Welcome Duramater!

[Guest guest]

I want to give a big warm welcome to Duramater, whose posts on

Lymenet have taught me so much!

Darn, DM, I wish you'd been with us in our salad days, before I & I

v. 1 got zapped. We had a really impressive number of relevant

abstracts archived, a wonderful team effort to find the science that

might matter for our illnesses.

Not to worry though - this is a great group, and I have full

confidence the archives will be resurrected and a new home will be

found. So stick around - you ain't seen nuthin' yet.

Guys, do we have a progress report on the new site search?

> > > Marie,

> > >

> > > I'm in agreement with . Career wise I deal with a lot

of

> > very complex

> > > interacting systems and the KISS (Keep it simple stupid)

> principle

> > works

> > > very very well. Every now and then when working a problem, we

> blow

> > a whistle

> > > and say " Let us take it from the top and not assume

anything.. "

> > Often when

> > > we do that we find the problem quickly.

> > >

> > >

> > >

> > > For my family in treating CFS, I have done just that --- back

to

> > the very

> > > basics - first starting with nutrients that are used by the

> immune

> > system.

> > > If there is a deficiency somewhere, then correcting that has

the

> > potential

> > > of starting a cascade which may resolves many of the down-

stream

> > > complexities that researchers start chasing - net result: a

far

> > less complex

> > > patient to treat. Chances are that we all have some symptoms

> > caused by

> > > nutrient deficiencies.

> > >

> > >

> > >

> > > The root item that I am back to, is nutrient deficiencies -

with

> > special

> > > attention to Vitamin D deficiency. For nutrients the " not

assume

> > anything "

> > > means that I will not assume the taking RDA is sufficient for

a

> > sick-person,

> > > instead, attempt to find the optimal levels in the literature

> and

> > how to get

> > > there. For Vitamin D, it appears to be 4000 IU/day for 4-8

> months

> > (and

> > > afterwards keeping at at least 2000 IU./day). Of course,

taking

> > Vitamin D

> > > means taking other nutrients that are needed to work with it.

> > >

> > >

> > >

> > > When I reviewed all of the literature in 2000, there was three

> > sets of

> > > publications that actually alleged remission (and not just

> symptom

> > or

> > > quality of life improvement) for at least 50%:

> > >

> > > Nicholson's

> > >

> > > Jadin

> > >

> > > Berg/Hemex

> > >

> > >

> > >

> > > Nicholson and Jadin both used long term antibiotics - with the

> > average time

> > > to remission being 50% shorter for Jadin. Berg/Hemex used

> Heparin,

> > with some

> > > having major improvements in days (one of the office staff at

> our

> > MD office

> > > was such a responder). Four of us did a combination of Jadin

and

> > Berg with

> > > 50% going to full remission and 50% to major improvement.

> > >

> > >

> > >

> > > In general, take with a salt-lick [a block of salt] anything

> that

> > uses

> > > **may** or **likely** or **suggests** -- all of these words

> > indicates

> > > speculation. Take with a touch of salt, stuff that have been

> > published on

> > > medline (http://www.ncbi.nlm.nih.gov/entrez/query.fcgi )

which

> > has BOTH a

> > > trial and a control population. To me, the gold standard has

> > been, and

> > > continues to be, medline citations. PWCs experiences will

often

> > cause me to

> > > search medline to see if there is evidence to support the

> > experience (and

> > > gotchas).

> > >

> > > Ken Lassesen,

> > >

> > >

> > >

> > > _____

> > >

> > > From: Schaafsma [mailto:compucruz@y...]

> > > Sent: Saturday, March 26, 2005 2:43 PM

> > > infections

> > > Subject: [infections] Re: Gigi's Doc posted by

> Gigi

> > on

> > > Lymenet

> > >

> > >

> > >

> > >

> > > I partly share your response, Marie.

> > >

> > > On the other hand, because they are looking at a larger number

of

> > > variables, they may very well identify things that DO need to

be

> > > addressed, in some cases, for recovery to 'take.'

> > >

> > > This is why I make a point of keeping a lot of salt around the

> > > house. Since virtually everything one reads about Lyme disease

> > needs

> > > to be taken with at LEAST 'a grain of salt', one wants to have

a

> > > good supply handy.

> > >

> > >