Re: Re: Fluconazole therapy update...FYI

[Guest guest]

Jill, I can’t speak for , but

by “we,” I believe he is referring to a Dr. in central Iowa that has several

people on this protocol and an Infectious

Dz. Dr. in K.C. that corresponds frequently

with. I happen to go to this ID

Dr. in Kansas

City & he is very progressive & is seeing good

things with the Fluconazole therapy. I’m day 60 into it & feeling

more optimistic on a daily basis. I know emails this Dr. a lot

discussing various aspects to this protocol.

Patrice

From: infections [mailto:infections ] On Behalf Of jill1313

Sent: Sunday, April 17, 2005 7:34

AM

infections

Subject:

[infections] Re: Fluconazole therapy update...FYI

Who is the " we " ? The mysterious royal we

-- . Honestly, I find this

very annoying. Who is the " we " who is

studying this, are they

professional M.D.'s, how many are involved, how

many patients, etc.

If it's " I " , please say so. If it's

" we " please identify.

> > I would like to add more input to

's note about using

> Fluconazole 200mg

> > daily. I am one of the patients

undergoing this treatment & am

> under the

> > care of a Physician that

corresponds frequently with.

> >

> >

> >

> > I tested highly positive for borellia

via Igenex testing. The

> mainstream

> > doctors tell me I have lupus/scleroderma

overlap syndrome. I'm

> still not

> > sure what I have. Someone's right

& someone's wrong. The fact

> that my

> > IGENEX test was positive is not

convincing to me that I'm

> conclusive for

> > borrelia b/c it's my understanding that

some of the weird

> antibodies I have

> > might cross react with the bands causing

a false positive.

> >

> >

> >

> > I am on day 60 of Fluconazole 200mg a

day. I didn't take

> babysteps. I

> > jumped right in with the full dose in

addition to 200mg of

Minocin

> daily.

> >

> >

> >

> > I have to say, the 1st three weeks I was

a lot more fatigued than

> normal.

> > The fatigue is sometimes hard to gauge

b/c it is my worse enemy,

> so I didn't

> > know if it was a consequence of the

Fluconazole or not. It was

> pretty

> > powerful though. Because of sheer

will & the fact that I have

> young kids

> > that need me, I just tried to keep

putting one foot in front of

> the other.

> >

> >

> >

> > I am happy to report that I have come

out of the fog. It's too

> early to say

> > if this is the ticket or not, I'm a

skeptic by nature. Let's

just

> say I

> > will never be vulnerable to the placebo

effect, b/c I'm so

> skeptical of

> > these new found cures.

> >

> >

> >

> > I'm hopeful for the first time in a long

time though. I need to

> thank

> > for his encouragement through

this.

> >

> >

> >

> > Patrice