Re: More from Dr. Schardt/nystatin//Penny//Sinuses

[Guest guest]

Penny mentioned sinuses and it reminded me of a Dr. in New York that

is a " sinus medicine specialist " , like internal medicine except for

the sinuses. I have looked for someone else with this title and I

think he is the only one. His name is Dr. Wellington Tichenor.

www.sinuses.com

He talks in his website about some doctors not paying much attention

to flora as being a mistake. He is an advocate for the correct

combination of abx may it be two, three or more, and for long term,

for example, " ...12 weeks {or longer}. I read that he spends two

initial hours with each new patient in an attempt to gain a complete

understanding of their disease profile.

> > Actually Penny, I couldn't agree with you less.

>

> Yeah, well I'm used to that. I've been to quite a few doctors. :-)

>

> I don't recall a post mentioning the systemic benefits of

Nystatin,

> or I didn't interpret it that way. If I recall, someone made the

> assumption about systemic benefits being claimed, but the

assertion

> was never made.

>

> And perhaps you weren't aware, being kind of new, that this is not

> an exclusively lyme board. It's an " infection " board. At least

that

> was my intention when I created it. And that's why I called it

> Infection & Inflammation.

>

> I've ALWAYS, for years, been concerned that people might get too

> fixated on one organism while letting others get by them. I was

just

> happy though, that people at least started accepting the premise

> that infection might be the cause of these chronic illnesses, and

> that people were recognizing the similarities between other

chronic

> illnesses, like CFS, FMS RA, lyme disease, etc. and how they all

> respond to abx treatment.

>

> I've always been open to the lyme theories even though I haven't

> tested positive for it myself. I found a lot more helpful info on

> the lyme boards than I did on the CFS boards, since no one

believed

> until recently that CFS could possibly be caused by bacteria. I

even

> suspect that I may have BB. I KNOW for sure, from lab testing,

that

> I've got several toxic staphs and pseudomonas and a few other

nasty

> organisms in places where they're not supposed to be and that my

> health responds positively when I treat them with ABX. AT first I

> was dx'd dx'd with CFS, FMS, (and numerous other ailments) and

then

> I was dx'd with chronic osteomyeltis (bone infection). I know

> definitively that I've got staph aureus in the bone (number one

> cause of osteomyelitis), which is very bad. I've got it in my

> sinuses as well. Along with pseudomonas. I may have BB in the bone

> too, but if I can't kill the abx resistant staph, knowing I have

BB

> isn't going to help me all that much. Especially if I can't be

100%

> confident in the BB test results, but CAN be 100% confident in the

> staph test results.

>

> Most people don't test for these other organisms, even though

> they're much easier to test for (if you can convince a doc or a

lab

> to test for them). Unfortunately, most labs throw a lot of stuff

out

> as " normal flora " despite their abx resistance and their toxicity,

> and the scientific literature which supports that these organisms

> cause chronic illness. Since doctors today know so very little

about

> bacteria, we have to advocate for ourselves to get these tests

done.

> But since everyone's so blinded by the " lyme light " most people

> aren't even interested in looking at the research, let alone get

> tested, for the other, more common, infectious bugs, or in looking

> at how they're negatively affecting our health. I was ecstatic

when

> Dr. Shoemaker came out saying that if you don't treat the staph

(or

> the mold) first, you're not going to get the lyme.

>

> I just keep bringing it up as a reminder, the sole voice in the

> wilderness, because nobody else does. I was talking infection on

the

> CFS/FMS boards years ago and getting criticized heavily for it

> (while Tony was being banned). Now it's an accepted theory, but

it's

> all about lyme now. One dogma gets traded for another. The narrow

> focus and lack of open mindedness to new theories is why I went

> pretty quiet for a long time, and spent more time on boards where

> people are dx'd and treated for actual, medically recognized

> infections, like osteomyelitis. That was until the whole A-CID

thing

> came to light, and I was compelled to become actively involved

again

> by setting up a group to explore the issue.

>

> If you go to other forums which deal with other dx's caused by

> different kinds of known chronic infections, and recognize the

> similarities in the symptoms of our illnesses, you start realizing

> that Lyme may not be the only nasty bug in the world. I think

> ignoring the other infectious possibilities is hurting our chances

> for recovery, but that's just my opinion.

>

> I just want people to try to be at least a little open minded to

the

> possibilities.

>

> Also, I HAVE had many SMOKY MOUNTAIN tests done, I'm not sure why

> you'd assume I haven't?

>

> penny

[Guest guest]

" drgaftop " wrote: Penny mentioned sinuses and it reminded me of a

Dr. in New York that is a " sinus medicine specialist " , like internal

medicine except for the sinuses. I have looked for someone else

with this title and I think he is the only one. His name is Dr.

Wellington Tichenor. > www.sinuses.com

Wow, great site! That doctor should be made a saint, or a knight or

something. :-) That's how rare he is in his approach.

I've recently heard of a really good ENT here locally, too, who also

believes that these chronic infections are causing severely

debilitating chronic illnesses. She's a rare one, will actually do

the lab work and treat with abx, rather than go straight for surgery

(where the money is), which is what every ENT I've ever encountered

has advocated. They're not in the least bit interested in the

organisms.

I'm definitely going to see her, at least to have one more doc on my

side, but I've been too fatigued. I'm only starting to get my energy

back after being totally sidelined by that cold/upper Respiratory

thing I had for over a month. Today, my energy's been really good

(for a PWC). But that's when I overdo, and then I crash, and I just

don't recover from the crashes like I used to, so I've got to try to

be careful. Usually, seeing doctors really depresses and drains

me. :-( But like I've said, this ENT in Del Mar sounds good. Hey,

one on each coast. Better than zero. :-)

penny

[Guest guest]

Keep in mind that Dr. Tichenor is not an ENT. He does however have a

list that he works with in unison.

Penny mentioned sinuses and it reminded me of a

> Dr. in New York that is a " sinus medicine specialist " , like

internal

> medicine except for the sinuses. I have looked for someone else

> with this title and I think he is the only one. His name is Dr.

> Wellington Tichenor. > www.sinuses.com

>

>

> Wow, great site! That doctor should be made a saint, or a knight

or

> something. :-) That's how rare he is in his approach.

>

> I've recently heard of a really good ENT here locally, too, who

also

> believes that these chronic infections are causing severely

> debilitating chronic illnesses. She's a rare one, will actually do

> the lab work and treat with abx, rather than go straight for

surgery

> (where the money is), which is what every ENT I've ever

encountered

> has advocated. They're not in the least bit interested in the

> organisms.

>

> I'm definitely going to see her, at least to have one more doc on

my

> side, but I've been too fatigued. I'm only starting to get my

energy

> back after being totally sidelined by that cold/upper Respiratory

> thing I had for over a month. Today, my energy's been really good

> (for a PWC). But that's when I overdo, and then I crash, and I

just

> don't recover from the crashes like I used to, so I've got to try

to

> be careful. Usually, seeing doctors really depresses and drains

> me. :-( But like I've said, this ENT in Del Mar sounds good. Hey,

> one on each coast. Better than zero. :-)

>

> penny

[Guest guest]

drgaftop@y...> wrote:

> Keep in mind that Dr. Tichenor is not an ENT.

That's probably a good thing. Most ENTs are very focused on " surgery " .

I tried to go to only the " best " when I started looking for help. One

of the many ENTS I saw was the head of the department at a famous

local medical school. He told me, after my sinus scans showed massive

improvement on abx, that I STILL needed surgery. That it's

a " drainage " problem and that he's nothing but a " plumber " . And he

didn't care if my sinuses looked better or not. He also believed in

using only ONE abx - amoxycillin! (I'd been using others prescribed by

a different doctor), which just goes to show you, he doesn't know or

care a thing about the bacteria involved in the infection. And he's

the one teaching all those new ENTs who are preparing to take their

posts out here in the real world. Armed with a surgical drill and

amoxycillin for back up. :-(

What I can't fathom is that the vast majority of people I've talked

to, with a few exceptions, all say they got worst after sinus surgery,

and yet the medical establishment keeps allowing the surgeries anyway.

No demand for more information, more research on the infections

themselves, the organisms. If my doctor friend is correct, it's all

money driven, and surgery is the most profitable business in the

medical world.

Except for this new ENT I've been hearing raves about who seems quite

remarkable. I met a woman who was treated by her for a year with abx,

and finally beat her infection and her illness. This ENT actually

works with an I.D. doctor. This is amazing. Certainly nowhere near the

kind of money in treating with abx as there is in surgery. I've since

talked to another person who's been fighting chronic illness for a

long time, who also met with this ENT and she was also extremely

impressed. Says she totally " gets " the connection between chronic

infection and chronic illness. She doesn't think twice about getting

nasal swabs for guiding her treatment decisions and she listens to the

patient's feedback. I'm going to see her one of these days. My problem

is I also need to find an oral surgeon for my team, who has the same

kind of enlightened approach, because I need to have both areas dealt

with if I have a chance of beating it.

penny