Re: the fentanyl/duragesic saga, plus happy things

[Guest guest]

Dear Cheryl,

I am sorry the patch isn't working for you. I am glad you will be going to

see a Pain Clinic. This has helped me a great deal. I hope it will help

you as well. It sounds like you have a lot of wonderful people who care

about you. Of course all of us do too.

I am continually amazed at how we all react to the meds so differently. I

have been using the pain patch for quite some time. I have never had any of

the symptoms that you had. However I am now getting a rash from it which I

never did before. I was hoping the patches would help you like they do me.

I am hoping the Pain Clinic will help. Let us know what happens. I am

curious as to what they will put you on. I have been to 2 Pain Clinics.

The first one was awful the one I now see is very good. The 2 clinics had

me on completely different meds. This is one reason I am curious. I am

sure the good clinic has me on better meds now.. Keep us posted as to how

you are doing.

I envy you I use to live in Seattle I loved it there. I often get home

sick. I vow to some day go back. I am definitely going to visit in the

near future. Take Care.

Love,

jatw@...

the fentanyl/duragesic saga, plus happy things

> ...or, how I lost three pounds in one day.

>

> Three weeks ago, I went on the Duragesic patch. After a week of nausea

> (and loosing a pound each day), I seemed to adjust to the patch. My

> pain levels were less, when I wasn't having a strange fatigue headeache.

> But my friends were noticing more and more odd behavior from me:

> specifically, I was much foggier than usual. I did manage to gain back

> about three pounds.

>

> Yesterday, I saw my primary care doctor and he took me off of the patch

> right there in the office. (He's sending me to a pain clinic to get

> a different painkiller.)

>

> Since then, my pain levels have been getting worse and worse. I had to

> take several breaks to finish this e-mail, for example.

>

> This morning, I spent many hours having crampy constipation, running in

> and out of the bathroom. This evening, I weighed myself. I've lost three

> pounds since yesterday.

>

> I don't know if this is possible, but I think my GI system was backed up

> three pounds worth. Yikes.

>

> Enough of that. Let's think of happy things...

>

> One of my dear friends insists that I'm coming to the Halloween party at

> her house, even if she has to drive me the four blocks there and set me up

> to hold court from her bed. Isn't that sweet? Two other friends are making

> me frozen dinners for when I can't fix my own meals. I'm so blessed with

> friends. And my mom is getting me the lightest Medic Alert bracelet they

> have available.

>

> Cheryl in Seattle

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>