue of

> > > > ls of Neurology that carried the 2004

> Barnett

> > > and Prineas

> > > finding

> > > > that oligodendrocyte death precedes

> inflammation

> > > in quite possibly

> > > all

> > > > lesions.

> > > >

> > > > Its encouraging that a statement like that can

> be

> > > published in what

> > > > looks like(?) " the " MS journal. It doesnt seem

> the

> > > surprising 2004

> > > > finding is being ignored or marginalized, and

> > > hopefully followup

> > > is on

> > > > the way.

> > >

> > >

> > >

> > >

> >

> > __________________________________________________

> >