Re: Re: Neurological effects of light?

[Guest guest]

I am just the opposite. I need light. In winter as the

days grow shorter my depresssion and pain rise. I have

to be very careful to get enough light everyday or I

will be drawn down into the dark. Not pleasant for me.

As said I think this is a personal make up.

Marie

--- Schaafsma <compucruz@...> wrote:

>

> Roy wrote, in part: Has this subject been adequately

> explored here?

>

>

> It's a fair question, Roy. It has certainly been

> discussed, in

> relation to migraines and other symptoms. I think

> the relationship

> is quite variable, personally. For a while, I wore

> NOIR glasses

> indoors, literally put the things on immediately

> upon waking. Did it

> help?

>

> I don't know. My migraines seemed to decline, but

> came roaring back

> some months later. I grew tired of the glasses,

> stopped wearing

> them, and my migraines declined in frequency again.

>

> You may well have found something that is of unique

> and lasting

> benefit to you, but I wouldn't assume that it will

> be to everyone

> who suffers from a neurological illness. That

> one-size-fits-all

> approach to things has a heavy burden in this list -

> most of us

> really do not trust it, on principle.

>

> Perhaps you can't explain it to others because the

> truth of the

> relief you get from shielding your eyes is deeply

> personal, embedded

> in the particulars of your condition. I have enough

> neurological

> badness going on for a small army of twitchy,

> shell-shocked people,

> and I have not found that protecting my eyes is all

> that helpful,

> having pursued it for some months.

>

> If you think there's more to it, a broad application

> that this group

> needs to know about, then I hope that you will

> indeed keep working

> at finding ways to conceptualize that. You could be

> right! My own

> experience, and that of many others, makes me

> cautious though.

>

>

>

>

> >

> > Has this subject been adequately

> > explored here?

> >

> > The neurological effects of too

> > much light in patient's eyes,

> > diagnosed or not, in denial or not,

> > is,in my opinion, absolutely vital

> > to understanding and possibly

> > in treating our illnesses.

> >

> > For me, most importantly, recently

> > developing an increased awareness

> > of the incredibly complex, little

> > researched, and poorly understood

> > effects of too much light in my eyes

> > has helped greatly. Also, lowering

> > the light level down to almost

> > nothing for even a day or two is

> > amazingly effective to prove cause

> > and effect. I can only suggest

> > trying it and reporting the results.

> >

> > To some extent I have been aware of

> > this problem for over 35 years,

> > when I had my first disabling

> > CFS crash in 1970 at age 16. I have

> > very carefully protected my eyes from

> > too much light since then. Disabling

> > migraines were adequately motivating.

> >

> > This present awareness allows for the

> > necessary limitations of time on the

> > computer, along with other sources

> > of light. Lowering the light levels

> > adequately has helped my brain

> > function at a much higher level,

> > and my emotions are are affected in

> > beneficial ways that are difficult

> > to describe in written words.

> >

> > I wish I had understood this better

> > and sooner.

> >

> > It is said that it is easy to be humble

> > when you have a lot to be humble about.

> > This may be the most humbling experience

> > of greater knowledge and understanding

> > that I will ever have in my life.

> >

> > I just wish I knew how to help

> > everyone understand it.

> >

> > I'll keep working on it.

> >

> >

> > Roy

>

>

>

>

__________________________________________________

[Guest guest]

no I stopped that after starting the B12, no longer needed.

>

>

> > Roy, I had a lot of problems with light recently. Most have now

> gone. I

> > am taking high doses of B12, and other b vits.

>

> Steve

>

> Are you still taking low dose hydrocortisone?

>

> Pam

>

>

>

>

>

>

[Guest guest]

I found that all the bs were important together.

>

> Thank you for the replies.

> The effects are very

> individualized.  In and of

> itself it is nothing for

> most people to worry about,

> in my opinion.

> Even people who have some

> understanding of this do

> not know of any definitive

> research.  I'm not even sure

> there are adequate testing

> methods.

> I have been studying this

> increasingly for about a year,

> and it just gets more interesting.

>

> BTW, I do take B12, increased to

> 10,000mcg subQ/day hydroxycobalamin

> for about the last year and a half.

> It didn't help my eyes, nor did any

> other treatment, but thanks for the

> suggestion.

>

> Roy

>

>

>

>

>

>