Re: Update, Stratton protocol.

[Guest guest]

I had a similiar experience with flagyl. sinuses and head burned

like fire. neck hurt, foot hurt, shoulder hurt. took quite a bit for

a couple months before starting mino, then zith, now doxy. wish i

had some flagyl. it's good for pulsing to shake bugs up deep when

they are getting used to other abx. i had some about a month ago. my

dog had runs so the vet put her on flagyl. that night we found out

the dog had gotten into some chocolate, so, I took her flagyl away!

I just couldn't let it go to waste.

>

>

> Here to report on my latest experience with Flagyl.

>

> I took Flagyl a week ago for the first time.

>

> My Doc's orders are 2 500mg ea day for 5days one time ea month.

>

> The first day I took just one.

>

> Felt a little flu-ish, took some charcoal that seemed to help.

> Then 2 pills for the next 3 days.

>

> 2nd day I awoke with a raging headache and an obvious acute sinus

> infection, sore throat, swollen glands in neck. On the side I had

> forgotten to take guai for a few days so I believe my sinuses dried

> and didn't drain. I have had pan sinus surgery 4 times so lack the

> cilia to move things along without the guaifenisen. I am still

> recovering from that. I am exhausted and have only left the house a

> couple of times briefly in the past week. This could have been

> exacerbated by a herx as I have chronic sinusitis.

>

> Then on the 4th day my knee which has arthritis in it began

hurting.

> Had to run an errand so I was on my feet. By late afternoon I

called

> the Doc sobbing on the phone because the pain was so intense. Just

to

> put the pain in perspective, I have FMS and osteoarthritis so I

> live with pain most of the time and have never called the Doc

sobbing.

>

> I am so used to problem solving my own illness that I immediately

> blurted out that I thought maybe I should switch one of my

antibiotics

> to Minocycline since I had read here that it may have some

> anti-inflammatory properties.

>

> The Doc, was , WHOA! we need to take care of the immediate pain and

> inflammation first. We can talk about the antibiotics later. He

told

> me to take prednisone for a week and to D/C the Flagyl. I agreed

> reluctantly as I have had a bad experience with prednisone. That

> evening I took several doses of Vicodine as well. I never take

> Vicodine but I really felt I needed it.

>

> So for the past 4 days I have been on Prednisone. The effect is

that I

> just want to sleep. I feel like a limp rag. I guess this is good

> because even though I am hurting I always push myself and the past

few

> days there is no pushing.

>

> He told me that when I start the Flagyl again to just take one a

day.

>

> Wow, I guess that knee must have been full of those cryptic little

> devils. Don't want to go through that again soon. Hoping the next

herx

> won't be so bad.

>

> Marie

[Guest guest]

Question, why were you taking flagyl for five days a

month an not on a daily basis? Jim

--- msmabrry <msmabrry@...> wrote:

>

>

> Here to report on my latest experience with Flagyl.

>

> I took Flagyl a week ago for the first time.

>

> My Doc's orders are 2 500mg ea day for 5days one

> time ea month.

>

> The first day I took just one.

>

> Felt a little flu-ish, took some charcoal that

> seemed to help.

> Then 2 pills for the next 3 days.

>

> 2nd day I awoke with a raging headache and an

> obvious acute sinus

> infection, sore throat, swollen glands in neck. On

> the side I had

> forgotten to take guai for a few days so I believe

> my sinuses dried

> and didn't drain. I have had pan sinus surgery 4

> times so lack the

> cilia to move things along without the guaifenisen.

> I am still

> recovering from that. I am exhausted and have only

> left the house a

> couple of times briefly in the past week. This could

> have been

> exacerbated by a herx as I have chronic sinusitis.

>

> Then on the 4th day my knee which has arthritis in

> it began hurting.

> Had to run an errand so I was on my feet. By late

> afternoon I called

> the Doc sobbing on the phone because the pain was so

> intense. Just to

> put the pain in perspective, I have FMS and

> osteoarthritis so I

> live with pain most of the time and have never

> called the Doc sobbing.

>

> I am so used to problem solving my own illness that

> I immediately

> blurted out that I thought maybe I should switch one

> of my antibiotics

> to Minocycline since I had read here that it may

> have some

> anti-inflammatory properties.

>

> The Doc, was , WHOA! we need to take care of the

> immediate pain and

> inflammation first. We can talk about the

> antibiotics later. He told

> me to take prednisone for a week and to D/C the

> Flagyl. I agreed

> reluctantly as I have had a bad experience with

> prednisone. That

> evening I took several doses of Vicodine as well. I

> never take

> Vicodine but I really felt I needed it.

>

> So for the past 4 days I have been on Prednisone.

> The effect is that I

> just want to sleep. I feel like a limp rag. I guess

> this is good

> because even though I am hurting I always push

> myself and the past few

> days there is no pushing.

>

> He told me that when I start the Flagyl again to

> just take one a day.

>

> Wow, I guess that knee must have been full of those

> cryptic little

> devils. Don't want to go through that again soon.

> Hoping the next herx

> won't be so bad.

>

> Marie

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Doctors orders. I have to look it up but I think the

treatment plan is to increase it as the herxes become

more tolerable.This was my first trial on Flagyl. I am

told the herxes are worse with Flagyl than the other

antibiotics and so far that has been true for me.

Rifampin was rough at first too which gave me severe

neck and shoulder pain for a few days. I think

Rifampin also begins to chase the cryptic bugs out.

Anyone who knows more about this than I do jump in

here.

Marie

--- jim davis <jimd85379@...> wrote:

> Question, why were you taking flagyl for five days a

> month an not on a daily basis? Jim

>

>

> --- msmabrry <msmabrry@...> wrote:

> >

> >

> > Here to report on my latest experience with

> Flagyl.

> >

> > I took Flagyl a week ago for the first time.

> >

> > My Doc's orders are 2 500mg ea day for 5days one

> > time ea month.

> >

> > The first day I took just one.

> >

> > Felt a little flu-ish, took some charcoal that

> > seemed to help.

> > Then 2 pills for the next 3 days.

> >

> > 2nd day I awoke with a raging headache and an

> > obvious acute sinus

> > infection, sore throat, swollen glands in neck. On

> > the side I had

> > forgotten to take guai for a few days so I believe

> > my sinuses dried

> > and didn't drain. I have had pan sinus surgery 4

> > times so lack the

> > cilia to move things along without the

> guaifenisen.

> > I am still

> > recovering from that. I am exhausted and have only

> > left the house a

> > couple of times briefly in the past week. This

> could

> > have been

> > exacerbated by a herx as I have chronic sinusitis.

> >

> > Then on the 4th day my knee which has arthritis in

> > it began hurting.

> > Had to run an errand so I was on my feet. By late

> > afternoon I called

> > the Doc sobbing on the phone because the pain was

> so

> > intense. Just to

> > put the pain in perspective, I have FMS and

> > osteoarthritis so I

> > live with pain most of the time and have never

> > called the Doc sobbing.

> >

> > I am so used to problem solving my own illness

> that

> > I immediately

> > blurted out that I thought maybe I should switch

> one

> > of my antibiotics

> > to Minocycline since I had read here that it may

> > have some

> > anti-inflammatory properties.

> >

> > The Doc, was , WHOA! we need to take care of the

> > immediate pain and

> > inflammation first. We can talk about the

> > antibiotics later. He told

> > me to take prednisone for a week and to D/C the

> > Flagyl. I agreed

> > reluctantly as I have had a bad experience with

> > prednisone. That

> > evening I took several doses of Vicodine as well.

> I

> > never take

> > Vicodine but I really felt I needed it.

> >

> > So for the past 4 days I have been on Prednisone.

> > The effect is that I

> > just want to sleep. I feel like a limp rag. I

> guess

> > this is good

> > because even though I am hurting I always push

> > myself and the past few

> > days there is no pushing.

> >

> > He told me that when I start the Flagyl again to

> > just take one a day.

> >

> > Wow, I guess that knee must have been full of

> those

> > cryptic little

> > devils. Don't want to go through that again soon.

> > Hoping the next herx

> > won't be so bad.

> >

> > Marie

> >

> >

> >

> >

> >

> >

>

> __________________________________________________

>

[Guest guest]

As I said in a previous post, I have been doing a kind of Stratton protocol for the last 2 months. I don't want to cry victory too soon, so I'll be very prudent.

As some of you know, I have tried many abx regimens over the last 5 years and although many had a deep impact on my symptoms I either was not able to continue due to extreme reactions (mainly excrutiating headaches-actually they should be called something else-also increase of inflammation everywhere to the point where I thought it was dangerous) or to worrying drops in blood parameters (severe neutropenia with the penicillins and the cephalosporins) or to very mediocre to nil effects (clarythromycine even with plaquenil which made me catatonic).

I always noticed the most improvement with metronidazole/tinidazole but high price to pay in terms of HEADACHE and feeling toxic.

I also suspected that I needed to take abx that have good intracell penetration from the word go (I did the Jadin protocol in 99 but one week a month just wasn't enough for my level of infection which I am sure was massive), and it seems that a combo of 2 abx (macrolide and cycline at average levels each) is what is needed as per Stratton/Wheldon on a continuous basis, the short bursts of imidazoles once a month seem to be tolerable and might lead to a gradual erosion of the bacterial load without too much of a payoff.

I will keep updating if I have enough eye autonomy to do so.

Nelly

[Guest guest]

Thanks Nelly

This is really interesting we have 3 people on similar protocol. Jim,

yourself and Marie.

I would really like to keep an eye on you all.

BTW GF Headaches are going after being on Pristinamycine for about 5

days. Early signs are interesting.

On 23 Apr 2005, at 15:34, Nelly Pointis wrote:

> As I said in a previous post, I have been doing a kind of Stratton

> protocol for the last 2 months. I don't want to cry victory too soon,

> so I'll be very prudent.

>  

> As some of you know, I have tried  many abx regimens over the last 5

> years and although many had a deep impact on my symptoms I either was

> not able to continue due to extreme reactions (mainly excrutiating

> headaches-actually they should be called something else-also increase

> of inflammation everywhere to the point where I thought it was

> dangerous) or to worrying drops in blood parameters (severe

> neutropenia with the penicillins and the cephalosporins) or to very

> mediocre to nil effects (clarythromycine even with plaquenil which

> made me catatonic).

>  

> I always noticed the most improvement with metronidazole/tinidazole

> but high price to pay in terms of HEADACHE and feeling toxic.

>  

> I also suspected that I needed to take abx that have good intracell

> penetration from the word go (I did the Jadin protocol in 99 but one

> week a month just wasn't enough for my level of infection which I am

> sure was massive), and it seems that a combo of 2 abx (macrolide and

> cycline at average levels each) is what is needed as per

> Stratton/Wheldon on a continuous basis, the short bursts of imidazoles

> once a month seem to be tolerable and might lead to a gradual erosion

> of the bacterial load without too much of a payoff.

>  

> I will keep updating if I have enough eye autonomy to do so.

>  

> Nelly

>

>

[Guest guest]

How long have you used the imidazole (flagyl?). Once a

day or twice a day. Do I understand you to say you

think that pulsing the flagyl would not pay off in the

long run?

Marie

--- Nelly Pointis <janel@...> wrote:

> As I said in a previous post, I have been doing a

> kind of Stratton protocol for the last 2 months. I

> don't want to cry victory too soon, so I'll be very

> prudent.

>

> As some of you know, I have tried many abx regimens

> over the last 5 years and although many had a deep

> impact on my symptoms I either was not able to

> continue due to extreme reactions (mainly

> excrutiating headaches-actually they should be

> called something else-also increase of inflammation

> everywhere to the point where I thought it was

> dangerous) or to worrying drops in blood parameters

> (severe neutropenia with the penicillins and the

> cephalosporins) or to very mediocre to nil effects

> (clarythromycine even with plaquenil which made me

> catatonic).

>

> I always noticed the most improvement with

> metronidazole/tinidazole but high price to pay in

> terms of HEADACHE and feeling toxic.

>

> I also suspected that I needed to take abx that have

> good intracell penetration from the word go (I did

> the Jadin protocol in 99 but one week a month just

> wasn't enough for my level of infection which I am

> sure was massive), and it seems that a combo of 2

> abx (macrolide and cycline at average levels each)

> is what is needed as per Stratton/Wheldon on a

> continuous basis, the short bursts of imidazoles

> once a month seem to be tolerable and might lead to

> a gradual erosion of the bacterial load without too

> much of a payoff.

>

> I will keep updating if I have enough eye autonomy

> to do so.

>

> Nelly

__________________________________________________

[Guest guest]

I see my Doc this week. I am going to ask about his

recommendations for Flagyl again. Judging by my

reaction so far I don't know that I can tolerate it on

a continuous basis but since others are taking it that

way I want to know if that is his goal.

Marie

--- jim davis <jimd85379@...> wrote:

> Question, why were you taking flagyl for five days a

> month an not on a daily basis? Jim

>

>

> --- msmabrry <msmabrry@...> wrote:

> >

> >

> > Here to report on my latest experience with

> Flagyl.

> >

> > I took Flagyl a week ago for the first time.

> >

> > My Doc's orders are 2 500mg ea day for 5days one

> > time ea month.

> >

> > The first day I took just one.

> >

> > Felt a little flu-ish, took some charcoal that

> > seemed to help.

> > Then 2 pills for the next 3 days.

> >

> > 2nd day I awoke with a raging headache and an

> > obvious acute sinus

> > infection, sore throat, swollen glands in neck. On

> > the side I had

> > forgotten to take guai for a few days so I believe

> > my sinuses dried

> > and didn't drain. I have had pan sinus surgery 4

> > times so lack the

> > cilia to move things along without the

> guaifenisen.

> > I am still

> > recovering from that. I am exhausted and have only

> > left the house a

> > couple of times briefly in the past week. This

> could

> > have been

> > exacerbated by a herx as I have chronic sinusitis.

> >

> > Then on the 4th day my knee which has arthritis in

> > it began hurting.

> > Had to run an errand so I was on my feet. By late

> > afternoon I called

> > the Doc sobbing on the phone because the pain was

> so

> > intense. Just to

> > put the pain in perspective, I have FMS and

> > osteoarthritis so I

> > live with pain most of the time and have never

> > called the Doc sobbing.

> >

> > I am so used to problem solving my own illness

> that

> > I immediately

> > blurted out that I thought maybe I should switch

> one

> > of my antibiotics

> > to Minocycline since I had read here that it may

> > have some

> > anti-inflammatory properties.

> >

> > The Doc, was , WHOA! we need to take care of the

> > immediate pain and

> > inflammation first. We can talk about the

> > antibiotics later. He told

> > me to take prednisone for a week and to D/C the

> > Flagyl. I agreed

> > reluctantly as I have had a bad experience with

> > prednisone. That

> > evening I took several doses of Vicodine as well.

> I

> > never take

> > Vicodine but I really felt I needed it.

> >

> > So for the past 4 days I have been on Prednisone.

> > The effect is that I

> > just want to sleep. I feel like a limp rag. I

> guess

> > this is good

> > because even though I am hurting I always push

> > myself and the past few

> > days there is no pushing.

> >

> > He told me that when I start the Flagyl again to

> > just take one a day.

> >

> > Wow, I guess that knee must have been full of

> those

> > cryptic little

> > devils. Don't want to go through that again soon.

> > Hoping the next herx

> > won't be so bad.

> >

> > Marie

> >

> >

> >

> >

> >

> >

>

> __________________________________________________

>