Re: Update re:Dr. Appointment-Protection from endotoxin

[Guest guest]

Editing...

I don't know how my last sentence jumped up in them

middle of my post????? Changed to make a bit more

sense. I think. LOL

--- msmabrry <msmabrry@...> wrote:

> Saw my Dr. today.

>

> Here is what he is recommending for endotoxin

> protection.

>

> 1.Binding endotoxin and preventing recirculation.

>

> a. Charcoal tabs 10-12 two times a day. 10am 3pm

> and 8pm with

> acidophollis.

>

> b. High Fiber Diet.

>

> c. Enzymes before meals. He says lipase and

> amylase break down

> endotoxin in the intestines. He perscribed

> Pangestyme.

>

> 2.Block NF Kappa (I don't know what this means.) to

> decrease

> inflammation.

>

> a. Quercetin 500mg 3x daily. May be taken in Green

> Tea.

>

> b. Magnesium 400mg twice daily.

>

>

> c. Zinc 30mg daily.

>

> d. Selenium 100mcg.

>

> 3. Liver Protection.

>

> Thistilyn 175mg 3x daily.

>

> He also said Glutothione is good but they don't have

> a way to

> administer it. They don't do IV in this clinic. I

> know of a place to

> get IV but it is so expensive. I wonder if I could

> get insurance to

> cover if I had strong letters from 2 Doctors saying

> that it is

> important for my recovery. Insurance companies

> should want to see the

> word RECOVERY.

>

> He said not to take the Flagyl again until I have

> fully recovered from

> the last flagyl herx and not before I have loaded up

> with charcoal for

> at least 5 days.

>

> Then I am to try Flagyl again one each day and try

> to work up to 5days

> each 2 weeks.

>

> Also told me to take Diflucan 200mg M W Fr. I have

> been having trouble

> with vulvadynia (not fun) if I go longer than a few

> days without

> Diflucan.

> I felt better for the first time today after taking

> the Flagy. Had to

> take Prednisone for 7 days to quiet my system down.

>

> Marie

>

>

>

>

>

>

__________________________________________________

[Guest guest]

I thought that looked a little odd

Thanks much for this update, Marie. This doctor seems to be making

an effort to be thorough. Interesting to look at this list in light

of discussions earlier about what exactly is happening in an

authentic 'herx.'

I am sorry to hear the flagyl is being so rough on you. It sounds

like you've got a lot of challenges on your plate, medically.

I hear ya about the cost of IV infusions. Why we can't just have

ourselves wheeled down the street to the neighborhood Glutathione

Bar is beyond me. This stuff seems so darn useful it ought come in

cherry, berry and grape flavors (I'll pass on the lemon-lyme).

I'm sending you big fluffy healing wishes,

> > Saw my Dr. today.

> >

> > Here is what he is recommending for endotoxin

> > protection.

> >

> > 1.Binding endotoxin and preventing recirculation.

> >

> > a. Charcoal tabs 10-12 two times a day. 10am 3pm

> > and 8pm with

> > acidophollis.

> >

> > b. High Fiber Diet.

> >

> > c. Enzymes before meals. He says lipase and

> > amylase break down

> > endotoxin in the intestines. He perscribed

> > Pangestyme.

> >

> > 2.Block NF Kappa (I don't know what this means.) to

> > decrease

> > inflammation.

> >

> > a. Quercetin 500mg 3x daily. May be taken in Green

> > Tea.

> >

> > b. Magnesium 400mg twice daily.

> >

>

> >

> > c. Zinc 30mg daily.

> >

> > d. Selenium 100mcg.

> >

> > 3. Liver Protection.

> >

> > Thistilyn 175mg 3x daily.

> >

> > He also said Glutothione is good but they don't have

> > a way to

> > administer it. They don't do IV in this clinic. I

> > know of a place to

> > get IV but it is so expensive. I wonder if I could

> > get insurance to

> > cover if I had strong letters from 2 Doctors saying

> > that it is

> > important for my recovery. Insurance companies

> > should want to see the

> > word RECOVERY.

> >

> > He said not to take the Flagyl again until I have

> > fully recovered from

> > the last flagyl herx and not before I have loaded up

> > with charcoal for

> > at least 5 days.

> >

> > Then I am to try Flagyl again one each day and try

> > to work up to 5days

> > each 2 weeks.

> >

> > Also told me to take Diflucan 200mg M W Fr. I have

> > been having trouble

> > with vulvadynia (not fun) if I go longer than a few

> > days without

> > Diflucan.

>

> > I felt better for the first time today after taking

> > the Flagy. Had to

> > take Prednisone for 7 days to quiet my system down.

> >

> > Marie

> >

> >

> >

> >

> >

> >

>

> __________________________________________________

>

[Guest guest]

as for Glutathione (GSH), over at the CFSExpeimental board this

is talked about quite a bit.

the two main ways to increase GSH is with the precursor amino acids

in undenatuterd whey (Immunepro Rx), or also a new expensive product

called Lipoceutical Glutathione which is supposed to help the GSH

actually make it into the liver. here's their site.

http://www.wellnesshealth.com/default.asp?ID=42

if you want to follw the the discussions on the other board, here is

the link:

/

thanks

bill

> Saw my Dr. today.

>

> Here is what he is recommending for endotoxin protection.

>

> 1.Binding endotoxin and preventing recirculation.

>

> a. Charcoal tabs 10-12 two times a day. 10am 3pm and 8pm with

> acidophollis.

>

> b. High Fiber Diet.

>

> c. Enzymes before meals. He says lipase and amylase break down

> endotoxin in the intestines. He perscribed Pangestyme.

>

> 2.Block NF Kappa (I don't know what this means.) to decrease

> inflammation.

>

> a. Quercetin 500mg 3x daily. May be taken in Green Tea.

>

> b. Magnesium 400mg twice daily.

>

> I felt better for the first time today after taking the Flagy. Had

to

> take Prednisone for 7 days to quiet my system down.

>

> Marie

>

> c. Zinc 30mg daily.

>

> d. Selenium 100mcg.

>

> 3. Liver Protection.

>

> Thistilyn 175mg 3x daily.

>

> He also said Glutothione is good but they don't have a way to

> administer it. They don't do IV in this clinic. I know of a place to

> get IV but it is so expensive. I wonder if I could get insurance to

> cover if I had strong letters from 2 Doctors saying that it is

> important for my recovery. Insurance companies should want to see

the

> word RECOVERY.

>

> He said not to take the Flagyl again until I have fully recovered

from

> the last flagyl herx and not before I have loaded up with charcoal

for

> at least 5 days.

>

> Then I am to try Flagyl again one each day and try to work up to

5days

> each 2 weeks.

>

> Also told me to take Diflucan 200mg M W Fr. I have been having

trouble

> with vulvadynia (not fun) if I go longer than a few days without

> Diflucan.

[Guest guest]

So what's the word on the street? Any polls? Do people actually say

this stuff is helping? In theory, glutathione sounds great. In

reality, I did i.v. glutathione a whole buncha times. Noticed

nothing. :-(

penny

" winsomme " <winsomme@y...> wrote:

> as for Glutathione (GSH), over at the CFSExpeimental board

this is talked about quite a bit.

>

> the two main ways to increase GSH is with the precursor amino acids

in undenatuterd whey (Immunepro Rx), or also a new expensive product

called Lipoceutical Glutathione which is supposed to help the GSH

actually make it into the liver. here's their site.

>

> http://www.wellnesshealth.com/default.asp?ID=42

[Guest guest]

penny

sorry for the delay in the reply.

i believe there are a few people that are taking LipoGSH, and i also

believe that they say it is too early to tell.

one thing that a lot of people are recommending is to actually first

find out if you are GSH deficient first, and then try a treatment

strategy and then retest to see if the GSH levels rise.

that way it might be easier to identify why the treatment works (if it

does in fact work). that is to say, if you have low gluatthione, and

then you treat it with either LipoGSH or undenatured whey, and then you

restest and your GSH levels improve, you might have direct evidence of

your trial.

there are three questions to ask:

1) am i GSH deficient?

2) did the treatment raise my GSH levels?

3) do i feel any better?

the question is then, how do you test GSH levels.

there have been two tests recommeded.

1) Spectracell Antioxidant panel (lowest cost of all their panels)

http://www.spectracell.com/

2) Great Smokies Lab (i'm not actually sure which test from here is

best. either the oxidative Stress test or Comprehensive Detoxification

Profile.)

http://www.gsdl.com/home/

i believe that IV GSH does not present GSH to the body in an ideal way

for the cells to use it. i don't know this for sure, but i seem to

remember reading this.

thanks

bill

> > as for Glutathione (GSH), over at the CFSExpeimental board

> this is talked about quite a bit.

> >

> > the two main ways to increase GSH is with the precursor amino acids

> in undenatuterd whey (Immunepro Rx), or also a new expensive product

> called Lipoceutical Glutathione which is supposed to help the GSH

> actually make it into the liver. here's their site.

> >

> > http://www.wellnesshealth.com/default.asp?ID=42

[Guest guest]

Thanks Bill,

I think that Rich supports your idea about poor delivery via i.v.

because of the liver's lack of involvement.

I'm planning to have my GSH tested when I next see my doctor. (It's

on a long list of tests I need). I am interested in this product and

hope people will keep us posted on how they're responding to it.

penny

> penny

>

> sorry for the delay in the reply.

>

> i believe there are a few people that are taking LipoGSH, and i

also

> believe that they say it is too early to tell.

>

> one thing that a lot of people are recommending is to actually

first

> find out if you are GSH deficient first, and then try a treatment

> strategy and then retest to see if the GSH levels rise.

>

> that way it might be easier to identify why the treatment works

(if it

> does in fact work). that is to say, if you have low gluatthione,

and

> then you treat it with either LipoGSH or undenatured whey, and

then you

> restest and your GSH levels improve, you might have direct

evidence of

> your trial.

>

> there are three questions to ask:

>

> 1) am i GSH deficient?

> 2) did the treatment raise my GSH levels?

> 3) do i feel any better?

>

> the question is then, how do you test GSH levels.

>

> there have been two tests recommeded.

>

> 1) Spectracell Antioxidant panel (lowest cost of all their panels)

> http://www.spectracell.com/

>

> 2) Great Smokies Lab (i'm not actually sure which test from here

is

> best. either the oxidative Stress test or Comprehensive

Detoxification

> Profile.)

> http://www.gsdl.com/home/

>

> i believe that IV GSH does not present GSH to the body in an ideal

way

> for the cells to use it. i don't know this for sure, but i seem to

> remember reading this.

>

> thanks

> bill

>

[Guest guest]

have you decided what GSH test you are going to use?

thanks

bill

> > penny

> >

> > sorry for the delay in the reply.

> >

> > i believe there are a few people that are taking LipoGSH, and i

> also

> > believe that they say it is too early to tell.

> >

> > one thing that a lot of people are recommending is to actually

> first

> > find out if you are GSH deficient first, and then try a treatment

> > strategy and then retest to see if the GSH levels rise.

> >

> > that way it might be easier to identify why the treatment works

> (if it

> > does in fact work). that is to say, if you have low gluatthione,

> and

> > then you treat it with either LipoGSH or undenatured whey, and

> then you

> > restest and your GSH levels improve, you might have direct

> evidence of

> > your trial.

> >

> > there are three questions to ask:

> >

> > 1) am i GSH deficient?

> > 2) did the treatment raise my GSH levels?

> > 3) do i feel any better?

> >

> > the question is then, how do you test GSH levels.

> >

> > there have been two tests recommeded.

> >

> > 1) Spectracell Antioxidant panel (lowest cost of all their panels)

> > http://www.spectracell.com/

> >

> > 2) Great Smokies Lab (i'm not actually sure which test from here

> is

> > best. either the oxidative Stress test or Comprehensive

> Detoxification

> > Profile.)

> > http://www.gsdl.com/home/

> >

> > i believe that IV GSH does not present GSH to the body in an

ideal

> way

> > for the cells to use it. i don't know this for sure, but i seem

to

> > remember reading this.

> >

> > thanks

> > bill

> >

[Guest guest]

Not sure yet. My doctor told me there was some great new test, very

accurate to measure glutathione, among other things. I just don't

remember the specifics. Perhaps it's the one you've mentioned. I'll

keep your references in mind when talking to him. Right now,

unfortunately, cost is a factor for me. :-(

penny

> have you decided what GSH test you are going to use?

>

> thanks

> bill

>