Re: online paper summarizing MS autoimmunity studies

[Guest guest]

You're on a roll with these MS posts. I agree with you, there are

hopeful signs in that article.

Speaking of hope...I hope you turn into one of those researchers who

leads a double life as a clinican. I look forward to taking my cure

at La Clinique De Hodologica.

I see the whole gang of us enjoying a round of suped-up Myers

Cocktails in the Sun Room, while Jill renews our fighting spirits by

whacking the hell out of a giant, spirochete-shaped pinata, leading

the room in a chant of " Die, hell-worm, die! "

Of course, some patients may become overstimulated, a condition

Nelly and I will remedy by reciting the pharmaceutical names of

every drug that ever gave either of us a migraine.

Then it will be nap-time, and Penny will come to tuck us all in and

spritz our sinuses with her patented blend of Clorox, jasmine tea

and holy water.

As our bugs give up the ghost, we will dream happy dreams, knowing

that Dr. Hodologica will be there in the morning to make his rounds

and complement us all on our most excellent progress.

You think I jest, but as I write this Agent Bleu is scouting

locations and lining up a steady supply of fresh oysters for the

Hyperbaric Oxygen Lounge & Snack Bar.

La Clinique De Hodologica is a fait accomplit.

(In fact, the Unnameable One has already filed a lawsuit to shut it

down. Not to worry, Ken has filed a countersuit, with damages steep

enough to keep us in oysters for decades).

Just remember, if anyone asks, yes, you take MediCal.

Voila. C'est vrais. *Insert mangled french phrase of your choice*

Yessir, I believe we can do it.

Scha

>

> http://www.pubmedcentral.gov/articlerender.fcgi?

tool=pmcentrez & artid=521993

>

> Interesting stuff - one must be open minded to it.

>

> But, " the MS community has tried for decades to fit MS into the

> experimental autoimmune encephalitis box and when all is said and

> done, it just does not fit, " opines an editorial in the issue of

> ls of Neurology that carried the 2004 Barnett and Prineas

finding

> that oligodendrocyte death precedes inflammation in quite possibly

all

> lesions.

>

> Its encouraging that a statement like that can be published in what

> looks like(?) " the " MS journal. It doesnt seem the surprising 2004

> finding is being ignored or marginalized, and hopefully followup

is on

> the way.

[Guest guest]

LOL, . BTW I didn't think you had any sort of outburst. What are

your favorite lists for if not to vent, imagine, poeticize, complain

and sometimes wallow in pathos, bathos, or the slithy toves?

you are funny, too.

I was chagrined last night when talking to an acquaintance who lives

in Guilford Connecticut and works on wall street and started to spill

some personal troubles in his marriage and then added, I have health

problems and she has no sympathy. So I said what health problems. ANd

he said " I have ms, for 8 years now. " I said, " You do not have ms,

you have lyme disease. " I was very adamant about it and he was taken

aback and I gave him the name of a famous LLMD about an hour from

where he lives and he said he'll do it. I said you may go through

some rough times when killing it off. HE said if there's light at the

tunnel that's all I ask. He is now on MS drugs plus sometimes

steroids. His case is not all that bad imo as he works full time and

travels and I think he is the type with a strong enough constitution

he could get well on antibiotics/antimalarials.

But at the same time I felt very good I had hopefully helped rescue

one person's life, I also got very bummed out. I am horrified and

depressed and frightened by the amount of morbidity out there from

these infections that is misdiagnosed.

PAUL DID YOU CALL THOSE HYPERBARIC PLACES YET?

> >

> > http://www.pubmedcentral.gov/articlerender.fcgi?

> tool=pmcentrez & artid=521993

> >

> > Interesting stuff - one must be open minded to it.

> >

> > But, " the MS community has tried for decades to fit MS into the

> > experimental autoimmune encephalitis box and when all is said and

> > done, it just does not fit, " opines an editorial in the issue of

> > ls of Neurology that carried the 2004 Barnett and Prineas

> finding

> > that oligodendrocyte death precedes inflammation in quite

possibly

> all

> > lesions.

> >

> > Its encouraging that a statement like that can be published in

what

> > looks like(?) " the " MS journal. It doesnt seem the surprising 2004

> > finding is being ignored or marginalized, and hopefully followup

> is on

> > the way.

[Guest guest]

Not yet, your Jillness, but bear with me. I have been going just as

fast as I can. The guy in SF is possible, the rest too far.

I can barely tolerate one or two trips out a month, but am now

preparing to embark on three or four times that number in the next

few weeks. Pain clinic, neuro tests, visits to LLMD and Dr. C.

By the end of the day tomorrow, I'll know something more about what

is scheduled when. If I'm lucky, I can time the Hyperbaric tryout to

coincide with an evoked potentials test to be performed by the MS

team at UCSF, reducing two trips to one.

If I haven't told you I've got it scheduled by the middle of next

week, ya better prod me again. Of course, if I manage to get to the

darn thing, and it malfunctions and my head explodes, I will not

hold you responsible. (And hey, at least they'll have a convenient

container for disposing of the mess).

You're a love to keep after me.

Da Pope

> > >

> > > http://www.pubmedcentral.gov/articlerender.fcgi?

> > tool=pmcentrez & artid=521993

> > >

> > > Interesting stuff - one must be open minded to it.

> > >

> > > But, " the MS community has tried for decades to fit MS into the

> > > experimental autoimmune encephalitis box and when all is said

and

> > > done, it just does not fit, " opines an editorial in the issue

of

> > > ls of Neurology that carried the 2004 Barnett and Prineas

> > finding

> > > that oligodendrocyte death precedes inflammation in quite

> possibly

> > all

> > > lesions.

> > >

> > > Its encouraging that a statement like that can be published in

> what

> > > looks like(?) " the " MS journal. It doesnt seem the surprising

2004

> > > finding is being ignored or marginalized, and hopefully

followup

> > is on

> > > the way.