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  • 1 year later...
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Bee,

The dose she has been taking is about 3000 units per day. What do you

recommend for children? Also, I would like to add that for the past 3

months--it is the first time in MY life that I have had a regular menstrual

cycle. I have spent so much time and money with Dr.s on saliva testing,

scoping, prescriptions, worrying...etc.

I am truly amazed AND THANKFUL!

I extend my deepest gratitude to you for your research and commitment to the

group.

Debra

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Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

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  • 4 years later...

Hi Everyone,

    I am responding to the gum disease inquiry. I too have gum disease to the

point that the bones are being affected. I was also diagnosed last week with

sackie Virus (hand, foot and mouth disease), which is a virus that is common

in children. This virus is quite painful, it feels like I burned my tongue. Has

anyone else had this problem? I looked up the autoimmune disease website and it

looks like a more advanced version of this virus is on the autoimmune list. I

wonder if this is something I'm going to be stuck with now that I have it. My

Rheumy finally listened to me and decided the Humira was not working and is in

the process of switching me to Enbrel and she also switched me to Meloxicam from

Etodolac which was not working. The Pain Management doctor said he can not do

anything for me so if the Enbrel and Meloxicam don't work I wonder what is next.

Lori in AZ 

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Just had a discussion about this with my rheumy. Gum problems are possibly

coming from inflammation. If we have one autoimmune disease we probably have

more. (I have those issues also) I'm sorry to say that you will need to keep an

eye on your heart health. He said he read an article/study linking gum

inflammation/disease and heart involvement. My response was I believe it

because when I take my dog to the vet they will tell me that gum/teeth health is

directly related to heart health so why should humans be any different? Don't

mean to add insult to injury but we need to be informed health care consumers.

Wishing you the best!

-Eileen

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Thank you everyone!  My dentist thought it might be related as 6 months ago my

gums were in excellent condition.  I am curious also as to why it happened now.

 I have been on meds for the past 15 years.  Humira for the past year.  I will

be going to the dentist every week for awhile, I will let you know if I find

anything out if it relates to PA.I really really hope the heart disease doesn't

get me.  My rhuemy already told me my kidneys are probably only going to last me

another 10 years (damage from the meds and I had preeclampsia when I was

pregnant with my last son, that really did a number on them)

It is so frustrating.  I take my meds, vitamins, eat healthy, do yoga in the

mornings (really helps me with pain management), I walk everyday, I don't drink

or smoke, not overweight.  I just want to feel good!  Or at least how I should

feel for my age!  Granted I don't get enough sleep, not with a 2 year old and a

six year old.

thanks again!DJ in Tokyo

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Well it¹s nice to know I¹m not alone again...I¹ve been fighting a gum

infection now for over a year. I saw 3 specialists and none of them knew

what to do. So finally my family dentist cut in to the worst part of my gum

problem, let the infection drain out and I had a bridge installed over 6

teeth. Two of them were dead from the infection anyway. This worked great

for several months but now I¹ve noticed it¹s trying to come back. I bought

a super tooth brush from the dentist for $80 and it has been great. My

hands are so bad with arthritis that even brushing my teeth is a hardship

anymore. This brush does it all for me.

I¹m still fighting infections and root canals all over my gums, but that¹s

all I can do is fight them. I go on and off antibiotics all the time which

causes problems in itself. I¹m on Arava and I have been blaming it on that

for a long time, but I¹m getting ready to go on Simponi, and I never can

decide when to start it. I¹m never infection free anymore so how do you

know when it¹s going to make something worse, or things will just stay the

same? My rheumy wants me to take Simponi so I can cut down the prednisone,

which I take about 15-18mg a day depending on how bad things are. I also

have severe asthma and COPD, so I take prednisone for that as well as my

arthritis. I guess it¹s a matter of the devil you know versus the devil you

don¹t....

I¹m in so much pain anymore and I¹m on strong narcotics and still struggle

everyday to just exist. It¹s really hard to keep fighting all of this all

the time. Right now all of my joints are inflamed and several of them are

destroyed completely, but they don¹t think my lungs are strong enough for

surgery. Who knows anymore?

I²m not expecting any answers, just chiming in on the gum disease. Take

care, Fran in Florida

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