Re: wrestling with...treatment goals short of a total cure

[Guest guest]

I like your " rant. " Your points are all valid!

Here are some treatment goals of mine, that I have in mind when I

read posts here:

I am trying to get well enough to walk a whole block without

stopping to rest.

I am trying to get well enough that I don't get dizzy and shake and

see white flashes in the upper left quadrant of my vision and have

migraines that make me sure my brain is exploding and not know

suddenly if my feet are touching the ground and then be sure they

are because there's this tuning fork like hum coming through the

floor into my feet, up the sides of my legs, across my pelvis and up

the base of my spine.

I am trying to get well enough to process light and sound

effortlessly, like a normal person, instead of cowering from the

force of my unfiltered senses.

These things are to my mind really 'the point' of my medical

researches. If something offers a partial benefit, and only to some

people, and has never been shown to promote lasting recovery, I

still want to know about it, because I want my life to be worth

living.

I'll fight this obnoxious beatst of a disease forever if I have to,

which frankly seems likely.

That doesn't mean I'm not jaded and tired, like you, of hearing

things celebrated as the be-all and end-all of ACID recovery. If we

weren't skeptical, we'd be loons.

I don't mind enthusiasm, just not that dogmatic certainty that such

and such will work, or work better than any other x, y, or z you

might do instead. We don't know enough for those sort of

pronouncements, and it is tiresome seeing them made with great

enthusiasm and then retreated from. Especially when you're seeing

yourself do that, as I did with the...you know.

I've got to stop for the night, my eyes are doing bizarre things,

but anyhow, I liked what you had to say.

> > > Penny:

> > > I hope they aren't correct.

> > > I guess there'd be a threshold- just like everything else - I

> > wonder

> > > if these guys have a clue where that is (Have you seen any

> studies

> > on

> > > abx sensitivity drop offs in thick blood?)

> > >

> >