High dose abx / lyme

[Guest guest]

Don't know if this has been posted yet.

CFS-Mycoplasma

From: " Mycoplasma Registry GWI & CFS " <mycoreg@...> Add to

Address Book

DomainKeys has confirmed that this message was sent by

. Learn more

Date: Mon, 09 May 2005 03:17:59 -0000

Subject: CFS-Mycoplasma Doctor devised treatment plan for ALS to

heal himself

" MYCOPLASMA REGISTRY'S On-Line Registration & Survey Form " can be

filled out at " American Gulf War Veterans " website:

http://www.gulfwarvets.com/miscop.htm

My Groups | CFS-Mycoplasma Main Page

....recovered after giving himself massive doses of antibiotics...

* * * * * * * * * * * * * * * * * * * * * * * * * * *

MYCOPLASMA REGISTRY REPORTS

for gulf war syndrome & chronic fatigue syndrome

© Dudley & Leslee Dudley 2005. All rights reserved.

MycoplasmaRegistry/ MycoReg@...

* * * * * * * * * * * * * * * * * * * * * * * * * * *

Doctor devised treatment plan for ALS to heal himself

BY BRYAN WOOLLEY, The Dallas Morning News

Fort Wayne News Sentinel, IN - May. 06, 2005

http://www.fortwayne.com/mld/newssentinel/living/11580038.htm

DALLAS - (KRT) - Dr. T. Harvey says he once was a victim of

the debilitating disease for which he has been treating Charlie

. Or something like it. It was in 1987 in California, he says,

just before his 50th birthday, that his life " kind of fell through

the roof. "

" It was all pain, all brain fog, " he says. " I couldn't think

anymore.

I had to quit my job. I went back to my house in San and

figured that I had a fatal disease and nobody could figure out what

it was. "

He says he recovered after giving himself massive doses of

antibiotics. Another doctor who, like Charlie, had been diagnosed

with amyotrophic lateral sclerosis, said Harvey successfully treated

him with the same method.

But Harvey's methods are outside the medical mainstream, and many

experts are skeptical of his theories.

" One of the things that makes modern medicine such a powerful thing

is that there is general consensus on issues and evidence, " says Dr.

D. Radolf, a professor of medicine at the University of

Connecticut and an authority on the bacterium Harvey is

treating. " Dr. Harvey appears to be far beyond anything that's

evidence-based. He's just basically making up his own rules. "

Harvey blames a bacterium, Borellia burgdorferia, for the symptoms

he

experienced. He says patients like him may be diagnosed with a range

of illnesses - chronic Lyme disease, Gulf War syndrome, fibromyalgia

or Agent Orange syndrome. Some, he says, are diagnosed with ALS or

multiple sclerosis or Parkinson's. Some are told that their problem

isn't physical, that their pain is only in their minds.

Harvey believed he had chronic fatigue syndrome, a vaguely defined

malady that many doctors didn't believe was real. In 1999, he

attended a medical conference on Lyme disease, which causes similar

symptoms, although he says he was almost certain Lyme wasn't his

problem.

At the conference, he learned of the use of oral antibiotics in

treating Lyme disease and decided to treat himself with " high, high

doses " of them to see whether they might help his condition, too.

" Little by little, I came out of the disease. Almost, " he says. He

began taking antibiotics in even larger doses through a catheter and

says he achieved complete recovery.

His wife, Pat, had experienced similar symptoms and had been " sick

as

a dog, " in bed for 12 years. She remains on antibiotics. " She's

mostly well and highly functional, " Harvey says.

In 2000, Dr. Pat Salvato, head of Diversified Medical Practices in

Houston, invited Harvey to join her clinic, a chronic fatigue

syndrome practice. Eventually, he says, he identified Borellia and

another bacterium, Babesia, as agents of the illness.

Of the 900 patients that Harvey has treated over the past four

years,

he says, about 300 have finished therapy, and their symptoms haven't

returned.

His star patient is another physician, Dr. Martz, an

oncologist-

hematologist from Colorado Springs, Colo. Martz, now 64, was

diagnosed with ALS in May 2003 and had to retire from his practice.

" I had been in the Colorado Springs medical community for 30 years, "

he says in a phone interview. " I was pretty well-known and respected

in that community. Every expert in the community was involved in my

care, trying to figure out what was going on. I was hospitalized for

two weeks. At the end of that two weeks, they weren't sure what I

had, but they thought I probably had early ALS. "

A friend of Martz's son saw a newspaper article in land about

Harvey and his work. One of Martz's colleagues knew Harvey and put

them in touch. In January, Martz was put on high-dosage intravenous

antibiotic treatment.

His symptoms are remarkably similar to Charlie 's. But for

reasons Harvey says he doesn't know, Martz's recovery has been

quicker. After six months of intensive treatment, Martz says he was

back to 75 percent to 80 percent of the person he once was.

Now, Harvey says, a year after Martz began the antibiotic therapy, a

neurologist who specializes in the disease has declared him " symptom

free " of ALS.

Radolf says he's skeptical of Harvey's theories linking the Lyme

disease bacterium with other ailments. Radolf has done extensive

research in Lyme disease and diseases caused by Borrelia burgdorferi

and other bacteria.

" Lyme disease does have neurological syndromes, " he says. " But

regarding neurological diseases such as ALS and MS, I think very few

people in the neurological community would accept that these are due

to Lyme disease, " or Borellia burgdorferi. I don't believe there is

any evidence that real, properly diagnosed ALS is caused by Borellia

or that it is treatable with antibiotics. "

Harvey says his work has not been a scientific study. " I'm just

treating patients, " he says. " And I treat only one kind of disease -

this bacterium, Borellia. "

Harvey has moved to his Del Rio, Texas, vacation home, where he

spends most of his time writing about Borellia burgdorferi and

Babesia and organizing a database to be shared with other

physicians.

He closed his Houston office in September, and except for Charlie

and

a few others who were diagnosed with ALS, his patients were referred

to other physicians. But the afflicted call, and the doctor is

seeing

new patients again.

(He can be reached through his assistant, Glenda Castillo, at 830-

774-

4094.)

" I'm starting to understand it, finally, " Harvey says. " So are a lot

of other docs. I think this thing is just about to pop to the

surface. "

---

RESOURCES

International Lyme and Associated Diseases Society - ilads.org

ALS Association - alsa.org

---

© 2005, The Dallas Morning News.

Visit The Dallas Morning News on the World Wide Web at

http://www.dallasnews.com

Distributed by Knight Ridder/Tribune Information Services.

* * * * * * * * * * * * * * * * * * * * * * * * * * *

FREE BROCHURE: " How to Get an Accurate Polymerase Chain Reaction

(PRC)

Blood Test for Mycoplasmal and Other Infections-with a List of

International Laboratories " © by and Leslee Dudley

is sent automatically and immediately to all new subscribers. It is

updated with current information and the new version is posted to the

Mycoplasma Registry Reports & News list each month.

MycoplasmaRegistry-subscribe

FAIR USE: In accordance with Title 17 U.S.C. Section 107, this

material is distributed without profit to those who have expressed a

prior interest in receiving the included information for research and

educational purposes. The Mycoplasma Registry has no affiliation

with

the originator of this article nor is the Mycoplasma Registry

endorsed or sponsored by the originator. If you wish to use

copyrighted material from this site for purposes of your own that go

beyond 'fair use', you must obtain permission from the copyright

owner.

* * * * * * * * * * * * * * * * * * * * * * * * * * *

[Guest guest]

Okay, so what was his protocol and how did he determine it? He sounds

like Tony, at least with the massive dosing part. :-)

penny

> He says he recovered after giving himself massive doses of

> antibiotics.

[Guest guest]

Thanks for posting that. Radolf is a smart guy and the impression given

by his comments is unfortunate. Since he mentioned MS, I took the

opportunity to send him a polite email addressing evidence suggesting a

spiroechetal cause, requesting in particular to hear open-mindedly any

objections he might have on the Brorson paper.

<drgaftop@y...> wrote:

> Don't know if this has been posted yet.

[Guest guest]

Probably the only way one would find out is to go see Dr. Harvey. I

can tell you that if I were a doctor I would have already pumped my

self prescribed PICC line and Ketek into my veins as much as my system

could handle. Sounds like the doc declared all out war. I wish they

could do this with their patients. There should be a way to release

all liability to a doctor you really trust so that they can treat you

as they would treat themselves. Sounds like Dr. Harvey gets agressive

with his patients as well. If I had lyme I'd go see him for that.

> Okay, so what was his protocol and how did he determine it? He

sounds

> like Tony, at least with the massive dosing part. :-)

>

> penny

>

>

> > He says he recovered after giving himself massive doses of

> > antibiotics.

[Guest guest]

My problem isn't my doc. He already had me on I.V. abx for 9 months.

My problem's my insurance company, which has become more and more

disagreeable and uncooperative, and is the cause of what I can only

assume is my now ruined credit rating.

After being on I.V. abx all those months, I've actually come to

believe that I.V. may be most useful post surgery when the risk of

infection spreading is very high, or if you're close to sepsis.

The only big advantage I seem to have experienced with the I.V. was

the fact that it's a little less hard on the gut, but not that much

really. Although it might make a big difference for people who have

serious G.I. problems.

penny

> Probably the only way one would find out is to go see Dr. Harvey.

I

> can tell you that if I were a doctor I would have already pumped

my

> self prescribed PICC line and Ketek into my veins as much as my

system

> could handle. Sounds like the doc declared all out war. I wish

they

> could do this with their patients. There should be a way to

release

> all liability to a doctor you really trust so that they can treat

you

> as they would treat themselves. Sounds like Dr. Harvey gets

agressive

> with his patients as well. If I had lyme I'd go see him for that.

[Guest guest]

With the IV/oral question it doesnt seem like theres alotta studies,

as in zero. Not exactly. There is the Klempner NEJM article, but given

its context its pretty low on my personal list of significant inputs.

So there are different views out there to weigh, but no formal

findings that I take at face value. Mainly just the views expressed by

MDs and patients who know alot of patients.

Recently I think about going PICC. Unsure.

<pennyhoule@y...> wrote:

> My problem isn't my doc. He already had me on I.V. abx for 9 months.

> My problem's my insurance company, which has become more and more

> disagreeable and uncooperative, and is the cause of what I can only

> assume is my now ruined credit rating.

>

> After being on I.V. abx all those months, I've actually come to

> believe that I.V. may be most useful post surgery when the risk of

> infection spreading is very high, or if you're close to sepsis.

>

> The only big advantage I seem to have experienced with the I.V. was

> the fact that it's a little less hard on the gut, but not that much

> really. Although it might make a big difference for people who have

> serious G.I. problems.

>

> penny

>

>

> <drgaftop@y...> wrote:

> > Probably the only way one would find out is to go see Dr. Harvey.

> I

> > can tell you that if I were a doctor I would have already pumped

> my

> > self prescribed PICC line and Ketek into my veins as much as my

> system

> > could handle. Sounds like the doc declared all out war. I wish

> they

> > could do this with their patients. There should be a way to

> release

> > all liability to a doctor you really trust so that they can treat

> you

> > as they would treat themselves. Sounds like Dr. Harvey gets

> agressive

> > with his patients as well. If I had lyme I'd go see him for that.