Re: - Dan and Rich and Penny treatment options

[Guest guest]

I don't mean to sound negative, but I am feeling exasperated. I've

been on these lists for years. I've watched these discussions about

the same treatments come and go, the excitement rise and fall, just

to be recycled again when a new person seems to have a great

response to a particular treatment. B vitamins for example. B-12

injections were the first thing I tried when I first got dx'd. For

some people they really help, for others, nothing. B-complex

actually helped me. It relieved some of my weirder symtpoms, but

sure didn't cure me. Nothing cures me. I want to know why and how to

change it. I do know I can't possibly continue taking everything

that has ever given me some marginal improvement. It's too

exhausting, and I start feeling like a walking apothecary. My

bedside table is already a joke, covered with bottles of potions.

Sure, many of these treatments have benefit. Especially for those

who have enough energy and free time to devote 100% of their lives

to getting better. Eating right (whatever diet theory you accept

this week), supplementing the depleted nutrients, detoxing,

oxygenating the body, increasing alkalinity, balancing

electrolytes... It's all really great stuff. It takes a massive

effort and a lot of support and is difficult for extremely fatigued

people to do. A few people actually stumble onto the magic

combination that works for them and they recover to a great degree.

But it doesn't translate to everyone. You'll see families where one

member gets well on a protocol, but the other can't. It's the part

of this illness that drives me crazy.

IMO, we need to figure out on this list, WHY we can't beat these

organisms and how to turn that around. And I mean ALL kinds of

organisms, not just lyme, because it doesn't matter which organism

you're dxd with, the dxs end up the same. I don't want to waste my

time on wild goose chases that have small pay offs at best. I want

to get to the core problems here. Identifying infection and

identifying inflammation are core problems. Figuring out how to

overcome them in a big, universal (without being emotionally

attached), kind of way is what I'm looking for.

penny

[Guest guest]

> IMO, we need to figure out on this list, WHY we can't beat these

> organisms and how to turn that around. And I mean ALL kinds of

> organisms, not just lyme, because it doesn't matter which organism

> you're dxd with, the dxs end up the same. I don't want to waste my

> time on wild goose chases that have small pay offs at best. I want

> to get to the core problems here. Identifying infection and

> identifying inflammation are core problems. Figuring out how to

> overcome them in a big, universal (without being emotionally

> attached), kind of way is what I'm looking for.

>

> penny

I'm not sure what you're saying here. It is your list, you started

it, maybe you are setting the agenda and saying don't talk about

adjunctive, supportive therapies. In which case, I think I was only

pulled back into posting on this list because I felt so badly for

, and because of 's good posting/research.

ly I think the organism does matter. I had a bullseye within 12

days of a tickbite and I know I never had an organism that virulent

in my body ever. The answer is some of these bugs are bioweaponized.

That is the answer.

The question is, how to combat them anyway? Perhaps you just do your

best. You can't always cure everybody. Death and taxes are two

realities you can't escape; i.e. there have always been plagues, and

there is a bellcurve, and depending on the time in history, the

organism, wher eyou live, and your genetics, and all kinds of other

stuff, you may just get socked with it and you may or may not

survive, and flourish.