Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 Hi Dura: I'm a data head too - working in R & D for 27 years for a semiconductor co. It's not a medical field- but expiemental protocols are similar. You may be referring to my posts, as I used HCQ as my immune modulator with abx for Lyme. From 1978 thru 1998 I was (mis) dx's with Lupus, and showed symptoms of several other autoimmune disorders eventually just called COmplex autoimmine disorder. My symptoms included the accepted list of symptoms for Lupus, autoimmune heymolytic anemia, Sarc, idiopathi Uveitis, fibromyligia and possible MS. I eventually developed chemical and food sensitivities.. and had allergies and alot of GI and skin problems. IMO these developed in me over time from and were secondary symptoms. I suspect that most of the people on this list have one 'official' diagnoses, but we share many symptoms and when you look at all these labels, many symptoms overlap. IMO, here is the progression: Acute infection--> chronic/occult infection -> chronic inflammation --> symptoms present as specific disorders depending on tissue type (genetics, host-pathogen relationship) ---> secondary symptoms emerge over time- allergies, GI problems, chemical and food sensitivities etc. Multiple problems seem to come with the (inflammatory) condition. Ithink the crux is whether or not one beleives the immune system is a 'flawed ' by design ( i.e. prone to autoimmunity) or not (pathogen at the root). Barb Duramater wrote: I am recollecting that when I read a post about, for example, B12 effects or mino/HCQ, I just wonder if this is being used by someone with what is being called sarcoidosis or CFS or Lyme or multiple chemical sensitivities or whether they additionally have allergies or whatever. Quote Link to comment Share on other sites More sharing options...
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