Re: Neurological effects of light?

[Guest guest]

Roy, I had a lot of problems with light recently. Most have now gone. I

am taking high doses of B12, and other b vits.

>

> Has this subject been adequately

> explored here?

>

> The neurological effects of too

> much light in patient's eyes,

> diagnosed or not, in denial or not,

> is,in my opinion, absolutely vital

> to understanding and possibly

> in treating our illnesses.

>

> For me, most importantly, recently

> developing an increased awareness

> of the incredibly complex, little

> researched, and poorly understood

> effects of too much light in my eyes

> has helped greatly.  Also, lowering

> the light level down to almost

> nothing for even a day or two is

> amazingly effective to prove cause

> and effect.  I can only suggest

> trying it and reporting the results.

>

> To some extent I have been aware of

> this problem for over 35 years,

> when I had my first disabling

> CFS crash in 1970 at age 16.  I have

> very carefully protected my eyes from

> too much light since then.  Disabling

> migraines were adequately motivating.

>

> This present awareness allows for the

> necessary limitations of time on the

> computer, along with other sources

> of light.  Lowering the light levels

> adequately has helped my brain

> function at a much higher level,

> and my emotions are are affected in

> beneficial ways that are difficult

> to describe in written words.

>

> I wish I had understood this better

> and sooner.

>

> It is said that it is easy to be humble

> when you have a lot to be humble about.

> This may be the most humbling experience

> of greater knowledge and understanding

> that I will ever have in my life.

>

> I just wish I knew how to help

> everyone understand it.

>

> I'll keep working on it.

>

>

> Roy

>

>

>

>

>

>

>

>

>

[Guest guest]

Roy wrote, in part: Has this subject been adequately

explored here?

It's a fair question, Roy. It has certainly been discussed, in

relation to migraines and other symptoms. I think the relationship

is quite variable, personally. For a while, I wore NOIR glasses

indoors, literally put the things on immediately upon waking. Did it

help?

I don't know. My migraines seemed to decline, but came roaring back

some months later. I grew tired of the glasses, stopped wearing

them, and my migraines declined in frequency again.

You may well have found something that is of unique and lasting

benefit to you, but I wouldn't assume that it will be to everyone

who suffers from a neurological illness. That one-size-fits-all

approach to things has a heavy burden in this list - most of us

really do not trust it, on principle.

Perhaps you can't explain it to others because the truth of the

relief you get from shielding your eyes is deeply personal, embedded

in the particulars of your condition. I have enough neurological

badness going on for a small army of twitchy, shell-shocked people,

and I have not found that protecting my eyes is all that helpful,

having pursued it for some months.

If you think there's more to it, a broad application that this group

needs to know about, then I hope that you will indeed keep working

at finding ways to conceptualize that. You could be right! My own

experience, and that of many others, makes me cautious though.

>

> Has this subject been adequately

> explored here?

>

> The neurological effects of too

> much light in patient's eyes,

> diagnosed or not, in denial or not,

> is,in my opinion, absolutely vital

> to understanding and possibly

> in treating our illnesses.

>

> For me, most importantly, recently

> developing an increased awareness

> of the incredibly complex, little

> researched, and poorly understood

> effects of too much light in my eyes

> has helped greatly. Also, lowering

> the light level down to almost

> nothing for even a day or two is

> amazingly effective to prove cause

> and effect. I can only suggest

> trying it and reporting the results.

>

> To some extent I have been aware of

> this problem for over 35 years,

> when I had my first disabling

> CFS crash in 1970 at age 16. I have

> very carefully protected my eyes from

> too much light since then. Disabling

> migraines were adequately motivating.

>

> This present awareness allows for the

> necessary limitations of time on the

> computer, along with other sources

> of light. Lowering the light levels

> adequately has helped my brain

> function at a much higher level,

> and my emotions are are affected in

> beneficial ways that are difficult

> to describe in written words.

>

> I wish I had understood this better

> and sooner.

>

> It is said that it is easy to be humble

> when you have a lot to be humble about.

> This may be the most humbling experience

> of greater knowledge and understanding

> that I will ever have in my life.

>

> I just wish I knew how to help

> everyone understand it.

>

> I'll keep working on it.

>

>

> Roy

[Guest guest]

> > >

> > > Has this subject been adequately

> > > explored here?

> > >

> > > The neurological effects of too

> > > much light in patient's eyes,

> > > diagnosed or not, in denial or not,

> > > is,in my opinion, absolutely vital

> > > to understanding and possibly

> > > in treating our illnesses.

> > >

> > > For me, most importantly, recently

> > > developing an increased awareness

> > > of the incredibly complex, little

> > > researched, and poorly understood

> > > effects of too much light in my eyes

> > > has helped greatly. Also, lowering

> > > the light level down to almost

> > > nothing for even a day or two is

> > > amazingly effective to prove cause

> > > and effect. I can only suggest

> > > trying it and reporting the results.

> > >

> > > To some extent I have been aware of

> > > this problem for over 35 years,

> > > when I had my first disabling

> > > CFS crash in 1970 at age 16. I have

> > > very carefully protected my eyes from

> > > too much light since then. Disabling

> > > migraines were adequately motivating.

> > >

> > > This present awareness allows for the

> > > necessary limitations of time on the

> > > computer, along with other sources

> > > of light. Lowering the light levels

> > > adequately has helped my brain

> > > function at a much higher level,

> > > and my emotions are are affected in

> > > beneficial ways that are difficult

> > > to describe in written words.

> > >

> > > I wish I had understood this better

> > > and sooner.

> > >

> > > It is said that it is easy to be humble

> > > when you have a lot to be humble about.

> > > This may be the most humbling experience

> > > of greater knowledge and understanding

> > > that I will ever have in my life.

> > >

> > > I just wish I knew how to help

> > > everyone understand it.

> > >

> > > I'll keep working on it.

> > >

> > >

> > > Roy

> >

> >

> >

> >

>

> __________________________________________________

>

[Guest guest]

> Roy, I had a lot of problems with light recently. Most have now

gone. I

> am taking high doses of B12, and other b vits.

Steve

Are you still taking low dose hydrocortisone?

Pam

[Guest guest]

Thank you for the replies.

The effects are very

individualized. In and of

itself it is nothing for

most people to worry about,

in my opinion.

Even people who have some

understanding of this do

not know of any definitive

research. I'm not even sure

there are adequate testing

methods.

I have been studying this

increasingly for about a year,

and it just gets more interesting.

BTW, I do take B12, increased to

10,000mcg subQ/day hydroxycobalamin

for about the last year and a half.

It didn't help my eyes, nor did any

other treatment, but thanks for the

suggestion.

Roy