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Re: Re:thanks was: just wondering

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Long ongoing thyroid problems CAN cause mitral valve prolapse, but that doesn't mean that is what did cause it. The tiredness can come from that, as in changing positions from supine to sitting to standing (postural). Do you still see a cardiologist regularly?

Re: Re:thanks was: just wondering

Thank You Jan. I had my thyroid removed due to papillary cancer in 81. The dr who did the surgery said I would never need any kind of tests that "he got it all". I moved to another state and the dr I went to, said if I wanted to use him as a dr I would have to go through a body scan, I did and cancer was found in a lymph glad in my neck. Went through radiation therapy and have been clean since, so I think. I had no idea what levels should be and that I could feel bad even if the levels were fine to the dr. I have gone through 5 miscarriages because my drs were so ignorant about what treatment I needed. I learned about armour and talked to my dr about using it and he would not let me. I was so desprate because I felt so bad, I did a very dumb thing. I took myself off of synthroid and took a glandular, when I went back for a blood test the dr yelled at me "what are you trying to do kill yourself?" Here is the results:

t3 uptake 23 low ref range 25.0-35.0

results confirmed by repeat analysis

t4 by ria <2.5 low ref range 5.0-12.0

results confirmed by repeat analysis

t7 unable to calculate

tsh Note ref range

tsh reult is 365.7 micro U/ml

The weird thing about this is I was feeling so much better then I was on Synthroid. The dr asked me what I was trying to do and I told him he wouldn't listen to me about using Armour so I tried to do something to make me feel better. He did write me a rx for Armour. I was Armour for 7 years and felt pretty good on it. I became preg. in 91 and the dr messed me up really bad. I was hypo and hyper throughout the preg. I stopped going to him and found a new dr, she could not get my tsh back to a "normal" level. I let her talk me into changing to levoxyl 0.1mg. and cytomel 5 mcg 2xs day. I have other things wrong with me that could be making me feel tired and short term memory loss, dry skin etc. eg. car accident w/TBI, mitral valve prolapse, that I really get confused with what is causing it. I have really bad dizzy spells and migrane headaches, with these it is a "take your pick" kind of thing with m! e.

Sometimes the information I read overwhelms me and I just am not sure what to do.

I thank you for your help and can use all I can get.

Thanks,

Karrel

sorry this was so long, that is another problem, I can't just give facts I have to tell the WHOLE story :o)

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Karrel, what is "ds"?

Tx

Re: Re:thanks was: just wondering

Thank you for your input. No, I don't see a cardio regularly. I know I probably should. But we do not have ins. and my thyroid stuff takes away most of my medical money. Maybe after I get this visit to my new dr over with I can save enough to get started with one.

Do you know much about MVP? I know mine is leaky, and so I have to take antibiotics before any kind of invasive treatment. I hate this because I am nursing and my ds breaks out everytime I get my teeth cleaned.

Thanks again,

Karrel

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I know----thinking out loud about could have beens and should have beens----I've been there. I have read about this in a few places where I've been reading other things about thyroid. I just can't remember where it was I read them. Think of it this way. One of the first things that happens in HYPER thyroidism, especially severe Grave's Disease, is that the heart rate goes up. Let that heart rate stay up long enough and hard enough for enough yrs, and you're going to get an enlarged left ventricle in the heart, that is, after you get a case of atrial fibrillation. It has to be intense enough and hard enough that this happens, plus the length of time. Ok, what happens to the rest of our muscles and tissues in our bodies in hypothyroidism, when it has been undiagnosed and untreated for so long. Well, the heart is a muscle, made up of powerful muscle action. The mitral valve snaps downward and then upward to close in a powerful motion to keep the blood from going back thru. In mitral valve prolapse, it stretches out to the point that it's weak and snaps down further than normal, then can't snap back upward to close completely. Why couldn't hypothyroidism cause that. How many people with heart and circulatory problems in this country alone have unexplained heart problems, HBP, and coronary artery disease who never smoked a cigarette in their life, nor had any other risk factors, including family genetics? I say there are even many many more undiagnosed thyroid problems in this country than they could posssibly dream about, and I say that that testing should be part of our routine yearly blood work, across the board, from birth on up, canning the TSH test, and incorporating the Frees testing even to infants. I believe that there would be a lot less unexplained heart patients in this country, or it would be nipped in the bud sooner. I think that eventually it's going to be astounding what all this little butterfly has caused in the human body, when all these new discoveries are made. New? What am I talking about? I think some earlier studies/doctors knew this. We've gone backwards, despite all the money we've spent.

Tx

Re: Re:thanks was: just wondering

<Long ongoing thyroid problems CAN cause mitral valve prolapse>

, I was thinking about this last night and was wondering. The nodule that I had was found in '79, dr said it was a cold nodule and we would just watch it. Got preg. in '81, lost the baby, ob sent me to an endo to check nodule out. I had a total thyroidectomy the end of '81, it was cancer. My moms never lets me forget "If there was something for you to catch you caught it". I wonder how long my thyroid was not functioning like it should have. I started having severe chest pains in about '85 and the MVP was not found until about '90.

I don't know was just thinking and wondering. I guess there is no way of ever knowing what caused it.

Thanks for your help,

Karrel

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Oh yes, I see. Everything you take, he gets, naturally.

Re: Re:thanks was: just wondering

Sorry ,

ds is dear son. He is nursed and breaks out when I have to take antibiotics.

Karrel

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