Re: Heard back from an MS researcher - Rich/ -- GSH IV's

[Guest guest]

My, this is interesting. It's like getting another puzzle piece for

me!

Agent Schaa & I have joked that we are symptom twins. We both have

brain loss, seizures, tremors, visual distrubance, migraines, left

sides that decide not to cooperate, and the more " normal " symptoms of

CFS. However, I haven't the pain he experiences -- a big difference

there.

And I'm doing better on GSH IV's.

Maybe this research helps explain why I'm improving, and why it may

work for you too, .

Have I said what my doing " better " means here? If I have, forgive me

please, but here is part of what I wrote on CFSEx today, (where the

question was rasied as to whether anyone actually knew a " real "

person with severe CFS who recovered on GSH of any variety):

" Gluatathione IV's have FINALLY helped me to advance towards

recovery. I have been sick for over 11 years, and determined by SSA

to be totally disabled in 2002.

I had glutathione IV's recommended to me, and this year went after

them as a course of treatment. The positive effect I feel is brief,

and begins as a visual thing, where everything appears clearer and

more three dimensional. However, with consistent IV's (twice a week)

over several months I am finally gaining ground. I've gone from say,

a two, on a scale of 1-10, to a fairly consistent four. So major

improvement, but with lots of territory still to recover.

Now I am taking NAC, Acetyl-L-Carnitine, Betaine, B Complex with

extra Folic acid and methylcobalamin injections, 600 mg. CoQ10, fish

oil, low dose naltrexone, the items listed above [another lengthy

list] and more -- but I can tell the supplements are also doing more

for me. It seems the glutathione is necessary to have everything

begin to function.

I finally feel that I have a real chance to significantly recover my

life. As a Mom with three young children, this is just a wonderous

thought! "

I've halved my dose of Armour thyroid. I'm nearly off Cortef

altogether -- a huge feat for me.

I had tried in the past to raise GSH levels -- but never got

anywhere. I mean NO response whatsoever.* It is only the series of

IV's that has helped. It seems my body is so " hungry " for it, that it

constantly needs another infusion.

That is what it feels like for me. That the GSH provided leverage,

traction, a foundation -- something -- to " kick-start " my engine. Now

I am back to working on getting the mercury out of system, and I'm

better able to handle it.

It is way, way too early to proclaim victory, but not too early to

say I'm seeing progress.

I am glad you are going to push to get GSH IV's, scha!

*That is not quite accurate. The first GSH IV I had was several years

ago and it was mixed with ALA. It was a disaster.

> > > Don't ya love it when you write to these guys and they reply?

> I'm

> > > not sharing his name, he didn't give me permission and what he

> had

> > > to say is not so compelling that you need to have the

background.

> > >

> > > But it IS interesting. He had written about how a type of

> > glutamate

> > > receptor in the brain called " AMPA " contributes to the

> destruction

> > > of myelin, which is a key finding in MS, a finding in my very

> own

> > > brain MRI, and possibly a key cause of certain types of

> > neurological

> > > distress.

> > >

> > > I wrote him to ask if there were any drugs that blocked these

> > > receptors effectively without accompanying toxicity. He wrote

me

> > > back to say that there are none on the market but are some in

> > trials

> > > for Parkinson's disease - if they're approved, they will

> probably

> > be

> > > prescribed for MS as well.

> > >

> > > It's pretty fascinating stuff. the AMPA receptor, triggered by

> > > glutamate, apparently contributes to the death of

> > oligodendrocytes,

> > > which are the cells that myelin grows out of. This is one

reason

> > why

> > > glutamate build up in the brain is bad, and glutamate transport

> is

> > > is so important.

> > >

> > > Rich, if you're reading please let me know if I've mangled

> > something.

> > >

> > > Cheers all,

> > >

> > >

[Guest guest]

Jess

that dose of B12 are you sure about 600mg Injection? seems very very

high?

> My, this is interesting. It's like getting another puzzle piece for

> me!

>

> Agent Schaa & I have joked that we are symptom twins. We both have

> brain loss, seizures, tremors, visual distrubance, migraines, left

> sides that decide not to cooperate, and the more " normal " symptoms of

> CFS. However, I haven't the pain he experiences -- a big difference

> there. 

>

> And I'm doing better on GSH IV's.

>

> Maybe this research helps explain why I'm improving, and why it may

> work for you too, .

>

> Have I said what my doing " better " means here? If I have, forgive me

> please, but here is part of what I wrote on CFSEx today, (where the

> question was rasied as to whether anyone actually knew a " real "

> person with severe CFS who recovered on GSH of any variety):

>

> " Gluatathione IV's have FINALLY helped me to advance towards

> recovery. I have been sick for over 11 years, and determined by SSA

> to be totally disabled in 2002.

>

> I had glutathione IV's recommended to me, and this year went after

> them as a course of treatment. The positive effect I feel is brief,

> and begins as a visual thing, where everything appears clearer and

> more three dimensional. However, with consistent IV's (twice a week)

> over several months I am finally gaining ground. I've gone from say,

> a two, on a scale of 1-10, to a fairly consistent four. So major

> improvement, but with lots of territory still to recover.

>

> Now I am taking NAC, Acetyl-L-Carnitine, Betaine, B Complex with

> extra Folic acid and methylcobalamin injections, 600 mg. CoQ10, fish

> oil, low dose naltrexone, the items listed above [another lengthy

> list] and more -- but I can tell the supplements are also doing more

> for me. It seems the glutathione is necessary to have everything

> begin to function.

>

> I finally feel that I have a real chance to significantly recover my

> life. As a Mom with three young children, this is just a wonderous

> thought! "

>

> I've halved my dose of Armour thyroid. I'm nearly off Cortef

> altogether -- a huge feat for me.

>

> I had tried in the past to raise GSH levels -- but never got

> anywhere. I mean NO response whatsoever.*  It is only the series of

> IV's that has helped. It seems my body is so " hungry " for it, that it

> constantly needs another infusion.

>

> That is what it feels like for me. That the GSH provided leverage,

> traction, a foundation -- something -- to " kick-start " my engine. Now

> I am back to working on getting the mercury out of system, and I'm

> better able to handle it.

>

> It is way, way too early to proclaim victory, but not too early to

> say I'm seeing progress.

>

> I am glad you are going to push to get GSH IV's, scha!

>

>

>

>

> *That is not quite accurate. The first GSH IV I had was several years

> ago and it was mixed with ALA. It was a disaster.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> > > > Don't ya love it when you write to these guys and they reply?

> > I'm

> > > > not sharing his name, he didn't give me permission and what he

> > had

> > > > to say is not so compelling that you need to have the

> background.

> > > >

> > > > But it IS interesting. He had written about how a type of

> > > glutamate

> > > > receptor in the brain called " AMPA " contributes to the

> > destruction

> > > > of myelin, which is a key finding in MS, a finding in my very

> > own

> > > > brain MRI, and possibly a key cause of certain types of

> > > neurological

> > > > distress.

> > > >

> > > > I wrote him to ask if there were any drugs that blocked these

> > > > receptors effectively without accompanying toxicity. He wrote

> me

> > > > back to say that there are none on the market but are some in

> > > trials

> > > > for Parkinson's disease - if they're approved, they will

> > probably

> > > be

> > > > prescribed for MS as well.

> > > >

> > > > It's pretty fascinating stuff. the AMPA receptor, triggered by

> > > > glutamate, apparently contributes to the death of

> > > oligodendrocytes,

> > > > which are the cells that myelin grows out of. This is one

> reason

> > > why

> > > > glutamate build up in the brain is bad, and glutamate transport

> > is

> > > > is so important.

> > > >

> > > > Rich, if you're reading please let me know if I've mangled

> > > something.

> > > >

> > > > Cheers all,

> > > >

> > > >

>

>

>

>

>