Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 I'm not sure if they practice Mehta Casting or not. I know there are a few families that go there from this group, so hopefully they'll chime in later. From: jonahlisa <jonahchimerafilms (DOT) com>Subject: [infantile_scoliosi s] New Scoliosis DiagnosisTo: infantile_scoliosis @yahoogroups. comDate: Sunday, March 22, 2009, 12:20 PM Hello everyone. I'm new here (Thank you for putting me through and answering many of my questions).I'm in eastern Idaho and have a 3 month old baby girl. I noticed "the hump" so many of you talk about on the left side of her back about a week ago. Her nurse practitioner (FNP) and I are both certain it was not there at her 2 month appointment. I called the FNP on Wednesday and she saw us the next morning at 9am. She noticed it too and had me in to see a ped at 2pm the same day. He also saw it and it "concerned" him as well. Seems I'm lucky in that our primary care people took this seriously from the start. He sent us straight from his office to radiology with a rx to "rule out scoliosis." I wish it had ruled it out but we got the diagnosis the next afternoon. She has infantile scoliosis. A left thoracic curve of 34%. I don't have any other info at this point. The xray was done without any childhood specific tools/devices/ personnel. They just held her on her back and pulled her long. She was squirmy so it's not a shot where we can really tell about RVAD or rotation. My instinct tells there's some rotation though. No one looking so far has any experience with this. Even the ped said it was his first case in 30 years as a ped.I have a call in to a pediatric othro in Salt Lake City at Children's Medical. But we were scheduled to leave this coming Wednesday on a big family roadtrip for a family event and to let people meet the new baby. If they can see us quickly we'll go thru SLC first. If not, we'll go on the trip as planned and attempt to see someone sooner in Chicago, Pennsylvania, New York or Dallas--I've heard there are good people in all those places and they are all on our route. In that scenario we'd get our first opinion on the trip and still see the SLC doc as a second opinion in May when we return home (SLC is only 4 hrs from us). Does that seem like a sound plan or should we just cancel the whole trip and sit home and wait until the doc in SLC can see us even if it's weeks?I'd also like to know docs in those cities we should be trying to see and whether the doc recommended to us in SLC is one willing to recommend ET if warranted. I'm not a "wait and see" kind of person so if this turns out to be progressive I want someone familiar with the latest non-surgical treatments. Can people email me with docs/cities I should be focusing on?I guess that's all for now. Thanks.Jonah Quote Link to comment Share on other sites More sharing options...
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