Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 AAAAArrrrgghh that really sucks. No way to appeal the administrative status petition, I guess? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 I'm contacting Yale about that remote laser device they use to control fruit flies. If it works on ticks, I'm sending a small army of the little scamps over to the local Medicaid office. Don't know why I say " if. " I've figured it out now. Alan Steere is working for , using his remote control to launch tick attacks on likely candidates for sleepovers at Neverland Ranch, to render them stupid and pliable. Alan, dude, that remote is seriously f'd up. I'm waaaaaaay too old for MJ. Point that thing somewhere else, you twit! Ugh...sorry, that's just awful of me. It's the stress, man. I can't take it. > > AAAAArrrrgghh that really sucks. No way to appeal the administrative > status petition, I guess? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 I'm so sorry. Before I joined this site I didn't realize there was as much stigma in having Lyme as CFS. What is it about these illnesses. I have also had the experience that Docs get angry if they aren't making progress with you. Like it has something to do with their egos rather than with your care. Sheesh, I feel for you. At the very least I hope your records get to the neuro this week. Marie --- Schaafsma <compucruz@...> wrote: > > My very long engagement with our plodding health > care system > continues to disappoint. > > In the last few days, I've received the following > news: > > 1) Three months ago, I filed a petition to be > granted " Administrative Status " under Medicaid > rules. This is > simpler than it sounds, a matter of being able to > have tests done, > drugs prescribed, and be seen by specialists without > the order of a > local PCP. There are no Lyme-friendly PCPs in my > county, and the > last Medicaid PCP I saw spent six months withholding > test results, > telling me there was really nothing wrong, and > accusing me of > feigning pain to get my jollies taking narcotics. > > On Saturday, a letter arrived informing me that my > petition has been > DENIED. > > The letter reminds me that " Administrative Status " > is reserved for > patients who have " serious, complex illnesses that > require ongoing, > specialized care. " > > I am instructed now to report to the Women's Health > Center at > Planner Parenthood, the only Medicaid " Primary Care > Provider " > currently accepting new patients in my county, and > start all over > again from scratch with their staff physician. > > 2) Last Tuesday, the pain specialist who had agreed > to see me > received my paperwork, the last step before making > an appointment. > This was supposed to be the last step before > scheduling an > appointment. On Friday, I called to see what the > status was, and > learned that the pain specialist is now no longer > sure he is willing > to see me. If he backs out because I have Lyme > disease, he will be > the third doctor to do so in the last two months. > > 3) My LLMD has not yet communicated anything about > my case to the > neurologist she referred me to. I am scheduled to > see this > neurologist on Thursday. It's a very long trip, by > paulscha > standards. > > No arrangement has been made to get the brain MRI > from UCSF to the > neuro either. The last time I tried to get records > from UCSF, it > took two and a half months for them to comply. > Despite over a dozen > phone calls and two written requests from me, > spelling out exactly > what records were needed, they sent only a tiny > fraction of what I'd > asked for. > > _______________________________________________________ > > Yes, it's a wonderful healthcare system, the finest > on earth, by God! > > Anyone know if they're taking new patients on the > moon? > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 LOL On the off chance the neuro youre seeing turns out to NOT be some dogmatic and/or sociopathic blowhard (not that reasonable doctors are quite that rare gnerally, but they are in s locale) - then maybe you should tell him/her about your predicament and see if you can get some kinda " real " neurodegenerative dx based on your MRIs, as opposed to so-called " lyme " disease. If that would let you reapply for admin status. He might know of a good attention-getting name for brain lesions + tissue loss with " uncertain cause. " <compucruz@y...> wrote: > > I'm contacting Yale about that remote laser device they use to > control fruit flies. If it works on ticks, I'm sending a small army > of the little scamps over to the local Medicaid office. > > Don't know why I say " if. " I've figured it out now. Alan Steere is > working for , using his remote control to launch tick > attacks on likely candidates for sleepovers at Neverland Ranch, to > render them stupid and pliable. > > Alan, dude, that remote is seriously f'd up. I'm waaaaaaay too old > for MJ. Point that thing somewhere else, you twit! > > Ugh...sorry, that's just awful of me. It's the stress, man. I can't > take it. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 Hi , > I am instructed now to report to the Women's Health Center at Planner > Parenthood... Women's Health Center? What a peculiar choice! But maybe you will finally get lucky, and they'll have a great doctor. Our Planned Parenthood doctor is really special--smart and committed. I like 's idea about trying to ditch the Lyme diagnosis and get a new diagnosis from the neurologist so you can reapply for Administrative Status. I'm so sorry about all of the terrible problems you are having with the health system. Sue Quote Link to comment Share on other sites More sharing options...
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