Re: Today's Visit to a New Neurologist--IVIG

[Guest guest]

I use IVIg altho only about 5 grams, I do react to that, have to do

it very slowly. I tried gamunex last time and got a migraine (before

have been using gammagard). I do find it helpful and I suppose if I

could tolerate higher doses it would be more helpful but I am very

sensitive, and besides, I drip so slowly it takeshours. I may try 10

grams, I've done that much occsionally. I think it would help ,.

, I mentioned ina private email that I reallythink you should

check out hyperbaric.There must be someone witha portable chamber in

the area (you don't really need deep dives imo). The maker of the

portables is oxyhealth and they can be googled on the web and called

in southern california and fnd you a practitioner in santa cruz area

(sorry for the typos i'm on a teeny laptop at the moment)

it has been very helpful in chrnic pain syndromes, such as reflex

sympathetic dystrophy; is known as a good gtreatment for brain trauma

and thus i think would help with that aspect of lyme for you and

perhaps with the seizures, and is supportive to the whole system.

the drugs are very hard on a compromised system...hypebaric helps in

so many ways. i think the portables are sufficient and wish i'd never

done the deepdives in clinics but i didn't know about portables back

then.

the other day when i got the sick migraine or lymegraine or whatever

it was from the gamunex and was in pain an dnausoues and generally

feeling horrible, i got in my chamber for 45 minutes. i not only

started to feel better in it, the headache abated over the afternoon,

as hyperbaric always makes it go away (i don't get them too often

anymore)

its not a cure for lyme but when people are in severe pain or really

in bad shape it is so helpful